It’s been a long year since I was diagnosed with ET + Jak 2 positive and already fought and battled my way through the side effects of Hydroxy, Anagrelide and Interferon.
When I started Pegasys four weeks ago, I thought this may be the one.
However I started it and I still had not recovered from the sore mouth and gums from the previous. Now my upper mouth feels raw, constantly burning and paining. Front gums paining and top lip swollen. Trying an antibiotic from the GP but that clearly isn’t helping and already have had a steroid mouthwash …all in vain
Please could I ask if anyone has had similar problems and or any solutions welcome ….or does it mean I am a hopeless case ….I worry I am running out of options
Thanks for your help Maggie