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Do the NHS test for active b12 aswell a total b12?
I wonder because my sister was diagnosed with pernicious anemia years ago but now they say her b12 levels are really high normal.
I wonder because my sister was diagnosed with pernicious anemia years ago but now they say her b12 levels are really high normal.
Cesca-K
in
Pernicious Anaemia Society
3 months ago
colonoscopy đź’©
I’m due to have a colonoscopy on the 16th which I am not looking forward to as when I had a sigmoidoscopy years ago I was in considerable pain when they used the air. I believe my bowel prep is going to be Picolax any tips on getting it down? I get bad reflux and nausea so praying it’s not going to make
I’m due to have a colonoscopy on the 16th which I am not looking forward to as when I had a sigmoidoscopy years ago I was in considerable pain when they used the air. I believe my bowel prep is going to be Picolax any tips on getting it down? I get bad reflux and nausea so praying it’s not going to make
BasilG
in
IBS Network
3 months ago
Does biopsy spread cancer?
I've been diagnosed with Stage 2/3 PC. I wonder whether biopsies, by piercing the prostrate wall, allow cancer sells to migrate outside the prostate. Certainly e-coli can be pushed into it, since I got sepsis from my directed biopsy. What is the danger of METS being introduced to organs outside it with
I've been diagnosed with Stage 2/3 PC. I wonder whether biopsies, by piercing the prostrate wall, allow cancer sells to migrate outside the prostate. Certainly e-coli can be pushed into it, since I got sepsis from my directed biopsy. What is the danger of METS being introduced to organs outside it with
Eadgbe
in
Prostate Cancer Network
6 months ago
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Cholestyramine
My husband has had explosive diarrhea since mid February. After blood tests, stool samples, colonoscopy, and more stool samples, they are not able to determine what is causing the diarrhea. The doctor has prescribed Cholestyramine. Has anyone had experience with this medication and did it help?
My husband has had explosive diarrhea since mid February. After blood tests, stool samples, colonoscopy, and more stool samples, they are not able to determine what is causing the diarrhea. The doctor has prescribed Cholestyramine. Has anyone had experience with this medication and did it help?
lowraind
in
IBS Network
3 months ago
Adding Kisqali to Letrozale treatment
It was just suggested to me to add Kisqali to my treatment of Letrozole. I am "cancer free" since I had a masectomy and everything was taken out. Are there any others on this chat with the same experience?
It was just suggested to me to add Kisqali to my treatment of Letrozole. I am "cancer free" since I had a masectomy and everything was taken out. Are there any others on this chat with the same experience?
mimosa412
in
SHARE Metastatic Breast Cancer
6 months ago
Stomach pain common with IBS?
Is stomach pain common with IBS?If so, where do you feel the pain? I feel pain right in the center pit of my stomach... sometimes gnawing sensation, sometimes a cramping sensation Do you feel it there in the center pit of your stomach too?
Is stomach pain common with IBS?If so, where do you feel the pain? I feel pain right in the center pit of my stomach... sometimes gnawing sensation, sometimes a cramping sensation Do you feel it there in the center pit of your stomach too?
Catsandsunsets
in
IBS Network
3 months ago
Before Fireworks and BallDrops, Where ever you live, please read this now
Please make your year-end secure donation in any currency to Malecare now at https://malecare.org/donate Malecare is more than our massive and active online, Zoom, and in-person support groups. We're one of the world's most productive patient advocacy research groups, with several university and
Please make your year-end secure donation in any currency to Malecare now at https://malecare.org/donate Malecare is more than our massive and active online, Zoom, and in-person support groups. We're one of the world's most productive patient advocacy research groups, with several university and
Darryl
Partner
in
Prostate Cancer Network
6 months ago
Before Fireworks and BallDrops, Where ever you live, please read this now.
