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Livedo reticularis
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Hope for the future
New research into autoimmune liver condition suggests unique cell movements may be driving disease A Birmingham study reveals a novel cellular phenomenon could be responsible for the onset of primary biliary cholangitis (PBC). Research suggests that a recent understanding of cell movements may
New research into autoimmune liver condition suggests unique cell movements may be driving disease A Birmingham study reveals a novel cellular phenomenon could be responsible for the onset of primary biliary cholangitis (PBC). Research suggests that a recent understanding of cell movements may
DonnaBoll
Administrator
in
PBC Foundation
6 months ago
all aspects of liver research
In the article that was posted below, I know this is not something many of us want to face at anytime in our PBC journey. This is, however, a reality for some of us who did progress to this point in our disease. I have to find some real hope that researchers are working on all aspects of PBC. There are
In the article that was posted below, I know this is not something many of us want to face at anytime in our PBC journey. This is, however, a reality for some of us who did progress to this point in our disease. I have to find some real hope that researchers are working on all aspects of PBC. There are
DonnaBoll
Administrator
in
PBC Foundation
6 months ago
Travel
My husband has decompensated alcohol related liver disease with ascites, abstinent for 7 months. We would like to get to Germany to see his family for a month in our motorhome and wondered if a) anyone has travelled abroad with this condition and b) if anyone has experience of the insurance companies
My husband has decompensated alcohol related liver disease with ascites, abstinent for 7 months. We would like to get to Germany to see his family for a month in our motorhome and wondered if a) anyone has travelled abroad with this condition and b) if anyone has experience of the insurance companies
Breakfastbabe
in
British Liver Trust
6 months ago
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Imuran Side Effects
Taking Imuran for about 5 weeks, started been experiencing many of the initial symptoms I felt before diagnosis at about 2 weeks. At first thought treatment not working, but labs still heading towards normal range. Still titrating down on prednisone . Skipped Imuran a couple days and the nausea, fever
Taking Imuran for about 5 weeks, started been experiencing many of the initial symptoms I felt before diagnosis at about 2 weeks. At first thought treatment not working, but labs still heading towards normal range. Still titrating down on prednisone . Skipped Imuran a couple days and the nausea, fever
AIGal73
in
British Liver Trust
6 months ago
Please check!
Earlier today I posted the link to the PBC Foundaton's Urso calculator. There are so many posts and questions relating to Urso that I thought it was important for everyone to make sure they are on the right dose. This 'calculator' is also available on the PBC app. Knowing you are taking the right dose
Earlier today I posted the link to the PBC Foundaton's Urso calculator. There are so many posts and questions relating to Urso that I thought it was important for everyone to make sure they are on the right dose. This 'calculator' is also available on the PBC app. Knowing you are taking the right dose
DonnaBoll
Administrator
in
PBC Foundation
6 months ago
URSO and Fatigue
Question about URSO….is it really better to take your dose at two different times? I read that the liver works the bile through your body more while you are sleeping. I am much better at remembering by medication in the morning, as sometimes I am not home at dinner time. Is it ok to take it all at
Question about URSO….is it really better to take your dose at two different times? I read that the liver works the bile through your body more while you are sleeping. I am much better at remembering by medication in the morning, as sometimes I am not home at dinner time. Is it ok to take it all at
Gaspereaux
in
British Liver Trust
6 months ago
Fibroscan
Hi, I've posted asking this before, but unfortunately didn't get any response. I'm wondering if anyone can tell me where I can get a private Fibroscan? I'm in the UK. I have been referred to Hepatology due to the surgeon seeing "extensive fibrotic changes" of my liver during gallbladder surgery back
Hi, I've posted asking this before, but unfortunately didn't get any response. I'm wondering if anyone can tell me where I can get a private Fibroscan? I'm in the UK. I have been referred to Hepatology due to the surgeon seeing "extensive fibrotic changes" of my liver during gallbladder surgery back
