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The prognostic impact of non-driver gene mutations and variant allele frequency in primary myelofibrosis.
The prognostic impact of non-driver gene mutations and variant allele frequency in primary myelofibrosis. To the Editor: Myelofibrosis is a Philadelphia-negative chronic myelo-proliferative-neoplasm (MPN) characterized by alteration of the JAK–STAT path-way, primarily through activating mutations in
The prognostic impact of non-driver gene mutations and variant allele frequency in primary myelofibrosis. To the Editor: Myelofibrosis is a Philadelphia-negative chronic myelo-proliferative-neoplasm (MPN) characterized by alteration of the JAK–STAT path-way, primarily through activating mutations in
PhysAssist
in
MPN Voice
5 months ago
Liver enzymes & blood test results
Hi, firstly thank you all for replying to my previous posts. Your replies were very helpful. I have got my blood test results. They are normal apart of borderline diabetes. It's 44mmol. My Alt and ast is 28 and FBC is 329. I am not sure what this means? My BMI falls in obese category. Doctor told me
Hi, firstly thank you all for replying to my previous posts. Your replies were very helpful. I have got my blood test results. They are normal apart of borderline diabetes. It's 44mmol. My Alt and ast is 28 and FBC is 329. I am not sure what this means? My BMI falls in obese category. Doctor told me
SShally
in
British Liver Trust
6 months ago
Just wanted to share my Primary Myelofibrosis journey so far…….
Hi all, My diagnosis is Primary Myelofibrosis +Jak-2 &V617F mutation which was in August 2022. This was found after several visits to GP for chest infections and ultrasound scans which found an enlarged spleen. Also had bloods and bone marrow biopsy sent to Bart’s hospital for confirmation. Initial
Hi all, My diagnosis is Primary Myelofibrosis +Jak-2 &V617F mutation which was in August 2022. This was found after several visits to GP for chest infections and ultrasound scans which found an enlarged spleen. Also had bloods and bone marrow biopsy sent to Bart’s hospital for confirmation. Initial
LFCLove
in
MPN Voice
5 months ago
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Liver Disease
Hi . i havent been fully diagnosed as still waiting tests but have ha a high alt for about a year the rest of the lfts just about max. i dont drink but am overweight and have done illicit drugs. i find if i take opiate medication i get heart arrythmias . if i eat fatty food i get like a skin burning
Hi . i havent been fully diagnosed as still waiting tests but have ha a high alt for about a year the rest of the lfts just about max. i dont drink but am overweight and have done illicit drugs. i find if i take opiate medication i get heart arrythmias . if i eat fatty food i get like a skin burning
Jaytyson
in
British Liver Trust
6 months ago
very high liver enzymes
Hello everyone I am 36 years old not an alcohol drinker . No excess weight . I try to eat healthy. On Sunday I ended up in hospital due to pneumonia. Where very high liver tests were detected. I have blood test every day and every day the liver tests are increasing. An ultrasound was performed which
Hello everyone I am 36 years old not an alcohol drinker . No excess weight . I try to eat healthy. On Sunday I ended up in hospital due to pneumonia. Where very high liver tests were detected. I have blood test every day and every day the liver tests are increasing. An ultrasound was performed which
Alexliver
in
British Liver Trust
6 months ago
TIPS Procedure
Hi wonderful community. My question is: Has anyone had a TIPS procedure without having a gastric or esophageal bleed or without HE, ascites or any other of the many conditions associated with cirrhosis? Currently have cirrhosis, enlarged spleen(14.5 cm) and grade 4 both esophageal and gastric varices
Hi wonderful community. My question is: Has anyone had a TIPS procedure without having a gastric or esophageal bleed or without HE, ascites or any other of the many conditions associated with cirrhosis? Currently have cirrhosis, enlarged spleen(14.5 cm) and grade 4 both esophageal and gastric varices
Livmar
in
British Liver Trust
11 months ago
Symptoms suddenly taking a turn for the worse
Hello everyone. I am new to the forum, and have some questions to ask, but also want to share my RLS story, as well as some things that I have found helpful in living with RLS. I have had RLS for over 40 years. At first it was fairly easily controlled with a good run or long walk, and later with magnesium
Hello everyone. I am new to the forum, and have some questions to ask, but also want to share my RLS story, as well as some things that I have found helpful in living with RLS. I have had RLS for over 40 years. At first it was fairly easily controlled with a good run or long walk, and later with magnesium
restlegs1
in
Restless Legs Syndrome
10 months ago
Update
Hi, so after a shock fibroscan result of 9.7 kpa, I went back to see hepatologist, who did another shearwave scan.My timelines of results is as follows (this is for info only, so people can see what I mean): Oct 21 Fibroscan 4.7 kpa Jan 22 Shearwave 1.57 m/s = approx 7.5 kpa Mar 22 Fibroscan 5.9 kpa
Hi, so after a shock fibroscan result of 9.7 kpa, I went back to see hepatologist, who did another shearwave scan.My timelines of results is as follows (this is for info only, so people can see what I mean): Oct 21 Fibroscan 4.7 kpa Jan 22 Shearwave 1.57 m/s = approx 7.5 kpa Mar 22 Fibroscan 5.9 kpa
nerd1
in
British Liver Trust
1 year ago
Starting Home Dialysis-Advice?
