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Hope for the future
New research into autoimmune liver condition suggests unique cell movements may be driving disease A Birmingham study reveals a novel cellular phenomenon could be responsible for the onset of primary biliary cholangitis (PBC). Research suggests that a recent understanding of cell movements may
New research into autoimmune liver condition suggests unique cell movements may be driving disease A Birmingham study reveals a novel cellular phenomenon could be responsible for the onset of primary biliary cholangitis (PBC). Research suggests that a recent understanding of cell movements may
DonnaBoll
Administrator
in
PBC Foundation
3 months ago
all aspects of liver research
In the article that was posted below, I know this is not something many of us want to face at anytime in our PBC journey. This is, however, a reality for some of us who did progress to this point in our disease. I have to find some real hope that researchers are working on all aspects of PBC. There are
In the article that was posted below, I know this is not something many of us want to face at anytime in our PBC journey. This is, however, a reality for some of us who did progress to this point in our disease. I have to find some real hope that researchers are working on all aspects of PBC. There are
DonnaBoll
Administrator
in
PBC Foundation
3 months ago
Travel
My husband has decompensated alcohol related liver disease with ascites, abstinent for 7 months. We would like to get to Germany to see his family for a month in our motorhome and wondered if a) anyone has travelled abroad with this condition and b) if anyone has experience of the insurance companies
My husband has decompensated alcohol related liver disease with ascites, abstinent for 7 months. We would like to get to Germany to see his family for a month in our motorhome and wondered if a) anyone has travelled abroad with this condition and b) if anyone has experience of the insurance companies
Breakfastbabe
in
British Liver Trust
3 months ago
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Imuran Side Effects
Taking Imuran for about 5 weeks, started been experiencing many of the initial symptoms I felt before diagnosis at about 2 weeks. At first thought treatment not working, but labs still heading towards normal range. Still titrating down on prednisone . Skipped Imuran a couple days and the nausea, fever
Taking Imuran for about 5 weeks, started been experiencing many of the initial symptoms I felt before diagnosis at about 2 weeks. At first thought treatment not working, but labs still heading towards normal range. Still titrating down on prednisone . Skipped Imuran a couple days and the nausea, fever
AIGal73
in
British Liver Trust
3 months ago
Please check!
Earlier today I posted the link to the PBC Foundaton's Urso calculator. There are so many posts and questions relating to Urso that I thought it was important for everyone to make sure they are on the right dose. This 'calculator' is also available on the PBC app. Knowing you are taking the right dose
Earlier today I posted the link to the PBC Foundaton's Urso calculator. There are so many posts and questions relating to Urso that I thought it was important for everyone to make sure they are on the right dose. This 'calculator' is also available on the PBC app. Knowing you are taking the right dose
DonnaBoll
Administrator
in
PBC Foundation
3 months ago
URSO and Fatigue
Question about URSO….is it really better to take your dose at two different times? I read that the liver works the bile through your body more while you are sleeping. I am much better at remembering by medication in the morning, as sometimes I am not home at dinner time. Is it ok to take it all at
Question about URSO….is it really better to take your dose at two different times? I read that the liver works the bile through your body more while you are sleeping. I am much better at remembering by medication in the morning, as sometimes I am not home at dinner time. Is it ok to take it all at
Gaspereaux
in
British Liver Trust
3 months ago
Fibroscan
Hi, I've posted asking this before, but unfortunately didn't get any response. I'm wondering if anyone can tell me where I can get a private Fibroscan? I'm in the UK. I have been referred to Hepatology due to the surgeon seeing "extensive fibrotic changes" of my liver during gallbladder surgery back
Hi, I've posted asking this before, but unfortunately didn't get any response. I'm wondering if anyone can tell me where I can get a private Fibroscan? I'm in the UK. I have been referred to Hepatology due to the surgeon seeing "extensive fibrotic changes" of my liver during gallbladder surgery back
Givemecoffee
in
British Liver Trust
3 months ago
Is the end in sight???
