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Great purchase
I want to make everyone aware of an amazing book by the world reknowned PBC expert. I encourage everyone, especially those newly diagnosed, to purchase this book - both editions if possible. Dr. Jones has been one of the contributors to The PBC Foundation's Thursdays' live Q&A sessions. This information
I want to make everyone aware of an amazing book by the world reknowned PBC expert. I encourage everyone, especially those newly diagnosed, to purchase this book - both editions if possible. Dr. Jones has been one of the contributors to The PBC Foundation's Thursdays' live Q&A sessions. This information
DonnaBoll
Administrator
in
PBC Foundation
3 months ago
Exciting!
CymaBay Submits New Drug Application to FDA for Seladelpar for the Treatment of Primary Biliary Cholangitis December 15, 2023 8:00am EST Download as PDF - NDA is supported by data evaluating seladelpar efficacy and safety in over 500 patients - - Seladelpar is the first New Drug Application from
CymaBay Submits New Drug Application to FDA for Seladelpar for the Treatment of Primary Biliary Cholangitis December 15, 2023 8:00am EST Download as PDF - NDA is supported by data evaluating seladelpar efficacy and safety in over 500 patients - - Seladelpar is the first New Drug Application from
DonnaBoll
Administrator
in
PBC Foundation
3 months ago
Counsellor with transplant patient experience
My husband had successful liver transplant surgery 6 months ago. At the same time he was battling liver ill health, he lost the sight in his dominant eye due to a retinal detachment. He now has better vision in his other eye, and is hoping to be able to drive again (he has been off the road for over
My husband had successful liver transplant surgery 6 months ago. At the same time he was battling liver ill health, he lost the sight in his dominant eye due to a retinal detachment. He now has better vision in his other eye, and is hoping to be able to drive again (he has been off the road for over
ScruffyRosie
in
British Liver Trust
3 months ago
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Another disappointing appointment with a consultant... MRI refused
I had my follow up appointment today after my laparoscopy last month where no endo was found but severe adhesions. The appointment today was to discuss the findings and further surgery. It wasn't even the guy I was supposed to see. My request for an MRI was flat out refused. And my adhesions once again
I had my follow up appointment today after my laparoscopy last month where no endo was found but severe adhesions. The appointment today was to discuss the findings and further surgery. It wasn't even the guy I was supposed to see. My request for an MRI was flat out refused. And my adhesions once again
TallulaShark
in
Endometriosis UK
29 days ago
transplant
Hi I’m currently going through the process of assessment for liver transplant , I feel like I have done all the appointments. My bilirubin was 180 in 2022 November yes scary it’s now 52 I’m wondering will I not be accepted for a transplant or what happens. I know we can ask our consultants etc but I
Hi I’m currently going through the process of assessment for liver transplant , I feel like I have done all the appointments. My bilirubin was 180 in 2022 November yes scary it’s now 52 I’m wondering will I not be accepted for a transplant or what happens. I know we can ask our consultants etc but I
Meanies
in
National Foundation for Transplants
3 months ago
Specialist appointment
Hi I was diagnosed with compensated cirrhosis in August last year and ended up in ICU for due to contracting sepsis while being admitted to hospital and as such had intensive care for sepsis and lmy liver. I have had 2 visits to the specialist luver nurse and was reassessed to compensated irrhodis
Hi I was diagnosed with compensated cirrhosis in August last year and ended up in ICU for due to contracting sepsis while being admitted to hospital and as such had intensive care for sepsis and lmy liver. I have had 2 visits to the specialist luver nurse and was reassessed to compensated irrhodis
Oasisman
in
British Liver Trust
3 months ago
Post Transplant Fatigue
Hello, I had my liver transplant just over 6 years ago now and apart from an issue right at the beginning, I have been well. I’ve not even had covid! Recently though I’ve begun to feel very tired again, almost as if I’d never had the transplant at all. My question is, has anyone else experienced chronic
Hello, I had my liver transplant just over 6 years ago now and apart from an issue right at the beginning, I have been well. I’ve not even had covid! Recently though I’ve begun to feel very tired again, almost as if I’d never had the transplant at all. My question is, has anyone else experienced chronic
Dawnejoy
in
British Liver Trust
3 months ago
G P telephone consultation
My GP rang to review my blood tests. All were normal apart from an elevated GGT. It has been elevated for a long time which is why I was referred for a Fibroscan and this scan showed Cirrhosis (17kpa). As I have mentioned previously this was alarming news as I had never drank and had a lower BMi.
