MDS

[Kshiprakapoor]

Doctors found out its MDS for my father, so they want to control it with medicines similar to cemo and then will decide after 4 months for bone marrow transplant. I am just wondering we had this problem of low hemoglobin since his radiation 2.5 years but still hemotologist never realised this is the problem gradually increasing towards MDS. We tried finding out the reason so long ago. Now feel so low about this which could have been controlled at the starting stage. Currently doctor says it can be controlled and stopped converting into blood cancer via medicines and bone marrow transplant. Hoping for the best. Please pray for the best.

[tango65]

This link has some of the possible causes of myelodysplastic syndrome. Cancer treatment with chemo could be one of the factors.

cancer.org/cancer/myelodysp...

This link has info about treatment.

emedicine.medscape.com/arti...

He needs to consult with a hematologist.

"Patients with MDS should be under the care of a hematologist. Because most treatments for MDS are not standard and are considered experimental, referral to a tertiary care center with bone marrow transplantation capabilities is often necessary."

[Kshiprakapoor in reply to tango65]

Yes treatment started today, will go on for more 6 days then they will keep him under observation for 21 days and then start again like this 3 months they want to do 4th month might be bone marrow, but all his siblings are old now not sure if we children can be right fit else who else. Hope life expentancy increases after that, as they want to stop mds from converting to blood cancer

[tango65 in reply to Kshiprakapoor]

Best of luck with the new treatments!!

[Kshiprakapoor in reply to tango65]

Need prayers thank you

[j-o-h-n in reply to Kshiprakapoor]

Your father is 68 years old and I read on Goggle that patients with Myelodysplastic syndromes (MDS) have a 5 year life expectency. Let's pray that he outlives that expectency...

Good Luck, Good Health and Good Humor.

j-o-h-n Thursday 08/13/2020 6:03 PM DST

[Kshiprakapoor in reply to j-o-h-n]

Yes thank you for writing and wishing. This platform and people like you with kind words have been really my strength since last 3 years.

[Kshiprakapoor in reply to Kshiprakapoor]

This survivor got mds at age 65 and surviving after 5 more years youtu.be/B1_bF4Hz0qo(Not working as expected?)

[j-o-h-n in reply to Kshiprakapoor]

That should give you and your Dad hope.... Good outcome..... Thank's for sharing... Give your Dad (and you) my best regards.....

Good Luck, Good Health and Good Humor.

j-o-h-n Friday 08/14/2020 2:30 PM DST

[Kshiprakapoor in reply to j-o-h-n]

Thanks for kind words and hope youtu.be/BqNKKcC7rKM(Not working as expected?) this one got to know at 48 surviving without bone marrow since 16 yrs, yes we are hopeful as my dad is non smoker and non alcoholic throughout life and 1 hr morning walk since ages, hopefully these can be plus points.

[j-o-h-n in reply to Kshiprakapoor]

Well he deserves a medal for living a clean life.... My only comment is, was he looking for "Mehaboobas" (LOL) when he was taking his 1 hour morning walks?

Good Luck, Good Health and Good Humor.

j-o-h-n Friday 08/14/2020 6:26 PM DST

[Kshiprakapoor in reply to j-o-h-n]

Not humorous for me, just trying to be positive as much as we can

[j-o-h-n in reply to Kshiprakapoor]

Sorry......... just throwing a little Hindi.................(I love humor)....

Good Luck, Good Health and Good Humor.

j-o-h-n Friday 08/14/2020 7:08 PM DST