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6 weeks post lung transplant.
Home now and what a relief. 22 days in ICU resulting in muscle waste in legs so starting all over again with stairs etc. Wound pain 8/10 especially when bending or reaching out. 30% loss of vision due to minor stroke at bottom of brain. The docs seem quite happy with results which is brilliant but
Home now and what a relief. 22 days in ICU resulting in muscle waste in legs so starting all over again with stairs etc. Wound pain 8/10 especially when bending or reaching out. 30% loss of vision due to minor stroke at bottom of brain. The docs seem quite happy with results which is brilliant but
Mrbojangles
in
Lung Conditions Community Forum
1 year ago
hyperventilating
it but its scary this hyperventilating its very scary Ive never Mum once again wont accept that Im hyperventilating & keeps saying im having a panic attack when I get tired Ill be speaking to my specialist on monday when she phones to me Ive even tried to discuss with her an asessment for a
lung
it but its scary this hyperventilating its very scary Ive never Mum once again wont accept that Im hyperventilating & keeps saying im having a panic attack when I get tired Ill be speaking to my specialist on monday when she phones to me Ive even tried to discuss with her an asessment for a
lung
horseygirl_0103
in
Lung Conditions Community Forum
1 year ago
out of hosital now
transplant
-I know it will be a very long process but ive been made aware of that anyway .If they say yes Im defintely going for this &Im very well aware of the risks Ive done a heck of a lot of research & not gone into this lightly .
transplant
-I know it will be a very long process but ive been made aware of that anyway .If they say yes Im defintely going for this &Im very well aware of the risks Ive done a heck of a lot of research & not gone into this lightly .
horseygirl_0103
in
Lung Conditions Community Forum
1 year ago
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Pneumonia Vaccine for the Immunosuppressed
Good afternoon everyone, I had my pneumonia vaccine many years ago, then 5 years ago before I was placed on the
lung
transplant
list I received a further Pneumonia Vaccine which was 2017.
Good afternoon everyone, I had my pneumonia vaccine many years ago, then 5 years ago before I was placed on the
lung
transplant
list I received a further Pneumonia Vaccine which was 2017.
Joseph260268
in
Lung Conditions Community Forum
9 months ago
transplant with no social support?
I have an appointment to discuss
lung
transplant
but I have no real social support, just one elderly sibling.
I have an appointment to discuss
lung
transplant
but I have no real social support, just one elderly sibling.
bundelino
in
Lung Conditions Community Forum
1 year ago
How much can one body take?
As if 2 strokes in 15 months plus a double
lung
transplant
isn’t enough I have now been told I suffered a mild ( thank the Lord mild) heart attack recently which I wasn’t aware of. “Possible inferior infarct- age undetermined “ is their medical term for a myocardial arrest.
As if 2 strokes in 15 months plus a double
lung
transplant
isn’t enough I have now been told I suffered a mild ( thank the Lord mild) heart attack recently which I wasn’t aware of. “Possible inferior infarct- age undetermined “ is their medical term for a myocardial arrest.
Mrbojangles
in
Lung Conditions Community Forum
1 year ago
Doctors perform kidney transplant on awake patient
"There are a lot of people that have heart and
lung
disease that also need a kidney
transplant
, and that just increases the risk of general anesthesia even more," Dr.
"There are a lot of people that have heart and
lung
disease that also need a kidney
transplant
, and that just increases the risk of general anesthesia even more," Dr.
bbeba103
in
Kidney Disease
28 days ago
Never rains just pours….😡😡
Hopefully if positive this new addition to the family will get on well with my IPF but as long as the
lung
transplant
can proceed I’m cool. 🤪🤪 Stay safe xx
Hopefully if positive this new addition to the family will get on well with my IPF but as long as the
lung
transplant
can proceed I’m cool. 🤪🤪 Stay safe xx
Mrbojangles
in
Lung Conditions Community Forum
1 year ago
Home Oxygen is a game changer
First and foremost, I'm still on the
lung
transplant
list and have yet to get another call since being re-added back in April. Frustrating, especially with the baby on the way, but ultimately nothing that I can do about it.
First and foremost, I'm still on the
lung
transplant
list and have yet to get another call since being re-added back in April. Frustrating, especially with the baby on the way, but ultimately nothing that I can do about it.
dodgylungrunner
British Lung Foundation
in
Lung Conditions Community Forum
1 year ago
Bereavement and loss.
I've not been around for quite a while but thought now is the time to tell you that my husband passed away in February after his long struggle with chronic rejection of his double
lung
transplant
which he only received in June 2021.
I've not been around for quite a while but thought now is the time to tell you that my husband passed away in February after his long struggle with chronic rejection of his double
lung
transplant
which he only received in June 2021.