My GP rang to review my blood tests. All were normal apart from an elevated GGT. It has been elevated for a long time which is why I was referred for a Fibroscan and this scan showed Cirrhosis (17kpa). As I have mentioned previously this was alarming news as I had never drank and had a lower BMi.
0range5520
in
British Liver Trust
3 months ago
Breastfeeding, skin on skin and contractions (c-section)
Hey everyone, I gave birth about 10 days ago (emergency c section at 29+3 due to HELLP/Pre eclampsia/slowinf fetus heart) and I now have 2 kids in NICU. They encourage us to do skin on skin and after I started doing that, I have been having severe contractions even when I am very far from them; i am
Hey everyone, I gave birth about 10 days ago (emergency c section at 29+3 due to HELLP/Pre eclampsia/slowinf fetus heart) and I now have 2 kids in NICU. They encourage us to do skin on skin and after I started doing that, I have been having severe contractions even when I am very far from them; i am
Tryinglate
in
Pregnancy and Parenting Support
1 month ago
Private elective c section
Hello Ladies, Did any of you book their Elective C Section privately at one of the following hospitals and can recommend one please? I have been told that I have to book mine (already!) and have absolutely no clue and nobody to ask to: - Portland Hospital - Fitzrovia Wing at UCLH - Queens Charlotte
Hello Ladies, Did any of you book their Elective C Section privately at one of the following hospitals and can recommend one please? I have been told that I have to book mine (already!) and have absolutely no clue and nobody to ask to: - Portland Hospital - Fitzrovia Wing at UCLH - Queens Charlotte
Freshcucumber
in
Fertility Network UK - Pregnancy Support
1 month ago
letter received from gastro
Good morning to you all, I would really value your opinions on the letter I received yesterday from gastro ( to my doctor) basically it said bloods are still normal and liver screen was unremarkable which I know is good as it means normal so I’m really pleased with that, I just wish I knew what was
Good morning to you all, I would really value your opinions on the letter I received yesterday from gastro ( to my doctor) basically it said bloods are still normal and liver screen was unremarkable which I know is good as it means normal so I’m really pleased with that, I just wish I knew what was
Sophia1968
in
British Liver Trust
3 months ago
LIVER TEST panel results GGT ALT ALP BILIRUBIN
Hello people , I was having strange symtoms so had a Liver Test and had a shocking GGT high result ! Anyone else ??
Hello people , I was having strange symtoms so had a Liver Test and had a shocking GGT high result ! Anyone else ??
