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Transplant preparation
After years of icu visits regularly and life support the transplant team have ramped up the testing to prepare for a full liver transplant. An emotional journey for sure. Trying to be hopeful but nervous too
After years of icu visits regularly and life support the transplant team have ramped up the testing to prepare for a full liver transplant. An emotional journey for sure. Trying to be hopeful but nervous too
Mdbish
in
British Liver Trust
4 years ago
MDS
Doctors found out its MDS for my father, so they want to control it with medicines similar to cemo and then will decide after 4 months for bone marrow transplant. I am just wondering we had this problem of low hemoglobin since his radiation 2.5 years but still hemotologist never realised this is the
Doctors found out its MDS for my father, so they want to control it with medicines similar to cemo and then will decide after 4 months for bone marrow transplant. I am just wondering we had this problem of low hemoglobin since his radiation 2.5 years but still hemotologist never realised this is the
Kshiprakapoor
in
Advanced Prostate Cancer
4 years ago
Always Have Faith!!!
Hello guys, I haven’t posted in a minute last time i said that my dad was on bad road he was diagnosed with Covid in March and intubated he was hospitalized for 32 days he came home for a week then got hospitalized again for about 2 weeks with pneumonia and was intubated again and was in ICU and then
Hello guys, I haven’t posted in a minute last time i said that my dad was on bad road he was diagnosed with Covid in March and intubated he was hospitalized for 32 days he came home for a week then got hospitalized again for about 2 weeks with pneumonia and was intubated again and was in ICU and then
tegegne12
in
ICUsteps
4 years ago
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Anemia related to bone marrow
It's bone marrow problem as per doctors and test result, its been since radiation 3 yrs back and testicals removal, my father kept saying about hemoglobin declining but doctors never suggested bone marrow tests since then, it was gradually rising, it could have been easily cured. Now doctor said we got
It's bone marrow problem as per doctors and test result, its been since radiation 3 yrs back and testicals removal, my father kept saying about hemoglobin declining but doctors never suggested bone marrow tests since then, it was gradually rising, it could have been easily cured. Now doctor said we got
Kshiprakapoor
in
Advanced Prostate Cancer
4 years ago
Kidney transplants and meloxicam
My husband is 18 years post kidney transplant. Due to severe pain in “private” areas we went to the ER last night where they prescribed meloxicam. Does anyone have any knowledge on whether a kidney transplant patient can take meloxicam?
My husband is 18 years post kidney transplant. Due to severe pain in “private” areas we went to the ER last night where they prescribed meloxicam. Does anyone have any knowledge on whether a kidney transplant patient can take meloxicam?
CSCleary
in
Kidney Transplant
4 years ago
New on here
Hi there, in February of this year my mum was diagnosed with stage 3B squamous cell non-small cell lung cancer. It's been an emotional roller coaster. The doctors have been very positive about my mum. She was given aggressive chemo and radiation which she completed 2 months ago and recently started on
Hi there, in February of this year my mum was diagnosed with stage 3B squamous cell non-small cell lung cancer. It's been an emotional roller coaster. The doctors have been very positive about my mum. She was given aggressive chemo and radiation which she completed 2 months ago and recently started on
monica91
in
The Roy Castle Lung Cancer Foundation
4 years ago
Sharing my kidney story and much more! Tedx talk! Enjoy.
Hello Kidney transplant community. Filmed up in Glasgow in October - less than two weeks later I got the call for my second kidney transplant. 9 months on - here is my first Tedx talk to share into the world! I hope you enjoy. One day at a time. https://youtu.be/y0lmkEkNIuk
Hello Kidney transplant community. Filmed up in Glasgow in October - less than two weeks later I got the call for my second kidney transplant. 9 months on - here is my first Tedx talk to share into the world! I hope you enjoy. One day at a time. https://youtu.be/y0lmkEkNIuk
WhollyAligned
in
Kidney Transplant Patient Support
4 years ago
Staging lung cancer
Hi all, so I had my biopsy last week today they had an MDT meeting. My cancer nurse phoned and said I have T2B N3MO MUTATION PDL1 expression. Does anyone know what this means, please be gentle with me as I’m so scared. I have a phone call tomorrow from the oncologist. I have told them I don’t want
Hi all, so I had my biopsy last week today they had an MDT meeting. My cancer nurse phoned and said I have T2B N3MO MUTATION PDL1 expression. Does anyone know what this means, please be gentle with me as I’m so scared. I have a phone call tomorrow from the oncologist. I have told them I don’t want
Crafty57
in
The Roy Castle Lung Cancer Foundation
4 years ago
Just when it's now safe to go out, a note of caution.
All those who have received a liver transplant (like myself) or who have a suppressed immune system will know how important skin protection is at this time of year. It can feel like we are having to doubly protect ourselves. Having got through the self-isolation due to the pandemic. We can finally go
All those who have received a liver transplant (like myself) or who have a suppressed immune system will know how important skin protection is at this time of year. It can feel like we are having to doubly protect ourselves. Having got through the self-isolation due to the pandemic. We can finally go
Richard-Allen
in
Liver4Life
4 years ago
Lung Transplant Update 4
To recap - my mum had a single left
lung
transplant
on the 30th October 19 and had a number of complications post-op. I have written a few updates about how shes been getting on. She was in critical care over 100 days. On March 20th my mum was discharged from the hospital!
