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Mixed connective tissue disease (MCTD)
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University of Cambridge research survey
This includes diseases such as Rheumatoid Arthritis (RA) and other inflammatory arthritis, lupus, Sjögren's, undifferentiated (UCTD) or mixed (
MCTD
) connective tissue disease, systemic sclerosis, PMR, Inflammatory muscle diseases, and vasculitis.
This includes diseases such as Rheumatoid Arthritis (RA) and other inflammatory arthritis, lupus, Sjögren's, undifferentiated (UCTD) or mixed (
MCTD
) connective tissue disease, systemic sclerosis, PMR, Inflammatory muscle diseases, and vasculitis.
Jo-Goode
Administrator
in
Myositis UK
2 years ago
Please take part in this patient survey from the University of Cambridge if you haven't already!
This includes diseases such as Rheumatoid Arthritis (RA) and other inflammatory arthritis, lupus, Sjögren's, undifferentiated (UCTD) or mixed (
MCTD
) connective tissue disease, systemic sclerosis, PMR, Inflammatory muscle diseases, and vasculitis.
This includes diseases such as Rheumatoid Arthritis (RA) and other inflammatory arthritis, lupus, Sjögren's, undifferentiated (UCTD) or mixed (
MCTD
) connective tissue disease, systemic sclerosis, PMR, Inflammatory muscle diseases, and vasculitis.
Chanpreet_Walia
LUPUS UK
in
LUPUS UK
2 years ago
Mycophenolate and possible Covid
I’m on the maximum dose and yes a bit symptomatic but then it’s hard to tell as always am ie dry cough silent reflux headaches flu like sniffles due to weather and hay fever etc Have scleroderma/
MCTD
/ Sjogrens so will ask this on lupus site too as more people there so thought best to ask on both.
I’m on the maximum dose and yes a bit symptomatic but then it’s hard to tell as always am ie dry cough silent reflux headaches flu like sniffles due to weather and hay fever etc Have scleroderma/
MCTD
/ Sjogrens so will ask this on lupus site too as more people there so thought best to ask on both.
OldTed60
in
Scleroderma & Raynaud's UK (SRUK)
2 years ago
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Rheumatology patient survey from the University of Cambridge and patient groups
This includes diseases such as Rheumatoid Arthritis (RA) and other inflammatory arthritis, lupus, Sjögren's, undifferentiated (UCTD) or mixed (
MCTD
) connective tissue disease, systemic sclerosis, PMR, Inflammatory muscle diseases, and vasculitis. - Participants from all countries are welcome The survey
This includes diseases such as Rheumatoid Arthritis (RA) and other inflammatory arthritis, lupus, Sjögren's, undifferentiated (UCTD) or mixed (
MCTD
) connective tissue disease, systemic sclerosis, PMR, Inflammatory muscle diseases, and vasculitis. - Participants from all countries are welcome The survey
Chanpreet_Walia
LUPUS UK
in
LUPUS UK
2 years ago
Thyroid Hormone Transporters in a Human Placental Cell Model
There has long been the received wisdom that T3 does not cross the placenta. I am not aware this has been proved in any level of detail. This paper appears to make that look wrong. Indeed, it appears to identify specific pharmaceutical agents which directly and significantly affect T3 transport
There has long been the received wisdom that T3 does not cross the placenta. I am not aware this has been proved in any level of detail. This paper appears to make that look wrong. Indeed, it appears to identify specific pharmaceutical agents which directly and significantly affect T3 transport
helvella
Thyroid UK
in
Thyroid UK
2 years ago
Hello. New to Group
As
MCTD
is rare I cant find a group for that specifically but since i can have many of the same symptoms as someone with Lupus I might be able to get some helpful information.
As
MCTD
is rare I cant find a group for that specifically but since i can have many of the same symptoms as someone with Lupus I might be able to get some helpful information.
reddogger
in
LUPUS UK
2 years ago
Is Marine Collagen a good idea? Is it helpful?
Hi, having
MCTD
with Lupus and RA, now quite bad arthritis too. My
MCTD
etc is well managed on the Mtx and Hydroxichloroquin. I have thought of taking Marine Collagen, perhaps it with help with the arthritic joint pain ? Has anyone any advice on this ?
