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Is it possible to have a flare up of PMR without a change in predisolone dosage?
I have had PMR for over 2 years & I'm currently on 12mg of Pred. I have seen a Rheumatologist & started Methotrexate on 15th September10mg once a week but I have not started reducing the Pred yet. For the last 4-5 days I have been feeling cold, tired & aching all over & feel like I've got the flu.
I have had PMR for over 2 years & I'm currently on 12mg of Pred. I have seen a Rheumatologist & started Methotrexate on 15th September10mg once a week but I have not started reducing the Pred yet. For the last 4-5 days I have been feeling cold, tired & aching all over & feel like I've got the flu.
Springer2210
in
PMRGCAuk
2 years ago
Back to square one but grateful
Hello friends, having already reported that I’d attempted to reduce my Ropinirole medication prior to my visit to see the GP one back on 6mg tablets spread throughout the day and night, Sue agreed that it was probably the best course of action and I’m again getting some much needed sleep and the pains
Hello friends, having already reported that I’d attempted to reduce my Ropinirole medication prior to my visit to see the GP one back on 6mg tablets spread throughout the day and night, Sue agreed that it was probably the best course of action and I’m again getting some much needed sleep and the pains
HipHop1972
in
Restless Legs Syndrome
2 years ago
How did we arrive at Disease?
I’ve often wondered how I ended up with Parkinson’s. Well the advent of Cov-vid may have inadvertently shed a light on this question. I began reading anecdotal reports, and articles saying that some people getting the cov-vid shot were experiencing a metallic taste in their mouth immediately following
I’ve often wondered how I ended up with Parkinson’s. Well the advent of Cov-vid may have inadvertently shed a light on this question. I began reading anecdotal reports, and articles saying that some people getting the cov-vid shot were experiencing a metallic taste in their mouth immediately following
Cons10s
in
Cure Parkinson's
2 years ago
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Today I feel great!
Yesterday I had some minor surgery but under general anaesthetic. I don’t know if it is the anaesthetic, the oramorph glug I had post op or the day of complete rest, but today, I feel like I did before FMS, RLS and PLMD came to stay! I even slept completely between wee breaks! Long may it last!!!
Yesterday I had some minor surgery but under general anaesthetic. I don’t know if it is the anaesthetic, the oramorph glug I had post op or the day of complete rest, but today, I feel like I did before FMS, RLS and PLMD came to stay! I even slept completely between wee breaks! Long may it last!!!
Theonlypetied
in
Restless Legs Syndrome
2 years ago
ropinirole
I have been taking ropinirole for more than 40 years. 1 mg at night. It works for me but now I am terrified because apparently it has been withdrawn and I can’t get it in any of the farmacias in the Valencia region. I tried gabapentin - no effect at wll. I gave just been prescribed pregabalin and didn
I have been taking ropinirole for more than 40 years. 1 mg at night. It works for me but now I am terrified because apparently it has been withdrawn and I can’t get it in any of the farmacias in the Valencia region. I tried gabapentin - no effect at wll. I gave just been prescribed pregabalin and didn
Pensionistaspain
in
Restless Legs Syndrome
2 years ago
shingles question
Hi, just wondered how dangerous it would be to if I were to come into contact with someone with shingles? My disabled daughter who lives in supported living has shingles and I’m due to see her soon. I’m now on 6mg prednisone- am I less compromised as it’s a lower dose? Thanks
Hi, just wondered how dangerous it would be to if I were to come into contact with someone with shingles? My disabled daughter who lives in supported living has shingles and I’m due to see her soon. I’m now on 6mg prednisone- am I less compromised as it’s a lower dose? Thanks
Abcd123455
in
PMRGCAuk
2 years ago
Now on Gabapentin, not sure about it.
