My Son is 9 weeks old, had the kasai operation when he was 6 weeks old his eyes are still a bit yellowish Stool is light yellow and he poop every feed. doctors said that they found mild to moderate fibrosis in his biopsy report . i wanted to know about mild to moderate fibrosis . anyone had this kind of report? Also poop colour? When it changeHis weight is slow pls reply
Thank u
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srajeshwari53
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Hello take every day at a time stay in touch with some other parent so you have someone too talk to through out your journey it helps. Are you from the uk?
My son also had the Kasai. He had the Kasai at 8 weeks and it did not work. However I do know many children for whom the Kasai DID work even if they had fibrosis. I hope the Kasai will start to work for your son!
He had a liver transplant at 11 months old. Shortly after his liver transplant he developed PTLD and had to get Rituximab for 6 months. Since then he had been doing great! He is turning 4 next month and he goes to preschool, has friends and loves to play. It was definitely not an easy road but we are in a good place now.
Hi,how's ur son now. Where in India u did kasai. I stay in kuwait ,here my son had kasai 3 months back.. I'm from India.always very desperate n want to knw more abt this disease
Here they say,we have to wait for a year ,it depends upon his blood levels n bilirubin levels,its better all those levels to come down.my son is doing well but few of his levels r still high.. hoping for success kasai, waiting for God's miracle. MAY ALMIGHTY PROTECT ALL OUR CHILDREN
Gaining weight but not too much.yes by God's grace stool colour is changed. I'm from mangalore. When I land down to India I want to consult doctors there , may be I consult in manipal. If possible I may visit bangalore, pls guide me then
Hello iam from banglore his kasai is done in banglore Indiragandhi child specilist hospital My son is very active he is 3 months old he smiles every wake up and 5 weeks post kasai how is ur son?
From bangalore..how many days to take stool to become yellow..my son undergone Kasai at sakra hospital last week ..initially after kasai it was clay or brown type now it's looking light yellow...suggest
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