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Livedo reticularis
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UPDATE: Cod Liver Oil Supplements with Prednisolone
Thank you everyone for your replies. I have lots of information to read and questions for my GP tomorrow. I'm feeling far more in control with the knowledge I now have from you on this group. Really appreciate all the time you've taken to respond to my question. Thank you all once again. I'll sign
Thank you everyone for your replies. I have lots of information to read and questions for my GP tomorrow. I'm feeling far more in control with the knowledge I now have from you on this group. Really appreciate all the time you've taken to respond to my question. Thank you all once again. I'll sign
Sew_And_Sew
in
PMRGCAuk
1 month ago
Cod Liver Oil Supplements with Prednisolone
Been on prednisolone (UK) since 01/11/2022. I'm currently taking 3mgs/4mgs on alternate days. 3mgs was too much for me. Anyway if on pred, can we take cod liver oil supplements please? The tablets are ginormous so my husband has bought the liquid. Don't want to start unless it's OK to do so. Any opinions
Been on prednisolone (UK) since 01/11/2022. I'm currently taking 3mgs/4mgs on alternate days. 3mgs was too much for me. Anyway if on pred, can we take cod liver oil supplements please? The tablets are ginormous so my husband has bought the liquid. Don't want to start unless it's OK to do so. Any opinions
Sew_And_Sew
in
PMRGCAuk
1 month ago
taking Urso
I know some of you have already read the comments on the FB page. The subject of taking Urso, even though it causes so many side effects and ‘doesn’t keep me from dying’, has been brought up. I feel in my heart I need to offer my thoughts. I have been taking Urso for over 35 years. I had PBC for 20
I know some of you have already read the comments on the FB page. The subject of taking Urso, even though it causes so many side effects and ‘doesn’t keep me from dying’, has been brought up. I feel in my heart I need to offer my thoughts. I have been taking Urso for over 35 years. I had PBC for 20
DonnaBoll
Administrator
in
PBC Foundation
6 months ago
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Low ferritin
I was diagnosed with PV in November 2020. Initially, I had a few phlebotomies to reduce my hematocrit but thankfully I've passed my last three blood tests and haven't had one since January 2023. I take aspirin, a spoonful of cod liver oil and half a tin of grapefruit every day to keep my haematocrit
I was diagnosed with PV in November 2020. Initially, I had a few phlebotomies to reduce my hematocrit but thankfully I've passed my last three blood tests and haven't had one since January 2023. I take aspirin, a spoonful of cod liver oil and half a tin of grapefruit every day to keep my haematocrit
M1ndMyB100d
in
MPN Voice
1 month ago
Travel insurance
Hello everybody, my first post I joined approximately about six months ago after my husband was diagnosed with cirrhosis, early May 2023 He is now doing very well 🙏I have certainly learned so much from everybody’s contributions and I am very appreciative of that so thank you to everybody. I did
Hello everybody, my first post I joined approximately about six months ago after my husband was diagnosed with cirrhosis, early May 2023 He is now doing very well 🙏I have certainly learned so much from everybody’s contributions and I am very appreciative of that so thank you to everybody. I did
Miraclesdohappen1958
in
British Liver Trust
6 months ago
Blood test results - anxiety
Hi everyone, I posted this same message in my previous post but I don't think it has been seen by anyone so creating a new post here... I got my blood test results back this morning. Here they are – TSH mIU/L: <0.005 (range 0.27 - 4.2) FT3 pmol/L: 7.7 (range 3.1 – 6.8) FT4 pmol/L: 18.2 (range 12 –
Hi everyone, I posted this same message in my previous post but I don't think it has been seen by anyone so creating a new post here... I got my blood test results back this morning. Here they are – TSH mIU/L: <0.005 (range 0.27 - 4.2) FT3 pmol/L: 7.7 (range 3.1 – 6.8) FT4 pmol/L: 18.2 (range 12 –
ci00aaj
in
Thyroid UK
2 months ago
Stabbing pains
I’m in the middle of all my tests - looks like I have (perhaps) fibrosis F2/F3 and severe fatty liver. And some mild portal gastropathy. However it’s a pain in the upper abdomen that’s confusing me. It’s mostly a stabbing sharp pain and sometimes it actually makes me itch - not like on the skin, but
I’m in the middle of all my tests - looks like I have (perhaps) fibrosis F2/F3 and severe fatty liver. And some mild portal gastropathy. However it’s a pain in the upper abdomen that’s confusing me. It’s mostly a stabbing sharp pain and sometimes it actually makes me itch - not like on the skin, but
Jaxxy8
in
British Liver Trust
6 months ago
Symptoms of advanced liver disease
Hi Everyone, after long waiting period, I have finally got my first hepatologist appointment after 8 months from now. After this appointment he will refer me for a fibro scan. I am afraid if I have advanced liver disease it will be worst. I do have itchy palms and feet. dull ache in abdomen and I am
