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Beginning the journey
Hi all, Apologies for the rambling of my first post but I was wondering if anyone had any advice for me please. I’ve always suffered from painful periods - to the point where I would vomit with the pain in my teenage years but once started on the pill (Loestrin 20) this became manageable and I’d take
Hi all, Apologies for the rambling of my first post but I was wondering if anyone had any advice for me please. I’ve always suffered from painful periods - to the point where I would vomit with the pain in my teenage years but once started on the pill (Loestrin 20) this became manageable and I’d take
LilGem88
in
Endometriosis UK
3 years ago
Whirlwind emotional rollercoaster
Hi everyone, just needed to pop in here to share what happened this week… I had my laparoscopy and hysteroscopy appointment booked for Monday, was mentally prepared. They got me booked in did my blood pressure and urine test. About 5 mins before I’m due to go to theatre my consultant comes in and asks
Hi everyone, just needed to pop in here to share what happened this week… I had my laparoscopy and hysteroscopy appointment booked for Monday, was mentally prepared. They got me booked in did my blood pressure and urine test. About 5 mins before I’m due to go to theatre my consultant comes in and asks
VinoTinto
in
Endometriosis UK
3 years ago
Surgery fears
Hi there, I'm having surgery next month to confirm if my symptoms are indeed caused by endo. I don't know if it is just me but I've been having these horrible dreams where they perform the surgery and don't find any sign of endo, or I'm at a gynaecologist appointment and the doctor doesn't believe my
Hi there, I'm having surgery next month to confirm if my symptoms are indeed caused by endo. I don't know if it is just me but I've been having these horrible dreams where they perform the surgery and don't find any sign of endo, or I'm at a gynaecologist appointment and the doctor doesn't believe my
Loverretro
in
Endometriosis UK
3 years ago
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Mirena coil swap
Hello, I suffer with endo and had a lap back in 2017, for the past 12 months I've been suffering pain during and after my period...up to 2 weeks pain. The exhaustion is back as well as the weekly migraines which have me laid up in bed. I have to take iron tablets 3x day due to the amount of blood loss
Hello, I suffer with endo and had a lap back in 2017, for the past 12 months I've been suffering pain during and after my period...up to 2 weeks pain. The exhaustion is back as well as the weekly migraines which have me laid up in bed. I have to take iron tablets 3x day due to the amount of blood loss
Shieldmaiden32
in
Endometriosis UK
3 years ago
Thought it was under control after years of multiple serious surgeries and diet changes but now facing new battles - any advice welcome
Hello all, I was diagnosed with endometriosis aged 21 after 8 years of awful problems and symptoms. After my first laparoscopy I was initially told it was “just a few spots of endometriosis” and my options were chemically induced menopause (gnrh and add back HRT) or to get pregnant and they fitted
Hello all, I was diagnosed with endometriosis aged 21 after 8 years of awful problems and symptoms. After my first laparoscopy I was initially told it was “just a few spots of endometriosis” and my options were chemically induced menopause (gnrh and add back HRT) or to get pregnant and they fitted
Greys90
in
Endometriosis UK
3 years ago
Ashermans, thin lining, low ovarian reserve, poor responder.. trying ivf one last time with donor sperm for possible surrogacy if lucky
After many years of having a Mirena coil for heavy periods, my then partner and I decided to start to try for a baby. I thought it was strange that when I had the coil out my periods remained just as light as when I had it in. I decided to do some hormone tests, and discovered I had a high prolactin
After many years of having a Mirena coil for heavy periods, my then partner and I decided to start to try for a baby. I thought it was strange that when I had the coil out my periods remained just as light as when I had it in. I decided to do some hormone tests, and discovered I had a high prolactin
Hidden
in
Infertility Support
3 years ago
Post hysterectomy- endo and adenomyosis. Questions welcome!
