Hello again

[0range5520]

I posted a little while ago, that I had been diagnosed with cirrhosis just over a year ago as a progression of NAFLD that I was unaware of.

I had been waiting results of DEXA scan which did show thinning of bones and an US which showed no abnormalities. (The cirrhosis had been diagnosed from a Fibroscan). I spoke to my GP today, with the intent of finding out if there was anything I could do to help myself from progressing with this disease. He suggested I continue as I am as the latest blood test and US we’re both good and not to focus on the cirrhosis diagnosis. I am very pleased with the latest results, and I realise many others are in a far more difficult position. I’m just putting my thoughts down as this is such a great group and place to release my feelings. I think I still can’t fully accept the diagnosis, even though I know I have to.

Thanks for listening

[AyrshireK]

A solitary report from a fibroscan is not sufficient to confirm a diagnosis of cirrhosis.

Fibroscan can be falsely inflated where there is inflammation present in the liver so it may be the case (as your GP suggests) that you do not in fact have cirrhosis. If ultrasound was clear and bloods are good then do what you can to tackle the fatty liver and hopefully you will not have any further issues.

If cirrhosis has been mentioned then you should be under a hospital consultant and receive 6 monthly scans and 6 monthly bloods to keep a check on your liver.

The BLT has some excellent guidance on NAFLD including a downloadable brochure on treating the condition with healthy diet and exercise.

britishlivertrust.org.uk/in...

britishlivertrust.org.uk/do...

Katie

[Robert1220]

I'm in the same position as you. I was diagnosed 2 years ago and was so frantic. But, I am doing my very best to be kind to my liver by good diet etc. Finally, I am at ease with the diagnosis and I am slowly starting to look forward again. Life is too short to think of, what ifs etc. So, I live with it, take care of it and get on with living not worrying about how long I have left. It takes time to get your head around it but I look forward and not into the dark place I was in about it. So, I wish you well for the future x.

[0range5520 in reply to Robert1220]

Thank you so much for your reply, hearing from someone in the same situation puts things in perspective. You are dealing with your diagnosis so well and have the mindset that I will try to follow. I was almost accepting a few months ago, carrying on as ‘normal’, then you get the 6 monthly review scan and blood test and it just ignites that flame of worry. May you continue on your journey staying as well as possible and your inspirational words have been so much help. Thank you again.