Attitudes to people using opiates

[pennygates]

We all have a back story. I know nobody wishes to be thought of as a drug addict. But there may be members with RLS who are recovering drug addicts, or alcoholics trying to get their lives back on track, and needing support from this forum. Its a sensitive are. I hope I haven't offended or upset anyone inadvertently.

[Joolsg]

Another useful website with articles on opioids for RLS. Dr Berkowski explains why there is still stigma around opioids for RLS.

relacshealth.com/blog/why-a...

[pennygates in reply to Joolsg]

Thanks for the link Joolsg

[Joolsg]

You certainly didn't upset me Penny. If anything, your post makes me even more determined to educate doctors and pharmacists on this overlooked and ignored disease.I'm incredibly lucky that my pharmacist us on first name terms & he is really interested in learning about opioids for refractory RLS. I've even bored him with the story of Dr John Willis, who first prescribed morphine for RLS in the 1670s!

One day, we will all be proved right and will be able to wear our T shirts stating

'I told you So'.

[pennygates in reply to Joolsg]

Your pharmacist sounds brllliant Jools, hope he spreads the word. We get a different one every day., no continuity. One day there will be a breakthrough, and the T shirts will be worn!

[Tom919]

I'm an alcoholic in recovery. At my lowest points, and until I found a combination of approaches to ease my RLS, I would be so tempted to go back to alcohol to numb the sensation until passing out. It nearly killed me on more than one occasion. I talk about it at 12-step meetings, and those of with RLS talk afterwards to discuss staying sober with RLS.

[pennygates in reply to Tom919]

I can relate to you, wanting to take such action to numb the symptoms of RLS. It's a double whammy for you, and the consequences are much worse. A year ago I lost my my lovely nephew to the illness. He was 50 years old. He had many interventions over the years. I miss him greatly. That he's not in agony anymore is a small comfort.

I wish you well on your journey to recovery with alcohol, and hope that your RLS is well managed. You have done amazingly well. Thank you for sharing .