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Headaches / update, also Spring Covid Vaccine update.
I was grateful for everyone’s’ replies to my recent post and I telephoned my Haematologist who advised a blood test and to see a doctor as soon as possible If I couldn’t see my GP the Haematologist said they’d fit me in at the hospital clinic. However, I had a full blood test that day at my G.P’s and
I was grateful for everyone’s’ replies to my recent post and I telephoned my Haematologist who advised a blood test and to see a doctor as soon as possible If I couldn’t see my GP the Haematologist said they’d fit me in at the hospital clinic. However, I had a full blood test that day at my G.P’s and
azaelea
in
MPN Voice
3 months ago
Covid booster
I had my Covid booster jab yesterday,my ibs was settling down ,but has got worse since I had it.Has anybody else experienced this ?
I had my Covid booster jab yesterday,my ibs was settling down ,but has got worse since I had it.Has anybody else experienced this ?
mousey1
in
IBS Network
3 months ago
Gods beautiful creations
Last week I was able to ski with a bunch of my grandkids and all my pics were of them. Some days I felt ill but it was so worth it Today I went snowshoeing in a snow storm. What a peaceful serene setting on those snow covered paths nestled in the pines. Even the village where the trail system begins
Last week I was able to ski with a bunch of my grandkids and all my pics were of them. Some days I felt ill but it was so worth it Today I went snowshoeing in a snow storm. What a peaceful serene setting on those snow covered paths nestled in the pines. Even the village where the trail system begins
skipro
in
CLL Support
5 months ago
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First time COVID
I got really poorly on the 7th September last year, I phoned the doctors and they wouldn't see me at all, don't really blame them, they are under so much strain.I phoned 111 and when I told them me my illnesses, they wanted to send an ambulance, three different people I talked to all wanted to send an
I got really poorly on the 7th September last year, I phoned the doctors and they wouldn't see me at all, don't really blame them, they are under so much strain.I phoned 111 and when I told them me my illnesses, they wanted to send an ambulance, three different people I talked to all wanted to send an
Itsmeok
in
Lung Conditions Community Forum
3 months ago
Started peginterferon alpha 2a treatment
Just recently started the above treatment on the 31st January this year but my oldest daughter has just found out shes 9weeks pregnant and i forgot to ask my consultant if it was ok that on my treatment day is it ok to be around her eg as in she comes to my house to visit or is it similar to chemo treatments
Just recently started the above treatment on the 31st January this year but my oldest daughter has just found out shes 9weeks pregnant and i forgot to ask my consultant if it was ok that on my treatment day is it ok to be around her eg as in she comes to my house to visit or is it similar to chemo treatments
Purplechoclover
in
MPN Voice
5 months ago
Reactions to COVID boosters
Hi, I've been getting the COVID boosters in the UK on a regular basis, but my reaction each time has gotten worse. With the one six months ago and the one last week, I was wiped out for 24 hours afterward, which hadn't happened with the previous boosters. The pharmacist last week was surprised at my
Hi, I've been getting the COVID boosters in the UK on a regular basis, but my reaction each time has gotten worse. With the one six months ago and the one last week, I was wiped out for 24 hours afterward, which hadn't happened with the previous boosters. The pharmacist last week was surprised at my
SAT_poet
in
CLL Support
3 months ago
Has anyone gone from Pegasys to Besremi?
Hi all, I am a 65 year old woman in the US with ET. My hematologist has had me on Pegasys for 2 years now, starting with 45 mcg, then 90 mcg injected once a week. Originally my platelets were in the high 400's and have crept up even with the injections and are now at 610. He had me go up to 135 mcg
Hi all, I am a 65 year old woman in the US with ET. My hematologist has had me on Pegasys for 2 years now, starting with 45 mcg, then 90 mcg injected once a week. Originally my platelets were in the high 400's and have crept up even with the injections and are now at 610. He had me go up to 135 mcg
ET625
in
MPN Voice
5 months ago
I am nervous
Today was a rough day and I do t know what I am going to do in two weeks I’m so nervous. For the past month or so I have been getting injections done on my back it started out with steroid injections that didn’t work.. After a couple of them the Dr. switched them up and decided to do the arthritic
Today was a rough day and I do t know what I am going to do in two weeks I’m so nervous. For the past month or so I have been getting injections done on my back it started out with steroid injections that didn’t work.. After a couple of them the Dr. switched them up and decided to do the arthritic
Dolphfan47
in
Anxiety and Depression Support
3 months ago
reasons for bad balance/dizzziness
I have identified 5 possible reasons for dizziness/lack of balance. 1. decreasing rasagiline too quickly 2. too much carbidopa 3. nOH (neurogenic orthostatic hypotension) Can be caused by rasagilene+rytary) 4. side effect of midodrine (increases when combined with rasagiline) 5. BPPV (a sort
I have identified 5 possible reasons for dizziness/lack of balance. 1. decreasing rasagiline too quickly 2. too much carbidopa 3. nOH (neurogenic orthostatic hypotension) Can be caused by rasagilene+rytary) 4. side effect of midodrine (increases when combined with rasagiline) 5. BPPV (a sort
pmmargo
in
Cure Parkinson's
5 months ago
Taking Blood Sample (Help)
I recently took a blood sample for Monitor My Health - just to get my vitamin D done . I made a complete mess of it - (I should have used the simple method of the drops of blood on the card using another company but completely forgot about it). Something happened my blood in the process and they
I recently took a blood sample for Monitor My Health - just to get my vitamin D done . I made a complete mess of it - (I should have used the simple method of the drops of blood on the card using another company but completely forgot about it). Something happened my blood in the process and they
Sunflower535
