Does anyone here have issues with tremors and sudden body jerks from head to toe? I have gotten so bad that I have pending MRI and EEG scheduled. I'm very worried.
PBC and AIH - other autoimmune issues. - PBCers Organization
PBC and AIH - other autoimmune issues.
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I am so sorry I have never experienced that. Wishing you the best of luck and hoping for the best outcome and that you get this figured out!
I also am having body jerks, which I associate with fatigue. It will be interesting to see if anyone else is experiencing this problem. I thought that it might relate to narcolepsy. My primary doctor told me to not be concerned as long as it only happens when I'm sleepy.
I'm just so afraid that inflammation is attacking everything in me. Already battling heavy fatigue and most medicines to help with calming shaking, jerking, whatever... Causes even more fatigue. Having a liver disease complicates so much when it comes to finding medicines that's are safe.
I don't know what medicines they are giving you for the jerking. Like I said, my doctor is not concerned as long as they are associated with sleepiness. I have what one of my specialists' calls overlap syndrome. I have celiac (likely inherited from my father) and limited scleroderma (formerly called CREST). In addition, I have severe spinal stenosis and arthritis. I'm trying to move as much as possible. I wore myself out yesterday with 2700 steps and fell asleep for about an hour at 5 pm. As you can see, I'm not a young woman with this stuff.