I've told before that I doubted my diagnose concerning my liver. You can read my previous posts if u would like to.
I remember two and a half years ago I had highly elevated values in my blood, a swolen, painfull liver and I could feel my spleen. Further I told the specialist I had blood coming from my behind once in a while. That had to be varices so the Dr. told me. I was told it was Cirrhosis with portal hypertension, I got beta-blockers and diuretica and sent home.
Of course there where more examinations planned but it was march 2020 and Corona suddenly was there. No more examinations, no more doctors, no more nothing. Very frustrating. In the meantime I was feeling quite well. Depressed of the news but physically well.
Now fastforward to saturday 30th of july. I was constipated like crazy (I thought because of my Liver as well). I already had this going on for a few months. This saturday it was surreal. I was fighting for hours and hours and finally was done. Very relieved of course. Half an hour later an enormous amount of blood came out of my behind. A few hours later, the next morning, it was even more, and again, and again. The blood was not bright red anymore. Called ambulance and of to the ER I was.
I thought this would be the beginning of the end. My Varices finally bursted open of course. My liver ache was insane. My girlfriend was holding my hand when the ER doctor came in with the blood results. I had a lack of potassium in my blood (which can also cause constipation).
I asked how my liver was. He told me my liver was fine. I asked him 'fine taking the circumstances in consideration?' . He said, no: your liver is fine! I saw he was elevated 2.5 years ago, he said. I have Cirrhoses, I said. No, he said, you dont. I said: but two years ago I was diagnosed! Yeah, I read something like that, but that is just not possible, its weird. But no way, you dont have Cirrhosis. I said: portal hypertension? No way he replied. I got angry and asked for my bloodwork. EVERYTHING was in range: asat, alat, ggt, alk. fosfor, albumine, INR, billurrib. platelet count, Everything. Of course I couldnt believe this. I thought they mixed up my results with somebody elses or whatever.
Very long story short: a day later I got a colonoscopy. No varices found! I just strained too much during that saturday evening. I had a good long talk with the Liver doctor and told him everything. He apologized and said: we are gonna rule everything out. Stay another night and tomorrow you will get a CT scan. We can see if anything is wrong there. I was 100% convinced that shit would show up. But... It didnt. Even the size of liver was fine. Pain in my right side was 100% between my ears. Im a week later now. I still dont believe what happened. Happy, but also very angry. Doctor also admitted they have made a huge mistake. It must have happened because of the craziness during the pandemic. Last thing: im slowly going of the meds.
Isnt this insane?! I realize, that a lot of you guys would give an arm for a story like mine. That is also the reason why I doubted to put it up here. But its just too important, too insane. And the key of course is: communication f***** everything up. Im the example where it went horribly wrong. However happy I am. For 2.5 years I was afraid, frightened of every body sensation. Therapy, talking to my girl. etc.
I'm not saying dont trust your doctors or dont trust medical science. I am saying be very critical about what youve been told and keep asking questions and keep pushing. I didnt do that and see where it got me for over 2.5 years.
I wish everybody the best and I will be staying and coming on this platform. It is, and has been a great help for me.
I hope I dont offend people with this story. If I do, I apologize in advance...
Take care and hope to talk to you soon...