I have had rls for over 30 years, and many years ago I was given Pramipexole. I refused to increase the dose, so my GP begrudgingly gave me Tramadol. Like the Prami it worked for a while, then stopped working. GP offered my Ropinerole, I declined, he said there was no other option. Long story short
I have had rls for over 30 years, and many years ago I was given Pramipexole. I refused to increase the dose, so my GP begrudgingly gave me Tramadol. Like the Prami it worked for a while, then stopped working. GP offered my Ropinerole, I declined, he said there was no other option. Long story short
Gmc54
in
Restless Legs Syndrome
2 years ago
symptoms of pmr returning have managed on 2mg for 2 months have asked for gp phone consultation tomorrow just wanted to talk to you folks fi
Hi I have had pmr for nearly 2 years . Because inflammation was high initially gp put me on 30 mg . I was able to reduce to lower quite quickly and felt well though experienced side effects of poor sleep being hot , being very active probably a bit elated, constipated and my face made me look in my
Hi I have had pmr for nearly 2 years . Because inflammation was high initially gp put me on 30 mg . I was able to reduce to lower quite quickly and felt well though experienced side effects of poor sleep being hot , being very active probably a bit elated, constipated and my face made me look in my
Mofred
in
PMRGCAuk
2 years ago
Who here have the same problems with their legs?
More than 20 years ago I was awakened by the worst pain I have ever had and it’s been hell ever since then. As long as I’m standing, I’m fine. But as soon as I lay down it feels like I’m laying next to the devil. To give you an idea how intense the pain is, it will wake me up even if I’m sedated.
More than 20 years ago I was awakened by the worst pain I have ever had and it’s been hell ever since then. As long as I’m standing, I’m fine. But as soon as I lay down it feels like I’m laying next to the devil. To give you an idea how intense the pain is, it will wake me up even if I’m sedated.
Pain_in_the_legs
in
Restless Legs Syndrome
2 years ago
Restless legs or Periodic limb movement
Hi everyone , I think I have restless legs but not been diagnosed, doctor has treated it as restless legs , my legs don’t just move around they intensely kick or jerk out at force in the air , but I do have the sensation before that happens , like my leg is getting ready to fire! Which it does then builds
Hi everyone , I think I have restless legs but not been diagnosed, doctor has treated it as restless legs , my legs don’t just move around they intensely kick or jerk out at force in the air , but I do have the sensation before that happens , like my leg is getting ready to fire! Which it does then builds
Catslover-1
in
Restless Legs Syndrome
2 years ago
Tetanus shot?? Any interactions with Imbruvica?
My husband got a tetanus shot because he was cut with something rusty and hadn't had one in at least 10 years. I haven't had one either, but if I do get cut, or otherwise need one, am I able to get it without a reaction because of CLL or Imbruvica???? Googled it but I didn't get any good results.
My husband got a tetanus shot because he was cut with something rusty and hadn't had one in at least 10 years. I haven't had one either, but if I do get cut, or otherwise need one, am I able to get it without a reaction because of CLL or Imbruvica???? Googled it but I didn't get any good results.
DawnRedwood
in
CLL Support
2 years ago
GP suggesting alternative to citalopram to reduce PMR pain??
My GP has just suggested that I consider changing from 20mg daily citalopram (that I’ve been taking for last 3.5 years to combat menopause symptoms) to Duloxerine because “it will help reduce some of PMR pain”. I’m confused. I know she is concerned because I’m having trouble reducing from 17-20mg
My GP has just suggested that I consider changing from 20mg daily citalopram (that I’ve been taking for last 3.5 years to combat menopause symptoms) to Duloxerine because “it will help reduce some of PMR pain”. I’m confused. I know she is concerned because I’m having trouble reducing from 17-20mg
Lyra42
in
PMRGCAuk
2 years ago
Gabapentin for RLS
I was diagnosed with RLS around three weeks ago and have now been prescribed Gabapentin by my GP having rejected his initial prescription of Ropinirole. My RLS symptoms were initially very severe at night but I was generally symptom free during the day. This has now altered and I am now experiencing
I was diagnosed with RLS around three weeks ago and have now been prescribed Gabapentin by my GP having rejected his initial prescription of Ropinirole. My RLS symptoms were initially very severe at night but I was generally symptom free during the day. This has now altered and I am now experiencing
DonWilliams
in
Restless Legs Syndrome
2 years ago
Have a good Laugh
Spoke to my pharmacists today,asked about Shingles vaccine, she didn't know at 70 we got a shingles vaccine, was saying I needed the Shingrix and it may have to order it,was like speaking to a 4year old BLANK , She said it was a school day every day,she obviously doesn't TV either. Lol
Spoke to my pharmacists today,asked about Shingles vaccine, she didn't know at 70 we got a shingles vaccine, was saying I needed the Shingrix and it may have to order it,was like speaking to a 4year old BLANK , She said it was a school day every day,she obviously doesn't TV either. Lol
Harrywogan
in
PMRGCAuk
2 years ago
Psoriasis In nails
Has anybody experienced psoriasis under/In the nails ? I have it and my toe is so sore at the moment - can’t wear shoes only flat open sandals.I have it In my fingers too - the nails have become loose from the base of the finger. Sometimes by mistake the nail flicks back. I no longer can have long nails
Has anybody experienced psoriasis under/In the nails ? I have it and my toe is so sore at the moment - can’t wear shoes only flat open sandals.I have it In my fingers too - the nails have become loose from the base of the finger. Sometimes by mistake the nail flicks back. I no longer can have long nails
Junny123
in
Pain Concern
2 years ago
Depressed, hopeless and sleep deprived with RLS. HELP??
