Lyme disease and Thyroid issues : Hi everyone... - Thyroid UK

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Lyme disease and Thyroid issues

31 Replies

Hi everyone havent posted on here for a while. I have hashimotos and now I have just had Lyme disease I have bn treated with the Docycycline for three weeks but now after finishing them I have real problems with my foot. I had quite a lot of joint pain during the treatment but now I have what I am told is plantar facitus can’t spell it I’m afraid! I’m worried all the antibiotics or the Lyme has affected my joints? I’ve bn to a podiatrist etc but it isn’t really improving and I’m worried that maybe some of the Lyme disease is left or could it be my Thyroid affected and in turn causing these problems. It’s really getting me down as my doctor is saying we have treated you and I’m confident this isn’t Lyme disease continuing. I’m waiting for another test but I’ve got a feeling she will just bank it and say it’s normal even if it’s still positive because she’s told me you can get another positive test because of antibodies any help appreciated

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31 Replies
SlowDragon profile image
SlowDragonAdministrator

Plantar fasciitis is common hypothyroid symptom

Frequently linked to low vitamin D and/or low Ft3

Please add most recent thyroid and vitamin results

What vitamin supplements are you currently taking

in reply toSlowDragon

TSH 4.73 Range 0.27-4.20 T4 18.3 Range 12-22 Free T3 3.88 Range 3.1-6.8 Vit B12 278 Range 145-569 Vit D 35 which I know is deficient and I took vitamin D for a while to get it back up whilst it was still low I stopped taking it as it gives me really bad headaches, even in the spray,... so my TSH was high before I even got Lyme so I guess it is probably even lower now although I did put it up slightly when I got that result I take 100mcgrams in solution as I cant tolerate any levo tablets they make me cough which I think is because they cause some sort of reflux I dont know why.

Taking vitamin Bs on their own make me really irritable so it ends up being a Muti vitamin which I can just about tolerate. Thanks for your reply

SlowDragon profile image
SlowDragonAdministrator in reply to

TSH 4.73 Range 0.27-4.20

T4 18.3 Range 12-22

Free T3 3.88 Range 3.1-6.8

Vit B12 278 Range 145-569

Vit D 35

How long ago were these results

These show you were very under medicated

ALWAYS test thyroid levels early morning, and last dose levothyroxine 24 hours before test

Vitamin D deficient

B12 far far too low

No folate

No ferritin

Don’t take multivitamins ….contains too little to be useful and most contain iodine not recommended for anyone on levothyroxine

Never supplement iron either without getting full iron panel test

If you can’t tolerate vitamin B complex

Take separate folate and separate B12

natureprovides.com/products...

uk.iherb.com/pr/jarrow-form...

in reply toSlowDragon

Thank you that's really helpful I think I will get another blood test that's all maybe at the bottom of these problems.

jade_s profile image
jade_s in reply to

Do you recall whether the Bs you took were methylated forms of b12 and folate? Some will get irritability from the methyl forms.

Are you vegan or vegetarian? Are there b12 issues in the family?

in reply tojade_s

Hi jade_s I really don't know but I do know that of I take them I get irritability and anxiety. Not sure about family issues thank you for your reply

SlowDragon profile image
SlowDragonAdministrator in reply to

When adequately treated on levothyroxine many people will have TSH around or under one, Ft3 at least 60% through range

All four vitamins need to be optimal

Vitamin D at least over 80nmol and around 100nmol maybe better

B12 at least over 500

And folate and ferritin at least half way through range

Come back with new post once you get results

in reply toSlowDragon

Thank you

Pam2017 profile image
Pam2017 in reply toSlowDragon

where can I get thyroid tested in U.K. as last time came back negative as Doctor does do them

SlowDragon profile image
SlowDragonAdministrator in reply toPam2017

please write a new post of your own

members can advise on what tests you need

RedApple profile image
RedAppleAdministrator

otter123, Plantar fasciitis is quite common with low thyroid hormone levels. It's possible that the antibiotics have lowered your thyroid hormone levels. What thyroid hormone are you taking? Have you had your thyroid levels tested recently? Post these details here so that members can offer help.

shaws profile image
shawsAdministrator

I'm very sorry you have a painful condition and you're now suffering with painful feet which will restrict your walking.

