Heart Transplant

[DW4019]

Good morning all, just wanted to know if any has or known some who has had a heart transplant. I have had a serious heart condition for 50 years and became seriously I’ll last year. I am now on the waiting list for a transplant since Jan 23.

I suppose the question I’m asking is what it was like ? as I am very anxious and suffer with PTHD due to the experience I had last year. I am being told by my Consultant that 15% of people die in the first year, so I’m sure you can understand my anxiety.

Anyway anyone that has had this experience or give me their story I would be very grateful.

Regards

D

[Yumz199725]

Hi DW4019I don't have any experience but I just wanted to wish you all the best! It's understandable why you would be so worried, can't imagine what your going though! 💔😓. Did they give you a time frame of how long you would be on the waiting list for a new heart???

[Maisie2014]

I had a very good friend who was dreadfully ill so had to have a heart transplant. I couldn’t believe the transformation afterwards. He was back to his old self. He had to go to Papworth every so often for checkups and we used to celebrate his new heart annually. Sadly he’s no longer with us but it was a long time ago. He had his new heart in 1985 and it gave him many more years than he would have had. I believe he was in his early fifties when he had it done. I hope you’re not waiting too long for yours.

[Hidden]

You have every reason to be anxious. At present with my congenital heart condition it is being managed. Unfortunately I did read a letter which was from an mdt meeting and at the end it said to refer for transplantation. Well that ruined Christmas. Any way I did mention it at my last cardiology clinic and my cardiologist said that they look into all possibilities. Whether I should have seen the letter I don't know but it is on my nhs records that I can see, but never got a hard copy. But my anxiety is through the roof regarding the initial shock of finding I have a congenital heart issue and then you read something like that. I find that this whole journey is so hard. The only experience I have of someone having a heart transplant was a friend of our family who received a heart and lived at least 20 years with it and it was not the heart he died of but something completely different. I know it does not help. Because it's the thought of it that screws the mind up. I don't know how to calm the mind, thats the journey iam on. I am still coming to terms with knowing I have heart defect from birth and hoping to keep what I have functioning but it is a worry and the biggest issue is the waiting. I don't know how I help to calm you down but the only advantage is we live in a time where medicine is moving at a fast pace when it come to the technical side. And these heart surgeons are at the top of their profession. I hope you can find some peace and reduce your anxiety. Take care.

[Dolphin14]

Hi

I know 3 transplant survivors , 28 years out, 26 years out and 25 years out.

All are doing well.

I wish you the best of luck

🐬

[Prada47]

Hello

Consultant said that 15% of people die in the first year, so 85 people out of 100 do survive for the seriousness of the condition that sounds pretty good odds. I wonder what the survival rate is for the condition you are being treated for !! That sounds a bit flippant but not meant to be. I think I would risk it they don't even consider a transplant without having a very good look at Quality and Quantity of life after the procedure.just looked at your Bio and at your age and I would go for it .

Regards

[beckyboo73]

Hi ☺️ I had a heart transplant 2 years ago. If I can help with anything please let me know

[DW4019 in reply to beckyboo73]

Hi thanks for you reply, very basic but what were you like before ? What are you like now ? Any info I would be very greatful.

Kind regards

D