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We don't know what to expect
Hello 👋 our 60yr old father has ARLD, cirrhosis is present. 12 months since we knew for certain, diagnosed. He was clean 5 months. Then it started again. He's now same as last Yr. Ascites present. Malnourished and not eating. Not moving out his chair. Sat in his own feaces. Only input is whiskey. I
Hello 👋 our 60yr old father has ARLD, cirrhosis is present. 12 months since we knew for certain, diagnosed. He was clean 5 months. Then it started again. He's now same as last Yr. Ascites present. Malnourished and not eating. Not moving out his chair. Sat in his own feaces. Only input is whiskey. I
Sammi0685
in
British Liver Trust
11 months ago
Sick with worry .. gamma GGT level 159 and ALT 62
Evening all, I’m just looking for some advice or guidance really on my recent blood test results following up on the pain I’ve had in my right hand side upper abdomen. As the title suggests, my GGT has come back very high at 159 (think the average for a woman is under 30) and ALT is also above the
Evening all, I’m just looking for some advice or guidance really on my recent blood test results following up on the pain I’ve had in my right hand side upper abdomen. As the title suggests, my GGT has come back very high at 159 (think the average for a woman is under 30) and ALT is also above the
Worriedmummy2024
in
British Liver Trust
4 months ago
Human stem cell transplantation for Parkinson’s disease: A systematic review
Interestinghttps://www.researchgate.net/publication/379454508_Human_stem_cell_transplantation_for_Parkinson's_disease_A_systematic_review_of_in_situ_survival_and_maturation_of_progenitors_derived_from_human_embryonic_or_induced_stem_cells_in_Parkinsonian_models
Interestinghttps://www.researchgate.net/publication/379454508_Human_stem_cell_transplantation_for_Parkinson's_disease_A_systematic_review_of_in_situ_survival_and_maturation_of_progenitors_derived_from_human_embryonic_or_induced_stem_cells_in_Parkinsonian_models
Farooqji
in
Cure Parkinson's
3 months ago
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Diet books for NASH
Trying to find out as much as I can to help my hubby. He has recently been diagnosed with non alcoholic liver cirrhosis 4 weeks ago and spent two separate stays on my ICU where I work with sepsis, jaundice, ascities. Can anyone recommend any books etc for people with NASH. Trying to get as much
Trying to find out as much as I can to help my hubby. He has recently been diagnosed with non alcoholic liver cirrhosis 4 weeks ago and spent two separate stays on my ICU where I work with sepsis, jaundice, ascities. Can anyone recommend any books etc for people with NASH. Trying to get as much
Snips71
in
Liver4Life
11 months ago
Momelotinib for Myelofibrosis
Hi, I have been suffering from primary MF for 9 years and have been on Ruxolitinib. However recently I was advised that Ruxolitinib is no longer effectively managing my MF. My platelets and Hb are low and my spleen has enlarged again. My consultant is trying to get me approved for Momelotinib. She
Hi, I have been suffering from primary MF for 9 years and have been on Ruxolitinib. However recently I was advised that Ruxolitinib is no longer effectively managing my MF. My platelets and Hb are low and my spleen has enlarged again. My consultant is trying to get me approved for Momelotinib. She
Cazbolac
in
MPN Voice
3 months ago
does anyone with mild asthma take carvedilol for portal hypertension
I have extremely mild asthma and have been looking on the Internet about carvedilol which says that carvedilol is contraindicated. I have been recommended to take it and I’m going to have it prescribed. my asthma is so mild but I even forgot to mention it. I will mention it to my GP before I have
I have extremely mild asthma and have been looking on the Internet about carvedilol which says that carvedilol is contraindicated. I have been recommended to take it and I’m going to have it prescribed. my asthma is so mild but I even forgot to mention it. I will mention it to my GP before I have
firegong
in
British Liver Trust
4 months ago
TIPS Procedure
Hi wonderful community. My question is: Has anyone had a TIPS procedure without having a gastric or esophageal bleed or without HE, ascites or any other of the many conditions associated with cirrhosis? Currently have cirrhosis, enlarged spleen(14.5 cm) and grade 4 both esophageal and gastric varices
Hi wonderful community. My question is: Has anyone had a TIPS procedure without having a gastric or esophageal bleed or without HE, ascites or any other of the many conditions associated with cirrhosis? Currently have cirrhosis, enlarged spleen(14.5 cm) and grade 4 both esophageal and gastric varices
Livmar
in
British Liver Trust
11 months ago
Starting Home Dialysis-Advice?
I received a kidney transplant in 2014 and now I need another one. I had never been on dialysis before but now I have to go on. I have elected to do dialysis at home. I'm nervous about every part of it from doing it correctly to the amount of space I will need to store materials to whether or not I will
I received a kidney transplant in 2014 and now I need another one. I had never been on dialysis before but now I have to go on. I have elected to do dialysis at home. I'm nervous about every part of it from doing it correctly to the amount of space I will need to store materials to whether or not I will
WillaCather
in
Kidney Transplant
1 year ago
Travel and Ibrance
I was diagnosed with MBC in June, 2023. I am on Ibrance and letrozole. My medical history is complicated by having had a donor stem cell transplant in 2018 for T cell lymphoma. My immune system was compromised from that but now with Ibrance I'm not sure what to expect in terms of traveling and
I was diagnosed with MBC in June, 2023. I am on Ibrance and letrozole. My medical history is complicated by having had a donor stem cell transplant in 2018 for T cell lymphoma. My immune system was compromised from that but now with Ibrance I'm not sure what to expect in terms of traveling and
Artesa
in
SHARE Metastatic Breast Cancer
3 months ago
stem cell for et?