Please make your year-end secure donation in any currency to Malecare now at https://malecare.org/donate Malecare is more than our massive and active online, Zoom, and in-person support groups. We're one of the world's most productive patient advocacy research groups, with several university and
Please make your year-end secure donation in any currency to Malecare now at https://malecare.org/donate Malecare is more than our massive and active online, Zoom, and in-person support groups. We're one of the world's most productive patient advocacy research groups, with several university and
Darryl
Partner
in
Advanced Prostate Cancer
6 months ago
Docetaxel not working so stopped
I promised I would update you after my scan to see how the chemo was progressing. Well, the main reason for the chemo was that spots had appeared in my liver. Last week's CT scan showed that the spots have grown "significantly" so the chemo is not working. Also, my liver function blood test results -
I promised I would update you after my scan to see how the chemo was progressing. Well, the main reason for the chemo was that spots had appeared in my liver. Last week's CT scan showed that the spots have grown "significantly" so the chemo is not working. Also, my liver function blood test results -
Benkaymel
in
Advanced Prostate Cancer
6 months ago
low serum iron. Normal ferritin
been getting very tired lately. ET (MPL) on pegysus 45ug every 2 weeks. Mentioned fatigue to haematologist and he suggested reducing peg further to 3 weekly. Got the above results after we got home. Also raised CRP but I do have a cold . raised neutrophils and wbc. Haem thought this was good as mounting
been getting very tired lately. ET (MPL) on pegysus 45ug every 2 weeks. Mentioned fatigue to haematologist and he suggested reducing peg further to 3 weekly. Got the above results after we got home. Also raised CRP but I do have a cold . raised neutrophils and wbc. Haem thought this was good as mounting
Sprat19
in
MPN Voice
3 months ago
Iron infusion
I had my first iron infusion yesterday. I will be going back next week for another one. I would appreciate any advice, thoughts or comments. I did mention to the hematologist that I would like to get my iron up to 300 but he said you will not attempt what he called “iron saturation”. His aim is to get
I had my first iron infusion yesterday. I will be going back next week for another one. I would appreciate any advice, thoughts or comments. I did mention to the hematologist that I would like to get my iron up to 300 but he said you will not attempt what he called “iron saturation”. His aim is to get
tagaxel
in
Restless Legs Syndrome
3 months ago
HIFU 2023 article does not seem positive
This article from early 2023 does not seem positive on HIFU. https://link.springer.com/article/10.1007/s00345-023-04352-9 I have a friend looking at HIFU in the setting of a clinical trial. He's Gleason 6 with just 1 of 12 portions of his prostate affected. Technically, he could do active surveillance
This article from early 2023 does not seem positive on HIFU. https://link.springer.com/article/10.1007/s00345-023-04352-9 I have a friend looking at HIFU in the setting of a clinical trial. He's Gleason 6 with just 1 of 12 portions of his prostate affected. Technically, he could do active surveillance
A0007720
in
Prostate Cancer Network
6 months ago
flare up
hi I’ve had diahorria and left side pain and mild nausea for a few days now . Keep thinking it’s better and it’s not ! Self employed but in clients houses so keep cancelling the ones that are home! Now got some appointments coming up some where no loo and feel I need to cancel , Is this a “flare up
hi I’ve had diahorria and left side pain and mild nausea for a few days now . Keep thinking it’s better and it’s not ! Self employed but in clients houses so keep cancelling the ones that are home! Now got some appointments coming up some where no loo and feel I need to cancel , Is this a “flare up
Purplewoman
in
IBS Network
3 months ago
lactose intolerant
i can’t find any chat for this problem when searching so chose this site. i’m lactose intolerant but it doesn’t bother me much. only thing i avoid is normal milk. i have lactose free milk but yesterday finished and i’ve been having normal. i’ve noticed stomach ache bloating. can this be caused by this
