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Leg pain
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I stopped steroids rapidly and all PMR symptoms returned - HELP!
Hi, I have only found this group today so I am really pleased to find ANYONE else who has PMR! I have difficult situation as I was responding really well 25mg of steroids per day, when I developed a CSR in my eye. I have had one before from Stress a couple of years ago and knew this was a risk,
Hi, I have only found this group today so I am really pleased to find ANYONE else who has PMR! I have difficult situation as I was responding really well 25mg of steroids per day, when I developed a CSR in my eye. I have had one before from Stress a couple of years ago and knew this was a risk,
Megasorearms
in
PMRGCAuk
1 year ago
Heat pads
After getting rid of pramipexole using kratom, I continued on kratom as it turned out to be quite effective keeping the jittering down. I don't know if it is the cold weather or tolerance to kratom, but RLS is rearing it's ugly head again. The symptoms are disruptive but nothing like the horror I experienced
After getting rid of pramipexole using kratom, I continued on kratom as it turned out to be quite effective keeping the jittering down. I don't know if it is the cold weather or tolerance to kratom, but RLS is rearing it's ugly head again. The symptoms are disruptive but nothing like the horror I experienced
sigurdur
in
Restless Legs Syndrome
9 months ago
Osteochondral defect, loose bodies in the knee and Baker's cyst.
Hi everyone,Hope you are all managing. Since the beginning of the year, I have been experiencing tear sensation at the back of my right knee. When I told my mum she said it might be that I have added weight. That it would stop when I reduce some weight. In April, I experiened a locked knee. It was
Hi everyone,Hope you are all managing. Since the beginning of the year, I have been experiencing tear sensation at the back of my right knee. When I told my mum she said it might be that I have added weight. That it would stop when I reduce some weight. In April, I experiened a locked knee. It was
ijeasike
in
LUPUS UK
1 year ago
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Newly Diagnosed with RSL and trying to get my head around it!
In the space of a week I have gone from a sane and active older lady to a sleep deprived zombie, unable to grasp how this diagnosis, which sounds relatively innocuous, is about to disrupt and change my life and I'm struggling to come terms with the prospect of living with what I can only describe as
In the space of a week I have gone from a sane and active older lady to a sleep deprived zombie, unable to grasp how this diagnosis, which sounds relatively innocuous, is about to disrupt and change my life and I'm struggling to come terms with the prospect of living with what I can only describe as
Lettucenotforget
in
Restless Legs Syndrome
9 months ago
Hope, perhaps?
Hi everyone, I just wanted to post a little positivity on here! I know how difficult it is to live with endo (of course), so I wanted to share any positive experiences to anyone who might need it.I had my first laparoscopy (both diagnostic and therapeutic, in the end), in July, so I'm about 6 weeks out
Hi everyone, I just wanted to post a little positivity on here! I know how difficult it is to live with endo (of course), so I wanted to share any positive experiences to anyone who might need it.I had my first laparoscopy (both diagnostic and therapeutic, in the end), in July, so I'm about 6 weeks out
CaffeineCat
in
Endometriosis UK
1 year ago
Some good news
Just to keep you all up to date. I have been on 50mg daily of Agomelatine, for depression, foe the padt month. I feel the best I have felt in years!. Severe restless legs are 75% better. Some nights I have no rls at all. Always good to have a good news story - especially for me after the last 6 months
Just to keep you all up to date. I have been on 50mg daily of Agomelatine, for depression, foe the padt month. I feel the best I have felt in years!. Severe restless legs are 75% better. Some nights I have no rls at all. Always good to have a good news story - especially for me after the last 6 months
Trish8433
in
Restless Legs Syndrome
9 months ago
Pred and painkillers
Hi all Can you tell me what painkillers are safe to take with Pred. Is ibuprofen and aspirin off limits and if so what do you suggest for general aches and pains. Many thanks.
Hi all Can you tell me what painkillers are safe to take with Pred. Is ibuprofen and aspirin off limits and if so what do you suggest for general aches and pains. Many thanks.
Fredddie
in
PMRGCAuk
1 year ago
Claiming victory!
For the past several years, I've had
leg
/hip
pain
which forced me to slow down on many activities - hiking, biking, horseback riding, or just walking along with friends. I felt my life was shrinking.
For the past several years, I've had
leg
/hip
pain
which forced me to slow down on many activities - hiking, biking, horseback riding, or just walking along with friends. I felt my life was shrinking.
anaishunter
in
My MSAA Community
1 year ago
adenomyosis/endo can’t walk or stand up straight due to crippling back buttock and leg pain PLEASE HELP🙏🏼
pain
… I’m awaiting a date for hysterectomy but my consultant doesn’t think my back pain is related and hysterectomy won’t cure the back pain… please can anyone relate at all??
pain
… I’m awaiting a date for hysterectomy but my consultant doesn’t think my back pain is related and hysterectomy won’t cure the back pain… please can anyone relate at all??
Servante
in
Endometriosis UK
1 year ago
Hip/leg pain
Wondering if there is anyone else out there with bad
leg
pain
and sometimes unable to walk or have a proper night sleep, and what you did? It seems to radiate from hip to knee on the right hand side, however when it first appeared in 2011 in was in my left leg.
Wondering if there is anyone else out there with bad
leg
pain
and sometimes unable to walk or have a proper night sleep, and what you did? It seems to radiate from hip to knee on the right hand side, however when it first appeared in 2011 in was in my left leg.
