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Experiences with
Livedo reticularis
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End stage liver disease
Hi everyone, My husband was diagnosed in January with hepatic encephalopathy he has end stage liver disease. To cut along story short he was told by the consultant in Feb about having a discussion on the next appointment about a transplant, so the that next appointment came and we has to ask her about
Hi everyone, My husband was diagnosed in January with hepatic encephalopathy he has end stage liver disease. To cut along story short he was told by the consultant in Feb about having a discussion on the next appointment about a transplant, so the that next appointment came and we has to ask her about
Janey1309
in
British Liver Trust
26 days ago
for some of our newer members
Hi - and welcome! My name is Donna - I facilitate this support group for The PBC Foundation - Health Unlocked. If you are new to your diagnosis, first of all, take a breath. It’s ok. We all, myself included, have been exactly where you are right now…. scared, unsure, mad, sad, and so much more. Stop
Hi - and welcome! My name is Donna - I facilitate this support group for The PBC Foundation - Health Unlocked. If you are new to your diagnosis, first of all, take a breath. It’s ok. We all, myself included, have been exactly where you are right now…. scared, unsure, mad, sad, and so much more. Stop
DonnaBoll
Administrator
in
PBC Foundation
26 days ago
Recently diagnosed with Liver disease.
Hi guys This is my first post on here, and im just looking for advice really? I've recently been diagnosed with fatty liver disease and enlarged liver, my g.p was surprised to hear that I rairly drink, and my diet isn't bad ( I cook most meals from scratch in the air frier) and takeaway 2/3 times a
Hi guys This is my first post on here, and im just looking for advice really? I've recently been diagnosed with fatty liver disease and enlarged liver, my g.p was surprised to hear that I rairly drink, and my diet isn't bad ( I cook most meals from scratch in the air frier) and takeaway 2/3 times a
KellyNASH
in
British Liver Trust
26 days ago
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Looking for advice please
Hello folks. I've been on here for a couple weeks reading peoples comments/stories. but have not posted anything until now. Hope you all are doing ok. Im looking for a bit of advice if anyone can help please. Back in august last year i was diagnosed with Liver cirrhosis from drinking. for the
Hello folks. I've been on here for a couple weeks reading peoples comments/stories. but have not posted anything until now. Hope you all are doing ok. Im looking for a bit of advice if anyone can help please. Back in august last year i was diagnosed with Liver cirrhosis from drinking. for the
StokieB
in
British Liver Trust
26 days ago
Discomfort
Hi all. I'm getting discomfort in my upper abdomen. It's not pain exactly but it's uncomfortable. It's like IBS, which I suffer with, but can't take peppermint oil anymore. Has anyone else experienced this? Is it normal? It's not bloated like I had when I was diagnosed with cirrhosis. Apart from this
Hi all. I'm getting discomfort in my upper abdomen. It's not pain exactly but it's uncomfortable. It's like IBS, which I suffer with, but can't take peppermint oil anymore. Has anyone else experienced this? Is it normal? It's not bloated like I had when I was diagnosed with cirrhosis. Apart from this
Littlelizzy11
in
British Liver Trust
26 days ago
fibroscan
I have been diagnosed with NASH cirrhosis. When I had the fibroscan I had to lie on my left side and the scan was done on my back. Everything I have seen since is people lying on their back with their right arm stretched up. I have been wondering whether the scan was done properly. Has anyone else
I have been diagnosed with NASH cirrhosis. When I had the fibroscan I had to lie on my left side and the scan was done on my back. Everything I have seen since is people lying on their back with their right arm stretched up. I have been wondering whether the scan was done properly. Has anyone else
Darcyprincess
in
British Liver Trust
26 days ago
Wednesday's Word
[u]
PP
[/u][u][i]
AR drugs
[/i][/u] - This is a class of drugs used as second line treatment in Urso non responders. These drugs have long been used as a lipid lowering drugs - although now statins are more widely used for this purpose of lowering cholesterol. They are not yet approved by
[u]
PP
[/u][u][i]
AR drugs