Hi, having
MCTD
with Lupus and RA, now quite bad arthritis too. My
MCTD
etc is well managed on the Mtx and Hydroxichloroquin. I have thought of taking Marine Collagen, perhaps it with help with the arthritic joint pain ? Has anyone any advice on this ?
Taweet
in
LUPUS UK
3 years ago
Feeling so tired and absolutely drained
Good afternoon, l wonder whether anyone would be kind enough please to see if they can help me? I have been feeling very tired and drained for several months and I am not sure if it might also have been aggravated by Covid, which I had in March this year. I have had a series of private blood tests,
Good afternoon, l wonder whether anyone would be kind enough please to see if they can help me? I have been feeling very tired and drained for several months and I am not sure if it might also have been aggravated by Covid, which I had in March this year. I have had a series of private blood tests,
sadiethedog1
in
Thyroid UK
2 years ago
Noticed shaky hands and fingers
It was my treat for her promotion at work.Had a fab meal Bless her I am very proud of her achievement despite her joint pains & impaired lung function with
MCTD
& PH. Whilst at lunch noticed her hands/fingers were shaking slightly and lasted for a few moments.
It was my treat for her promotion at work.Had a fab meal Bless her I am very proud of her achievement despite her joint pains & impaired lung function with
MCTD
& PH. Whilst at lunch noticed her hands/fingers were shaking slightly and lasted for a few moments.
Wangpaupau
in
NRAS
2 years ago
Can Ketone Esters provide Ketones without a Ketone diet?
Back in 2013, Dr. Mary Newport gave a Ted talk on her re-discovery of MCT oil (she'd been aware of it for several years). In short, it greatly helped her husband with AZ. More recently, Ketone Esters are said to be even more potent than MCT oil. This video is from Dr Newport's talk. I've started looking
Back in 2013, Dr. Mary Newport gave a Ted talk on her re-discovery of MCT oil (she'd been aware of it for several years). In short, it greatly helped her husband with AZ. More recently, Ketone Esters are said to be even more potent than MCT oil. This video is from Dr Newport's talk. I've started looking
JAS9
in
Cure Parkinson's
2 years ago
Lost in Autoimmune Land: If my labs are so good, why do I still feel so bad?
Over the past 4+ years, I have had confusing lab results, ranging from possible
MCTD
(2 positive ANAs, speckled, with +anti-RNP), to 2 highly positive anti-CCP (no RF). But apparently, I did not fit into any one neat box, so diagnosis has been UCTD.
Over the past 4+ years, I have had confusing lab results, ranging from possible
MCTD
(2 positive ANAs, speckled, with +anti-RNP), to 2 highly positive anti-CCP (no RF). But apparently, I did not fit into any one neat box, so diagnosis has been UCTD.
RxMe
in
Sjogren's Support
2 years ago
Treatment of damages due to radiation
asked him why we do not use the know-how of doctors dealing with nuclear exposure. Many of us suffer from damages produced by radiation....like blood in stool, urine and other damages. However when I visit doctors, it seems they are ignorant of treatment for damages due to Radiation. I feel we should
asked him why we do not use the know-how of doctors dealing with nuclear exposure. Many of us suffer from damages produced by radiation....like blood in stool, urine and other damages. However when I visit doctors, it seems they are ignorant of treatment for damages due to Radiation. I feel we should
Karmaji
in
Advanced Prostate Cancer
2 years ago
Humira? Anybody
Hey anybody with a compromised immune system ( I have
MCTD
/with other/ like heart/)my Dr wants me to take bi weekly injections of Humira. My RF , Lupus, seems to. Seem to be flaring up at freight train speed . Right along with stage 3b wants me to take this drug..
Hey anybody with a compromised immune system ( I have
MCTD
/with other/ like heart/)my Dr wants me to take bi weekly injections of Humira. My RF , Lupus, seems to. Seem to be flaring up at freight train speed . Right along with stage 3b wants me to take this drug..
