I’m an endo warrior and have recently started having seizures for the first time. I have daily headaches, and I have lost full mobility of my left side since the first cluster of seizures. I am awaiting an MRI and an EEG, but a neurologist has dismissed my questions about endo on the brain and told me it’s not epilepsy either. He’s referred me to a psychiatrist. Does anyone have any information? The internet gives very little away, other than the symptoms I’ve mentioned and that it’s super rare.
Any help would be greatly appreciated.
Jessie
I really hope you can get some help with this. It would absolutely suck if it was endo, but if it's any consolation the cases in the literature I've come across (info from the fb group) usually do well after proper treatment!
It a hard one u do need a mri scan as soon as poss before u can even think about it yet.
I had something like this about 11 years ago and it was severe stress.
I kept passing out( anything up to 4-5 times a day) my left side of face went numb.
I could not go out as i would have these passouts anywhere! Once brought a Whole shelf of tampons down on me in supermarket.
Had mri nothing..
Saw a therapist and he recognised i wasn’t breathing properly! So my head was not getting enough oxygen. It called hyperventilation syndrome.
I gave up my job and i got sent to a physio for breathing and believe it or not trained me to breath properly and i got better it all went