2 long weeks!

[Merema]

Hi All,

I posted few weeks ago re my daughters visit to a new Endo, He was awful, condescending, rude, vague with a , Im the Dr attitude, I know it all"

I myself have had my thyroid condition for 30 years, I know a thing or two . Well he was awful and other than offering my daughter Ozempic and ordering 2 biopsies on 2 nodules. He did nothing.

So he said she needed a biopsy cause nodule grew, the radiologist wrote has increased but has previously been biopsied. I said to this awful Dr, " what's the point ? This nodule was deemed indeterminate 11 mos ago and underwent molecular testing with a result of less than 1% chance of malignancy! He had nothing to say.

My daughter now frightened underwent the 2 biopsy. One benign. The other low n behold indeterminate ( no surprise) so now cytologist sends it to molecular AGAIN, which btw I don't think insurance will cover. Results are in less than 1% cance of malignancy. It's probably adenoma she has MNG . So after her stressing 2 weeks and being subjected to biopsy , now we are in search of a Dr . I've been following Save Your Thyroid podcast and we will be calling a few Drs that do RFA on nodules.

So that's the update thanks to all that weighed in

All I want to say is some of these Drs aren't worth their salt!

[jrbarnes]

I had half my thyroid removed due to a hurthle cell adenoma. I sure wish RFA would have been an option at the time. I had RFA on a painful uterine fibroid and it was the easiest and most painless procedure.

[Merema in reply to jrbarnes]

Hi yes RFA is saving thyroids in some people. I myself undergo cervical RFA 2x /year due to severe neck pain. They ablate the nerves and I am pain free .

We live in NY and have found a few Drs in the city doing RFA. I understand it's been in Europe for years compared to the US. Also not sure bout insurance covering this but either way she's going ahead with this. Now in search of a new Endo to address her actual hypo symptoms instead of saying , " try Ozempic "! He annoyed me sooooo much.

[jrbarnes in reply to Merema]

I couldn't believe United healthcare wouldn't cover the Acessa RFA treatment for uterine fibroids so I paid for it out of pocket. I wasn't going to let anyone perform a myomectomy in my uterus. At the time there were only two doctors performing this procedure in my area. I also took part in a study for 3 years after the procedure because their goal was to get it recognized and covered by insurance. There must be a sadist at the insurance company that has decided they don't want women to have painless and easy procedures. Would definitely suggest that she go the RFA route even if she has to pay out of pocket.

[Merema in reply to jrbarnes]

Just want to add, sorry bout what happened with you. Molecular testing was not available in 2007. This technology is moving in a great direction for thyroid nodules. I watched a podcast saying that molecular testing has cut surgery 50%. Also said in the near future AI will play a huge role in diagnosing the indeterminate Bethesda 3&4s.

[Kowbie]

Merima I think you’re hit the nail right on the head