I received a kidney transplant in 2014 and now I need another one. I had never been on dialysis before but now I have to go on. I have elected to do dialysis at home. I'm nervous about every part of it from doing it correctly to the amount of space I will need to store materials to whether or not I will
I received a kidney transplant in 2014 and now I need another one. I had never been on dialysis before but now I have to go on. I have elected to do dialysis at home. I'm nervous about every part of it from doing it correctly to the amount of space I will need to store materials to whether or not I will
WillaCather
in
Kidney Transplant
1 year ago
biochemical recurrence after RP. +post leukemia
RP surgery 3/2020. Psa levels stable less than .01 for two years. 6/23 thru 12/23 levels have been .18 to .41. Complication 8/22 diagnosed with AML Leukemia. 5 rounds of chemo and a bone marrow transplant on 1/5/2023. Leukemia is now in complete remission, my blood dna is my donor’s - 40 year
RP surgery 3/2020. Psa levels stable less than .01 for two years. 6/23 thru 12/23 levels have been .18 to .41. Complication 8/22 diagnosed with AML Leukemia. 5 rounds of chemo and a bone marrow transplant on 1/5/2023. Leukemia is now in complete remission, my blood dna is my donor’s - 40 year
junkwerc
in
Prostate Cancer Network
5 months ago
Unrelated to Parkinson's
Prior to 1980 about the only relativly common form of thiamin was thiamin hcl and then most vitamins and enritched food products changed to thiamin mononitrate. While thiamin HCL is a wonderful form of thiamin for 99.99 % of the population for some reason I can't take it. When I take thiamin HCL in
Prior to 1980 about the only relativly common form of thiamin was thiamin hcl and then most vitamins and enritched food products changed to thiamin mononitrate. While thiamin HCL is a wonderful form of thiamin for 99.99 % of the population for some reason I can't take it. When I take thiamin HCL in
Woodyx2
in
Cure Parkinson's
1 year ago
TSH adnormal
Hi everyone hope u guys are all well. I have one question well my kidney transplant is 22 years im very blessed but is around 30 to 28 % and on my blood work my TSH thyroid is high I spoke to the dr about it and he said that is because of my kidney function being so low but im concern my gyno wants
Hi everyone hope u guys are all well. I have one question well my kidney transplant is 22 years im very blessed but is around 30 to 28 % and on my blood work my TSH thyroid is high I spoke to the dr about it and he said that is because of my kidney function being so low but im concern my gyno wants
jennifer24
in
Kidney Transplant
1 year ago
Covid, AKI and liver damage
Has anyone else had Covid and ended up with liver damage, acute kidney injury and nearly died from kidney and liver nigh on failure. I am just wondering if Covid can worsen internal organs, cause double pneumonia and I end up in a coma for nearly 5 weeks. The main question I am trying to find out is
Has anyone else had Covid and ended up with liver damage, acute kidney injury and nearly died from kidney and liver nigh on failure. I am just wondering if Covid can worsen internal organs, cause double pneumonia and I end up in a coma for nearly 5 weeks. The main question I am trying to find out is
golly123
in
British Liver Trust
1 year ago
Hubby recently diagnosed but virtually at the end stage
Hi there. I’m not sure where to start. So my hubby was diagnosed with non alcoholic liver cirrhosis and spent 3 weeks in hospital. Half on ICU where I work and then half on the liver ward. Despite being on diagnosed 4 weeks ago he is quite far down the line of the condition. Jaundice ascities sepsis
Hi there. I’m not sure where to start. So my hubby was diagnosed with non alcoholic liver cirrhosis and spent 3 weeks in hospital. Half on ICU where I work and then half on the liver ward. Despite being on diagnosed 4 weeks ago he is quite far down the line of the condition. Jaundice ascities sepsis
Snips71
in
British Liver Trust
1 year ago
Kidney transplant
My husband received a kidney transplant from a deceased donor last month. He is doing well. Hopefully it will continue that way.