Hi everyone, this is my first post and reading others seems I am in the right place to discuss these issues with others who know exactly what I am going through. Others, even close friends, I think at times just dont get it... From what I read others too have had a long long road to diagnosis and treatment
Hi everyone, this is my first post and reading others seems I am in the right place to discuss these issues with others who know exactly what I am going through. Others, even close friends, I think at times just dont get it... From what I read others too have had a long long road to diagnosis and treatment
Stopalready
in
Endometriosis UK
5 days ago
Endometriosis removed during c section?
TRIGGER - pregnancy. I know lots of people here struggle with infertility <3After years of infertility due to endo, I somehow have found myself pregnant! I am certain that my endo has returned after a lap in 2021 but had been holding off having another one because I'm worried about the amount of internal
TRIGGER - pregnancy. I know lots of people here struggle with infertility <3After years of infertility due to endo, I somehow have found myself pregnant! I am certain that my endo has returned after a lap in 2021 but had been holding off having another one because I'm worried about the amount of internal
I-Saw-Her-Stop
in
Endometriosis UK
6 days ago
1DP5FET - 2WW, Advice wanted
Hi all. i had a frozen embryo transfer in May of 2022, works first time. Was a grade 3AA (I think) and a donor egg and I showed symptoms 2 days after the transfer and was getting BFPs 3 days after the transfer. Birth ended in a c section, baby is happy and healthy. i had another frozen embryo transfer
Hi all. i had a frozen embryo transfer in May of 2022, works first time. Was a grade 3AA (I think) and a donor egg and I showed symptoms 2 days after the transfer and was getting BFPs 3 days after the transfer. Birth ended in a c section, baby is happy and healthy. i had another frozen embryo transfer
SurrogateFriend
in
Fertility Network UK
7 days ago
Liver Results - Noone can tell me whats normal
Hi All, I'm generally very healthy (lots of exercise) although since I was approx 23 (I'm now 57) my GGT levels have been elevated to between 58-88. This concerned me a little (didn't really concern my Doc) although my ALT's & AST's have always been within normal range. I do drink quite a bit...but
Hi All, I'm generally very healthy (lots of exercise) although since I was approx 23 (I'm now 57) my GGT levels have been elevated to between 58-88. This concerned me a little (didn't really concern my Doc) although my ALT's & AST's have always been within normal range. I do drink quite a bit...but
BouncyCat
in
British Liver Trust
3 months ago
Endo pregnancy c section or vaginal birth ?
hi ladies any one with severe endo and adenymosis? Wondering if you went for a vaginal birth or c section . Iv had 2 major surgery one keyhole and the other laparotomy so my abdominal area is full of scaring and also had a bowel resection . I dreading birth naturally as I have lots of medical trauma
hi ladies any one with severe endo and adenymosis? Wondering if you went for a vaginal birth or c section . Iv had 2 major surgery one keyhole and the other laparotomy so my abdominal area is full of scaring and also had a bowel resection . I dreading birth naturally as I have lots of medical trauma
Jade2006
in
Pregnancy and Parenting Support
23 days ago
Bloods Results
Hi 👋 Please can anyone tell me if they see anything 'abnormal' or concerning about my below latest Blood results from 01/05/24? My GP Surgery says that apart from my TSH result, they're all 'normal'. Background: I am Hypo (Hashimotos) for 13 years. Late diagnosis & undertreated the entire time - and
Hi 👋 Please can anyone tell me if they see anything 'abnormal' or concerning about my below latest Blood results from 01/05/24? My GP Surgery says that apart from my TSH result, they're all 'normal'. Background: I am Hypo (Hashimotos) for 13 years. Late diagnosis & undertreated the entire time - and
RhianR
in
Thyroid UK
24 days ago
New Diagnosis of PBC and Prescribed URSO
Hello Everyone, I recently was diagnosed with PBC and went to see a GI doctor who recommended I start taking URSO. My bloodwork shows an elevated alk phos level (over time), positive AMA, GGT, DSDNA and I also was recently diagnosed last year with an MPN (myeloproliferative neoplasm) called essential
