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Whirly Whirly bird.
You’ve heard about the whirly whirly bird that flies in ever decreasing circles until it finally flies up its own orifice. Well if not then you’ve probably heard about me HipHop1972, I am that whirly whirly bird. With my surgeries inability to treat my severe refractory RLS quite possibly due to the
You’ve heard about the whirly whirly bird that flies in ever decreasing circles until it finally flies up its own orifice. Well if not then you’ve probably heard about me HipHop1972, I am that whirly whirly bird. With my surgeries inability to treat my severe refractory RLS quite possibly due to the
HipHop1972
in
Restless Legs Syndrome
3 months ago
Desperately need help pls
So since last writing my previous post my Son has been experiencing “cluster seizures” - whereby he goes into a trance like state, talks gibberish and he can’t remember events and has no memory of what has happened. He has had approximately 3 or 4 of these “events” between May and December. The December
So since last writing my previous post my Son has been experiencing “cluster seizures” - whereby he goes into a trance like state, talks gibberish and he can’t remember events and has no memory of what has happened. He has had approximately 3 or 4 of these “events” between May and December. The December
Lisamarsh
in
Headway
7 months ago
RLS and augmentation – the battle for sufficient treatment.
A HUGE thank you to everyone who has answered and advised me - both on inquiries regarding switch from pramipexole to pregabalin and experiences of treating RLS with morphine only. It has been a BIG help - thanks to you, my doctor has for the time being agreed to give me a small dose of morphine while
A HUGE thank you to everyone who has answered and advised me - both on inquiries regarding switch from pramipexole to pregabalin and experiences of treating RLS with morphine only. It has been a BIG help - thanks to you, my doctor has for the time being agreed to give me a small dose of morphine while
Gibbel
in
Restless Legs Syndrome
3 months ago
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Xgeva Side Effects
Hi!! Has anyone had extreme pain in hips, groin and femurs caused by Xgeva? I first started with pain in my right side. So bad that I literally have to lift my leg with my hands to get into the car. That was about a year ago. My doctor doesn’t seem to think there’s a problem and doesn’t address it.
Hi!! Has anyone had extreme pain in hips, groin and femurs caused by Xgeva? I first started with pain in my right side. So bad that I literally have to lift my leg with my hands to get into the car. That was about a year ago. My doctor doesn’t seem to think there’s a problem and doesn’t address it.
CTGirl1962
in
SHARE Metastatic Breast Cancer
8 months ago
Ibuprofen gel/cream
Morning, all. I don't take ibuprofen tablets for pain because of my GCAPMR plus IBS. I know it's not a good idea on preds. Could I use the gel on my neck, though? Or would that find its way into blood or stomach? Paracetamol does very little. Dihydrocodeine is highly effective, but I limit that as it
Morning, all. I don't take ibuprofen tablets for pain because of my GCAPMR plus IBS. I know it's not a good idea on preds. Could I use the gel on my neck, though? Or would that find its way into blood or stomach? Paracetamol does very little. Dihydrocodeine is highly effective, but I limit that as it
random901
in
PMRGCAuk
3 months ago
Week 1 Completed
Well week 1 completed - I survived & can still breath during my runs - the amount of pain killers I'm still on is helping the calf pain but boy do I know about it 1st thing on a morning .Anyway bring on Week 2 in the morning I WILL do this- I will feel normal again
Well week 1 completed - I survived & can still breath during my runs - the amount of pain killers I'm still on is helping the calf pain but boy do I know about it 1st thing on a morning .Anyway bring on Week 2 in the morning I WILL do this- I will feel normal again
MissTwiggy
Graduate
in
Couch to 5K
8 months ago
