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carbo/gem
I was diagnosed high grade stage 3c peritoneal in Autumn 2021, I have had carbo/taxol/avastin, debulking surgery. Followed by avastin alone which did not work, then carbo/caelyx which worked very well. I have had just over a year on Niraparib but sadly it is no longer working. I am due to start
I was diagnosed high grade stage 3c peritoneal in Autumn 2021, I have had carbo/taxol/avastin, debulking surgery. Followed by avastin alone which did not work, then carbo/caelyx which worked very well. I have had just over a year on Niraparib but sadly it is no longer working. I am due to start
NewtonEmma1900
in
My Ovacome
3 months ago
Alk phos on Xeloda
Moms just started her 3 cycle today of xeloda. So she’s been on it 6 weeks. Her T bili is normal her ast and alt are normal . But her Alk phos is up. Her doctor said they would continue to monitor it. Anyone else have this elevate on Xeloda ? Thanks so much!
Moms just started her 3 cycle today of xeloda. So she’s been on it 6 weeks. Her T bili is normal her ast and alt are normal . But her Alk phos is up. Her doctor said they would continue to monitor it. Anyone else have this elevate on Xeloda ? Thanks so much!
Flower1513
in
SHARE Metastatic Breast Cancer
6 months ago
Has anyone tried pulsed electric magnetic field therapy for PMR relief?
I am having trouble tapering. Can't seem to get much below 15 mg; went down to 10 mg but still having some pain in the mornings. So increased dosage on advice of rheumy. At this rate, I'll be on prednisone for a long, long time. So wondering if anyone has tried alternative treatments to try to get
I am having trouble tapering. Can't seem to get much below 15 mg; went down to 10 mg but still having some pain in the mornings. So increased dosage on advice of rheumy. At this rate, I'll be on prednisone for a long, long time. So wondering if anyone has tried alternative treatments to try to get
lsplumb
in
PMRGCAuk
3 months ago
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Confusing news from oncologist
Hi all, looking for some insight or direction based off of any experiences or similar ones. My dad started chemo in October with a PSA of 126. After 2 rounds of chemo, his PSA rose to 153, we saw some increase in his bone metastasis as according to the scans (posted about this previously). My dad
Hi all, looking for some insight or direction based off of any experiences or similar ones. My dad started chemo in October with a PSA of 126. After 2 rounds of chemo, his PSA rose to 153, we saw some increase in his bone metastasis as according to the scans (posted about this previously). My dad
StayingSTRNG
in
Advanced Prostate Cancer
6 months ago
SBRT #4
Update on yesterday's SBRT #4. The machine that is treating me (Varian Edge) takes two revolutions to administer the fraction. They line you up with lasers and images before, track the fiducials during the rotation (and the machine automatically holds the beam if you and/or your prostate move out of
Update on yesterday's SBRT #4. The machine that is treating me (Varian Edge) takes two revolutions to administer the fraction. They line you up with lasers and images before, track the fiducials during the rotation (and the machine automatically holds the beam if you and/or your prostate move out of
ToolBeltZia
in
Prostate Cancer Network
6 months ago
virtual appointment
Hi, I’m hoping and would be grateful for any advice from this knowledgeable group.. I’m due to have a virtual 6 monthly review tomorrow following blood tests and US. I have been diagnosed with cryptogenic cirrhosis with no known cause. This was following a fibroscan result of 17kpa. When I had the
Hi, I’m hoping and would be grateful for any advice from this knowledgeable group.. I’m due to have a virtual 6 monthly review tomorrow following blood tests and US. I have been diagnosed with cryptogenic cirrhosis with no known cause. This was following a fibroscan result of 17kpa. When I had the
0range5520
in
British Liver Trust
3 months ago
Iron and ferritin advice requested
I have recently had a full set of iron and ferritin blood tests completed and would like some advice on the numbers, please (prior to these tests, only my ferritin levels have been tested). They result from early morning fasting with no iron supplements for one week. My serum ferritin was 160 µg/L.