Hello Everyone, I recently was diagnosed with PBC and went to see a GI doctor who recommended I start taking URSO. My bloodwork shows an elevated alk phos level (over time), positive AMA, GGT, DSDNA and I also was recently diagnosed last year with an MPN (myeloproliferative neoplasm) called essential
Toddyboo
in
PBC Foundation
3 months ago
Diagnosed with Non Alcohol Cirrhosis
Hi everyone, I was recently diagnosed with stage 2 non alcoholic cirrhosis and am having a lot trouble accepting my diagnosis. It could be because my dad died of alcohol cirrhosis 21 years ago and I know how bad it can get. I have very few symptoms right now and am just being monitored. I know my prognosis
Hi everyone, I was recently diagnosed with stage 2 non alcoholic cirrhosis and am having a lot trouble accepting my diagnosis. It could be because my dad died of alcohol cirrhosis 21 years ago and I know how bad it can get. I have very few symptoms right now and am just being monitored. I know my prognosis
Dogmom1968
in
British Liver Trust
3 months ago
urea blood test low
hi has anyone ever experienced this my Liver tests were normal this time round alt being 28 however my urea said 2.0 and it said that the normal is between 2.5 and 7.0 thanks in advance x
hi has anyone ever experienced this my Liver tests were normal this time round alt being 28 however my urea said 2.0 and it said that the normal is between 2.5 and 7.0 thanks in advance x
Faye-red
in
British Liver Trust
3 months ago
Fib-4 score 0.66
Hello Everyone, please advise if fib-4 score is same as fibro scan score. Mine is 0.66 or 1 32. I am worried sick about it. It says the score is intermediate. I think I have terry nails, itching and dull pain. Is this mean that I have advanced cirrhosis? My blood test are normal.
Hello Everyone, please advise if fib-4 score is same as fibro scan score. Mine is 0.66 or 1 32. I am worried sick about it. It says the score is intermediate. I think I have terry nails, itching and dull pain. Is this mean that I have advanced cirrhosis? My blood test are normal.
SShally
in
British Liver Trust
3 months ago
alt level 96
hi, m I’ve had two high alt levels and my ast levels were normal. I have been diagnosed with severe fatty liver. I’m still so worried it could be Cirrhosis or would of this been picked up. Also does anybody have any advice on foods? like how much wholemeal bread I can have a week? I’ve been living
hi, m I’ve had two high alt levels and my ast levels were normal. I have been diagnosed with severe fatty liver. I’m still so worried it could be Cirrhosis or would of this been picked up. Also does anybody have any advice on foods? like how much wholemeal bread I can have a week? I’ve been living
Chicob29
in
British Liver Trust
3 months ago
Hi, new here!
Hi, I'm new here after being on the Endometriosis UK forum for 2 years while I was on waiting lists. Last month I had a Laparoscopy where severe and widespread adhesions were found. First gynaecologist said no endo, adhesions caused by c-section, heavy bleeding due to aging. Second gynaecologist said
Hi, I'm new here after being on the Endometriosis UK forum for 2 years while I was on waiting lists. Last month I had a Laparoscopy where severe and widespread adhesions were found. First gynaecologist said no endo, adhesions caused by c-section, heavy bleeding due to aging. Second gynaecologist said
TallulaShark
in
Pelvic Pain Support Network
29 days ago
Need some info on Fibroids
I've been posting here for almost 2 years about my pelvic pain and heavy bleeding while on waiting lists. I had a laparoscopy last month which showed severe and widespread adhesions. I was told by one gynaecologist that there was no endo and the adhesions would have been caused by my c-section in 2009
I've been posting here for almost 2 years about my pelvic pain and heavy bleeding while on waiting lists. I had a laparoscopy last month which showed severe and widespread adhesions. I was told by one gynaecologist that there was no endo and the adhesions would have been caused by my c-section in 2009
TallulaShark
in
Endometriosis UK
29 days ago
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