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Upcoming hospital appointment
I was diagnosed with a 25mm AN last October. It totally came out of the blue. I'd been suffering from Long Covid for over a year and I started to have dizziness and body veer to the left when walking. I was also struggling with being in a room where multiple conversations were happening, as I couldn't
I was diagnosed with a 25mm AN last October. It totally came out of the blue. I'd been suffering from Long Covid for over a year and I started to have dizziness and body veer to the left when walking. I was also struggling with being in a room where multiple conversations were happening, as I couldn't
EssEmBee
in
Acoustic Neuroma Support
4 months ago
Covid vaccine
this morning I paid for a Covid vaccine £65. I was given the Novavax. Excellent service, not far to travel but annoying that I was not given it on the NHS as live with someone who is clinically extremely vulnerable.
this morning I paid for a Covid vaccine £65. I was given the Novavax. Excellent service, not far to travel but annoying that I was not given it on the NHS as live with someone who is clinically extremely vulnerable.
Main1234
in
Vasculitis UK
4 months ago
PMR and covid vaccination
I’ve been asked to have a seasonal covid vaccination because of my weakened autoimmune system, due to PMR. There’s a lot online about covid vaccines and PMR, mainly about PMR onset after a vaccination. Does anyone know if there’s any evidence between a seasonal vaccination and worsening of PMR symptoms
I’ve been asked to have a seasonal covid vaccination because of my weakened autoimmune system, due to PMR. There’s a lot online about covid vaccines and PMR, mainly about PMR onset after a vaccination. Does anyone know if there’s any evidence between a seasonal vaccination and worsening of PMR symptoms
Freshairfiend
in
PMRGCAuk
4 months ago
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When on a weekly dose of Pegasys is it ok to occasionally alter the day you inject?
Hi everyone, I’m about to try Pegasys in a few weeks time on a weekly dose of 45. If I get any unpleasant side effects I wondered if occasionally it’s ok to put back the usual day of injecting by 24 hours if I had something special on the day of the injection. I forgot to ask my haematologist at my appointment
Hi everyone, I’m about to try Pegasys in a few weeks time on a weekly dose of 45. If I get any unpleasant side effects I wondered if occasionally it’s ok to put back the usual day of injecting by 24 hours if I had something special on the day of the injection. I forgot to ask my haematologist at my appointment
Na56
in
MPN Voice
6 months ago
Pes Anserine Bursitis - steroid injection offered.
On Thursday I had an appointment with a rheumatologist who had previously been quite impatient and dismissive of me. I made up my mind to give him the briefest details of my woes over the last 9 months. (This is a 6 monthly appointment 😂). He was happy for me to continue with my slow tapering and then
On Thursday I had an appointment with a rheumatologist who had previously been quite impatient and dismissive of me. I made up my mind to give him the briefest details of my woes over the last 9 months. (This is a 6 monthly appointment 😂). He was happy for me to continue with my slow tapering and then
Sukydee
in
PMRGCAuk
4 months ago
Ibrance and Anastrozole for Endometrial Cancer - Is anybody else on this regimen?
Hello, I live in the U.S. I am on Ibrance and Anastrozole for ER+ PR+ HER2- endometrial cancer for over 5 ½ years. I was originally diagnosed in 2015 and had two recurrences. Now I am in remission. In the U.S., I am not meeting people (on online forums or in real life) that are on the same regimen
Hello, I live in the U.S. I am on Ibrance and Anastrozole for ER+ PR+ HER2- endometrial cancer for over 5 ½ years. I was originally diagnosed in 2015 and had two recurrences. Now I am in remission. In the U.S., I am not meeting people (on online forums or in real life) that are on the same regimen
Merma
in
Gynae Cancer Support
1 year ago
do I need the spring Covid shot?
I have had 7 covid shots since the start of Covid. On October 10 of 2023 I received the Moderna bivalent booster, as well as the flu shot and RSV shot. I came down with Covid, for the second time, on March 20 of 2024. First time was April of 2022, I am doing fine now. My wife tells me she received
I have had 7 covid shots since the start of Covid. On October 10 of 2023 I received the Moderna bivalent booster, as well as the flu shot and RSV shot. I came down with Covid, for the second time, on March 20 of 2024. First time was April of 2022, I am doing fine now. My wife tells me she received
Claybuster
in
CLL Support
4 months ago
Awful repeated behaviours of hospital staff
Sadly once again I have had to go into hospital, Leighton Hospital in Crewe in England. I have lung damage caused by 3 severe bouts of Covid infections, two of which were caught within the hospital, the third from my husbands Carer. Although there are doctors at this hospital who have saved my life
Sadly once again I have had to go into hospital, Leighton Hospital in Crewe in England. I have lung damage caused by 3 severe bouts of Covid infections, two of which were caught within the hospital, the third from my husbands Carer. Although there are doctors at this hospital who have saved my life
HilsK
in
Restless Legs Syndrome
4 months ago
covid shot
hello , I just had another Covid shot, and each time I have had a large swollen lymph node I Under the arm where I had the injection, but this time I have two swollen under the arm and one just above the collar bone. Also a bit of a rash on that left arm. I’m trying warm wet compress to help . Anyone
hello , I just had another Covid shot, and each time I have had a large swollen lymph node I Under the arm where I had the injection, but this time I have two swollen under the arm and one just above the collar bone. Also a bit of a rash on that left arm. I’m trying warm wet compress to help . Anyone
Grandmajoanie
in
CLL Support
4 months ago
I am nervous
Today was a rough day and I do t know what I am going to do in two weeks I’m so nervous. For the past month or so I have been getting injections done on my back it started out with steroid injections that didn’t work.. After a couple of them the Dr. switched them up and decided to do the arthritic
Today was a rough day and I do t know what I am going to do in two weeks I’m so nervous. For the past month or so I have been getting injections done on my back it started out with steroid injections that didn’t work.. After a couple of them the Dr. switched them up and decided to do the arthritic
Dolphfan47
in
Anxiety and Depression Support
4 months ago
my dental pain
ive been on metronidazole for 5 days x 3 doses a day , now my pain is back , i cant take most other antibioitics , will ring dentist in the morning . metronidazole wasnt nice made me feel bad but while taking seemed too work . help please ! i have had a bowel infection before this
ive been on metronidazole for 5 days x 3 doses a day , now my pain is back , i cant take most other antibioitics , will ring dentist in the morning . metronidazole wasnt nice made me feel bad but while taking seemed too work . help please ! i have had a bowel infection before this
peterfromlondon
in
Pain Concern
4 months ago
shingles jab anyone?