Hi. So. My story starts like most. Painful, heavy periods but mine started when I was 13. I'm 41 now and was only 'officially' diagnosed with Endo in Feb 2020 after a lap during which they found an ovarian cyst so big it was touching my kidney. They found stage 4 endo all over the fallopian tube and
Hi. So. My story starts like most. Painful, heavy periods but mine started when I was 13. I'm 41 now and was only 'officially' diagnosed with Endo in Feb 2020 after a lap during which they found an ovarian cyst so big it was touching my kidney. They found stage 4 endo all over the fallopian tube and
Freddie20620
in
Endometriosis UK
3 years ago
Ashermans syndrome, endometrium 2.5mm, poor responder, trying ICSI one last time for surrogacy
Hi everyone, I’ve started a short protocol this week 450 Ovaleap to combine with Menopur from day 8 to try and get a blastocyst to freeze for potential surrogacy After many years of having a Mirena coil for heavy periods, my then partner and I decided to start to try for a baby. I thought it was strange
Hi everyone, I’ve started a short protocol this week 450 Ovaleap to combine with Menopur from day 8 to try and get a blastocyst to freeze for potential surrogacy After many years of having a Mirena coil for heavy periods, my then partner and I decided to start to try for a baby. I thought it was strange
Hidden
in
Fertility Network UK
3 years ago
Endometriosis and ADHD !
Hey ladies. I am currently waiting for my first laposcopy. In horrendous pain at the mo following having the mirena removed after 10 months. It really effected my ADHD because of the progesterone in it. The nurse has said that all other treatments for endo are progesterone based and suggested a hysterectomy
Hey ladies. I am currently waiting for my first laposcopy. In horrendous pain at the mo following having the mirena removed after 10 months. It really effected my ADHD because of the progesterone in it. The nurse has said that all other treatments for endo are progesterone based and suggested a hysterectomy
VicB8t
in
Endometriosis UK
3 years ago
Undiagnosed endo, lap and biopsy next week
Hi everyone I’m new here but have been lurking reading your posts which have helped, thank you. I’ve suffered with pain that takes my breath away at times, hip pain, reoccurring ovarian cysts, rosacea, bloating irregular periods and constipation for a few years. It’s got worse the past two. I’ve got
Hi everyone I’m new here but have been lurking reading your posts which have helped, thank you. I’ve suffered with pain that takes my breath away at times, hip pain, reoccurring ovarian cysts, rosacea, bloating irregular periods and constipation for a few years. It’s got worse the past two. I’ve got
VinoTinto
in
Endometriosis UK
3 years ago
Why isn’t body identical progesterone (Utrogestan) used to treat endometriosis? Surely it could help & less side effects than synthetic.
I’ve been wondering about this for a while. With the theory being that oestrogen stimulates endometriosis and progesterone suppresses it, why have I only ever been put on synthetic forms of progesterone? I’ve been on the contraceptive pill, depot provera, Mirena coil and Prostap injections. All of them
I’ve been wondering about this for a while. With the theory being that oestrogen stimulates endometriosis and progesterone suppresses it, why have I only ever been put on synthetic forms of progesterone? I’ve been on the contraceptive pill, depot provera, Mirena coil and Prostap injections. All of them
Nikkky
in
Endometriosis UK
3 years ago
TTC 2+ years after first lap?
I was wondering if anyone had a mirena IUD at their first lap, kept it for a few years and then tried to conceive? Any issues? I’d love to hear your stories!
I was wondering if anyone had a mirena IUD at their first lap, kept it for a few years and then tried to conceive? Any issues? I’d love to hear your stories!
midwifewithendo
in
Endometriosis UK
3 years ago
Freezing eggs before first lap?
