Search
Search
About
Log in
Join
Experiences with
Lung transplant
Posts
Communities
4,768 public posts
Filter results
Liver Transplant - Lest we forget
When a person embarks on a liver journey, there are many people involved in their treatment over possibly many years. There are a multitude of medical professionals who become involved. These may range from the gastroenterologist who in turn refers their patient to a hepatologist. All the imagery people
When a person embarks on a liver journey, there are many people involved in their treatment over possibly many years. There are a multitude of medical professionals who become involved. These may range from the gastroenterologist who in turn refers their patient to a hepatologist. All the imagery people
Richard-Allen
in
British Liver Trust
1 year ago
stem cell transplant survival with MF
This link gives some figures for overall survival with or without a transplant. The headline really is the initial mortality close to the transplant is only worth risking if your MF is quite bad. https://www.ncbi.nlm.nih.gov/pmc/articles/PMC7218417/
This link gives some figures for overall survival with or without a transplant. The headline really is the initial mortality close to the transplant is only worth risking if your MF is quite bad. https://www.ncbi.nlm.nih.gov/pmc/articles/PMC7218417/
Scaredy_cat
in
MPN Voice
5 months ago
Anyone turn down a stem cell transplant?
I have post ET MF. Currently I'm on Rux and getting monthly cycles of 5 aza. I don't need transfusions. Day to day I feel pretty good and can do most of what I want. The SCT was recommended because of the risk of progression to AML. I'm finding the decision making to get the SCT very difficult. My
I have post ET MF. Currently I'm on Rux and getting monthly cycles of 5 aza. I don't need transfusions. Day to day I feel pretty good and can do most of what I want. The SCT was recommended because of the risk of progression to AML. I'm finding the decision making to get the SCT very difficult. My
LongETinUS
in
MPN Voice
5 months ago
Want to take advantage of all our features? Just log in!
Log in
or
Join
On another subject …
Inspired bya post on another site I’d like to ask if anyone has high risk mutations and has NOT had a stem cell transplant and has NOT progressed to leukaemia? On the other site there were a few who had had MF for quite few years but with treatment were doing ok, and weren’t having transplants, for
Inspired bya post on another site I’d like to ask if anyone has high risk mutations and has NOT had a stem cell transplant and has NOT progressed to leukaemia? On the other site there were a few who had had MF for quite few years but with treatment were doing ok, and weren’t having transplants, for
lizzziep
in
MPN Voice
5 months ago
new onset neuropathy
hi Hi since a liver transplant 3.5 months ago I have been getting burning feet esp at night. It has gradually worsened and now I get it during the day with pain and swelling and my hands have kicked off now. It is so bad at times I just can’t walk with the discomfort and pain. I’ve heard it’s due
hi Hi since a liver transplant 3.5 months ago I have been getting burning feet esp at night. It has gradually worsened and now I get it during the day with pain and swelling and my hands have kicked off now. It is so bad at times I just can’t walk with the discomfort and pain. I’ve heard it’s due
Zechariah123
in
British Liver Trust
1 year ago
The Bone-Marrow-Transplant Revolution
https://www.theatlantic.com/health/archive/2024/04/bone-marrow-transplant-mismatched-donor/678100/
https://www.theatlantic.com/health/archive/2024/04/bone-marrow-transplant-mismatched-donor/678100/
Hidden
in
CLL Support
6 months ago
Second kidney transplant
Hi, My nephrologist is putting in the application for me to go back onto the transplant list. I am very lucky as I have had my first transplant for over 28 years. My GFR is running at 12. Something I wondered about is do they remove my previous transplant and put the new one in the same place? I
Hi, My nephrologist is putting in the application for me to go back onto the transplant list. I am very lucky as I have had my first transplant for over 28 years. My GFR is running at 12. Something I wondered about is do they remove my previous transplant and put the new one in the same place? I
DoylerOz
in
Kidney Transplant
1 year ago
Stem cell transplant
I haven’t posted for a while as things have gotten very complicated for me recently my partner was diagnosed with stomach cancer and around the same time I ran out of options and stem is my last shot I have held off as long as I can so my partner could have surgery and get back on his feet but my dates
I haven’t posted for a while as things have gotten very complicated for me recently my partner was diagnosed with stomach cancer and around the same time I ran out of options and stem is my last shot I have held off as long as I can so my partner could have surgery and get back on his feet but my dates
Leighcox85
in
MPN Voice
6 months ago
Platelets dropped after obinituzumab and won't rise even after transfusion 🚨
Dear all, First of all, thank you very much for all the help and care I have always found on HealthUnlocked. I had my first infusion of obinituzumab and in my case, mainly due to my nephrotic syndrome kidney problem, I had a few problems. High fevers, which are common Attacks of hiccups that last
Dear all, First of all, thank you very much for all the help and care I have always found on HealthUnlocked. I had my first infusion of obinituzumab and in my case, mainly due to my nephrotic syndrome kidney problem, I had a few problems. High fevers, which are common Attacks of hiccups that last
BMFCDRW
in
CLL Support
6 months ago
Join us in your community!