[/i][/u] - This is a class of drugs used as second line treatment in Urso non responders. These drugs have long been used as a lipid lowering drugs - although now statins are more widely used for this purpose of lowering cholesterol. They are not yet approved by
DonnaBoll
Administrator
in
PBC Foundation
27 days ago
Understand Your Blood Work
this is from a Canadian PBC Society PBC FACT SHEET (09/02/16) (may vary by lab) ALP Alkaline Phosphatase This enzyme occurs mainly in liver cells next to bile ducts, and in bone. The blood level is raised in PBC and is the main enzyme that is checked to see if you have a response to treatment
this is from a Canadian PBC Society PBC FACT SHEET (09/02/16) (may vary by lab) ALP Alkaline Phosphatase This enzyme occurs mainly in liver cells next to bile ducts, and in bone. The blood level is raised in PBC and is the main enzyme that is checked to see if you have a response to treatment
DonnaBoll
Administrator
in
PBC Foundation
30 days ago
information about liver transplants/liver cancer
https://l.facebook.com/l.php?u=AT1q4nZnRGFEk9DREjCfOr32vqyD8L1g6K0RcC_EDbD4oCwtB3eulAZZduYdqnytaPjLXB9ZdFhw53LtO0m0MZWIG09DGKjSAU58KK3Gx6FqL1ztOVQvumdzQlbjfVPHGO8tFD2m0oK5VyAVEzzJoUzd2pJDkD8m4nCGQIsZDX8eZvxWwFuOeOlBzlzmIDXByapbNibWWnHsiBDPCpdlit3QCvc3HXSgyaugkx8LKnX9JUKbsPscdDYOai6FkVHhe7jUsezWDdM0phZl2Gas6b6w_e9YfCqvk9s_pVzncIu2r7Dt7s1gfemxBPiIXaHYEiuPp0OwY
https://l.facebook.com/l.php?u=AT1q4nZnRGFEk9DREjCfOr32vqyD8L1g6K0RcC_EDbD4oCwtB3eulAZZduYdqnytaPjLXB9ZdFhw53LtO0m0MZWIG09DGKjSAU58KK3Gx6FqL1ztOVQvumdzQlbjfVPHGO8tFD2m0oK5VyAVEzzJoUzd2pJDkD8m4nCGQIsZDX8eZvxWwFuOeOlBzlzmIDXByapbNibWWnHsiBDPCpdlit3QCvc3HXSgyaugkx8LKnX9JUKbsPscdDYOai6FkVHhe7jUsezWDdM0phZl2Gas6b6w_e9YfCqvk9s_pVzncIu2r7Dt7s1gfemxBPiIXaHYEiuPp0OwY
DonnaBoll
Administrator
in
PBC Foundation
30 days ago
elevated liver enzymes for 10 years no answers
I’ve had up and down liver enzymes for 10 years since having my first child. I have 3 children now. I’ve had scans and yearly blood work. I’ve had autoimmune blood work as well as hep a b c ran. Everything comes back ok. No fat seen in the ultrasound as of yet. Idk 🤷🏻♀️ I’m about 10 lbs overweight
I’ve had up and down liver enzymes for 10 years since having my first child. I have 3 children now. I’ve had scans and yearly blood work. I’ve had autoimmune blood work as well as hep a b c ran. Everything comes back ok. No fat seen in the ultrasound as of yet. Idk 🤷🏻♀️ I’m about 10 lbs overweight
mtk0925
in
Liver4Life
1 month ago
Cirosis
I have high liver enzymes. AST 91. Alt 134. Ggt 235. Fibroscan cap 366 and kpa 5.6. What does this mean .
I have high liver enzymes. AST 91. Alt 134. Ggt 235. Fibroscan cap 366 and kpa 5.6. What does this mean .
Curryblue
in
British Liver Trust
1 month ago
Chronic Liver Disease Post Transplant
Hi, I had a liver transplant in October 2017 and apart from a little set back right at the beginning, meaning I was in Addenbrookes for 5 weeks, I have been really well. I haven’t even had Covid! However a couple of months ago, I had a CT scan which showed that I have chronic liver disease. To say
Hi, I had a liver transplant in October 2017 and apart from a little set back right at the beginning, meaning I was in Addenbrookes for 5 weeks, I have been really well. I haven’t even had Covid! However a couple of months ago, I had a CT scan which showed that I have chronic liver disease. To say
Dawnejoy
in
British Liver Trust
1 month ago
Help with diet
My husband has been told to cut out salt and reduce fluids to 1.5lt a day due to ascites, but increase protein and carbs and calories intake to around 3000 a day to maintain his weight. He is struggling with this as he has never had a big appetite and would happily exist on bread and sausage. He is type
My husband has been told to cut out salt and reduce fluids to 1.5lt a day due to ascites, but increase protein and carbs and calories intake to around 3000 a day to maintain his weight. He is struggling with this as he has never had a big appetite and would happily exist on bread and sausage. He is type
Breakfastbabe
in
British Liver Trust
1 month ago
nose bleed
was rushed to hospital 2weeks ago for pneumonia. Was discharged after a week. Wasn’t home 24 hrs. And out of the blue my nose started bleeding. It hasn’t stopped. Has this happened to anyone else and what did the doctors do to stop it?
was rushed to hospital 2weeks ago for pneumonia. Was discharged after a week. Wasn’t home 24 hrs. And out of the blue my nose started bleeding. It hasn’t stopped. Has this happened to anyone else and what did the doctors do to stop it?
