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Horizant
After pregabalin and gabapentin both made me nervous (I successfully tolerated the pregabalin for years, with daytime sedation however). Codeine also seems to be waking me up instead of sedating me. Doctor is suggesting trying Horizant. I know it is for people who experience symptoms all day, but
After pregabalin and gabapentin both made me nervous (I successfully tolerated the pregabalin for years, with daytime sedation however). Codeine also seems to be waking me up instead of sedating me. Doctor is suggesting trying Horizant. I know it is for people who experience symptoms all day, but
wantokporo
in
Restless Legs Syndrome
1 year ago
ropinerole withdrawal
I have had restless legs for most of my life. The restless legs are out of control now so my GP put me on ropinerole 4 mg a day to begin with and them upped it 8 mg a day. That’s making me have funny feelings, like I’m buzzed or high but I’m not. So I went to a neurologist and he has started taking me
I have had restless legs for most of my life. The restless legs are out of control now so my GP put me on ropinerole 4 mg a day to begin with and them upped it 8 mg a day. That’s making me have funny feelings, like I’m buzzed or high but I’m not. So I went to a neurologist and he has started taking me
wyomingquilter
in
Restless Legs Syndrome
1 year ago
Attitudes to people using opiates
We all have a back story. I know nobody wishes to be thought of as a drug addict. But there may be members with RLS who are recovering drug addicts, or alcoholics trying to get their lives back on track, and needing support from this forum. Its a sensitive are. I hope I haven't offended or upset anyone
We all have a back story. I know nobody wishes to be thought of as a drug addict. But there may be members with RLS who are recovering drug addicts, or alcoholics trying to get their lives back on track, and needing support from this forum. Its a sensitive are. I hope I haven't offended or upset anyone
pennygates
in
Restless Legs Syndrome
1 year ago
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Opioid prejudice at the pharmacy
I wonder if other HU members have experienced hostile treatment from the pharmacy, while collecting their opioid medication?At my local chemist, there are a few members of staff who are rude and hostile towards patients who are prescribed opiates. I pick up my prescription every month. When I go in
I wonder if other HU members have experienced hostile treatment from the pharmacy, while collecting their opioid medication?At my local chemist, there are a few members of staff who are rude and hostile towards patients who are prescribed opiates. I pick up my prescription every month. When I go in
pennygates
in
Restless Legs Syndrome
1 year ago
Interesting Tx for OIC
Sorry about the abbreviations. If you have Opioid-Induced Constipation (OIC) you might be interested in this little story. Tx means Treatment. I am currently on low-dose opioid for RLS--buprenorphine, but previously methadone--and I suffer from OIC. I have been taking a variety of laxatives
Sorry about the abbreviations. If you have Opioid-Induced Constipation (OIC) you might be interested in this little story. Tx means Treatment. I am currently on low-dose opioid for RLS--buprenorphine, but previously methadone--and I suffer from OIC. I have been taking a variety of laxatives
Doctorplacebo
in
Restless Legs Syndrome
1 year ago
Restless Legs and Sleeping Tablets?
Tried the usual meds, Ropinirole, Amtriphyline, Pregabalin and Gabapentin - all useless. Having to stop one and gradually increase of the other has been tortuous. Hell. My mental health is suffering with the nightly and now early evening frequent, wired, compulsive urge to move. Also affecting my arm
Tried the usual meds, Ropinirole, Amtriphyline, Pregabalin and Gabapentin - all useless. Having to stop one and gradually increase of the other has been tortuous. Hell. My mental health is suffering with the nightly and now early evening frequent, wired, compulsive urge to move. Also affecting my arm
Springfiel1
in
Restless Legs Syndrome
1 year ago
HELP, PLEASE??!!
