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Why wont anyone listen
I can't live with this constant tugging, pulling, electric current feeling up and down
leg
, continual ache and
pain
, jerking constantly,( also have restless legs from it).......I can't do it anymore.
I can't live with this constant tugging, pulling, electric current feeling up and down
leg
, continual ache and
pain
, jerking constantly,( also have restless legs from it).......I can't do it anymore.
Hidden
in
Restless Legs Syndrome
7 months ago
Why won't anyone listen
I can't live with this constant tugging, pulling, electric current feeling up and down
leg
, continual ache and
pain
, jerking constantly,( also have restless legs from it).......I can't do it anymore.
I can't live with this constant tugging, pulling, electric current feeling up and down
leg
, continual ache and
pain
, jerking constantly,( also have restless legs from it).......I can't do it anymore.
Hidden
in
Neuropathy Support
7 months ago
New ET diagnosis
Hello…..Was given my diagnosis a week ago today ..still getting my head around it. No obvious symptoms besides now I attribute it most likely to ET… fatigue. My GP was monitoring my platelets getting tad higher each blood test over last couple of years.. he had put me on low dose aspirin but recently
Hello…..Was given my diagnosis a week ago today ..still getting my head around it. No obvious symptoms besides now I attribute it most likely to ET… fatigue. My GP was monitoring my platelets getting tad higher each blood test over last couple of years.. he had put me on low dose aspirin but recently
Stargaye
in
MPN Voice
1 year ago
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Painkillers.
Hi everyone, it's been a while since I was on here. I have whittled myself down to 3pg pred.and have been going along ok. I do however have a question and would really appreciate any advice.I have recently been working full out in my garden, re landscaping to make it easier to manage, and my shoulders
Hi everyone, it's been a while since I was on here. I have whittled myself down to 3pg pred.and have been going along ok. I do however have a question and would really appreciate any advice.I have recently been working full out in my garden, re landscaping to make it easier to manage, and my shoulders
Dukeyears
in
PMRGCAuk
1 year ago
Pulsatile tinnitus, headaches and Eustachian tube dysfunction??
HelloStarted with constant T early in New Year, with intermittent PT, mainly when I went to bed. Had audiology test and waiting for ENT appt which he said is likely to be next summer. I've been getting increasing headaches....I've seen GP re headaches in the past quite alot, including after the T became
HelloStarted with constant T early in New Year, with intermittent PT, mainly when I went to bed. Had audiology test and waiting for ENT appt which he said is likely to be next summer. I've been getting increasing headaches....I've seen GP re headaches in the past quite alot, including after the T became
hollyrain
in
Tinnitus UK
1 year ago
any advice welcome
I’m sorry to bother you all but feeling a bit lost 😞 . The ongoing saga of the waking headache continues as it approaches its 4 year birthday 🤦♀️. I Saw a trainee Gp last week who was kind and lovely . She referred me to neurology which I’ve since discovered is a 10 month wait The headaches are
I’m sorry to bother you all but feeling a bit lost 😞 . The ongoing saga of the waking headache continues as it approaches its 4 year birthday 🤦♀️. I Saw a trainee Gp last week who was kind and lovely . She referred me to neurology which I’ve since discovered is a 10 month wait The headaches are
Tiggywoos
in
Scleroderma & Raynaud's UK (SRUK)
1 year ago
advice from all you angels
I’m sorry to bother you all but feeling a bit lost 😞 . The ongoing saga of the waking headache continues as it approaches its 4 year birthday 🤦♀️. I Saw a trainee Gp last week who was kind and lovely . She referred me to neurology which I’ve since discovered is a 10 month wait The headaches are
I’m sorry to bother you all but feeling a bit lost 😞 . The ongoing saga of the waking headache continues as it approaches its 4 year birthday 🤦♀️. I Saw a trainee Gp last week who was kind and lovely . She referred me to neurology which I’ve since discovered is a 10 month wait The headaches are
Tiggywoos
in
LUPUS UK
1 year ago
cool packs
I thought I’d share the fact that I have found great relief from the pain in my head from GCA using gel cool packs. This has helped me from having to use as many pain killers. Give it a try, it’s been a blessed relief and feels wonderful. Thanks