Margo
in
Thyroid UK
2 years ago
Increased bleeding after first scan…
hi everyone, this is my first post. First IVF cycle. I have PCOS and my bleeds are [u]extremely[/u] unpredictable. I started my current cycle with very light murky bleeding and because there was nothing else to go on and none of my bleeds are the same, we started the protocol given by our doctor.
hi everyone, this is my first post. First IVF cycle. I have PCOS and my bleeds are [u]extremely[/u] unpredictable. I started my current cycle with very light murky bleeding and because there was nothing else to go on and none of my bleeds are the same, we started the protocol given by our doctor.
IchigoKeikaku
in
Fertility Network UK
1 year ago
Feeling better...
I am making a slow recovery from Myocarditis
leg
pain
is gone which is great but I still have all the usual aches and pains. But I wake up every morning with the worst headache consistently regardless on how much sleep I have.Does anyone else have this?
I am making a slow recovery from Myocarditis
leg
pain
is gone which is great but I still have all the usual aches and pains. But I wake up every morning with the worst headache consistently regardless on how much sleep I have.Does anyone else have this?
Tomedward
in
British Heart Foundation
1 year ago
Newly diagnosed with FND
Received EEG results yesterday . Neurologist finally confirms diagnosis of Functional Neurological Disorder (FND) with paroxysmal non-epileptic events. Being referred for CBT . Anyone had same diagnosis ? Any useful information on how to manage condition whilst waiting for CBT appt would be appreciated
Received EEG results yesterday . Neurologist finally confirms diagnosis of Functional Neurological Disorder (FND) with paroxysmal non-epileptic events. Being referred for CBT . Anyone had same diagnosis ? Any useful information on how to manage condition whilst waiting for CBT appt would be appreciated
Maynan17
in
FND Action
11 months ago
reversal of approval
Ihave been on Buprenorphine for two and a half month and doing well. I was able to stop the Pramipexol. All of a sudden, the pharmacy says it can’t refill it as it doesn’t carry an indication for RLS.. They are Dayi g their pharmacist made a mistake. My doctor has spoken to them and they are demanding
Ihave been on Buprenorphine for two and a half month and doing well. I was able to stop the Pramipexol. All of a sudden, the pharmacy says it can’t refill it as it doesn’t carry an indication for RLS.. They are Dayi g their pharmacist made a mistake. My doctor has spoken to them and they are demanding
teakabeagle
in
Restless Legs Syndrome
9 months ago
ibuprofen & Pramipexole
Nearly 3am and wondering why the Pramipexole is not working. Have just discovered that Ibuprofen renders Pramipexole ineffective and I took a couple of Ibuprofen as a pain killer. Will I ever get to sleep? Does the Ibuprofen wear off.? If/when it does, will the the pramipexole kick in or do I have to
Nearly 3am and wondering why the Pramipexole is not working. Have just discovered that Ibuprofen renders Pramipexole ineffective and I took a couple of Ibuprofen as a pain killer. Will I ever get to sleep? Does the Ibuprofen wear off.? If/when it does, will the the pramipexole kick in or do I have to
Millersman
in
Restless Legs Syndrome
11 months ago
Knees and lower leg swelling and pain both legs please help
These are the symptoms Tissue movement below the knee, burning sensation below the knee, pain through side of knees, swelling and soreness spreading down legs into feet, back of legs swelling. All below the knee, severe cramp in calves and feet.cramping worse at night. And these are the tests done so
These are the symptoms Tissue movement below the knee, burning sensation below the knee, pain through side of knees, swelling and soreness spreading down legs into feet, back of legs swelling. All below the knee, severe cramp in calves and feet.cramping worse at night. And these are the tests done so
poppppy
in
Thyroid UK
8 months ago
Urgent help needed. Extremely severe RLS, cannot identify cause.
It's so goddamn severe that at this point, I either have the most severe case of RLS in medical history or it's something else. I rate it 9 on the severity scale. Did every possible test related to RLS (iron, vitamin D, etc) except for for transferrin saturation and serum iron because it wasn't available
It's so goddamn severe that at this point, I either have the most severe case of RLS in medical history or it's something else. I rate it 9 on the severity scale. Did every possible test related to RLS (iron, vitamin D, etc) except for for transferrin saturation and serum iron because it wasn't available
RestlessDaily
in
Restless Legs Syndrome
1 year ago
New Member
Also, I had a hip replacement in Novemebr 2022, and I always have
leg
pain
. I will ask my surgeon once i have the results if this is something that could hurt me as far as falling and it will continue to cause me pain.
Also, I had a hip replacement in Novemebr 2022, and I always have
leg
pain
. I will ask my surgeon once i have the results if this is something that could hurt me as far as falling and it will continue to cause me pain.
numbercruncherak
in
PMRGCAuk
1 year ago
Requip and Collagen
I have been taking Requip for several years and started taking Collagen last year as I had come off HRTand my hair and nails were in a terrible condition. I seem to remember seeing that taking both was not advised, is that correct? I have gone back on HRT but it has not made any difference.
I have been taking Requip for several years and started taking Collagen last year as I had come off HRTand my hair and nails were in a terrible condition. I seem to remember seeing that taking both was not advised, is that correct? I have gone back on HRT but it has not made any difference.
Brenda48
in
Restless Legs Syndrome
10 months ago
Update
I've finally come off ropinirole and am taking pregabalin150 mg only. It's not been easy. It's now 4 weeks since the last sliver of ropinirole and since then the symptoms have started to slowly creep back. I know from advice here that this is to be expected and the pregabalin dose can be increased. The
I've finally come off ropinirole and am taking pregabalin150 mg only. It's not been easy. It's now 4 weeks since the last sliver of ropinirole and since then the symptoms have started to slowly creep back. I know from advice here that this is to be expected and the pregabalin dose can be increased. The
Firenze1
in
Restless Legs Syndrome
10 months ago
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