This is a link that might be helpful for you and I hope you have a quck recovery.

nhs.uk/conditions/plantar-f...

in reply toshaws

Thank you so much shaws, that'll help I will have a look.

HiPlantar Faciitis is inflammation of the big tendon that runs from your heel bone to the front of the foot. Its not a joint issue but often caused by wear and tear, repetitive stress, being flat footed or even having high arches.

It's aggravated by being overweight which is why it becomes an issue in middle age. Its extremely painful especially first thing in the morning. It's also linked with being hypothyroid although I'm not sure why. It used to be called policeman's heel as it's common in people who are on their feet all day.

Did your podiatrist offer to make you insoles to wear. These are usually very effective at correcting the misalignment of the foot and relieving pressure. You need to wear them all the time but to start with wear them for a few minutes only and gradually build up.

There are also stretches you should do as PF is caused by your achilles tendon becoming shortened or tight in your calf, which then pulls on the heel bone and contributes to the pain. A tennis ball which your place under your foot and roll backwards and forwards can help relax sore tendons. Pulling on your toes and stretching the foot for 30 seconds can help. Ice placed under the heel can relieve inflammation and taking ibuprofen can help.

It's a miserable condition, I had it years ago and they found out I had heel spurs, extra bony growths on my heel. I had to have surgery in the end, which cured the problem. But I still wear insoles to prevent it coming back.

in reply toSparklingsunshine

Thank you Sparkinglingsunshine yes I have been given all the exercises to do and some innersoles are being made for me. I am using bought ones at the moment. Im just worried it could be a left over from the Lymes as I have read alot of people get this after they've been infected. Hopefully it will pass in time. Im not overweight but am trying to lose half a stone anyway as I think that'll help. I think I will get my thyroid levels checked as I think they could be low after all the antibiotics Thanks again.

shaws profile image
shawsAdministrator in reply to

I found that eating gluten-free food enabled a quick decrease in weight.

in reply toshaws

Thank you shaws I will also try this

SlowDragon profile image
SlowDragonAdministrator in reply to

Im just worried it could be a left over from the Lymes as I have read alot of people get this after they've been infected.

Many people become hypothyroid after getting Lyme …..so that’s more likely the issue causing Plantar fasciitis

Antibiotics likely reduced absorption of thyroid hormones

Suggest you wait 6 weeks after stopping antibiotics before testing thyroid levels

Are you on strictly gluten free diet and/or dairy free

in reply toSlowDragon

Hi Slowdragon that's interesting maybe that's why alot of people seem to be saying they have Plantar Fasciitis after Lyme so glad I posted on here! I am on a daily free but not gluten free I will try that as well thank you for your help.

SlowDragon profile image
SlowDragonAdministrator in reply to

Test levels BEFORE considering starting on gluten free diet

Also get coeliac blood test done first ….if not already tested

in reply toSlowDragon

Yes I will Thank you

helvella profile image
helvellaAdministrator

First of all, we are all different.

Plantar fasciitis is something I had in the early days. And very unpleasant it is.

Aside from ensuring your personal optimum thyroid treatment (and I suspect you might need an increase), the single biggest factor for me was wearing insoles in my shoes.

I got ultra-soft diabetic insoles. (Unfortunately they are not given away.) Plus very small heel lifts. And worse shoes which could take those insoles - they need more space than normal shoes.