I thought I’d share the fact that I have found great relief from the pain in my head from GCA using gel cool packs. This has helped me from having to use as many pain killers. Give it a try, it’s been a blessed relief and feels wonderful. Thanks
Garden__lover
in
PMRGCAuk
1 year ago
Pain in left knee and right forearm
I'm getting quite bad pain in left knee and right forearm ordinary pain killers don't touch it it's very hard to get a face to face with a doc over here on the Isle of Wight. I haven't had one since last October all it seems to be is phone calls and even then I have to wait up to a fortnight! What pain
I'm getting quite bad pain in left knee and right forearm ordinary pain killers don't touch it it's very hard to get a face to face with a doc over here on the Isle of Wight. I haven't had one since last October all it seems to be is phone calls and even then I have to wait up to a fortnight! What pain
Caulkhead63
in
PMRGCAuk
1 year ago
Restless legs
Morning hun. Iv had it for around 20 years iv always managed okBut Last Tuesday it started really bad and its day and night. Drs have given me some tablets for Parkinson they ste Not working. I'm just in the lounge walking all night 1-3 ,hour sleep a night Went to hospital Saturday they done bloods
Morning hun. Iv had it for around 20 years iv always managed okBut Last Tuesday it started really bad and its day and night. Drs have given me some tablets for Parkinson they ste Not working. I'm just in the lounge walking all night 1-3 ,hour sleep a night Went to hospital Saturday they done bloods
Frenhies
in
Restless Legs Syndrome
11 months ago
Antihistamine creams
Hi everyone, I have been blessed to be totally free of RLS using my current meds for over 9 months now ,not so much as a twinge .However last night my RLS was horrendous up and down pacing for hours (we all know the drill).I couldn't think of any reason for it but around 4 o'clock it came to me I had
Hi everyone, I have been blessed to be totally free of RLS using my current meds for over 9 months now ,not so much as a twinge .However last night my RLS was horrendous up and down pacing for hours (we all know the drill).I couldn't think of any reason for it but around 4 o'clock it came to me I had
Pippins2
in
Restless Legs Syndrome
11 months ago
THC Gummies
THC gummies worked for the first couple of times but, last time I took it I was super paranoid and definitely not sleeping. It’s not for me . To date, I’m taking one Pramipexole and one 12.5 ambien day night and sleep 4-5 hours and experience mild to no symptoms the following day. So far so good
THC gummies worked for the first couple of times but, last time I took it I was super paranoid and definitely not sleeping. It’s not for me . To date, I’m taking one Pramipexole and one 12.5 ambien day night and sleep 4-5 hours and experience mild to no symptoms the following day. So far so good
tuckerdog109
in
Restless Legs Syndrome
11 months ago
FIbromyalgia
Just need some info on fibromyalgia - husband has suffered with back pain for as long as I can remember also sporadic pain in his right arm/elbow, also has problem with hips knees and neck - various MRI scan's confirm bulging discs in back, left knee bone on bone, right knee not far behind, both hips
Just need some info on fibromyalgia - husband has suffered with back pain for as long as I can remember also sporadic pain in his right arm/elbow, also has problem with hips knees and neck - various MRI scan's confirm bulging discs in back, left knee bone on bone, right knee not far behind, both hips
Jackndanny
in
Fibromyalgia Action UK
1 year ago
Success with clonidine as a supplementary medication
Sharing some recent success. I have taken pregabalin 300mg for a number of years but have also supplemented it with a very small dose of clonazepam (between 0.125 and 0.5m) I started weaning off clonazepam approx 3 months ago because it's not desirable to take benzodiazepines long term (i'm weaning
Sharing some recent success. I have taken pregabalin 300mg for a number of years but have also supplemented it with a very small dose of clonazepam (between 0.125 and 0.5m) I started weaning off clonazepam approx 3 months ago because it's not desirable to take benzodiazepines long term (i'm weaning
Hidden
in
Restless Legs Syndrome
11 months ago
THC/CBD/CBN
Has anyone used THC,CBD,CBN for restless leg or insomnia. I am just starting to try in hopes to either get off of the drugs I am on for RLS/Insomnia which are low dose pregabalin and klonopin. Just curious about peoples experience and whether there are any benefits.