I just had a total knee replacement. For 3 years now buprenorphine has helped, but today I took hydromorphone for pain that my surgeon prescribed, Nexium that my family doctor recommended to take to keep the aspirin I have to take postop to keep from getting ulcers, and cyclobenzaprine. Unfortunately
I just had a total knee replacement. For 3 years now buprenorphine has helped, but today I took hydromorphone for pain that my surgeon prescribed, Nexium that my family doctor recommended to take to keep the aspirin I have to take postop to keep from getting ulcers, and cyclobenzaprine. Unfortunately
LanaCSR
in
Restless Legs Syndrome
1 year ago
Augmentation
Hi all , Im slowly weaning off Ropinirole and it has been hell with lots of sleepless nights , I even fell asleep walking and fell , bruising all my back .Im down to 1mg now from 6mg taking the immediate release. Last night my legs were fine until I took my tablet at 20.00 and by 20.15 they were going
Hi all , Im slowly weaning off Ropinirole and it has been hell with lots of sleepless nights , I even fell asleep walking and fell , bruising all my back .Im down to 1mg now from 6mg taking the immediate release. Last night my legs were fine until I took my tablet at 20.00 and by 20.15 they were going
Huntingleroy
in
Restless Legs Syndrome
1 year ago
Opioid induced loss of appetite
I'm currently taking Buprenorphine, but it seems to be causing a major loss of my appetite. Does anyone know if either Suboxone or Methadone are better in regard to appetite suppression? I can't tell you how important you all are to all of us trying to deal with titration off of these terrible DA's
I'm currently taking Buprenorphine, but it seems to be causing a major loss of my appetite. Does anyone know if either Suboxone or Methadone are better in regard to appetite suppression? I can't tell you how important you all are to all of us trying to deal with titration off of these terrible DA's
climber54
in
Restless Legs Syndrome
1 year ago
I don't actually know what to do now.
I spoke to my GP this afternoon as I'm really struggling with what I believe is severe augmentation. I'm on pramipexole 2 tablets and 2 x 30/500g cocodamol each evening and have been taking cocodamol for years. The pramipexole was introduced last year as my GP ideally wanted me to stop taking the cocodamol
I spoke to my GP this afternoon as I'm really struggling with what I believe is severe augmentation. I'm on pramipexole 2 tablets and 2 x 30/500g cocodamol each evening and have been taking cocodamol for years. The pramipexole was introduced last year as my GP ideally wanted me to stop taking the cocodamol
MillieBerlin
in
Restless Legs Syndrome
1 year ago
Hi, I'm New - and so sick of RLS!
Hello Everyone, I've been lurking off and on but have not posted until today. I'm really glad to have found this group and am thankful to see so much information. I've been dealing with rls for years. I'm 57 and have been on ropinirole for over 10 years now. I started out on 2mg and for the last
Hello Everyone, I've been lurking off and on but have not posted until today. I'm really glad to have found this group and am thankful to see so much information. I've been dealing with rls for years. I'm 57 and have been on ropinirole for over 10 years now. I started out on 2mg and for the last
Moonmyst
in
Restless Legs Syndrome
1 year ago
morphine alternative- any thoughts?
had a review with my GP and mentioned that I am still waking up around 2am with RLS, albeit more manageable than before. She gave me prescription for 'MORPHINE 5MG MODIFIED-RELEASE TABLETS' and said to give this a try to get me through the night. Anybody tried these and are they going to cause me issues
had a review with my GP and mentioned that I am still waking up around 2am with RLS, albeit more manageable than before. She gave me prescription for 'MORPHINE 5MG MODIFIED-RELEASE TABLETS' and said to give this a try to get me through the night. Anybody tried these and are they going to cause me issues
Phantom38
in
Restless Legs Syndrome
1 year ago
Oral Thrush
I started steroid treatment in September and have reduced dose from 20mgs to 15mgs. Throughout treatment I have had Oral Thrush. It cleared after treatment with Nystatin, but almost immediately returned. I am not taking any other medication apart from calcium and Vitamin D tablets. Is Prednisolone causing
I started steroid treatment in September and have reduced dose from 20mgs to 15mgs. Throughout treatment I have had Oral Thrush. It cleared after treatment with Nystatin, but almost immediately returned. I am not taking any other medication apart from calcium and Vitamin D tablets. Is Prednisolone causing
Aberlour
in
PMRGCAuk
2 years ago
lupus and shingles
Hey guys, I hope you’re all keeping safe and well. Just wondering if anyone has any tips or advice on how to manage having lupus and shingles! I got diagnosed on Wednesday and it’s safe to say I’m suffering a bit. Is there anything I should be looking out for? Avoiding? Thanks in advance!