i can’t find any chat for this problem when searching so chose this site. i’m lactose intolerant but it doesn’t bother me much. only thing i avoid is normal milk. i have lactose free milk but yesterday finished and i’ve been having normal. i’ve noticed stomach ache bloating. can this be caused by this
Junny123
in
Pain Concern
3 months ago
Promising, especially for people with LBD mutation: NEJM Evidence publishes results from Phase I/IIa CYPIDES trial with ODM-208
"In phase I, 20 out of the total 47 patients had AR LBD mutation. In phase IIa, all 45 patients had AR LBD mutation. A decrease in PSA (prostate-specific antigen) levels of 50% or more occurred in 14/19 (73.7%) patients with AR LBD mutation and 2/23 (8.7%) AR-wild-type patients in phase I, and in 24/
"In phase I, 20 out of the total 47 patients had AR LBD mutation. In phase IIa, all 45 patients had AR LBD mutation. A decrease in PSA (prostate-specific antigen) levels of 50% or more occurred in 14/19 (73.7%) patients with AR LBD mutation and 2/23 (8.7%) AR-wild-type patients in phase I, and in 24/
Maxone73
in
Advanced Prostate Cancer
6 months ago
Clinical trial NCT05898399: for BRCA (ATM as well I suppose) mutations
Study of ART6043 in Advanced/Metastatic Solid Tumors Patients This company is also developing an interesting ATR inhibitor for ATM mutations https://classic.clinicaltrials.gov/ct2/show/NCT05898399
Study of ART6043 in Advanced/Metastatic Solid Tumors Patients This company is also developing an interesting ATR inhibitor for ATM mutations https://classic.clinicaltrials.gov/ct2/show/NCT05898399
Maxone73
in
Advanced Prostate Cancer
6 months ago
How fast is brain iron deficiency restored after IV iron?
Hello everyone.In January I got transcranial sonography done and they found brain iron deficiency. I had ferritin at 150, TS at 30% so they gave me 500mg ferric carboxymaltose. We are planning to repeat it. My question is, those who had BID diagnosed, after how many infusions did RLS pain go away? Did
Hello everyone.In January I got transcranial sonography done and they found brain iron deficiency. I had ferritin at 150, TS at 30% so they gave me 500mg ferric carboxymaltose. We are planning to repeat it. My question is, those who had BID diagnosed, after how many infusions did RLS pain go away? Did
vikkkk
in
Restless Legs Syndrome
3 months ago
Does anyone have this IBS’s symptoms ?
3 moths age and daily I wake up with severe pain in my stomach like I feel very hungry . My endoscopy was negative of any thing . My question does anyone suffer from this symptoms who has IBS please ? Thank you.
3 moths age and daily I wake up with severe pain in my stomach like I feel very hungry . My endoscopy was negative of any thing . My question does anyone suffer from this symptoms who has IBS please ? Thank you.
Raneena
in
IBS Network
3 months ago
long term omeprazole use
I was taking omeprazole for about 15 years and stopped in December last year, as I had done some research and found out it can affect stomach acid. No one told me to stop taking it. I don’t even know why I was put on it in the first place, up I think it was for IBS. I haven’t had any acid reflux or indigestion
I was taking omeprazole for about 15 years and stopped in December last year, as I had done some research and found out it can affect stomach acid. No one told me to stop taking it. I don’t even know why I was put on it in the first place, up I think it was for IBS. I haven’t had any acid reflux or indigestion
Chickens44
in
Pernicious Anaemia Society
3 months ago
Need Help For My GP…
I am having an ongoing discussion with my GP about giving me the dose I need for my deficiency (EOD). It has been mainly positive so far, during my appointment yesterday he did acknowledge that he knew little about this malady, he would also need to chat to his partners and get advice from a specialist
I am having an ongoing discussion with my GP about giving me the dose I need for my deficiency (EOD). It has been mainly positive so far, during my appointment yesterday he did acknowledge that he knew little about this malady, he would also need to chat to his partners and get advice from a specialist
B12again
in
Pernicious Anaemia Society
3 months ago
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