Givemecoffee
in
British Liver Trust
6 months ago
Liver Results - Noone can tell me whats normal
Hi All, I'm generally very healthy (lots of exercise) although since I was approx 23 (I'm now 57) my GGT levels have been elevated to between 58-88. This concerned me a little (didn't really concern my Doc) although my ALT's & AST's have always been within normal range. I do drink quite a bit...but
Hi All, I'm generally very healthy (lots of exercise) although since I was approx 23 (I'm now 57) my GGT levels have been elevated to between 58-88. This concerned me a little (didn't really concern my Doc) although my ALT's & AST's have always been within normal range. I do drink quite a bit...but
BouncyCat
in
British Liver Trust
6 months ago
New Diagnosis of PBC and Prescribed URSO
Hello Everyone, I recently was diagnosed with PBC and went to see a GI doctor who recommended I start taking URSO. My bloodwork shows an elevated alk phos level (over time), positive AMA, GGT, DSDNA and I also was recently diagnosed last year with an MPN (myeloproliferative neoplasm) called essential
Hello Everyone, I recently was diagnosed with PBC and went to see a GI doctor who recommended I start taking URSO. My bloodwork shows an elevated alk phos level (over time), positive AMA, GGT, DSDNA and I also was recently diagnosed last year with an MPN (myeloproliferative neoplasm) called essential
Toddyboo
in
PBC Foundation
6 months ago
Diagnosed with Non Alcohol Cirrhosis
Hi everyone, I was recently diagnosed with stage 2 non alcoholic cirrhosis and am having a lot trouble accepting my diagnosis. It could be because my dad died of alcohol cirrhosis 21 years ago and I know how bad it can get. I have very few symptoms right now and am just being monitored. I know my prognosis
Hi everyone, I was recently diagnosed with stage 2 non alcoholic cirrhosis and am having a lot trouble accepting my diagnosis. It could be because my dad died of alcohol cirrhosis 21 years ago and I know how bad it can get. I have very few symptoms right now and am just being monitored. I know my prognosis
Dogmom1968
in
British Liver Trust
6 months ago
urea blood test low
hi has anyone ever experienced this my Liver tests were normal this time round alt being 28 however my urea said 2.0 and it said that the normal is between 2.5 and 7.0 thanks in advance x
hi has anyone ever experienced this my Liver tests were normal this time round alt being 28 however my urea said 2.0 and it said that the normal is between 2.5 and 7.0 thanks in advance x
Faye-red
in
British Liver Trust
6 months ago
Fib-4 score 0.66
Hello Everyone, please advise if fib-4 score is same as fibro scan score. Mine is 0.66 or 1 32. I am worried sick about it. It says the score is intermediate. I think I have terry nails, itching and dull pain. Is this mean that I have advanced cirrhosis? My blood test are normal.
Hello Everyone, please advise if fib-4 score is same as fibro scan score. Mine is 0.66 or 1 32. I am worried sick about it. It says the score is intermediate. I think I have terry nails, itching and dull pain. Is this mean that I have advanced cirrhosis? My blood test are normal.
SShally
in
British Liver Trust
6 months ago
alt level 96
hi, m I’ve had two high alt levels and my ast levels were normal. I have been diagnosed with severe fatty liver. I’m still so worried it could be Cirrhosis or would of this been picked up. Also does anybody have any advice on foods? like how much wholemeal bread I can have a week? I’ve been living
hi, m I’ve had two high alt levels and my ast levels were normal. I have been diagnosed with severe fatty liver. I’m still so worried it could be Cirrhosis or would of this been picked up. Also does anybody have any advice on foods? like how much wholemeal bread I can have a week? I’ve been living
Chicob29
in
British Liver Trust
6 months ago
Kpa results from scan
i had a fibro scan today , first one , was admitted to hospital beginning of january , with a bleed due to bacterial stomach infection when they discovered liver damage , ultrasound showed ? cirrhosis i’ve been out of hospital 5 weeks . and current ly have no symptoms my fibro scan was 17.5
i had a fibro scan today , first one , was admitted to hospital beginning of january , with a bleed due to bacterial stomach infection when they discovered liver damage , ultrasound showed ? cirrhosis i’ve been out of hospital 5 weeks . and current ly have no symptoms my fibro scan was 17.5
greensforliver
in
British Liver Trust
6 months ago
Diet suitable for NAFLD cirrhosis and type 2 diabetics.