Hi Everyone, after long waiting period, I have finally got my first hepatologist appointment after 8 months from now. After this appointment he will refer me for a fibro scan. I am afraid if I have advanced liver disease it will be worst. I do have itchy palms and feet. dull ache in abdomen and I am
SShally
in
British Liver Trust
6 months ago
Taking antihistamine with cirrhosis
I am suffering from pet allergy and would like to take antihistamines.. which over the counter are safe with cirrhosis? Are there any other suggestions to relieve the symptoms. All blood work are within normal range and living a normal healthy life, obviously no alcohol.
I am suffering from pet allergy and would like to take antihistamines.. which over the counter are safe with cirrhosis? Are there any other suggestions to relieve the symptoms. All blood work are within normal range and living a normal healthy life, obviously no alcohol.
Male47
in
British Liver Trust
6 months ago
NHS Targeted Lung Check
Hi folks . . . those smokers or ex smokers on here may be aware of this screening programme currently being rolled out. Apparently the scan can ID a number of incidental issues including Liver Lesions which I believe are not usually related to alcohol consumption. However, might they also detect Fatty
Hi folks . . . those smokers or ex smokers on here may be aware of this screening programme currently being rolled out. Apparently the scan can ID a number of incidental issues including Liver Lesions which I believe are not usually related to alcohol consumption. However, might they also detect Fatty
HouseHead
in
British Liver Trust
6 months ago
Travel Insurance
Hello all, I was diagnosed with Liver Cirrhosis last October with Gastric Varices that where treated with a coil at the time. Can anyone advise as to any travel insurance companies that specialise in Liver disease conditions? Best regards Gary
Hello all, I was diagnosed with Liver Cirrhosis last October with Gastric Varices that where treated with a coil at the time. Can anyone advise as to any travel insurance companies that specialise in Liver disease conditions? Best regards Gary
RoryG2023
in
British Liver Trust
6 months ago
Fenofibrates
Someone asked if Dr. Jones' book mentioned the use of fenofibrates.... yes, it does in several places. This might be a good book to have if you are considering using them. He is the leading expert on PBC. Hope it helps... The subject is discussed in the chapter for 'Treatment of PBC'. Many have been
Someone asked if Dr. Jones' book mentioned the use of fenofibrates.... yes, it does in several places. This might be a good book to have if you are considering using them. He is the leading expert on PBC. Hope it helps... The subject is discussed in the chapter for 'Treatment of PBC'. Many have been
DonnaBoll
Administrator
in
PBC Foundation
6 months ago
CAP score of 299, diagnosed with Cirrhosis
I am a 60 yr old male, and was recently diagnosed with liver cirrhosis. My fibroscan showed 19.6 LSM score and 299 CAP, with a grade 4 fatty liver. I have recently started cleaning up my diet and taking some medicine to reduce insulin resistance. I am extremely disturbed and nervous as I struggle with
I am a 60 yr old male, and was recently diagnosed with liver cirrhosis. My fibroscan showed 19.6 LSM score and 299 CAP, with a grade 4 fatty liver. I have recently started cleaning up my diet and taking some medicine to reduce insulin resistance. I am extremely disturbed and nervous as I struggle with
Carblover8
in
British Liver Trust
6 months ago
Ultrasound
Hi All, So I have ulcerative colitis and have had 2 raised alt levels. I paid for a private ultrasound yesterday and the results are severe hepatosteatosis. could anybody advise what I should be eating or doing ? I have a drs appointment but it’s not for another 2 weeks. Also had anybody reversed
Hi All, So I have ulcerative colitis and have had 2 raised alt levels. I paid for a private ultrasound yesterday and the results are severe hepatosteatosis. could anybody advise what I should be eating or doing ? I have a drs appointment but it’s not for another 2 weeks. Also had anybody reversed
Chicob29
in
British Liver Trust
6 months ago
Great purchase
I want to make everyone aware of an amazing book by the world reknowned PBC expert. I encourage everyone, especially those newly diagnosed, to purchase this book - both editions if possible. Dr. Jones has been one of the contributors to The PBC Foundation's Thursdays' live Q&A sessions. This information
I want to make everyone aware of an amazing book by the world reknowned PBC expert. I encourage everyone, especially those newly diagnosed, to purchase this book - both editions if possible. Dr. Jones has been one of the contributors to The PBC Foundation's Thursdays' live Q&A sessions. This information
DonnaBoll
Administrator
in
PBC Foundation
6 months ago
Exciting!