Hi there! My name is Bridget and I'm with the events team here at GO2 for Lung Cancer. We are excited to offer you four, in-person walk/runs we will be hosting this fall around the country for the lung cancer community. Participation is free for anyone who has received a lung cancer diagnosis as well
Hi there! My name is Bridget and I'm with the events team here at GO2 for Lung Cancer. We are excited to offer you four, in-person walk/runs we will be hosting this fall around the country for the lung cancer community. Participation is free for anyone who has received a lung cancer diagnosis as well
bpurchGO2
in
Lung Cancer Support
1 year ago
Severn Bridge 10k - long post warning ⚠️
Everyone else has written brilliant posts on the Race Support Forum but here is version 4 and I’ve put it on the Bridge Forum to give those on the journey to 10k an inkling of the excitement of a 10k race! I have been wanting to do the Severn Bridge 10k for years, having read many race reports by
Everyone else has written brilliant posts on the Race Support Forum but here is version 4 and I’ve put it on the Bridge Forum to give those on the journey to 10k an inkling of the excitement of a 10k race! I have been wanting to do the Severn Bridge 10k for years, having read many race reports by
Dexy5
Graduate10
in
Bridge to 10K
1 year ago
Keeping track of how you are feeling
When living with cancer, knowing what impact the disease is having on a your life is essential if you are to receive the best care. Your Health Companion is a free specialist app specifically designed for people who have been diagnosed with Lung Cancer. It is much like a private digital diary, that
When living with cancer, knowing what impact the disease is having on a your life is essential if you are to receive the best care. Your Health Companion is a free specialist app specifically designed for people who have been diagnosed with Lung Cancer. It is much like a private digital diary, that
YourHealthCompanion
in
The Roy Castle Lung Cancer Foundation
1 year ago
Strategic Masking to Protect Patients from All Respiratory Viral Infections
https://www.nejm.org/doi/full/10.1056/NEJMp2306223 - The end of the public health emergency in the United States is a richly symbolic milestone in the course of the SARS-CoV-2 pandemic. During the height of the pandemic, the virus killed millions of people worldwide, upended lives, and radically altered
https://www.nejm.org/doi/full/10.1056/NEJMp2306223 - The end of the public health emergency in the United States is a richly symbolic milestone in the course of the SARS-CoV-2 pandemic. During the height of the pandemic, the virus killed millions of people worldwide, upended lives, and radically altered
lankisterguy
Volunteer
in
CLL Support
1 year ago
Human stem cell transplantation for Parkinson’s disease: A systematic review
Interestinghttps://www.researchgate.net/publication/379454508_Human_stem_cell_transplantation_for_Parkinson's_disease_A_systematic_review_of_in_situ_survival_and_maturation_of_progenitors_derived_from_human_embryonic_or_induced_stem_cells_in_Parkinsonian_models
Interestinghttps://www.researchgate.net/publication/379454508_Human_stem_cell_transplantation_for_Parkinson's_disease_A_systematic_review_of_in_situ_survival_and_maturation_of_progenitors_derived_from_human_embryonic_or_induced_stem_cells_in_Parkinsonian_models
Farooqji
in
Cure Parkinson's
6 months ago
Momelotinib for Myelofibrosis
Hi, I have been suffering from primary MF for 9 years and have been on Ruxolitinib. However recently I was advised that Ruxolitinib is no longer effectively managing my MF. My platelets and Hb are low and my spleen has enlarged again. My consultant is trying to get me approved for Momelotinib. She
