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Update
I've finally come off ropinirole and am taking pregabalin150 mg only. It's not been easy. It's now 4 weeks since the last sliver of ropinirole and since then the symptoms have started to slowly creep back. I know from advice here that this is to be expected and the pregabalin dose can be increased. The
I've finally come off ropinirole and am taking pregabalin150 mg only. It's not been easy. It's now 4 weeks since the last sliver of ropinirole and since then the symptoms have started to slowly creep back. I know from advice here that this is to be expected and the pregabalin dose can be increased. The
Firenze1
in
Restless Legs Syndrome
10 months ago
Will lowering T3 dose raise TSH?
I am afraid to go below the current dosage because of the
leg
pain
and exhaustion I feel when I am low in the Liothronine. Is the doctor's reasoning valid enough to risk the effects of being low in T3? My daughter has had Hashimotos for 20 years and her TSH is undetectable.
I am afraid to go below the current dosage because of the
leg
pain
and exhaustion I feel when I am low in the Liothronine. Is the doctor's reasoning valid enough to risk the effects of being low in T3? My daughter has had Hashimotos for 20 years and her TSH is undetectable.
Cricket-mas
in
Thyroid UK
11 months ago
Endo history lesson!!!!
On a bored afternoon today, i thought i'd look up when Endo was first diagnosed. It was about 1860, here in England. I wonder how women coped then???. Was it getting drunk that helped numb the pain, cos there were no painkillers like we have today i think. I have endo at the minute, it feels like
On a bored afternoon today, i thought i'd look up when Endo was first diagnosed. It was about 1860, here in England. I wonder how women coped then???. Was it getting drunk that helped numb the pain, cos there were no painkillers like we have today i think. I have endo at the minute, it feels like
valgal76
in
Endometriosis UK
1 year ago
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37 M, Functional Tremor, with hyperreflexia, dysphagia, SBD, and urinary incontinence. All diagnosed.
How can I have so many positive neurological findings and tests and be told that all of the stiffness/rigid feeling that has slowly developed and worsened the past 3 years be entirely FND? I was under the impression that FND, not just functional tremor, required a lack of positive neurogenic findings
How can I have so many positive neurological findings and tests and be told that all of the stiffness/rigid feeling that has slowly developed and worsened the past 3 years be entirely FND? I was under the impression that FND, not just functional tremor, required a lack of positive neurogenic findings
Hidden
in
Functional Neurological Disorder - FND Hope
1 year ago
getting off pramipexole
I’ve run into a RLP problem trying to get off pramipexole. I reduced the pramipexole from .5 mg to .375 mg. I’m into my 4 th week. I’ve increased the Gabapentin to 600 mg and having to use codine twice daily. I’m taking 5 mg of codine per dose. I’m still having from moderate to severe RLS pain. I need
I’ve run into a RLP problem trying to get off pramipexole. I reduced the pramipexole from .5 mg to .375 mg. I’m into my 4 th week. I’ve increased the Gabapentin to 600 mg and having to use codine twice daily. I’m taking 5 mg of codine per dose. I’m still having from moderate to severe RLS pain. I need
Moretravel1
in
Restless Legs Syndrome
10 months ago
”Reduced b12” - panicking
Btw, I have had other symptoms since this including an occasional sharp pain in both forearms and near the elbow, random thumb and finger
pain
,
leg
cramps/
pain
/tingling, nausea and a loss of appetite, finger tingling, random jerky movements, random foot
pain
when getting out of bed,
leg
/arm weakness,
Btw, I have had other symptoms since this including an occasional sharp pain in both forearms and near the elbow, random thumb and finger
pain
,
leg
cramps/
pain
/tingling, nausea and a loss of appetite, finger tingling, random jerky movements, random foot
pain
when getting out of bed,
leg
/arm weakness,
WanderingCrust
in
Pernicious Anaemia Society
7 months ago
Coming out of a very very long dark tunnel.
