out of hosital now

[horseygirl_0103]

Im now out of hospital now thankfully (until the next time my levels go down) with bruises all over my right hand

This is because despite me telling them I didnt need a canula in because last time i was in my specialist asked why I was wearing one (&I said i thought it was standard procedure) & she instructed one of the assistants there to take it out)

This time it was because I was told I was going down to a scan on my lungs . 6 people failed to put a canula in & just ended up breaking my veins ( as one of them said) & in the end they had to get a phlebotamist to put one in -The first person that tried was a specialist -& he failed -

I kept it on throughout my whole stay.The only thing that (& I use the words loosely) cheered me up when I was moved to respiratory ward was that I was put in a side room on my own which is my preference & a nurse in the assessment unit was kind enough to get me that room so I appreciated that -it made it bearable

Ive got an october date for an assessment for a lung transplant -I know it will be a very long process but ive been made aware of that anyway .If they say yes Im defintely going for this &Im very well aware of the risks Ive done a heck of a lot of research & not gone into this lightly . I know that if the operation is a success there will be a long road to recovery to a better life , if it doesnt & it rejects it I will die

so will see how that goes -I'l now try to demonstrate everytime im in hospital that everytime they want to take blood to show them im not too nervous -they may already know & that may go against me in the assessment)

[Ern007]

Hi horseygirl. I always get a canula - I don't like them but they are there to be able to administer medication saline drips ect - fast. I have a few times dragged them out by accident.

I think you have enough to worry about with your op, try and forget the canula episodes and concentrate on getting well. ...If you can't do that, mention the canula at the start,

All the very best

[B0xermad]

What a lot for you to go through and a lung transplant on the cards is a big thing but it will give you a better life .I am hopeful for you.

[Samjeff]

I went into hospital no respiratory bed spaces available so put me on a geriatric ward. Where they couldn’t spell oxygen there is loads more to this but the short version is I came out almost at deaths door with high carbon dioxide in my blood. Sorted by my respiratory nurses but I’m not recovered from the trauma yet. CD was caused by having me on too higher dose of oxy for too long

This was 3 months ago as you can tell the memories still hurt. Regard's to all. Sam

[lungs in reply to Samjeff]

I too was put into a geriatric ward and the experience left me traumatised. Now,if there is no space in other wards, I will refuse to be adnitted.

[Samjeff in reply to lungs]

I will too. Or even a different hospital Addenbrooks is

15 miles away Thankyou for reply Sam

[watergazer]

Keep your hopes up horseygirl. I don’t like cannulas but suffer them. Sometimes it’s difficult to get blood out of me too. Xx

[Karenanne61]

Which hospital will the assessment be at? I'm under Harefield and they're very good. Full mot every six months, chats with palliative who arrange medsif necessary by phone and and I joined an online seminar recently with other patients and specialists which was informative and interesting.

[Izb1]

So pleased for you that you are now home and dont need to suffer anymore canula's. I do worry about going into hospital as you may come out worse than you went in. Good that you have been through all info on lung transplant and feel confident enough to go for it. I wish you well and hope that you dont have to wait too long x

[Souielouie]

thinking of you & sending you a big warm hug 🤗 🥰

[Mavary]

hi! I was like you and they were going all over the place trying to find a vein. In the end they brought in an anaesthetist to do it. He did it first time. I don’t think they are trained very well to either take blood or put a cannula in.