I have recently had a full set of iron and ferritin blood tests completed and would like some advice on the numbers, please (prior to these tests, only my ferritin levels have been tested). They result from early morning fasting with no iron supplements for one week. My serum ferritin was 160 µg/L.
MrVimes
in
Restless Legs Syndrome
3 months ago
Another question: did anyone have all their joints crunching, clicking, and sore when their b12 dropped into deficiency range?
Another question: did anyone have all their joints crunching, clicking, and sore when their b12 dropped into deficiency range? My joints in my spine, and hips, shoulder, especially. They click and crunch since I dipped into serious neuro symptoms when b12 likely tanked last September. I also had genitourinary
Another question: did anyone have all their joints crunching, clicking, and sore when their b12 dropped into deficiency range? My joints in my spine, and hips, shoulder, especially. They click and crunch since I dipped into serious neuro symptoms when b12 likely tanked last September. I also had genitourinary
Suffering_sunny
in
Pernicious Anaemia Society
3 months ago
Is Cold Water Therapy (cold plunge) for metastasis to bones or lymph nodes beneficial or harmful?? Slow progression?
Any insight would be greatly appreciated. TA??
Any insight would be greatly appreciated. TA??
Longterm101
in
Advanced Prostate Cancer
5 months ago
IBS. Possible internal bowel prolapse,inturrssusception or bowel / bladder intracele
hi, I’m new here and this is my first post( spend a lot of time on fibro & auto immune site!) I’m having an awful time of it bowel wise atm… and for som 24 months or more but so much so that I’ve actually paid and seen a private colorectal surgeon( female) I have this weird awful sensation of constantly
hi, I’m new here and this is my first post( spend a lot of time on fibro & auto immune site!) I’m having an awful time of it bowel wise atm… and for som 24 months or more but so much so that I’ve actually paid and seen a private colorectal surgeon( female) I have this weird awful sensation of constantly
Beakybird58
in
IBS Network
3 months ago
A plea from your brother
Click here to securely donate in any currency: https://malecare.org/donate Click here to securely donate in any currency:A Plea from Your Brother My prostate cancer diagnosis introduced me to Malecare - with the commanding encouragement of my urologist. My experiences validated the organization's remarkable
Click here to securely donate in any currency: https://malecare.org/donate Click here to securely donate in any currency:A Plea from Your Brother My prostate cancer diagnosis introduced me to Malecare - with the commanding encouragement of my urologist. My experiences validated the organization's remarkable
Darryl
Partner
in
Prostate Cancer Network
6 months ago
A plea from your brother
Click here to securely donate in any currency: https://malecare.org/donate A Plea from Your Brother My prostate cancer diagnosis introduced me to Malecare - with the commanding encouragement of my urologist. My experiences validated the organization's remarkable efforts in supporting men like me. I'm
Click here to securely donate in any currency: https://malecare.org/donate A Plea from Your Brother My prostate cancer diagnosis introduced me to Malecare - with the commanding encouragement of my urologist. My experiences validated the organization's remarkable efforts in supporting men like me. I'm
Darryl
Partner
in
Advanced Prostate Cancer
6 months ago
Strange sensation
Hi guys.I've been having some constipation and gas issues. I read massaging the abdomen can be helpful, so I did. When I got around the hip area I felt sharp pains , very uncomfortable , on both sides. It could possibly be gas ? Just thought I'd ask if anyone has felt this type of pain. The massage
Hi guys.I've been having some constipation and gas issues. I read massaging the abdomen can be helpful, so I did. When I got around the hip area I felt sharp pains , very uncomfortable , on both sides. It could possibly be gas ? Just thought I'd ask if anyone has felt this type of pain. The massage
Gizmo6
in
IBS Network
3 months ago
Blood in Urine
Hi fellow fighters Had blood in my urine the last 10 days. Hoped it was a UTI but a course of antibiotics has failed. I had a bladder neck incision last June to help urinary flow. The urologist saw a suspicious patch and a biopsy confirmed it my prostate cancer has spread to my bladder. I’m hoping
Hi fellow fighters Had blood in my urine the last 10 days. Hoped it was a UTI but a course of antibiotics has failed. I had a bladder neck incision last June to help urinary flow. The urologist saw a suspicious patch and a biopsy confirmed it my prostate cancer has spread to my bladder. I’m hoping
Tonyliv
in
Advanced Prostate Cancer
6 months ago
Started #Zoladex to treat uterine #Polyps & bleeding/spotting is not stopping!!!