Those of you who have the patience to read my sometimes rambling posts will know that I was taking 6mg of Ropinirole a day and had been taking it for quite some time with Neupro patches before that anyway I finally went private to see a terrific Doctor Jose Thomas at the Spire Hospital in Cardiff who
Those of you who have the patience to read my sometimes rambling posts will know that I was taking 6mg of Ropinirole a day and had been taking it for quite some time with Neupro patches before that anyway I finally went private to see a terrific Doctor Jose Thomas at the Spire Hospital in Cardiff who
HipHop1972
in
Restless Legs Syndrome
10 months ago
Augmentation- Report via Yellow Card Scheme
The MHRA is encouraging people to report adverse side effects via the Yellow Card Scheme. If you have suffered drug induced worsening on Ropinirole, Pramipexole or the Neupro patch, please report to help raise awareness among medical professionals. https://content.govdelivery.com/accounts/UKMHRA/bulletins
The MHRA is encouraging people to report adverse side effects via the Yellow Card Scheme. If you have suffered drug induced worsening on Ropinirole, Pramipexole or the Neupro patch, please report to help raise awareness among medical professionals. https://content.govdelivery.com/accounts/UKMHRA/bulletins
Joolsg
in
Restless Legs Syndrome
10 months ago
Recovery time
Hello folks, it's been a while since I posted, or had anything to post about. I have to retire to my bed or any horizontal surface these days as my fractured vertebrae are soon put to the test and become uncomfortable if I'm sitting or standing for a while. Speed bumps are a menace and I always have
Hello folks, it's been a while since I posted, or had anything to post about. I have to retire to my bed or any horizontal surface these days as my fractured vertebrae are soon put to the test and become uncomfortable if I'm sitting or standing for a while. Speed bumps are a menace and I always have
Gandalf2
in
Encephalitis International
1 year ago
Ankle Fusion wahey
i am in hospital after an an ankle fusion yesterday. Great fun. Lovely nurses 🤪 just going home. And I've had my second Oxy pill. Oh my! Do watch Painkiller if you have Netflix. It's evil big pharma and so on. This was going on when I was living in California.... Awful sights... 9mg and I'm doing
i am in hospital after an an ankle fusion yesterday. Great fun. Lovely nurses 🤪 just going home. And I've had my second Oxy pill. Oh my! Do watch Painkiller if you have Netflix. It's evil big pharma and so on. This was going on when I was living in California.... Awful sights... 9mg and I'm doing
Hidden
in
PMRGCAuk
1 year ago
hand pain
the awful pain i had in my hands is just worse by the day, i thought it would go cos maybe gluten related but after setting doc she said she can see joints inflammation. nothing can be done except painkillers. now i’ve realised and admitted to myself that it is arthritis 😢 after all these years of
the awful pain i had in my hands is just worse by the day, i thought it would go cos maybe gluten related but after setting doc she said she can see joints inflammation. nothing can be done except painkillers. now i’ve realised and admitted to myself that it is arthritis 😢 after all these years of
Junny123
in
Gluten Free Guerrillas
1 year ago
post CRR-D procedure
I had a CRT-D procedure test yesterday and all went well the cardiologist and nurses were amazing. I feel as though I can actually breathe normally now which is amazing. My question is how long does the wound take for the pain to ease off where you don’t have to take painkillers? Thank you, Joy
I had a CRT-D procedure test yesterday and all went well the cardiologist and nurses were amazing. I feel as though I can actually breathe normally now which is amazing. My question is how long does the wound take for the pain to ease off where you don’t have to take painkillers? Thank you, Joy
honeybubs
in
British Heart Foundation
1 year ago
Neuropathy and Osteoarthritis
Hello All, I am writing on behalf of my 89 year old mom who has been struggling with severe
leg
and back
pain
. Mom had Guillaune Barre Syndrome in 2009 resulting from the flu vaccine and both knee replacements prior to that. She is diabetic and otherwise cognitively fine.
Hello All, I am writing on behalf of my 89 year old mom who has been struggling with severe
leg
and back
pain
. Mom had Guillaune Barre Syndrome in 2009 resulting from the flu vaccine and both knee replacements prior to that. She is diabetic and otherwise cognitively fine.