Chimama
in
Kidney Disease
3 years ago
Sharp pain in left side
I only got diagnosed with
MCTD
& Lupus last Christmas Eve so quite a newbie. I am on Hydroxychloroquine 200mg twice a day. Thanks so much x
I only got diagnosed with
MCTD
& Lupus last Christmas Eve so quite a newbie. I am on Hydroxychloroquine 200mg twice a day. Thanks so much x
moonflower83
in
LUPUS UK
3 years ago
Hi guys again 🙂
With my pf I also have rumathoyd arthritis which they said was in my lungs so it caused the pf and I have
mctd
the morphine I don't like the feeling it gives me either knocks me out or I feel numb so I'm stopping as I'm fairly new to it ,I do take mycophenalate 4 times a day and since they put Me up
With my pf I also have rumathoyd arthritis which they said was in my lungs so it caused the pf and I have
mctd
the morphine I don't like the feeling it gives me either knocks me out or I feel numb so I'm stopping as I'm fairly new to it ,I do take mycophenalate 4 times a day and since they put Me up
Dion50
in
Lung Conditions Community Forum
3 years ago
First appointment with rheumatologist
Seems to think I definitely have lupus with
MCTD
. However has said that he doesn’t think the symptoms are bad enough to be treated with either steroids or hydroxychloroquine as the medication is likely to give me more problems than the lupus.
Seems to think I definitely have lupus with
MCTD
. However has said that he doesn’t think the symptoms are bad enough to be treated with either steroids or hydroxychloroquine as the medication is likely to give me more problems than the lupus.
Sarahze
in
LUPUS UK
3 years ago
Lipid Peroxides -- strategies for lowering
https://www.ncbi.nlm.nih.gov/labs/pmc/articles/PMC5319403/ https://www.frontiersin.org/articles/10.3389/fnins.2019.00328/full I just got the results of my Genova labs NutrEval test. If you're on Medicare, and your doctor orders it, Medicare pays for it. Chock full of information on nutrients, oxidative
https://www.ncbi.nlm.nih.gov/labs/pmc/articles/PMC5319403/ https://www.frontiersin.org/articles/10.3389/fnins.2019.00328/full I just got the results of my Genova labs NutrEval test. If you're on Medicare, and your doctor orders it, Medicare pays for it. Chock full of information on nutrients, oxidative
rebtar
in
Cure Parkinson's
3 years ago
Diet Supplements
Once again unable to sleep. Thinking about my diet. I’m having some stomach and digestive investigations. My stomach is now so distended and solid with it. It looks like I have someone else’s abdomen and my own skinny arms and legs. It’s hurting my back. I am determined to boost my health this year by
Once again unable to sleep. Thinking about my diet. I’m having some stomach and digestive investigations. My stomach is now so distended and solid with it. It looks like I have someone else’s abdomen and my own skinny arms and legs. It’s hurting my back. I am determined to boost my health this year by
Singr
in
PMRGCAuk
3 years ago
Confused
health which I get but like iv said its the Dr's tell you this that and the other then build your hopes up and they don't think it plays with your mind in the it the years iv been poorly ,I came out off a long term relationship,was undergoing test for cancer twice, diagnosed with pf,rumathoyd arthritis
mctd
health which I get but like iv said its the Dr's tell you this that and the other then build your hopes up and they don't think it plays with your mind in the it the years iv been poorly ,I came out off a long term relationship,was undergoing test for cancer twice, diagnosed with pf,rumathoyd arthritis
mctd
Dion50
in
Lung Conditions Community Forum
3 years ago
MCTD - Covid vaccines
Hi, Can i get some advice or helpful links where i can read about researchs /experiences of people with diagnosis
MCTD
(mixed connective tissue disease ) and Covid vaccines, my sister has it , she is 31 year old, and she is is not vaccinated yet . Thank you in advance !
Hi, Can i get some advice or helpful links where i can read about researchs /experiences of people with diagnosis
MCTD
(mixed connective tissue disease ) and Covid vaccines, my sister has it , she is 31 year old, and she is is not vaccinated yet . Thank you in advance !
showmustgoon84
in
LUPUS UK
3 years ago
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