Daytym
in
British Liver Trust
1 month ago
Blood test results
Hi, three weeks ago I had a Fibroscan in a mobile community testing van, the result was a reading of 15.1. The nurse suggested cirrhosis of the liver and said a referral for a CT scan was appropriate. I hadn't heard anything for two weeks, as you can imagine, I was beside myself with worry, I phoned
Hi, three weeks ago I had a Fibroscan in a mobile community testing van, the result was a reading of 15.1. The nurse suggested cirrhosis of the liver and said a referral for a CT scan was appropriate. I hadn't heard anything for two weeks, as you can imagine, I was beside myself with worry, I phoned
Hidden
in
British Liver Trust
1 month ago
liver
I’m 73 and been feeling extra tired recently, otherwise fit and well. I thought the tiredness might be caused by Keppra a drug I take for epilepsy, I’m also on statins … but anyway the GP did a blood test, the Serum Alanine transaminase was ‘out of range’ at 54 u/l. I’ve always been a drinker but stick
I’m 73 and been feeling extra tired recently, otherwise fit and well. I thought the tiredness might be caused by Keppra a drug I take for epilepsy, I’m also on statins … but anyway the GP did a blood test, the Serum Alanine transaminase was ‘out of range’ at 54 u/l. I’ve always been a drinker but stick
rogertb
in
British Liver Trust
1 month ago
Hope for confusion/brain fog
Umecrine Cognition is developing a completely new type of drug for neurological disorders in the brain that can occur as a result of a number of underlying diseases and lead to severely reduced cognition and alertness. The results from an internationally recognized clinical phase 2 study indicate that
Umecrine Cognition is developing a completely new type of drug for neurological disorders in the brain that can occur as a result of a number of underlying diseases and lead to severely reduced cognition and alertness. The results from an internationally recognized clinical phase 2 study indicate that
DonnaBoll
Administrator
in
PBC Foundation
1 month ago
Tuesday 'tips'
[i]What are some ways you cope with the fatigue?[/i] [i]How has the fatigue affected your life overall?[/i] [i]What have you found helpful on those days?[/i] [i]finally.....[/i][i]
..has you doctor ever asked you "how's the fatigue?"
[/i][i] I know for me, he has never ever asked me in the 20
[i]What are some ways you cope with the fatigue?[/i] [i]How has the fatigue affected your life overall?[/i] [i]What have you found helpful on those days?[/i] [i]finally.....[/i][i]
..has you doctor ever asked you "how's the fatigue?"
[/i][i] I know for me, he has never ever asked me in the 20
DonnaBoll
Administrator
in
PBC Foundation
1 month ago
interesting encounter
my spouse was at Costco recently and after shopping ate at the food court. Shared a table with another couple. They got to talking. Turns out the man had PBC! He had a liver transplant 23 years ago. Been doing Ok. They gave my spouse their phone numbers since I wasn’t there. Nice thing is he goes
my spouse was at Costco recently and after shopping ate at the food court. Shared a table with another couple. They got to talking. Turns out the man had PBC! He had a liver transplant 23 years ago. Been doing Ok. They gave my spouse their phone numbers since I wasn’t there. Nice thing is he goes
CeeCee101
in
PBC Foundation
1 month ago
stent
Hello. My husband had a stent placed into his bile duct to widen it last April (2023) he had it removed in August (23) and a balloon used to widen further strictures (narrowings). All seemed ok. He struggles daily due to his PSC which has caused cirrhosis on the left side of his liver plus portal hypertension
Hello. My husband had a stent placed into his bile duct to widen it last April (2023) he had it removed in August (23) and a balloon used to widen further strictures (narrowings). All seemed ok. He struggles daily due to his PSC which has caused cirrhosis on the left side of his liver plus portal hypertension
Grannysmiff
in
British Liver Trust
1 month ago
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