in
Thyroid UK
5 months ago
turning off loved ones life support
hi all, I wrote a few weeks back about how my dad was in the ICU with a perforated duodenum ulcer and consequently got sepsis shock leading to multi organ failure. In total he was in hospital for over 3 weeks and had two surgery’s during this time. Through out the whole ordeal I had so much hope and
hi all, I wrote a few weeks back about how my dad was in the ICU with a perforated duodenum ulcer and consequently got sepsis shock leading to multi organ failure. In total he was in hospital for over 3 weeks and had two surgery’s during this time. Through out the whole ordeal I had so much hope and
Angelfran123
in
ICUsteps
5 months ago
common cold lingers
back in April 2020 i had covid the first time (that was early before we knew anything) since then when i get a cold (head cold, sinus infection, common cold) i notice that i feel bad for like 3-5 days but i will have a lingering cough for like a 5-10 days afterwards. i was blaming it on covid and the
back in April 2020 i had covid the first time (that was early before we knew anything) since then when i get a cold (head cold, sinus infection, common cold) i notice that i feel bad for like 3-5 days but i will have a lingering cough for like a 5-10 days afterwards. i was blaming it on covid and the
pete-paz
in
CLL Support
24 days ago
Upcoming hospital appointment
I was diagnosed with a 25mm AN last October. It totally came out of the blue. I'd been suffering from Long Covid for over a year and I started to have dizziness and body veer to the left when walking. I was also struggling with being in a room where multiple conversations were happening, as I couldn't
I was diagnosed with a 25mm AN last October. It totally came out of the blue. I'd been suffering from Long Covid for over a year and I started to have dizziness and body veer to the left when walking. I was also struggling with being in a room where multiple conversations were happening, as I couldn't
EssEmBee
in
Acoustic Neuroma Support
3 months ago
Covid vaccine
this morning I paid for a Covid vaccine £65. I was given the Novavax. Excellent service, not far to travel but annoying that I was not given it on the NHS as live with someone who is clinically extremely vulnerable.
this morning I paid for a Covid vaccine £65. I was given the Novavax. Excellent service, not far to travel but annoying that I was not given it on the NHS as live with someone who is clinically extremely vulnerable.
Main1234
in
Vasculitis UK
3 months ago
PMR and covid vaccination
I’ve been asked to have a seasonal covid vaccination because of my weakened autoimmune system, due to PMR. There’s a lot online about covid vaccines and PMR, mainly about PMR onset after a vaccination. Does anyone know if there’s any evidence between a seasonal vaccination and worsening of PMR symptoms
I’ve been asked to have a seasonal covid vaccination because of my weakened autoimmune system, due to PMR. There’s a lot online about covid vaccines and PMR, mainly about PMR onset after a vaccination. Does anyone know if there’s any evidence between a seasonal vaccination and worsening of PMR symptoms
Freshairfiend
in
PMRGCAuk
3 months ago
do I need the spring Covid shot?
I have had 7 covid shots since the start of Covid. On October 10 of 2023 I received the Moderna bivalent booster, as well as the flu shot and RSV shot. I came down with Covid, for the second time, on March 20 of 2024. First time was April of 2022, I am doing fine now. My wife tells me she received
I have had 7 covid shots since the start of Covid. On October 10 of 2023 I received the Moderna bivalent booster, as well as the flu shot and RSV shot. I came down with Covid, for the second time, on March 20 of 2024. First time was April of 2022, I am doing fine now. My wife tells me she received
Claybuster
in
CLL Support
3 months ago
Awful repeated behaviours of hospital staff
Sadly once again I have had to go into hospital, Leighton Hospital in Crewe in England. I have lung damage caused by 3 severe bouts of Covid infections, two of which were caught within the hospital, the third from my husbands Carer. Although there are doctors at this hospital who have saved my life
Sadly once again I have had to go into hospital, Leighton Hospital in Crewe in England. I have lung damage caused by 3 severe bouts of Covid infections, two of which were caught within the hospital, the third from my husbands Carer. Although there are doctors at this hospital who have saved my life
HilsK
in
Restless Legs Syndrome
3 months ago
covid shot
hello , I just had another Covid shot, and each time I have had a large swollen lymph node I Under the arm where I had the injection, but this time I have two swollen under the arm and one just above the collar bone. Also a bit of a rash on that left arm. I’m trying warm wet compress to help . Anyone
hello , I just had another Covid shot, and each time I have had a large swollen lymph node I Under the arm where I had the injection, but this time I have two swollen under the arm and one just above the collar bone. Also a bit of a rash on that left arm. I’m trying warm wet compress to help . Anyone
Grandmajoanie
in
CLL Support
3 months ago
my dental pain
ive been on metronidazole for 5 days x 3 doses a day , now my pain is back , i cant take most other antibioitics , will ring dentist in the morning . metronidazole wasnt nice made me feel bad but while taking seemed too work . help please ! i have had a bowel infection before this
ive been on metronidazole for 5 days x 3 doses a day , now my pain is back , i cant take most other antibioitics , will ring dentist in the morning . metronidazole wasnt nice made me feel bad but while taking seemed too work . help please ! i have had a bowel infection before this
peterfromlondon
in
Pain Concern
3 months ago
Covid Booster and Methotrexate
I had my Moderna covid booster jab yesterday, I should have my methotrexate injection today but I have been advised by Nurse Specialist not to have methotrexate for 2 weeks after a covid booster!!Advice please is the above advice correct..
I had my Moderna covid booster jab yesterday, I should have my methotrexate injection today but I have been advised by Nurse Specialist not to have methotrexate for 2 weeks after a covid booster!!Advice please is the above advice correct..
agnesmay
in
Arthritis Action
3 months ago
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