To recap - my mum had a single left
lung
transplant
on the 30th October 19 and had a number of complications post-op. I have written a few updates about how shes been getting on. She was in critical care over 100 days. On March 20th my mum was discharged from the hospital!
Queenbean
in
Lung Conditions Community Forum
4 years ago
Lung transplant
I was listed for a double
lung
transplant
and last week received a call to say due to the risks associated with coronovirus I had to be removed all followup clinics cancelled very disappointing but totally understandable anybody else had this?
I was listed for a double
lung
transplant
and last week received a call to say due to the risks associated with coronovirus I had to be removed all followup clinics cancelled very disappointing but totally understandable anybody else had this?
Twinsmum10
in
Lung Conditions Community Forum
4 years ago
Lung transplants
As anyone ad any lung transplants done. While all this coronavirus is going on and what hospital are you at.im at wythenshawe x thanks cheryl x
As anyone ad any lung transplants done. While all this coronavirus is going on and what hospital are you at.im at wythenshawe x thanks cheryl x
skylas
in
Lung Conditions Community Forum
4 years ago
Liver News - University of Birmingham
I like to share some news that I come across from time to time. Here is a recent news article from the University of Birmingham which talks about the enormous contribution that the Liver Profusion Machine has made in the use of unviable livers. This machine was trialled over six years ago at both
I like to share some news that I come across from time to time. Here is a recent news article from the University of Birmingham which talks about the enormous contribution that the Liver Profusion Machine has made in the use of unviable livers. This machine was trialled over six years ago at both
Richard-Allen
in
Liver4Life
4 years ago
Shining light on a malignant lung cancer.
Treating a rare type of malignant lung cancer could improve, thanks to near-infrared irradiation and a cancer-targeting compound. Nagoya University oncologist Kazuhide Sato and colleagues tested the treatment and published their findings in the journal Cells. Malignant pleural mesothelioma (MPM) is
Treating a rare type of malignant lung cancer could improve, thanks to near-infrared irradiation and a cancer-targeting compound. Nagoya University oncologist Kazuhide Sato and colleagues tested the treatment and published their findings in the journal Cells. Malignant pleural mesothelioma (MPM) is
2greys
in
Lung Conditions Community Forum
4 years ago
Stem Cell Transplant
I heard this can cure PV. Why the he is this not legal in the USA?! Obviously I can't fly to Panama to get this done and can't afford it. I'm sick of being fatigued!
I heard this can cure PV. Why the he is this not legal in the USA?! Obviously I can't fly to Panama to get this done and can't afford it. I'm sick of being fatigued!
lebowski42
in
MPN Voice
4 years ago
Transplant. Illness. Feeling Ok.
Hi guys. You’ve probably seen my posts in the past. I had liver failure in April 2019 and this resulted in decompensated liver, encephalitis and extensive ascites/odema. They said first three days are life and death. Now is now. My mobility is limited and with the help of my God I came through eleven
Hi guys. You’ve probably seen my posts in the past. I had liver failure in April 2019 and this resulted in decompensated liver, encephalitis and extensive ascites/odema. They said first three days are life and death. Now is now. My mobility is limited and with the help of my God I came through eleven
cammeag
in
British Liver Trust
4 years ago
biopsy
I'm new to this site. Having a needle biopsy of right upper lung lobe in a few days. Is it painful and what is the recovery like?
I'm new to this site. Having a needle biopsy of right upper lung lobe in a few days. Is it painful and what is the recovery like?
dunnellon
in
Lung Conditions Community Forum
4 years ago
67 year old wimp!
Hi, I am new here and I am having a lobectomy of my top right lung on Monday, having it done at London Bridge Hospital as covid is causing problems at the other hospitals. The cancer was luckily found in a CT that was looking for something else. After a PET scan and needle biopsy it was found to be
Hi, I am new here and I am having a lobectomy of my top right lung on Monday, having it done at London Bridge Hospital as covid is causing problems at the other hospitals. The cancer was luckily found in a CT that was looking for something else. After a PET scan and needle biopsy it was found to be
Hidden
in
Lung Conditions Community Forum
4 years ago
Living with PKD
I have been diagnosed with PKD since I was 24. I am now awaiting for a kidney transplant. I do have someone being tested for living donor.
I have been diagnosed with PKD since I was 24. I am now awaiting for a kidney transplant. I do have someone being tested for living donor.
Pkd_2020
in
Kidney Transplant
4 years ago
Newbie bowel / lung cancer
Hi all I’m a newbie ,..I’m 51 years old and got diagnosed with stage 4 blwel / lung cancer ...I have 5 kids ,4 my youngest are all autistic and my husband passed away very suddenly 3 years ago so I’m all they have ( both sets of grandparents passed ) my fear is who’s going to take care of them when I
Hi all I’m a newbie ,..I’m 51 years old and got diagnosed with stage 4 blwel / lung cancer ...I have 5 kids ,4 my youngest are all autistic and my husband passed away very suddenly 3 years ago so I’m all they have ( both sets of grandparents passed ) my fear is who’s going to take care of them when I
Sannyboop
in
The Roy Castle Lung Cancer Foundation
4 years ago
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