Another question: did anyone have all their joints crunching, clicking, and sore when their b12 dropped into deficiency range?

[Suffering_sunny]

Another question: did anyone have all their joints crunching, clicking, and sore when their b12 dropped into deficiency range?

My joints in my spine, and hips, shoulder, especially. They click and crunch since I dipped into serious neuro symptoms when b12 likely tanked last September.

I also had genitourinary symptoms and my period stopped suddenly.

Did anyone else suffered these types of symptoms with b12 deficiency?

I even tried HRT (in my mid 30s) to see if it helped, because Dr refused to help me/check more for b12. So I tried that from a private menopause specialist (no bloods were done) because no one was helping me back then. After months of HRT, I circled back to b12, as my symptoms were too profound, and no one else seemed to be having the symptoms I had.

My joints are so clicks while in my first weeks of b12 treatment, as I reverse out.

I have muscle aches, joints click, low mood, fatigue, and internal vibrations as I reverse out. So I am feeling a bit overwhelmed just now. I'm aware others may have felt similar or had their own plethora of symptoms while reversing out too.

I was really wondering specifically about the joint issues folk had with b12 deficiency?

I take eod si injections, for 2 weeks and 4 days now, and I take folate, d3, k2 and I've had an iron infusion a few weeks ago too.

[AJackson21]

yes I did. It’s why I always felt strange about my ME diagnosis. Without failure, every time I had a crash if symptoms my left hip socket would click when walking. When my symptoms got a bit better again it would stop. And so on.

[Suffering_sunny in reply to AJackson21]

Oh my goodness! Thank you, so this IS a thing!

Do you get injections, and do they help ease the clicking?

[Jillymo in reply to Suffering_sunny]

The cortisol injections help ease the pain, they are often given to people with arthritis. Although the joint thing is common with PA and a B12 deficiency ask your Gp to rule out arthritis.

I was having to sleep with a pillow between my knee's because I couldn't stand one knee touching the other ! I wonder if your ESR is raised, mine is. Get as much as you can checked out.

[AJackson21 in reply to Suffering_sunny]

Yes I have injections, 1 every other day or 1 a day depending on my symptoms. And thinking back, I haven’t had the click since I had it with the joint pain for years, although I still do get some joint pain (I’m still early on the journey)

[Suffering_sunny in reply to AJackson21]

Thank you.

I am early too, 2 weeks and 4 days into eod si injections. My b12 has been sitting low for years, but I think it fully crashed after PPI and H2, that's when a flood of neuro symptoms heightened or began. Hopefully, after enough time has passed, I will see improvements too 🤞🏼🌼

[Jillymo]

Me again hun,

My joints hurt like hell in fact two weeks ago I had cortisol injections in them which seem's to have helped. The pain was always worse at night when in my bed. My knee's have made that awful crunching sound for some years as if I needed oiling. If I miss an injection it becomes worse.

I get a lot of back pain but I do have issues in that region. My Dr prescribed pain patches which help a little and a gel for my joints. It seems to be a common complaint with other's on site too.

As for the other curse I am past that stage but I would have thought if anaemic it would affect your monthly's. Strange they have stopped seeing as you have had an iron infussion ! It sounds like you have hit rock bottom so hopefully 🙏 things will start to improve for you.

healthline.com/health/b12-d...

[Wwwdot]

Hi

I think you are my PA twin! I am in my 60’s so can’t comment on periods … but joints .. yes!

I thought I had arthritis as my knees, back, shoulders, neck, wrist and finger joints were sore. Index and little finger joints enlarged.

Now all joints normal and swelling in finger joints virtually gone. I am just over a year into self- treatment.

🤗🤗🤗

[Suffering_sunny in reply to Wwwdot]

Wow! Yes, we do have some similarities for sure!

I don't have swelling but I do get pain in some places... I was thinking that i have arthritis too.

Did yours click, crunch, or pop?

Mine make audible sounds sometimes 😬

[Wwwdot]

knees are crunchy but getting less now!

🤗🤗🤗

[Suffering_sunny in reply to Wwwdot]

OK, thank you.

Mine seems to be neck, spine, pelvis, hips, and shoulders are the worst.

A lot of tension in my back! Especially while reversing out. I've developed an internal vibration while reversing out too, not sure why or if this is related to muscle tensions.

[bookish in reply to Suffering_sunny]

Mine is mainly neck and I get the internal vibrations, although right shoulder has also been bad for a few months. First jab done today (GP) so will be interesting to see if they get worse or better or worse then better.... Most joints were also gluten-affected as they eased a lot when I went grain free a few years ago.

[Sleepybunny]

"I was really wondering specifically about the joint issues folk had with b12 deficiency?"

I don't remember clicking joints but I do remember that I had pain in muscles, bones and in virtually every joint.

I have come across articles that suggest B12 deficiency can affect tendons.

If you have time, search online for "tendons b12 deficiency" and "cartilage b12 deficiency" and "bone B12 deficiency".