I had a very bad bout of shingles three years ago. Yesterday my doctors surgery rang to say I qualified for a jab! I tried to ask if it was worthwhile for someone who had already had shingles and was told she was the receptionist! Fair enough but then you can’t speak to a medic anymore Any thoughts
I had a very bad bout of shingles three years ago. Yesterday my doctors surgery rang to say I qualified for a jab! I tried to ask if it was worthwhile for someone who had already had shingles and was told she was the receptionist! Fair enough but then you can’t speak to a medic anymore Any thoughts
Green230461
in
NRAS
2 months ago
Help me! behcet syndrome with tuberculosis
Hello, I have had Behcet's disease for 10 years, which does not respond to treatment, and after treatment with infliximab and mycophenolate mofetil, I have perianal fistula, skin abscesses, severe heartburn, cystitis, prostatitis, night sweats, inguinal lymphadenopathy, and weight loss. ... I have become
Hello, I have had Behcet's disease for 10 years, which does not respond to treatment, and after treatment with infliximab and mycophenolate mofetil, I have perianal fistula, skin abscesses, severe heartburn, cystitis, prostatitis, night sweats, inguinal lymphadenopathy, and weight loss. ... I have become
Hulusi
in
Behçet's UK
6 months ago
Covid Booster and Methotrexate
I had my Moderna covid booster jab yesterday, I should have my methotrexate injection today but I have been advised by Nurse Specialist not to have methotrexate for 2 weeks after a covid booster!!Advice please is the above advice correct..
I had my Moderna covid booster jab yesterday, I should have my methotrexate injection today but I have been advised by Nurse Specialist not to have methotrexate for 2 weeks after a covid booster!!Advice please is the above advice correct..
agnesmay
in
Arthritis Action
4 months ago
Covid 19
bonsoir lovelies Oh dear… In the last week I have had two separate invites from two sources.. Book in for your Covid 19 spring booster 🤦♀️ never had one in the first place👀👀clown world🤡Hard to believe isn’t it
bonsoir lovelies Oh dear… In the last week I have had two separate invites from two sources.. Book in for your Covid 19 spring booster 🤦♀️ never had one in the first place👀👀clown world🤡Hard to believe isn’t it
adenough
in
Lung Conditions Community Forum
4 months ago
Technical help!
Hello! I'm wanting to post my Regenerus Cortisol results. Could any tech savvy person tell me the easiet/quickest way, using Edge, Word, etc. to black out my personal details on the PDF which Regenerus send with the graph of your results etc. and then get it into a format which can be uploaded in
Hello! I'm wanting to post my Regenerus Cortisol results. Could any tech savvy person tell me the easiet/quickest way, using Edge, Word, etc. to black out my personal details on the PDF which Regenerus send with the graph of your results etc. and then get it into a format which can be uploaded in
Sneedle
in
Thyroid UK
1 year ago
Flu and Pneumonia vaccinations
I was wondering if having the Flu shot or Pneumonia shot causes AFib episodes like COVID did.
I was wondering if having the Flu shot or Pneumonia shot causes AFib episodes like COVID did.
Shayshell
in
Atrial Fibrillation Support
2 months ago
severe covid vaccine reaction, & ibuprofen
After 4 or 5 covid vaccines with very minimal side effects , the most recent vaccine left me sick with fever and several lymph nodes swelling up within a few days. 2 nodes in armpit under the vaccine were extremely swollen and very painful. so much so, that I could not sleep on that side for weeks
After 4 or 5 covid vaccines with very minimal side effects , the most recent vaccine left me sick with fever and several lymph nodes swelling up within a few days. 2 nodes in armpit under the vaccine were extremely swollen and very painful. so much so, that I could not sleep on that side for weeks
humaniquarian
in
CLL Support
4 months ago
Covid booster
Hi, just saying, I had the Covid booster on Monday ,on Tuesday I was extremely ill , Temperature of 38.6 ,tremors on and of all day , face swollen ,hearing totally gone , very cold but burning inside ,and nauseous ( but no rash ) all my Vasculitis symptoms, as well as the Covid booster affects ,violent
Hi, just saying, I had the Covid booster on Monday ,on Tuesday I was extremely ill , Temperature of 38.6 ,tremors on and of all day , face swollen ,hearing totally gone , very cold but burning inside ,and nauseous ( but no rash ) all my Vasculitis symptoms, as well as the Covid booster affects ,violent
jackrussell
in
Vasculitis UK
4 months ago
Tetanus
Not too far back there was a discussion about having a Tetanus shot, might help PD. I tried a search and came up with only one 2 year old post. No very Techy. Can someone help me find the link to that discussion? Thank you
Not too far back there was a discussion about having a Tetanus shot, might help PD. I tried a search and came up with only one 2 year old post. No very Techy. Can someone help me find the link to that discussion? Thank you
Ghmac
in
Cure Parkinson's
2 months ago
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