Guys I’m really hoping you can help or offer insight. I started experiencing irregular bleeding after taking progesterone only birth control pills. I continued onto the next pack and I didn’t stop bleeding. Dr gave me Tranexamic Acid and it stopped it for a while and continued taking pill every day
Guys I’m really hoping you can help or offer insight. I started experiencing irregular bleeding after taking progesterone only birth control pills. I continued onto the next pack and I didn’t stop bleeding. Dr gave me Tranexamic Acid and it stopped it for a while and continued taking pill every day
PinkSniper
in
Endometriosis UK
9 months ago
New Challenge!
Hi, I haven’t been on here for a while as was diagnosed with stage 2 breast cancer following a mammogram in late September. I underwent surgery for a mastectomy with a reconstruction on 15 th December and now starting my recovery! So going to be tricky managing my PMR symptoms as well as deal with this
Hi, I haven’t been on here for a while as was diagnosed with stage 2 breast cancer following a mammogram in late September. I underwent surgery for a mastectomy with a reconstruction on 15 th December and now starting my recovery! So going to be tricky managing my PMR symptoms as well as deal with this
GwenTheHen16
in
PMRGCAuk
6 months ago
Ferritin
I know that Ferritin is stored iron but I’m a bit confused about how Ferritin and iron correlate. Is it possible to have Ferritin in range but low iron - and what would be considered optimal Ferritin? My level has just been tested and has gone down from a stable 88 to 34 I’m sorry to be so dumb
I know that Ferritin is stored iron but I’m a bit confused about how Ferritin and iron correlate. Is it possible to have Ferritin in range but low iron - and what would be considered optimal Ferritin? My level has just been tested and has gone down from a stable 88 to 34 I’m sorry to be so dumb
Hidden
in
Thyroid UK
3 months ago
Neurofibroma
Not thyroid related, but has anyone experienced under skin neurofibroma? Trying to figure out whether to have it removed or not. No pain, but wondering if it shall get bigger in size.
Not thyroid related, but has anyone experienced under skin neurofibroma? Trying to figure out whether to have it removed or not. No pain, but wondering if it shall get bigger in size.
Huskyy
in
Thyroid UK
3 months ago
Feeling like Chemo is too Hard
Hi. I was diagnosed 3B HG in August 2018, had surgery, frontline, first recurrence ( carbo and caelyx/doxil), 3 years of Olaparib, one year on nothing and now am having carboplatin alone for second recurrence. My oncologist said this would be relatively easy. Also I haven’t had some of the worst complications
Hi. I was diagnosed 3B HG in August 2018, had surgery, frontline, first recurrence ( carbo and caelyx/doxil), 3 years of Olaparib, one year on nothing and now am having carboplatin alone for second recurrence. My oncologist said this would be relatively easy. Also I haven’t had some of the worst complications
delia2
in
My Ovacome
3 months ago
Scans
Had my first Cat and bone scan since starting Enhertu.All was good.Blood work greatly improved.Tumor markers better Stable with slight improvement overall in bones and liver.Very pleased with Enhertu as I am having no side effects whatsoever 👍
Had my first Cat and bone scan since starting Enhertu.All was good.Blood work greatly improved.Tumor markers better Stable with slight improvement overall in bones and liver.Very pleased with Enhertu as I am having no side effects whatsoever 👍
Figletf
in
SHARE Metastatic Breast Cancer
6 months ago
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