Hi, I have been diagnosed with cirrhosis through NAFLD. I have no idea what diet or where to find a diet suitable to follow. Being type 2 doesn't help either. Need carbs for liver, carbs no good for diabetics. Fats such as butter bad for my liver, what should I spread on bread? etc. What should I eat
Hi, I have been diagnosed with cirrhosis through NAFLD. I have no idea what diet or where to find a diet suitable to follow. Being type 2 doesn't help either. Need carbs for liver, carbs no good for diabetics. Fats such as butter bad for my liver, what should I spread on bread? etc. What should I eat
Gyproc
in
British Liver Trust
6 months ago
insurance issues……
hello, I’ve been lurking on the site for around 7 months, since my OH was hospitalised in August and we found he had liver cirrhosis. It’s been a challenging few months and he’s been medically retired from work now. We are trying to live life as fully as we can, within his limitations, as many
hello, I’ve been lurking on the site for around 7 months, since my OH was hospitalised in August and we found he had liver cirrhosis. It’s been a challenging few months and he’s been medically retired from work now. We are trying to live life as fully as we can, within his limitations, as many
Poppy1908
in
British Liver Trust
6 months ago
high liver enzymes
Hello there. I was wondering if anyone had any experiences or knowledge over what I’m going through right now. Recently I had my blood test done. My ALT,AST, and alkaline phosphates came out super high (131, 89, 146) respectfully. I was struggling with a really bad flu at the time of these tests. Could
Hello there. I was wondering if anyone had any experiences or knowledge over what I’m going through right now. Recently I had my blood test done. My ALT,AST, and alkaline phosphates came out super high (131, 89, 146) respectfully. I was struggling with a really bad flu at the time of these tests. Could
Dna4christ
in
Liver4Life
6 months ago
Terrys nails
hi there, I’m just wondering if anyone with PBC has experience with Terrys nails? I have it on 5 of my finger nails (2 on one hand and 3 on another). My liver bloods are normal just now except for GGT (112) and my last fibroscan was 5.7 with CAP score of 233. Both AMA and ANA positive but my hepatoligist
hi there, I’m just wondering if anyone with PBC has experience with Terrys nails? I have it on 5 of my finger nails (2 on one hand and 3 on another). My liver bloods are normal just now except for GGT (112) and my last fibroscan was 5.7 with CAP score of 233. Both AMA and ANA positive but my hepatoligist
FarahS
in
PBC Foundation
6 months ago
to all our newly diagnosed people
Hi - and welcome! My name is Donna - I facilitate this support group for The PBC Foundation. First of all, take a breath. It’s ok. We all, myself included, have been exactly where you are right now…. scared, unsure, mad, sad and so much more. Don’t google - get your info mainly from The PBC Foundation
Hi - and welcome! My name is Donna - I facilitate this support group for The PBC Foundation. First of all, take a breath. It’s ok. We all, myself included, have been exactly where you are right now…. scared, unsure, mad, sad and so much more. Don’t google - get your info mainly from The PBC Foundation
DonnaBoll
Administrator
in
PBC Foundation
6 months ago
how often for a Fibroscan
Someone recently asked how often she should get a fibroscan or a MRE ( a more sophisticated scan). In Dr. Jones' book he says after getting one usually upon diagnosis for a baseline, most have one repeated every 1-5 years depending on how active or aggressive the disease is. I strongly encourage everyone
Someone recently asked how often she should get a fibroscan or a MRE ( a more sophisticated scan). In Dr. Jones' book he says after getting one usually upon diagnosis for a baseline, most have one repeated every 1-5 years depending on how active or aggressive the disease is. I strongly encourage everyone
DonnaBoll
Administrator
in
PBC Foundation
6 months ago
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