Thinking of switching to Gabapentin or Pregabalin
I had an absolutely horrible night last night. I take 2mg of Ropinirole but took an extra one last night. It's very ineffective and causes me all sorts of weird problems like confusion and cursing in a kind of semi-conscious daze. Which is best, Gabapentin or Pregabalin, and how much would I have to
I had an absolutely horrible night last night. I take 2mg of Ropinirole but took an extra one last night. It's very ineffective and causes me all sorts of weird problems like confusion and cursing in a kind of semi-conscious daze. Which is best, Gabapentin or Pregabalin, and how much would I have to
Baldrick123
in
Restless Legs Syndrome
3 months ago
Buprenorphine update - one week in
Well, I’ve been taking Buprenorphine for a week now, and I can barely believe it. I have had [u]zero[/u] RLS! My IRLSS has gone from the high 30s to 0. Absolutely no symptoms at all. I have spent my nights in bed like a normal person. The relief is unbelievable. On the first night I took one 0.2mg
Well, I’ve been taking Buprenorphine for a week now, and I can barely believe it. I have had [u]zero[/u] RLS! My IRLSS has gone from the high 30s to 0. Absolutely no symptoms at all. I have spent my nights in bed like a normal person. The relief is unbelievable. On the first night I took one 0.2mg
Claire_lc
in
Restless Legs Syndrome
3 months ago
buprenorphine for sleep apnea patients
Does anyone know if you can use buprenorphine if you have sleep apnea and use a cpap? I was taking mirapax and oxycodone. Went off mirapax. Took my last mirapax on 5/2. Ever since then I have had rls almost all night after going to bed til morning. I am now taking 4 oxycodone ( 5 mg each) spread
Does anyone know if you can use buprenorphine if you have sleep apnea and use a cpap? I was taking mirapax and oxycodone. Went off mirapax. Took my last mirapax on 5/2. Ever since then I have had rls almost all night after going to bed til morning. I am now taking 4 oxycodone ( 5 mg each) spread
lorri214
in
Restless Legs Syndrome
3 months ago
steroids after a fall…
hi, I had a fall a few days ago, nothing broken but as the days go on I’m extremely stiff and sore on my upper body. I’m especially bad at night when laying down and the pain is at it’s worse. I’m taking painkillers (co-codamol) that work for a while till they wear off….Would anyone know if increasing
hi, I had a fall a few days ago, nothing broken but as the days go on I’m extremely stiff and sore on my upper body. I’m especially bad at night when laying down and the pain is at it’s worse. I’m taking painkillers (co-codamol) that work for a while till they wear off….Would anyone know if increasing
PamJCam
in
PMRGCAuk
8 months ago
medication rotation
My RLS doctor, who I have found to be most knowledgeable about RLS put me on Buprenorphine,( .5 mg is my lowest effective dose). I was on Pramipexole without significant augmentation, but discontinued gradually after starting the Bup. After a year of Bup only, after the dopamine receptors have “reset
My RLS doctor, who I have found to be most knowledgeable about RLS put me on Buprenorphine,( .5 mg is my lowest effective dose). I was on Pramipexole without significant augmentation, but discontinued gradually after starting the Bup. After a year of Bup only, after the dopamine receptors have “reset
teakabeagle
in
Restless Legs Syndrome
3 months ago
methadone ? Tolerance
hi, I am wondering if I am developing a tolerance to methadone, and, if so, where too from here? Sorry about the long post but I think if anyone is able to help me, they will need details. Aafter augmenting repeatedly on dopamine agonists I finally withdrew from them cold turkey on on 2 Dec 23, not
hi, I am wondering if I am developing a tolerance to methadone, and, if so, where too from here? Sorry about the long post but I think if anyone is able to help me, they will need details. Aafter augmenting repeatedly on dopamine agonists I finally withdrew from them cold turkey on on 2 Dec 23, not
Mongolia2020
in
Restless Legs Syndrome
3 months ago
Headaches post lap!
