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Experiences with
Mixed connective tissue disease (MCTD)
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About 'good' oils for NASH and NAFLD
I haven't been officially diagnosed, but believe this is my issue and has been for some time. I am going to overhaul diet and do what I can.... but I have a question about oils. I know all veg canola etc must be avoided. High quality olive oil is on your list to take daily. What about coconut oil
I haven't been officially diagnosed, but believe this is my issue and has been for some time. I am going to overhaul diet and do what I can.... but I have a question about oils. I know all veg canola etc must be avoided. High quality olive oil is on your list to take daily. What about coconut oil
mybox
in
Living with Fatty Liver and NASH
3 years ago
Could I have thyroid cancer?
I also have
MCTD
and my GP blames everything on this, the answer is always take some anti-inflammatories. Due to COVID I have not seen my rheumatologist for 2 years now. What should I request my GP to do? Many thanks.
I also have
MCTD
and my GP blames everything on this, the answer is always take some anti-inflammatories. Due to COVID I have not seen my rheumatologist for 2 years now. What should I request my GP to do? Many thanks.
llamehtdos
in
Thyroid UK
3 years ago
Allergic Reaction to Rituximab!What's the Alternatives?
She had 2 infusions of the Rituximab in May /June 2020 when she was newly diagnosed with
MCTD
& PH and was perfectly fine. She is now on Mycophenolate Mofetil 1g twice a day, 8mgs Prednisolone which she is titrating down slowly. Rheumy is waiting for approval for Ocrevus infusion for her.
She had 2 infusions of the Rituximab in May /June 2020 when she was newly diagnosed with
MCTD
& PH and was perfectly fine. She is now on Mycophenolate Mofetil 1g twice a day, 8mgs Prednisolone which she is titrating down slowly. Rheumy is waiting for approval for Ocrevus infusion for her.
Wangpaupau
in
NRAS
3 years ago
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Hi there, has anybody tried Baricitinib? What if any side effects were there please?
MCTD
RA
MCTD
RA
AMDP
in
Scleroderma & Raynaud's UK (SRUK)
3 years ago
Are these bloodwork results indicative of MCTD?
Everything I’ve read says positive RNP confirms
MCTD
, but can you have
MCTD
if the ANA is negative? Are there other causes for positive RNP? Just trying to get some answers. Any info to share would be greatly appreciated!!
Everything I’ve read says positive RNP confirms
MCTD
, but can you have
MCTD
if the ANA is negative? Are there other causes for positive RNP? Just trying to get some answers. Any info to share would be greatly appreciated!!
HeddaB
in
LUPUS UK
3 years ago
Face changes
Is this what happens when scleroderma and or
MCTD
effects the face please?
Is this what happens when scleroderma and or
MCTD
effects the face please?
AMDP
in
Scleroderma & Raynaud's UK (SRUK)
3 years ago
Iron supplementation and flares
I am not diagnosed with RA but have a
MCTD
which has features of RA, Lupus and Vasculitis. I have been on hydroxychloraquine for about 3 years which has helped a lot. One of the problems I have experienced over the last couple of years is anaemia.
I am not diagnosed with RA but have a
MCTD
which has features of RA, Lupus and Vasculitis. I have been on hydroxychloraquine for about 3 years which has helped a lot. One of the problems I have experienced over the last couple of years is anaemia.
123MrsG
in
NRAS
3 years ago
SOOO CONFUSED
I was diagnosed with
MCTD
or Undifferentiated connective tissue disease in 2014. More recently, doctors have been telling me that I either have SLE or MS. An MRI of my brain this past week showed "tiny spotty periventricular white matter FLAIR hypersignal intensities".
I was diagnosed with
MCTD
or Undifferentiated connective tissue disease in 2014. More recently, doctors have been telling me that I either have SLE or MS. An MRI of my brain this past week showed "tiny spotty periventricular white matter FLAIR hypersignal intensities".
Unraveled
in
My MSAA Community
3 years ago
What helps you with MCTD, SLE or MS???
I have found that a whole foods lower histamine diet helps some of my symptoms. Additionally, Bellaruth Naparstek CDs have helped as well. WHAT HAS HELPED YOU ON YOUR JOURNEY?
I have found that a whole foods lower histamine diet helps some of my symptoms. Additionally, Bellaruth Naparstek CDs have helped as well. WHAT HAS HELPED YOU ON YOUR JOURNEY?
Unraveled
in
My MSAA Community
3 years ago
Do medium-chain triglycerides downregulate mTOR?
I ran across some info about MCTs turning off mTOR and amping up AMPK (possibly resulting in an increase in autophagy and also lipolysis). Does anyone have any info on whether or not MCTs are potentially beneficial for prostate cancer?
I ran across some info about MCTs turning off mTOR and amping up AMPK (possibly resulting in an increase in autophagy and also lipolysis). Does anyone have any info on whether or not MCTs are potentially beneficial for prostate cancer?