For some time, I found it difficult to walk barefoot but, eventually managed to and now spend much time, especially round the house, like that.

in reply tohelvella

Thank you helvella Its nice to hear of people's experiences so that's really helpful. As I was Taking all those antibiotics I think I will check my Thyroid levels as you may be right. Not that its easy to get anyone to do any checks on the NHS at the moment. I will probably have to go to Blue Horizon and self medicate as I see fit seems the way to go these days! Thanks again

RedApple profile image
RedAppleAdministrator in reply to

otter123, If you just want to check thyroid levels, MonitorMyHealth is best value. Using code ThyroidUK10 for 10% off, it will cost £26.10 monitormyhealth.org.uk/thyr...

in reply toRedApple

Thank you RedApple

Sparklingsunshine profile image
Sparklingsunshine in reply to

Hi

My podiatrist recommended trainers to wear as they offer a good amount of support and cushioning. Some like Sketchers are made with memory foam inside which acts like a cushion and is absolute bliss when your feet hurt. Trainers are also good as they provide the ankles with support as well.

I regularly buy Sketchers or Puma (another brand with memory foam) and I find I can fit my insoles in with no problem (hint always take your insoles with you when trying on new shoes). She also said always untie the laces and always tie them up firmly. Don't cheat and try and put your feet in whilst your shoes are tied.

When your pull the laces tight on your shoes or trainers, its draws the bottom of the shoe and the insoles into the bottom of your foot. If your laces aren't tight enough you won't get the same support.

in reply toSparklingsunshine

Thank you I have got some sketchers that I bought at the beginning of this they are very comfy!

Fruitandnutcase profile image
Fruitandnutcase

From what I can gather Lyme disease is a very tricky condition to deal with and I’m not sure it is all that easy to get rid of so don’t let your doctor say it’s gone if you don’t think it has.A couple of years ago after I broke my wrist I met a man who was waiting for his wife to have a DEXA scan. He was very scathing about treatment and the understanding of Lyme disease - he had leaflets about it with him that he gave out. I think he was obviously a leading light in his local Lyme disease association so it might be worth contacting them for more information.

lymediseaseuk.com/disclaimer/

Plantar fasciitis has to be one of the most painful conditions I have ever had. To me it felt as if when I put my foot out of bed an agonising pain shot from my heel directly ti my brain. I’ve never known anything like it.

In the end I googled and did everything I could find that anyone suggested. I rolled a frozen bottle of water underneath my foot, I had special plantar fasciitis socks. I dangled my heels over the edge of a stair, I even bought a platform thing that you can use to stretch your calves. You name it - I tried it. Eventually my Pilates teacher who is also a physiotherapist suggested I rest it. She also suggested dipping it into alternate hot and cold water.

I found that a pair of really supportive trainers - I bought ASICS - made a huge difference. Now I never go about in my bare feet, I always wear shoes with supportive insoles. I’m the little old lady you see all dressed up in a nice dress wearing a pair of clumpy trainers. It’s fashionable this year but believe me I was well ahead of my time.

Sparklingsunshine profile image
Sparklingsunshine in reply toFruitandnutcase

Hi

My PF was so bad I even got given a night splint which I had to put my entire lower leg into each night to keep my foot in a fixed position and to stop my foot relaxing as this then shortened the tendons and as you say it was absolute agony in the morning. I couldn't put my foot flat for several minutes.

Needless to say wearing what looked like a medieval torture device or one of the old polio calipers wasn't conducive to a peaceful night's sleep.

OKShakespeare profile image
OKShakespeare

Bartonella causes bad foot pain. If you have Lyme you may also have that. I have Lyme and probably Bartonella but have not been tested for it. Last year my foot pain was extreme and no shoe or insole helped. First one foot then the other and then both. It can go away as quickly as it came. But don't forget what caused it. It can come back again even after the pain is gone.

Hi OK Shakespeare

We’re you treated for Lyme with antibiotics? I keep being told it’s plantar but I’m sceptical as I’ve only had it since I had Lyme disease. I’m going to see a specialist at the end of November one of her specialties is Lyme so I’m hoping she may give me some answers

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