CymaBay Submits New Drug Application to FDA for Seladelpar for the Treatment of Primary Biliary Cholangitis December 15, 2023 8:00am EST Download as PDF - NDA is supported by data evaluating seladelpar efficacy and safety in over 500 patients - - Seladelpar is the first New Drug Application from
CymaBay Submits New Drug Application to FDA for Seladelpar for the Treatment of Primary Biliary Cholangitis December 15, 2023 8:00am EST Download as PDF - NDA is supported by data evaluating seladelpar efficacy and safety in over 500 patients - - Seladelpar is the first New Drug Application from
DonnaBoll
Administrator
in
PBC Foundation
6 months ago
Counsellor with transplant patient experience
My husband had successful liver transplant surgery 6 months ago. At the same time he was battling liver ill health, he lost the sight in his dominant eye due to a retinal detachment. He now has better vision in his other eye, and is hoping to be able to drive again (he has been off the road for over
My husband had successful liver transplant surgery 6 months ago. At the same time he was battling liver ill health, he lost the sight in his dominant eye due to a retinal detachment. He now has better vision in his other eye, and is hoping to be able to drive again (he has been off the road for over
ScruffyRosie
in
British Liver Trust
7 months ago
transplant
Hi I’m currently going through the process of assessment for liver transplant , I feel like I have done all the appointments. My bilirubin was 180 in 2022 November yes scary it’s now 52 I’m wondering will I not be accepted for a transplant or what happens. I know we can ask our consultants etc but I
Hi I’m currently going through the process of assessment for liver transplant , I feel like I have done all the appointments. My bilirubin was 180 in 2022 November yes scary it’s now 52 I’m wondering will I not be accepted for a transplant or what happens. I know we can ask our consultants etc but I
Meanies
in
National Foundation for Transplants
7 months ago
supplements and lifestyle
Hello guys, I’ve found the advice from you folks to be really helpful since I’ve been on here moaning and groaning so I just wondered if any of you have experienced any measurable improvement in arthritis symptoms using supplements and lifestyle changes? I have just been recommended for TKR surgery
Hello guys, I’ve found the advice from you folks to be really helpful since I’ve been on here moaning and groaning so I just wondered if any of you have experienced any measurable improvement in arthritis symptoms using supplements and lifestyle changes? I have just been recommended for TKR surgery
Wolf68
in
Arthritis Action
2 months ago
Specialist appointment
Hi I was diagnosed with compensated cirrhosis in August last year and ended up in ICU for due to contracting sepsis while being admitted to hospital and as such had intensive care for sepsis and lmy liver. I have had 2 visits to the specialist luver nurse and was reassessed to compensated irrhodis
Hi I was diagnosed with compensated cirrhosis in August last year and ended up in ICU for due to contracting sepsis while being admitted to hospital and as such had intensive care for sepsis and lmy liver. I have had 2 visits to the specialist luver nurse and was reassessed to compensated irrhodis
Oasisman
in
British Liver Trust
7 months ago
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