Mira_Mira
in
Restless Legs Syndrome
2 months ago
Psilocybin
Dear friends: I recently read a post by someone who had a resolution of RLS after medically supervised use of psilocybin. After taking Mirapex, Gabapentin, OxyContin, Methadone, and Horizant, I am desperate for alternatives. The poster lives in CA as do I. I am unable to locate the post via searching
Dear friends: I recently read a post by someone who had a resolution of RLS after medically supervised use of psilocybin. After taking Mirapex, Gabapentin, OxyContin, Methadone, and Horizant, I am desperate for alternatives. The poster lives in CA as do I. I am unable to locate the post via searching
JustVisiting23
in
Restless Legs Syndrome
10 months ago
Side Effects - Ropinirole & Pramipexole
Hi all, I found that the generic Ropinirole gave me nausea but the commercial ReQuip didn't, now ReQuip is being manufactured under license for GSK and the "commercial" ReQuip is giving me nausea. I have thus switched to Pramipexole and I am currently 3 days into GLEPARK generic version, it is giving
Hi all, I found that the generic Ropinirole gave me nausea but the commercial ReQuip didn't, now ReQuip is being manufactured under license for GSK and the "commercial" ReQuip is giving me nausea. I have thus switched to Pramipexole and I am currently 3 days into GLEPARK generic version, it is giving
PaddyMac1
in
Restless Legs Syndrome
10 months ago
Journey Ditty
Twenty twenty was the year all went wrong that's crystal clear. Things had not been going well before that date, just to tell. Ailments I'd not had before taxed me like a plague of yore. Unknown this and unknown that caught me square and laid me flat. Muscles cramping so in pain no relief drove
Twenty twenty was the year all went wrong that's crystal clear. Things had not been going well before that date, just to tell. Ailments I'd not had before taxed me like a plague of yore. Unknown this and unknown that caught me square and laid me flat. Muscles cramping so in pain no relief drove
cycli
in
PMRGCAuk
1 year ago
is Acid Reflux a FND symptom
I lost my voice - mid May 2022. I received medical treatment. After taking lots and lots of meds, I experienced stomach and bowel issues. A specialist performed a procedure to get my voice back. It was unsuccessful. After the procedure, I lost my sense of taste. I experience tremors in my hands.
I lost my voice - mid May 2022. I received medical treatment. After taking lots and lots of meds, I experienced stomach and bowel issues. A specialist performed a procedure to get my voice back. It was unsuccessful. After the procedure, I lost my sense of taste. I experience tremors in my hands.
Ravstar
in
Functional Neurological Disorder - FND Hope
1 year ago
Update- any hope for my reconsideration request?zero points for PIP and doesn’t tally with anything I said at interview.
Update: finally finished filling out reconsideration. It’s taken so long and has been making me really anxious. When I got the report from my assessment it seemed to hinge on a paragraph she had copied and pasted for each section stating I had no significant input for pain and mental health. I have provided
Update: finally finished filling out reconsideration. It’s taken so long and has been making me really anxious. When I got the report from my assessment it seemed to hinge on a paragraph she had copied and pasted for each section stating I had no significant input for pain and mental health. I have provided
Brigga
in
Fibromyalgia Action UK
1 year ago
Newbie
Please forgive me if I am totally wrong as I have had zero sleep for two nights now. I was put on Pramipexole (i think that is what it is called) but when I needed to increase the dose to four a night I was unable to sleep due to insomnia, so two days ago I started taking Ropinirole which feels like
Please forgive me if I am totally wrong as I have had zero sleep for two nights now. I was put on Pramipexole (i think that is what it is called) but when I needed to increase the dose to four a night I was unable to sleep due to insomnia, so two days ago I started taking Ropinirole which feels like
Gardeninglover8
in
Restless Legs Syndrome
10 months ago
Tramadol versus Buprenorphine Patch.
Just a short post as I’m getting very depressed by constant pain from Severe Spinal Stenosis. I had a Laminectomy which failed (Triple Bypass and Mitral Valve Repair also) now diagnosed with Heart Failure so no “normal” painkillers. Pain Management have advised me to try Tramadol prior to possibly using
Just a short post as I’m getting very depressed by constant pain from Severe Spinal Stenosis. I had a Laminectomy which failed (Triple Bypass and Mitral Valve Repair also) now diagnosed with Heart Failure so no “normal” painkillers. Pain Management have advised me to try Tramadol prior to possibly using
Davewm
in
Pain Concern
1 year ago
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