Biofreak
in
Lung Conditions Community Forum
1 year ago
mucus
hello every one i have that THING CALLED COPD YUK YUK . i am fed up with mucus , i went into my local chemist asked the chap anything to help getrid of mucus he went straight to the shelf BENYLIN CHESTY COUGH ORIGINAL under neath the writing says DIPHENHYDRAMINE @ LEVOMENTHOL
hello every one i have that THING CALLED COPD YUK YUK . i am fed up with mucus , i went into my local chemist asked the chap anything to help getrid of mucus he went straight to the shelf BENYLIN CHESTY COUGH ORIGINAL under neath the writing says DIPHENHYDRAMINE @ LEVOMENTHOL
devon29
in
Lung Conditions Community Forum
6 days ago
Doing well after surgery and diagnosis of lung cancer
Hi, I am in the process of waiting to see if my lung nodule has grown which is a spickulated one and I have lost weight. My ct scan results will be a couple of weeks after when I thought so this is quite stressful. On the Internet there is lot of negative stories about lung cancer and I was advised
Hi, I am in the process of waiting to see if my lung nodule has grown which is a spickulated one and I have lost weight. My ct scan results will be a couple of weeks after when I thought so this is quite stressful. On the Internet there is lot of negative stories about lung cancer and I was advised
YellowBirdLady
in
The Roy Castle Lung Cancer Foundation
21 days ago
Nottingham health and well being event
Hello all, Our next Information Day is taking place at the Mercure hotel, Sherwood Forrest Nottingham on Tuesday 2nd July. The day will feature a range of speakers, stalls and an opportunity to share experiences with other people affected by lung cancer. The event will focus on health and wellbeing
Hello all, Our next Information Day is taking place at the Mercure hotel, Sherwood Forrest Nottingham on Tuesday 2nd July. The day will feature a range of speakers, stalls and an opportunity to share experiences with other people affected by lung cancer. The event will focus on health and wellbeing
LorraineD
Roy Castle
in
The Roy Castle Lung Cancer Foundation
1 month ago
Had lung surgery - would you be willing to share your experience?
We have been asked to share this survey that is being carried out to seek the views of people who have had surgery across the UK and Europe. The survey is being carried out by an organisation called LUCE and supported by a distinguished UK based surgeon. The short questionaire can be completed
We have been asked to share this survey that is being carried out to seek the views of people who have had surgery across the UK and Europe. The survey is being carried out by an organisation called LUCE and supported by a distinguished UK based surgeon. The short questionaire can be completed
LorraineD
Roy Castle
in
The Roy Castle Lung Cancer Foundation
1 month ago
Bra after lung surgery?
What bras did you find most comfortable post surgery or maybe I should be asking, what bras did you find most tolerable? (Not initially after but a few weeks after surgery). Thanks in advance for your responses. I'm asking on behalf of someone else. Also, we are currently working to create a lung cancer
What bras did you find most comfortable post surgery or maybe I should be asking, what bras did you find most tolerable? (Not initially after but a few weeks after surgery). Thanks in advance for your responses. I'm asking on behalf of someone else. Also, we are currently working to create a lung cancer
Miranda_GO2
Partner
in
Lung Cancer Support
2 months ago
Interested in joining GO2's Mind Over Matter group?
What is Mind Over Matter (also known as MOM)?
In this group, you will learn tips and tools to handle the big feelings that often come up after a cancer diagnosis and treatment. This 5-week group can help you deal with the fears, worries, and sadness that come up for many people.
Who can join
What is Mind Over Matter (also known as MOM)?
In this group, you will learn tips and tools to handle the big feelings that often come up after a cancer diagnosis and treatment. This 5-week group can help you deal with the fears, worries, and sadness that come up for many people.
Who can join
Miranda_GO2
Partner
in
Lung Cancer Support
2 months ago
Post radiotherapy for lung cancer
Can someone please share with me their experience after going thru radiotherapy for lung cancer? My dad had a radiotherapy for his lung cancer in Oct 2023. The radiotherapy went well with him not going thru any adverse side effects. However, now, 7 months later, he is experiencing shortness of breath
Can someone please share with me their experience after going thru radiotherapy for lung cancer? My dad had a radiotherapy for his lung cancer in Oct 2023. The radiotherapy went well with him not going thru any adverse side effects. However, now, 7 months later, he is experiencing shortness of breath
Hokiun
in
The Roy Castle Lung Cancer Foundation
2 months ago
Please join us Tuesday,May 21st, for our Living Room discussion on Is a Clinical Trial Right for You?
Hello, Please join us in our San Carlos office Tuesday May 21st in person or if you don’t live in the area, you can join us virtually on GO2's YouTube Live channel. We are thrilled to have Jorge J. Nieva, MD, Associate Professor of Clinical Medicine, Keck School of Medicine of USC, Medical Oncologist
Hello, Please join us in our San Carlos office Tuesday May 21st in person or if you don’t live in the area, you can join us virtually on GO2's YouTube Live channel. We are thrilled to have Jorge J. Nieva, MD, Associate Professor of Clinical Medicine, Keck School of Medicine of USC, Medical Oncologist
Michelezeh
Partner
in
Lung Cancer Support
2 months ago
New approval for treatment of Small Cell Lung Cancer (SCLC)
FDA Approves Imdelltra (tarlatamab-dlle) for Extensive Stage Small Cell Lung Cancer Written by colleague, Matthew Reiss, MSE, PhD, Manager, Precision Medicine & Navigation, GO2 for Lung Cancer On May 16, 2024, the U.S. Food and Drug Administration (FDA) granted Imdelltra (tarlatamab-dlle) accelerated
FDA Approves Imdelltra (tarlatamab-dlle) for Extensive Stage Small Cell Lung Cancer Written by colleague, Matthew Reiss, MSE, PhD, Manager, Precision Medicine & Navigation, GO2 for Lung Cancer On May 16, 2024, the U.S. Food and Drug Administration (FDA) granted Imdelltra (tarlatamab-dlle) accelerated
Miranda_GO2
Partner
in
Lung Cancer Support
2 months ago
Lung cancer stage 4
Just curious - have had cancer 6 times now, breast cancer x 3; bowel; lung; 5 times all operated on & fine, now this 6th time caused by the radiotherapy I had 25 years ago for my breast cancer caused my squamous lung cancer, not operable + of course no radiotherapy as I've had the max - was only discovered
Just curious - have had cancer 6 times now, breast cancer x 3; bowel; lung; 5 times all operated on & fine, now this 6th time caused by the radiotherapy I had 25 years ago for my breast cancer caused my squamous lung cancer, not operable + of course no radiotherapy as I've had the max - was only discovered
younginmind
in
Lung Conditions Community Forum
2 months ago
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