Hey guys, I hope you’re all keeping safe and well. Just wondering if anyone has any tips or advice on how to manage having lupus and shingles! I got diagnosed on Wednesday and it’s safe to say I’m suffering a bit. Is there anything I should be looking out for? Avoiding? Thanks in advance!
Krishny18
in
LUPUS UK
1 year ago
Starting pregabalin
I have received a letter from Leicester hospital following my consultation with a neurology Registrar. I am on 1100mg of Gabapentin suggested dose of Pregabalin is 75mg at 6.00pm and 75mg 30 minutes before bedtime, can be uptitrated as required. Does this sound right? I have zero confidence in registrar
I have received a letter from Leicester hospital following my consultation with a neurology Registrar. I am on 1100mg of Gabapentin suggested dose of Pregabalin is 75mg at 6.00pm and 75mg 30 minutes before bedtime, can be uptitrated as required. Does this sound right? I have zero confidence in registrar
Elsie77
in
Restless Legs Syndrome
1 year ago
Clonazepam with Gabapentin
I've been following this forum for years. Thank you for your guidance. Years ago, a doctor prescribed pramipexole. It worked until it didn't. Weaned off and started Gabapentin. It helps somewhat. I take 600 + 600 three hours later, before bed, as suggested here. I recently met with a pulmonologist
I've been following this forum for years. Thank you for your guidance. Years ago, a doctor prescribed pramipexole. It worked until it didn't. Weaned off and started Gabapentin. It helps somewhat. I take 600 + 600 three hours later, before bed, as suggested here. I recently met with a pulmonologist
bbullions
in
Restless Legs Syndrome
1 year ago
which Magnesium?
I have read here of several different types of Magnesium to take for RLS. In my case it is Periodic Limb Movement as well. I take Magnesium Citrate 2x 100 mg. But I have heard people mention Magnesium Malate and Glycinate. Could Sue Johnson or anyone tell me which they think is best?
I have read here of several different types of Magnesium to take for RLS. In my case it is Periodic Limb Movement as well. I take Magnesium Citrate 2x 100 mg. But I have heard people mention Magnesium Malate and Glycinate. Could Sue Johnson or anyone tell me which they think is best?
Ruffabug
in
Restless Legs Syndrome
1 year ago
Methadone and cognition
I just had a cognition test and came out "low normal". I have felt the last couple years that my memory is not what it used to be so this is confirmation. However, I feel much more stupid on methadone. Could this be related to my dose? Take 10 mg around 10 pm, and then another 5 mg in the middle
I just had a cognition test and came out "low normal". I have felt the last couple years that my memory is not what it used to be so this is confirmation. However, I feel much more stupid on methadone. Could this be related to my dose? Take 10 mg around 10 pm, and then another 5 mg in the middle
ratfancy
in
Restless Legs Syndrome
1 year ago
OK, I'm starting from the beginning!
Right, after many attempts at restarting at week 6 and repeatedly going off the boil, I have decided to go right back to square one and start from the very beginning (a very good place to start 😉). Please may I ask you all to keep me accountable? I can do it, it's just a question of getting my mojo
Right, after many attempts at restarting at week 6 and repeatedly going off the boil, I have decided to go right back to square one and start from the very beginning (a very good place to start 😉). Please may I ask you all to keep me accountable? I can do it, it's just a question of getting my mojo
Over60sRunner
Graduate
in
Couch to 5K
1 year ago
pred and tetanus shot??
I will be speaking to a doctor at an emergency clinic but never confident they are well enough informed about the way PMR patients are dosed on pred. I would so appreciate the wisdom of this community. I got a cat scratch today...my fragile skin readily disintegrate...small amount of bleeding. Is
I will be speaking to a doctor at an emergency clinic but never confident they are well enough informed about the way PMR patients are dosed on pred. I would so appreciate the wisdom of this community. I got a cat scratch today...my fragile skin readily disintegrate...small amount of bleeding. Is
agingfeminist
in
PMRGCAuk
1 year ago
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