Would stem cell transplant be an option for ET? I cannot take the Hydrea or Anagralide. Thanks for your feed back
Would stem cell transplant be an option for ET? I cannot take the Hydrea or Anagralide. Thanks for your feed back
Preacherswife
in
MPN Voice
3 months ago
AXSL1 gene mutation
Hello Everyone, I have pmf-MF with JAK2 mutation and have been taking Rux since the end of 2018. Currently, Rux is took in combination with interferon. From the biopsy and blood routine, I have now reversed to PV (Hemoglobin has significantly improved, and the size of spleen has also shrunk a lot, although
Hello Everyone, I have pmf-MF with JAK2 mutation and have been taking Rux since the end of 2018. Currently, Rux is took in combination with interferon. From the biopsy and blood routine, I have now reversed to PV (Hemoglobin has significantly improved, and the size of spleen has also shrunk a lot, although
merlisa
in
MPN Voice
3 months ago
SCT journey update No.2
Hi all, following on from my last post, have just heard from my clinical nurse that they have found three very good donor matches on the registers!! Have been somewhat impatient waiting but as this situation is so new and different for everyone, has been difficult to gauge what is right or wrong. Anyway
Hi all, following on from my last post, have just heard from my clinical nurse that they have found three very good donor matches on the registers!! Have been somewhat impatient waiting but as this situation is so new and different for everyone, has been difficult to gauge what is right or wrong. Anyway
LFCLove
in
MPN Voice
3 months ago
Psych evaluation
This is for those of you who are either on the
liver
transplant
list or who have had a transplant. What I'd like to know is whether you were given a psychological evaluation or a one-to-one conversion with a trained therapist as to how to deal with serious organ rejection should it occur.
This is for those of you who are either on the
liver
transplant
list or who have had a transplant. What I'd like to know is whether you were given a psychological evaluation or a one-to-one conversion with a trained therapist as to how to deal with serious organ rejection should it occur.
Bikafella
in
British Liver Trust
2 years ago
TSH adnormal
Hi everyone hope u guys are all well. I have one question well my kidney transplant is 22 years im very blessed but is around 30 to 28 % and on my blood work my TSH thyroid is high I spoke to the dr about it and he said that is because of my kidney function being so low but im concern my gyno wants
Hi everyone hope u guys are all well. I have one question well my kidney transplant is 22 years im very blessed but is around 30 to 28 % and on my blood work my TSH thyroid is high I spoke to the dr about it and he said that is because of my kidney function being so low but im concern my gyno wants
jennifer24
in
Kidney Transplant
1 year ago
Kidney transplant
My husband received a kidney transplant from a deceased donor last month. He is doing well. Hopefully it will continue that way.
My husband received a kidney transplant from a deceased donor last month. He is doing well. Hopefully it will continue that way.
239227
in
Kidney Transplant
1 year ago
Update
Hi, so after a shock fibroscan result of 9.7 kpa, I went back to see hepatologist, who did another shearwave scan.My timelines of results is as follows (this is for info only, so people can see what I mean): Oct 21 Fibroscan 4.7 kpa Jan 22 Shearwave 1.57 m/s = approx 7.5 kpa Mar 22 Fibroscan 5.9 kpa
Hi, so after a shock fibroscan result of 9.7 kpa, I went back to see hepatologist, who did another shearwave scan.My timelines of results is as follows (this is for info only, so people can see what I mean): Oct 21 Fibroscan 4.7 kpa Jan 22 Shearwave 1.57 m/s = approx 7.5 kpa Mar 22 Fibroscan 5.9 kpa
nerd1
in
British Liver Trust
11 months ago
Still on hold for stem cell transplant
David has now completed 3 cycles of Vidaza. He had a bone marrow biopsy several weeks ago. At first we thought the results were good, that his cancer cells had been reduced sufficiently to proceed with transplant. After our local oncologist spoke to the transplant specialist at Mayo, we received word
David has now completed 3 cycles of Vidaza. He had a bone marrow biopsy several weeks ago. At first we thought the results were good, that his cancer cells had been reduced sufficiently to proceed with transplant. After our local oncologist spoke to the transplant specialist at Mayo, we received word
dwolden
in
CLL Support
3 months ago
out of hosital now
Im now out of hospital now thankfully (until the next time my levels go down) with bruises all over my right hand This is because despite me telling them I didnt need a canula in because last time i was in my specialist asked why I was wearing one (&I said i thought it was standard procedure
Im now out of hospital now thankfully (until the next time my levels go down) with bruises all over my right hand This is because despite me telling them I didnt need a canula in because last time i was in my specialist asked why I was wearing one (&I said i thought it was standard procedure
horseygirl_0103
in
Lung Conditions Community Forum
1 year ago
Symptoms suddenly taking a turn for the worse
Hello everyone. I am new to the forum, and have some questions to ask, but also want to share my RLS story, as well as some things that I have found helpful in living with RLS. I have had RLS for over 40 years. At first it was fairly easily controlled with a good run or long walk, and later with magnesium
Hello everyone. I am new to the forum, and have some questions to ask, but also want to share my RLS story, as well as some things that I have found helpful in living with RLS. I have had RLS for over 40 years. At first it was fairly easily controlled with a good run or long walk, and later with magnesium
restlegs1
in
Restless Legs Syndrome
9 months ago
Ascites drain
Good morning. My husband was taken in for an ascetic drain in November and was found to have Peritonitis which was treated before the drain. He is now on a daily oral antibiotic. His tummy swelled again and we booked a further drain in December but when we got there his tummy was too soft to get the
Good morning. My husband was taken in for an ascetic drain in November and was found to have Peritonitis which was treated before the drain. He is now on a daily oral antibiotic. His tummy swelled again and we booked a further drain in December but when we got there his tummy was too soft to get the
Breakfastbabe
in
British Liver Trust
5 months ago
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