Creatinine increasing: Hi I am 6 yers... - Kidney Transplant

Kidney Transplant

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Creatinine increasing

kidneymom09 profile image
19 Replies

Hi I am 6 yers post kidney transplant non related living donor. My Cr has increased from a baseline of 1.0 to 1.7(3 mo ago) and today 2.4 My Tacro was elevated 3 months ago to 8.3, but now dropped to 6.1. Is this normal for a Cr? I am scared I am going into rejection. I am waiting to hear from my team. 2.4 is the highest I have ever been. I feel great and believe I am pretty well hydrated. Just nervous.

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kidneymom09
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kidneymom09 profile image
kidneymom09

sorry. the results were 1.17 3 mo ago and 1.24 today

PeterChao profile image
PeterChao in reply tokidneymom09

sorry to hear that your numbers are going in the wrong direction. I’m almost 6 years out and my last creatinine result was 1.71, previously it was 1.4.

My baseline is around 1.5. I’m hoping this just a random spike, which I have experienced before. Good luck!

kidneymom09 profile image
kidneymom09 in reply toPeterChao

Was your transplant team concerned? Did they make any changes?

PeterChao profile image
PeterChao in reply tokidneymom09

I see them quarterly and they have asked to do another blood test in 6 weeks to determine if it was just an anomaly or if there is a situation. 🤞

kidneymom09 profile image
kidneymom09 in reply toPeterChao

wishing you the best. Thank you

BraveandBol profile image
BraveandBol in reply tokidneymom09

Going from 1.17 to 1.24 is not significant. I wouldn’t be concerned at all. If it went from 1.7 to 2.4, it would be alarming.

Jayhawker profile image
Jayhawker in reply tokidneymom09

Thanks for clarifying! NUCH better with the accurate data!

Jayhawker

I would suggest a retest as I have experienced a fluke in my results due to lab error or whatever..a retest for me made a significant difference. Important to keep drinking your water in a regular basis, I have been advised 3 (16 oz) bottles minimally, 4 preferably. I am 13 years out and my creatinine average is 0.9-1.0. Good Luck, I am sure you will be fine. Sending good health your way!

kidneymom09 profile image
kidneymom09 in reply toKidneyPancreas2010

that is the same amount I drink. I am only 5ft 105lbs thank you for the well wishes

TaffyTwoshoes27 profile image
TaffyTwoshoes27 in reply toKidneyPancreas2010

My Transplant team said to drink 64 oz of water a day. My Veterinarian told me she drinks 120 oz of water a day! That's a lot!!

Jayhawker profile image
Jayhawker in reply toKidneyPancreas2010

I’ve got you beat on water requirements: 100 Fl oz is my daily target. I feel like I’ll float away some days…

Jayhawker

kidneymom09 profile image
kidneymom09 in reply toJayhawker

lol. How do ou not get nauseated?

Jayhawker profile image
Jayhawker in reply tokidneymom09

I really just continuously sip on water all day long. I have to drink 5 20 Fl oz bottles filled with water. So, drink one by 10am, another by 1pm, another by 4pm, another by 7pm, and the last by 11pm when o go to bed. If I don’t stay on track it’s pretty much impossible to drink enough water before bed.

Jayhawker

sugabear profile image
sugabear

You might want to delete and correct this post. The original numbers you posted are very concerning and would likely result in a biopsy. The actual numbers are not. Please listen to your doctor.

Betsymydog profile image
Betsymydog

Has your doc Recommended Belaracept infusions? My creatinine has improved since I started them and happy to be totally off tacrolimus.

Betsymydog profile image
Betsymydog in reply toBetsymydog

Misspelled Belatacept. That is the correct spelling. Here in New York State (Central NY) infusions are used more often than not, research has shown there is much less chance of rejection with infusions 7 years after transplant.

Tashikat profile image
Tashikat in reply toBetsymydog

why the infusions vs tacrallomus?

Ynnep profile image
Ynnep

Could be a random spike. Keep calm until you hear from your team. Praying for you!

TaffyTwoshoes27 profile image
TaffyTwoshoes27

I was told Tacrolimus Post-transplant (after a year) shld be 4 - 6. I would do research online if a high Tacro can cause the high Creatinine? I attended a virtual support mtg yesterday and the Guest Speaker was a Nephrologist from Emory University Hosp. I think I remember her saying that over 2.0 was high for Creatinine.

I am 16 mos post-transplant and my Creatinine is .93 and my Tacro is 4.2. My eGFR is 67.

I hate the Prednisone. I'm on 5 mg and have gained 40 lbs.!! I want my Neph to lower it to 2.5 mg.

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