Hi
My husband who has MCTD for 20 years ( recently diagnosed with discoid lupus) has been offered rituximab. At the time it was offered , he had been recovering from acute liver failure ( hospital says cause unknown), this had limited the choice of medication he was offered.
Last week we were told that his liver levels had returned to near normal and the consultant stated he was happy for him to have any rheumatology drug( so long as he is monitored).
So the question is... do we wait until they ‘recruit ‘ a specialist nurse to administer this drug - is it worth the wait? Or try and get something else?
He’s previously tried many things , ...methotrexate and mycophenolate...etc
He’s presently only on steroids and not a happy bunny ( he’s in great pain).
Pop