Pulsar25
in
British Liver Trust
3 months ago
previous question
Someone recently asked me about taking Urso after my transplant and the return of the disease for me. I can't find the post but I wanted to answer. I have taken Urso since I was 35 years old. I am now 73. I have had no real problems with it all these years luckily. About 25% of those who have a liver
Someone recently asked me about taking Urso after my transplant and the return of the disease for me. I can't find the post but I wanted to answer. I have taken Urso since I was 35 years old. I am now 73. I have had no real problems with it all these years luckily. About 25% of those who have a liver
DonnaBoll
Administrator
in
PBC Foundation
3 months ago
AIHdx
Hi! New here. I had been experiencing vague, debilitating symptoms occasionally for a few years, fatigue, nausea, chronic back pain, itchy skin, brain fog, etc. November’23 symptoms became acute, as well as dark urine and jaundice and I was basically incapacitated. Hospitalized December’23 with ALT
Hi! New here. I had been experiencing vague, debilitating symptoms occasionally for a few years, fatigue, nausea, chronic back pain, itchy skin, brain fog, etc. November’23 symptoms became acute, as well as dark urine and jaundice and I was basically incapacitated. Hospitalized December’23 with ALT
AIGal73
in
British Liver Trust
3 months ago
Elevated Liver Enzymes and Terry's Nails
Hello Everyone, Hope you all are doing better. I had a routine blood test a month ago and my LFTs were slightly elevated, Alt was 52, Alp was 122 and Ggt was 71. Ast was normal at 35 according to the lab. Other things such as Albumin(42) Globulin(29) Total protien, kindey function, platelets (333),
Hello Everyone, Hope you all are doing better. I had a routine blood test a month ago and my LFTs were slightly elevated, Alt was 52, Alp was 122 and Ggt was 71. Ast was normal at 35 according to the lab. Other things such as Albumin(42) Globulin(29) Total protien, kindey function, platelets (333),
Mhalpha
in
British Liver Trust
3 months ago
GP wanting to report high liver blood test results to DVLA
Hi. This is my first post and I would be grateful of any advice or your experience in relation to this. My husband has been a heavy drinker (evenings and weekends) for a number of years. Blood tests in October showed high levels re health of his liver (not sure of all of the names) and subsequently
Hi. This is my first post and I would be grateful of any advice or your experience in relation to this. My husband has been a heavy drinker (evenings and weekends) for a number of years. Blood tests in October showed high levels re health of his liver (not sure of all of the names) and subsequently
OfftowalktheCamino
in
British Liver Trust
4 months ago
Combined pill, mini pill or alternatives?
Hey so I'm almost 40, I have had three previous laps to excise stage 4 endometriosis from my bladder, uterus and bowel. Been through 2 failed IVFs then had our little girl on the 3rd round via c-section. Now recovering about 10 weeks. Discussed endometriosis returning with GP and they have put me on
Hey so I'm almost 40, I have had three previous laps to excise stage 4 endometriosis from my bladder, uterus and bowel. Been through 2 failed IVFs then had our little girl on the 3rd round via c-section. Now recovering about 10 weeks. Discussed endometriosis returning with GP and they have put me on
luthien
in
Endometriosis UK
1 month ago
an introduction...
Hello everyone! Let me introduce myself. My name is Donna Boll. I have been given the wonderful opportunity from The PBC Foundation to facilitate your online support group, Health Unlocked. For the last 6 years I have facilitated an amazing online PBC support group for The American Liver Foundation.
Hello everyone! Let me introduce myself. My name is Donna Boll. I have been given the wonderful opportunity from The PBC Foundation to facilitate your online support group, Health Unlocked. For the last 6 years I have facilitated an amazing online PBC support group for The American Liver Foundation.
DonnaBoll
Administrator
in
PBC Foundation
4 months ago
High LFT results
I had my first 6 month appointment with my liver nurse last week. As part of the review I had a routine bloody test for LFT. My previous blood test was on the 14th Dec 23 and my numbers were gradually reducing. I just had the results this morning and pretty much all my levels have increased including
I had my first 6 month appointment with my liver nurse last week. As part of the review I had a routine bloody test for LFT. My previous blood test was on the 14th Dec 23 and my numbers were gradually reducing. I just had the results this morning and pretty much all my levels have increased including
anonymous987656384
in
British Liver Trust
4 months ago
Traclamus levels are high
I'm taking traclamus 3mg in the morning and 2mg at night consultant phoned 2day and says the level has gone up to 6 got to have another blood test in next 6wks he didn't mention he was worried about it but i am had my transplant in 2018 anyone on here to help also if he lowers the traclamus will it
I'm taking traclamus 3mg in the morning and 2mg at night consultant phoned 2day and says the level has gone up to 6 got to have another blood test in next 6wks he didn't mention he was worried about it but i am had my transplant in 2018 anyone on here to help also if he lowers the traclamus will it
Shaunwood
in
British Liver Trust
4 months ago
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