Has anyone used THC,CBD,CBN for restless leg or insomnia. I am just starting to try in hopes to either get off of the drugs I am on for RLS/Insomnia which are low dose pregabalin and klonopin. Just curious about peoples experience and whether there are any benefits.
Thyroid2468
in
Restless Legs Syndrome
11 months ago
Doctors now talking Buprenorphine
https://www.medscape.com/viewarticle/994959?ecd=wnl_infocu1_broad_broad_persoexpansion-both_20230916_etid5859143&uac=370159DG&impID=5859143 I so hope this link works regarding Dr Beckers use of Buprenorphine for chronic pain. Remember when you are trying to get Bup or medical CBD or THC the word is
https://www.medscape.com/viewarticle/994959?ecd=wnl_infocu1_broad_broad_persoexpansion-both_20230916_etid5859143&uac=370159DG&impID=5859143 I so hope this link works regarding Dr Beckers use of Buprenorphine for chronic pain. Remember when you are trying to get Bup or medical CBD or THC the word is
Shumbah
in
Restless Legs Syndrome
11 months ago
Round in circles
Hi everyone,I'm still having severe anxiety and panic attacks,still having horrible withdrawal symptoms from going off Pregabalin which never helped me in any way.anyway ,please don't judge me too harshly BUT I am taking a low dose of Pramipexole 🙏,it's the only thing that has given me relief from the
Hi everyone,I'm still having severe anxiety and panic attacks,still having horrible withdrawal symptoms from going off Pregabalin which never helped me in any way.anyway ,please don't judge me too harshly BUT I am taking a low dose of Pramipexole 🙏,it's the only thing that has given me relief from the
Whymelord
in
Restless Legs Syndrome
11 months ago
Gabapentin
have been on Gabapentin on and off for approximately 6 months, I’ve tried to keep the dose as low as possible. I started on 100 mg before I went to bed this seemed to work with me only waking up once. It then got worse and I now suffer with pain across my shoulders at night aswell as in my legs, I upped
have been on Gabapentin on and off for approximately 6 months, I’ve tried to keep the dose as low as possible. I started on 100 mg before I went to bed this seemed to work with me only waking up once. It then got worse and I now suffer with pain across my shoulders at night aswell as in my legs, I upped
Catbennie
in
Restless Legs Syndrome
11 months ago
Can anyone explain about soy please
Can someone please explain if it is fermented or unfermented soy that is ok to eat if you have an underactive thyroid. I have to make adjustments to what I eat and have been looking at tofu and tempeh but am not sure if they are ok to eat. Apologies I am a bit forgetful at the moment after long surgery
Can someone please explain if it is fermented or unfermented soy that is ok to eat if you have an underactive thyroid. I have to make adjustments to what I eat and have been looking at tofu and tempeh but am not sure if they are ok to eat. Apologies I am a bit forgetful at the moment after long surgery
carnation
in
Thyroid UK
1 year ago
So much pelvic pain, any advice?
Hi All, I've been having pelvic pain on and off for many years, but lived fine with it before. However, in the last 5 months, it's gotten worst and in the last few weeks, it's gotten even worst again. I've already done: * All types of gynae assessments from a scan, to PAP and other tests, to
Hi All, I've been having pelvic pain on and off for many years, but lived fine with it before. However, in the last 5 months, it's gotten worst and in the last few weeks, it's gotten even worst again. I've already done: * All types of gynae assessments from a scan, to PAP and other tests, to
Juliet_22
in
Pelvic Pain Support Network
1 year ago
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