Hello ladies! Just wanted to ask if any of you have experienced this. I am a week post my surgery in which they removed my left ovary and all the endo they could find. I am healing well, i am not in pain just not so bouncy as before. The only think that is bothering me are the headaches..I ve had them
Hello ladies! Just wanted to ask if any of you have experienced this. I am a week post my surgery in which they removed my left ovary and all the endo they could find. I am healing well, i am not in pain just not so bouncy as before. The only think that is bothering me are the headaches..I ve had them
Pisi
in
Endometriosis UK
8 months ago
lower leg pain
I have a aorta leaky heart valve and lately I am experiencing lower right
leg
pain
, nurse practitioner says it’s my muscle and to rest it . Has any one else had this problem with above condition Thanks
I have a aorta leaky heart valve and lately I am experiencing lower right
leg
pain
, nurse practitioner says it’s my muscle and to rest it . Has any one else had this problem with above condition Thanks
Terri14
in
British Heart Foundation
1 year ago
Addicted or not addicted
Last night I e xperceived very painful calf muscles and restless leg syndrome . I thought I hade taken my normal prescription of 3 x 50mg of Tramadol! & you can imagine the thought processes regarding augmentation!!When morning arrived my wife asked what was the one Tramadol capsule doing in my pill
Last night I e xperceived very painful calf muscles and restless leg syndrome . I thought I hade taken my normal prescription of 3 x 50mg of Tramadol! & you can imagine the thought processes regarding augmentation!!When morning arrived my wife asked what was the one Tramadol capsule doing in my pill
m1946
in
Restless Legs Syndrome
3 months ago
Gabapentin side effects
I have been taking medication for my RLS for 11 years now. Initially pramipexol for 8 years then Ropinirole for two years and I’ve just started Gabapentin on top of the Ropinirole. I’ve been increasing the Gabapentin to 600mg a day, 100mg in the morning, 200mg afternoon and 300mg at night. I feel
I have been taking medication for my RLS for 11 years now. Initially pramipexol for 8 years then Ropinirole for two years and I’ve just started Gabapentin on top of the Ropinirole. I’ve been increasing the Gabapentin to 600mg a day, 100mg in the morning, 200mg afternoon and 300mg at night. I feel
Louless9
in
Restless Legs Syndrome
3 months ago
Next Step (Addenbrookes) - TIPS operation unsuccessful
Hello all, I posted on here a few months ago and received some really positive replies - thank you. Long story short, my partner (70) was diagnosed with NAFLD (Non Alcoholic Fatty Liver Disease) last year after tummy bleeds and generally being unwell. It was caused by long-term painkiller use prescribed
Hello all, I posted on here a few months ago and received some really positive replies - thank you. Long story short, my partner (70) was diagnosed with NAFLD (Non Alcoholic Fatty Liver Disease) last year after tummy bleeds and generally being unwell. It was caused by long-term painkiller use prescribed
WriterGirl79
in
British Liver Trust
8 months ago
Magnesium, how much and tablet/spray
My RLS has become significantly worse over the last 6 months and I am reluctant just yet to take regular medication for the condition before trying other avenues. I have eliminated caffeine and alcohol and have regular exercise but it doesn't seem to help. I recently tried the Therapulse but at times
My RLS has become significantly worse over the last 6 months and I am reluctant just yet to take regular medication for the condition before trying other avenues. I have eliminated caffeine and alcohol and have regular exercise but it doesn't seem to help. I recently tried the Therapulse but at times
ChilliChocolateLover
in
Restless Legs Syndrome
4 months ago
RLS Requip (the devil med) and then Gabapentin(my savior)
I was on Requip for years always inching up in the dose as I went. It really didn’t stop the pain or movements. Then I had a blast of some kind of mental dysfunction and I began to gamble. I gambled away $200,000.00 of my retirement money. I also acted different. More than one person told me that. I
I was on Requip for years always inching up in the dose as I went. It really didn’t stop the pain or movements. Then I had a blast of some kind of mental dysfunction and I began to gamble. I gambled away $200,000.00 of my retirement money. I also acted different. More than one person told me that. I
Maystamper1
in
Restless Legs Syndrome
4 months ago
I think my mum might have PMR how can we get it diagnosed?
Hi, my mum started getting pain in her upper arm which then went upto her shoulder, she could barely raise her arm and it was extremely painful, she now has this in both upper arms and shoulders and has done since early/mid October. She has completely lost her appetite, has lost over a stone and is
Hi, my mum started getting pain in her upper arm which then went upto her shoulder, she could barely raise her arm and it was extremely painful, she now has this in both upper arms and shoulders and has done since early/mid October. She has completely lost her appetite, has lost over a stone and is
Nmbchelsea
in
PMRGCAuk
8 months ago
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