TW; enquiring about fertility experiences Hi everyone. I just wanted to introduce myself and ask if anyone had similar experiences to me and could offer some insight. I’m 24 years old, been suffering with endo symptoms since I was 14 years old and just got diagnosed by ultrasound and MRI with Stage
TW; enquiring about fertility experiences Hi everyone. I just wanted to introduce myself and ask if anyone had similar experiences to me and could offer some insight. I’m 24 years old, been suffering with endo symptoms since I was 14 years old and just got diagnosed by ultrasound and MRI with Stage
midwifewithendo
in
Endometriosis UK
3 years ago
Mirena Coil
Hey Ladies, I was wondering if you got the mirena coil fitted, how long does the cramping last? I have endo and polycystic ovaries and got the coil fitted on Monday and the cramps feels like day 1 of my period. I get cramps during the day and at night. I’ve been taking co cocodamol and ibuprofen tablets
Hey Ladies, I was wondering if you got the mirena coil fitted, how long does the cramping last? I have endo and polycystic ovaries and got the coil fitted on Monday and the cramps feels like day 1 of my period. I get cramps during the day and at night. I’ve been taking co cocodamol and ibuprofen tablets
Yas45
in
Endometriosis UK
3 years ago
Pain Team Referral
Hi Everyone, When I saw my consultant back in May, she suggested for me to go on to the pill to control pain and symptoms alongside the Mirena coil. However, after discussions with my partner it was decided that maybe the pill was not a good idea, due to my already mood swings and previous worsening
Hi Everyone, When I saw my consultant back in May, she suggested for me to go on to the pill to control pain and symptoms alongside the Mirena coil. However, after discussions with my partner it was decided that maybe the pill was not a good idea, due to my already mood swings and previous worsening
GreenQueen-99
in
Endometriosis UK
3 years ago
Off Zoladex - feel awful! Please help!
Hi everyone, I really need some support please. I had a lap in October last year that diagnosed stage 4 endo, and then severe post-surgery bleeding. I had a course of Zoladex as an attempt to stop the bleeding from December to May, last dose in May 2021. I also have a Mirena coil, fitted during surgery
Hi everyone, I really need some support please. I had a lap in October last year that diagnosed stage 4 endo, and then severe post-surgery bleeding. I had a course of Zoladex as an attempt to stop the bleeding from December to May, last dose in May 2021. I also have a Mirena coil, fitted during surgery
G3miniStar
in
Endometriosis UK
3 years ago
Failed Hysteroscopy - next steps
Hi I have been diagnosed with endometriosis for about 12 years with varying levels of symptoms and problems over thar time. The last 12 months or so things have been worse and my periods are very irregular and pain increased a lot. I went for a hysteroscopy yesterday and due to bleeding and pain it wasn't
Hi I have been diagnosed with endometriosis for about 12 years with varying levels of symptoms and problems over thar time. The last 12 months or so things have been worse and my periods are very irregular and pain increased a lot. I went for a hysteroscopy yesterday and due to bleeding and pain it wasn't
DKat
in
Endometriosis UK
3 years ago
Prolonged spotting
Hey guys, I had my first lap to remove endo and an ovarian cyst just under 6 months ago, at the same time I at a mirena coil fitted to reduce pain and symptoms. I thought my my periods would have settled after the coil, which it did for the first few months but I’ve been spotted dark brow discharge for
Hey guys, I had my first lap to remove endo and an ovarian cyst just under 6 months ago, at the same time I at a mirena coil fitted to reduce pain and symptoms. I thought my my periods would have settled after the coil, which it did for the first few months but I’ve been spotted dark brow discharge for
greenleaf1997
in
Endometriosis UK
3 years ago
PMDD and endometriosis
Hi guys, thought i’d just ask some advice as last time I had some really lovely helpful responses. So i was very recently diagnosed with quite severe endometriosis, stage 3 with widespread endometrium and adhesions between several of my organs. I was wondering if endometriosis and Pre-menstrual dysphoric
Hi guys, thought i’d just ask some advice as last time I had some really lovely helpful responses. So i was very recently diagnosed with quite severe endometriosis, stage 3 with widespread endometrium and adhesions between several of my organs. I was wondering if endometriosis and Pre-menstrual dysphoric
berry16
in
Endometriosis UK
3 years ago
Visanne(dienogest)
Hello. I had my dreaded mirena coil removed yesterday, bit of a procedure as the strings were inside uterus etc but pleased it is out. I’ve been advised I will always need to take something for stage 4 endo and adeno as I’m only allowed one more surgery which is hysterectomy and likely colostomy bag.
Hello. I had my dreaded mirena coil removed yesterday, bit of a procedure as the strings were inside uterus etc but pleased it is out. I’ve been advised I will always need to take something for stage 4 endo and adeno as I’m only allowed one more surgery which is hysterectomy and likely colostomy bag.
Lily1986
in
Endometriosis UK
3 years ago
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