My husband received a kidney transplant from a deceased donor last month. He is doing well. Hopefully it will continue that way.
239227
in
Kidney Transplant
1 year ago
nhs job scared colleagues will find out I have cirrhosis.
hi . I’m becoming more and more worried that once I’m called for my first surveillance of my chirrhosis that I’ll know the doctor and people there as I k ow a lot of the staff in the hospital. I’m wondering if there’s any way I could ask for my scans elsewhere? Tia
hi . I’m becoming more and more worried that once I’m called for my first surveillance of my chirrhosis that I’ll know the doctor and people there as I k ow a lot of the staff in the hospital. I’m wondering if there’s any way I could ask for my scans elsewhere? Tia
Hidden
in
British Liver Trust
1 year ago
Green poo - any connection with Liver disease
Hi All. Will keep it brief. Ended up in hospital last year due to my alcohol consumption (heavy for years, daily for the last 3). Borderline cirrhosis. Lost my job Stayed sober well into this year but stress of not getting a new job and debt recently drove me to relapse. It was a heavy one - horrendous
Hi All. Will keep it brief. Ended up in hospital last year due to my alcohol consumption (heavy for years, daily for the last 3). Borderline cirrhosis. Lost my job Stayed sober well into this year but stress of not getting a new job and debt recently drove me to relapse. It was a heavy one - horrendous
BobbyT74
in
British Liver Trust
1 year ago
High BLood Pressure, Kidney failure, cause discovered
Super high blood pressure, average 180/110 past two years. OVer 10 different BP meds failed to reduce BP. Kidney GFR dropped from upper 50s two years ago to 22 last week in hospital. After hospital and fluids back up to 31. Kidney biopsy last November showed protein crystals in kidneys. Bone
Super high blood pressure, average 180/110 past two years. OVer 10 different BP meds failed to reduce BP. Kidney GFR dropped from upper 50s two years ago to 22 last week in hospital. After hospital and fluids back up to 31. Kidney biopsy last November showed protein crystals in kidneys. Bone
phebamom
in
High Blood Pressure Support
5 months ago
out of hosital now
Im now out of hospital now thankfully (until the next time my levels go down) with bruises all over my right hand This is because despite me telling them I didnt need a canula in because last time i was in my specialist asked why I was wearing one (&I said i thought it was standard procedure
Im now out of hospital now thankfully (until the next time my levels go down) with bruises all over my right hand This is because despite me telling them I didnt need a canula in because last time i was in my specialist asked why I was wearing one (&I said i thought it was standard procedure
horseygirl_0103
in
Lung Conditions Community Forum
1 year ago
Blood pressure/ thyroid
HiI was diagnosed with high blood pressure 4/5 months ago as feeling unwell. I have been prescribed the following tablets of which none have agreed with me - Amlodipine, Ramipril & Losartan. I'm now trying Spironolactone (water tablet). 3 weeks in & I'm getting more weary, confused, balance off & bowels
HiI was diagnosed with high blood pressure 4/5 months ago as feeling unwell. I have been prescribed the following tablets of which none have agreed with me - Amlodipine, Ramipril & Losartan. I'm now trying Spironolactone (water tablet). 3 weeks in & I'm getting more weary, confused, balance off & bowels
Longinthetooth
in
Thyroid UK
1 year ago
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