I’ve had RLS for 40 years and have been on almost every medicine out there. I’ve been in Requip for 6 years - 2 mg XL, 2 2mg Requip along with clonopin & methadone. My neurologist of 15 years has given up on me. I saw another one a few weeks ago and she said everything she’d prescribe, I’ve already
I’ve had RLS for 40 years and have been on almost every medicine out there. I’ve been in Requip for 6 years - 2 mg XL, 2 2mg Requip along with clonopin & methadone. My neurologist of 15 years has given up on me. I saw another one a few weeks ago and she said everything she’d prescribe, I’ve already
SleeplessinDenver
in
Restless Legs Syndrome
2 years ago
Seizures ddont know what to do
hello, Im very scared my neurologist said Im having baby seizures. Im very confused with her first she said maybe MS then eplispy then migraines. I did have abnormal eeg but i dont believe her, reason being she already requested botox approval fr my insurance. I'm very disappointed the she billed for
hello, Im very scared my neurologist said Im having baby seizures. Im very confused with her first she said maybe MS then eplispy then migraines. I did have abnormal eeg but i dont believe her, reason being she already requested botox approval fr my insurance. I'm very disappointed the she billed for
Teresaq
in
Neuro Support
2 years ago
Lyme disease and Thyroid issues
Hi everyone havent posted on here for a while. I have hashimotos and now I have just had Lyme disease I have bn treated with the Docycycline for three weeks but now after finishing them I have real problems with my foot. I had quite a lot of joint pain during the treatment but now I have what I am told
Hi everyone havent posted on here for a while. I have hashimotos and now I have just had Lyme disease I have bn treated with the Docycycline for three weeks but now after finishing them I have real problems with my foot. I had quite a lot of joint pain during the treatment but now I have what I am told
Hidden
in
Thyroid UK
2 years ago
Insomnia add CBD oil
CBD oil acts on different receptors than Opioids and THC . If you are taking low dose CBD with THC or medical marijuana and you still suffer insomnia add extra pure CBD oil. If you suffer from opioid insomnia add PURE CBD OIL always sublingual it has some many health benefits a great nights sleep
CBD oil acts on different receptors than Opioids and THC . If you are taking low dose CBD with THC or medical marijuana and you still suffer insomnia add extra pure CBD oil. If you suffer from opioid insomnia add PURE CBD OIL always sublingual it has some many health benefits a great nights sleep
Shumbah
in
Restless Legs Syndrome
2 years ago
Thalassemia and PA
Hello, I've been telling everyone I know about PA, and so far two friends quite possibly have it. One definitely. But my nieces husband and daughter have Thalassemia. A very rare genetic blood disorder. When i googled it, I was surprised to see it can be linked to b12d and PA. Does anyone here have this
Hello, I've been telling everyone I know about PA, and so far two friends quite possibly have it. One definitely. But my nieces husband and daughter have Thalassemia. A very rare genetic blood disorder. When i googled it, I was surprised to see it can be linked to b12d and PA. Does anyone here have this
EllaNore
in
Pernicious Anaemia Society
2 years ago
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