Hidden
in
Advanced Prostate Cancer
3 years ago
Is this Raynaud's?
According to todays capillaroscopy there are no pathological changes that would indicate an increased risk of developing systemic sclerosis, dermatomyositis and
MCTD
. My rheumatologist ordered urethral swab for ureaplasma, mycoplasma and chlamydia, it came back negative for all 3.
According to todays capillaroscopy there are no pathological changes that would indicate an increased risk of developing systemic sclerosis, dermatomyositis and
MCTD
. My rheumatologist ordered urethral swab for ureaplasma, mycoplasma and chlamydia, it came back negative for all 3.
MNE4
in
Scleroderma & Raynaud's UK (SRUK)
3 years ago
Hi everyone,
I've recently been diagnosed with
mctd
and raynauds. The last few days my hands have been shaking, in the mornings in particular, and now today my legs are shaking also. Is this a symptom of
mctd
and is there any advice?
I've recently been diagnosed with
mctd
and raynauds. The last few days my hands have been shaking, in the mornings in particular, and now today my legs are shaking also. Is this a symptom of
mctd
and is there any advice?
Ygould
in
Scleroderma & Raynaud's UK (SRUK)
3 years ago
Facial numbness
Hi I was diagnosed with
MCTD
but I am convinced I have Lupus. Low white blood cell count, my antibodies are off range.
Hi I was diagnosed with
MCTD
but I am convinced I have Lupus. Low white blood cell count, my antibodies are off range.
Angelwings1234
in
LUPUS UK
3 years ago
Not Happy!!
Recently been told by haemotologist that my inflammation markers are through the roof, now on top of everything else, I either have RA, Lupus or
MCTD
. I'm not happy right now. Like I'm not dealing with enough already.
Recently been told by haemotologist that my inflammation markers are through the roof, now on top of everything else, I either have RA, Lupus or
MCTD
. I'm not happy right now. Like I'm not dealing with enough already.
Finalybeingheard
in
Sickle Cell Society
3 years ago
Keto diet - two weeks in
I have spent 2 weeks eating keto way with TRE (only breakfast and lunch, so no food after 4pm) and here are some of my experiences. I was worried about the amount of food I was eating, and my weight loss was not spectacular (1.6kg, and most of it during the first week), but I noticed a few extraordinary
I have spent 2 weeks eating keto way with TRE (only breakfast and lunch, so no food after 4pm) and here are some of my experiences. I was worried about the amount of food I was eating, and my weight loss was not spectacular (1.6kg, and most of it during the first week), but I noticed a few extraordinary
TheMoaningViolet
in
Low-Carb High-Fat (LCHF)
3 years ago
Mctd and Raynauds
Hi, Has anyone tries cbd oil and is it helpful? I would like to find alternatives pain relief etc. Thanks
Hi, Has anyone tries cbd oil and is it helpful? I would like to find alternatives pain relief etc. Thanks
Ygould
in
Scleroderma & Raynaud's UK (SRUK)
3 years ago
Raynauds
Morning all, I have recently been diagnosed with raynauds, I also have
mctd
. Any recommendations on how to keep on top of it and reduce symptoms?
Morning all, I have recently been diagnosed with raynauds, I also have
mctd
. Any recommendations on how to keep on top of it and reduce symptoms?
Ygould
in
Scleroderma & Raynaud's UK (SRUK)
3 years ago
Coconut oil and MCT oil
Hi, does anyone have a view on the benefits or harm in consuming coconut oil and/or 100% MCT oil, both generally and with respect to NAFLD?
Hi, does anyone have a view on the benefits or harm in consuming coconut oil and/or 100% MCT oil, both generally and with respect to NAFLD?
DBradley
in
Living with Fatty Liver and NASH
3 years ago
Remedies for Parkinson's constipation
This subject comes up a lot, so I figured it would be useful to post our collective wisdom in one place as a reference. As usual – what works for one may not work for another. So members of our club are invited to also post your remedies in the comments.
The causes of Parkinson's constipation
This subject comes up a lot, so I figured it would be useful to post our collective wisdom in one place as a reference. As usual – what works for one may not work for another. So members of our club are invited to also post your remedies in the comments.
The causes of Parkinson's constipation
park_bear
in
Cure Parkinson's
3 years ago
What Covid vaccination Group are you in?
I have
MCTD
(RA, Scleroderma, Raynauds & ? Lupus). I take no medication at present (was on plaquenil) and was going to discuss with my rheumatologist the possibility of starting Methotrexate following results of heart scan & lung tests -these I have had.
I have
MCTD
(RA, Scleroderma, Raynauds & ? Lupus). I take no medication at present (was on plaquenil) and was going to discuss with my rheumatologist the possibility of starting Methotrexate following results of heart scan & lung tests -these I have had.
llamehtdos
in
Scleroderma & Raynaud's UK (SRUK)
3 years ago
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