Hi, I have been suffering from primary MF for 9 years and have been on Ruxolitinib. However recently I was advised that Ruxolitinib is no longer effectively managing my MF. My platelets and Hb are low and my spleen has enlarged again. My consultant is trying to get me approved for Momelotinib. She
Cazbolac
in
MPN Voice
6 months ago
Stage 5 Chronic Kidney Disease (CKD)
Dialysis and kidney transplant are the only two treatments for people with kidney failure. It is also important for patients to continue managing any other health conditions they may have, including high blood pressure and/or diabetes. Learn more at: https://www.kidney.org/atoz/content/stage-5-chronic-kidney-disease-ckd
Dialysis and kidney transplant are the only two treatments for people with kidney failure. It is also important for patients to continue managing any other health conditions they may have, including high blood pressure and/or diabetes. Learn more at: https://www.kidney.org/atoz/content/stage-5-chronic-kidney-disease-ckd
JackieJ_NKF
Partner
in
Kidney Dialysis
1 year ago
Please join us Tuesday, August 15th, for our Living Room Discussion on “The New Age of Small Cell Lung Cancer: Advancements Bring New Hope”
Hello, Please join us in our San Carlos office Tuesday August 15th in person or if you don’t live in the area, you can also always join us virtually on GO2's YouTube Live channel. Our program topic will be The New Age of Small Cell Lung Cancer: Advancements Bring New Hope. Our guest speaker is Jacob
Hello, Please join us in our San Carlos office Tuesday August 15th in person or if you don’t live in the area, you can also always join us virtually on GO2's YouTube Live channel. Our program topic will be The New Age of Small Cell Lung Cancer: Advancements Bring New Hope. Our guest speaker is Jacob
Michelezeh
Partner
in
Lung Cancer Support
1 year ago
Travel and Ibrance
I was diagnosed with MBC in June, 2023. I am on Ibrance and letrozole. My medical history is complicated by having had a donor stem cell transplant in 2018 for T cell lymphoma. My immune system was compromised from that but now with Ibrance I'm not sure what to expect in terms of traveling and
I was diagnosed with MBC in June, 2023. I am on Ibrance and letrozole. My medical history is complicated by having had a donor stem cell transplant in 2018 for T cell lymphoma. My immune system was compromised from that but now with Ibrance I'm not sure what to expect in terms of traveling and
Artesa
in
SHARE Metastatic Breast Cancer
6 months ago
stem cell for et?
Would stem cell transplant be an option for ET? I cannot take the Hydrea or Anagralide. Thanks for your feed back
Would stem cell transplant be an option for ET? I cannot take the Hydrea or Anagralide. Thanks for your feed back
Preacherswife
in
MPN Voice
6 months ago
*****SUPPORT GROUPS!*****
The next round of Roy Castle online support groups with start at the beginning of September. The groups take place online over Zoom and each last for one hour and are hosted by a trained facilitator. The groups are a great way to get support from your peers, share and recieve information and make connections
The next round of Roy Castle online support groups with start at the beginning of September. The groups take place online over Zoom and each last for one hour and are hosted by a trained facilitator. The groups are a great way to get support from your peers, share and recieve information and make connections
ConnectRoyCastle
Administrator
in
The Roy Castle Lung Cancer Foundation
1 year ago
1
...
17
18
19
...
100
Next page
10
20
30
40
50
60
70
80
90
100
Filter results
Clear filters
Posted in
All communities
Lung Conditions Community Forum
870 results
British Liver Trust
715 results
The Roy Castle Lung Cancer Foundation
501 results
View top 10 communities
Sort by
Most Relevant
Newest