Billiry attresia : My Son is 9 weeks... - Children's Liver ...

Children's Liver Disease Foundation

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Billiry attresia

srajeshwari53 profile image
24 Replies

My Son is 9 weeks old, had the kasai operation when he was 6 weeks old his eyes are still a bit yellowish Stool is light yellow and he poop every feed. doctors said that they found mild to moderate fibrosis in his biopsy report . i wanted to know about mild to moderate fibrosis . anyone had this kind of report? Also poop colour? When it changeHis weight is slow pls reply

Thank u

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srajeshwari53 profile image
srajeshwari53
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24 Replies
Channi87 profile image
Channi87

Hello take every day at a time stay in touch with some other parent so you have someone too talk to through out your journey it helps. Are you from the uk?

srajeshwari53 profile image
srajeshwari53 in reply toChanni87

Thank u No im from india

Vineyard2020 profile image
Vineyard2020

My son also had the Kasai. He had the Kasai at 8 weeks and it did not work. However I do know many children for whom the Kasai DID work even if they had fibrosis. I hope the Kasai will start to work for your son!

srajeshwari53 profile image
srajeshwari53 in reply toVineyard2020

Thank u for ur response how is ur son now and pls tell me ur sons journey.

Vineyard2020 profile image
Vineyard2020

He had a liver transplant at 11 months old. Shortly after his liver transplant he developed PTLD and had to get Rituximab for 6 months. Since then he had been doing great! He is turning 4 next month and he goes to preschool, has friends and loves to play. It was definitely not an easy road but we are in a good place now.

Zuhena profile image
Zuhena

Hi,how's ur son now. Where in India u did kasai. I stay in kuwait ,here my son had kasai 3 months back.. I'm from India.always very desperate n want to knw more abt this disease

srajeshwari53 profile image
srajeshwari53 in reply toZuhena

Is surgery is success

Zuhena profile image
Zuhena in reply tosrajeshwari53

Here they say,we have to wait for a year ,it depends upon his blood levels n bilirubin levels,its better all those levels to come down.my son is doing well but few of his levels r still high.. hoping for success kasai, waiting for God's miracle. MAY ALMIGHTY PROTECT ALL OUR CHILDREN

srajeshwari53 profile image
srajeshwari53 in reply toZuhena

Share ur sons jurney

srajeshwari53 profile image
srajeshwari53 in reply toZuhena

Ur sons stool colour changed or not? And ur son is gaining weight or not?

Zuhena profile image
Zuhena in reply tosrajeshwari53

Gaining weight but not too much.yes by God's grace stool colour is changed. I'm from mangalore. When I land down to India I want to consult doctors there , may be I consult in manipal. If possible I may visit bangalore, pls guide me then

srajeshwari53 profile image
srajeshwari53 in reply toZuhena

After kasai How many Days it will take to change stool colour? What is the stool colour?

srajeshwari53 profile image
srajeshwari53 in reply toZuhena

Yes i will definetaly guide u? If possible pls share ur sons full jurney bcoz it will help so many peoples

srajeshwari53 profile image
srajeshwari53 in reply toZuhena

Hello iam from banglore his kasai is done in banglore Indiragandhi child specilist hospital My son is very active he is 3 months old he smiles every wake up and 5 weeks post kasai how is ur son?

Ksjjsjss profile image
Ksjjsjss in reply tosrajeshwari53

Who did kasai in that hospital

srajeshwari53 profile image
srajeshwari53 in reply toKsjjsjss

Dr Kiran sir And His Team

Ksjjsjss profile image
Ksjjsjss in reply tosrajeshwari53

How is potty colour now..and bilirubin level?

srajeshwari53 profile image
srajeshwari53 in reply toKsjjsjss

Stool is yellow and bilirubin level coming down

Ksjjsjss profile image
Ksjjsjss

Dr kiran rachappa?

srajeshwari53 profile image
srajeshwari53 in reply toKsjjsjss

I dont know his sername

srajeshwari53 profile image
srajeshwari53 in reply toKsjjsjss

Are u from

Ksjjsjss profile image
Ksjjsjss

From bangalore..how many days to take stool to become yellow..my son undergone Kasai at sakra hospital last week ..initially after kasai it was clay or brown type now it's looking light yellow...suggest

srajeshwari53 profile image
srajeshwari53 in reply toKsjjsjss

U can contact me whatsup or call send me ur contact no chat through

Ksjjsjss profile image
Ksjjsjss

Bili was 10 before Kasai ..after kasai still same

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