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Pollymyalgia
I was diagnosed with pollymyalgia at Christmas and I have been taking steroid since Christmas I my levels are still High am on 15mg and of steroid now am coming down from 10mg and I have pain in my hips legs and taking painkillers most day some days are really bad
I was diagnosed with pollymyalgia at Christmas and I have been taking steroid since Christmas I my levels are still High am on 15mg and of steroid now am coming down from 10mg and I have pain in my hips legs and taking painkillers most day some days are really bad
lynnhanham24
in
PMRGCAuk
3 years ago
Mind games
I was surprised at myself this week. After managing to run my first half marathon just over a week ago I lost confidence and mojo. It sort of came from no where but also somewhere 🥴. Yes I had an extraordinarily painful back at the end of the run and it took 24 hours of rest and strong pain killers
I was surprised at myself this week. After managing to run my first half marathon just over a week ago I lost confidence and mojo. It sort of came from no where but also somewhere 🥴. Yes I had an extraordinarily painful back at the end of the run and it took 24 hours of rest and strong pain killers
Knittingrunner
Half Marathon
in
Fun Beyond 10K & Race Support
3 years ago
A Common Story
Hello All, I am new to this forum in an endeavour to find support in living with this condition - I have only recently been diagnosed at the age of 27. The gravity of it has only just hit home and I am struggling with that every day battle to live as normally as possible. My problems began at age
Hello All, I am new to this forum in an endeavour to find support in living with this condition - I have only recently been diagnosed at the age of 27. The gravity of it has only just hit home and I am struggling with that every day battle to live as normally as possible. My problems began at age
Hidden
in
Endometriosis UK
3 years ago
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What should I take after my covid 19 jab?
I realise that I have a narrative wrapped around my fears of having my first covid 19 vaccination next week. My current narrative goes like this. I imagine the jab in my left arm, the arrival of a syringe-full of non-self vaccine. Naturally my arm’s macrophages will be mobilised to the threat, like pac
I realise that I have a narrative wrapped around my fears of having my first covid 19 vaccination next week. My current narrative goes like this. I imagine the jab in my left arm, the arrival of a syringe-full of non-self vaccine. Naturally my arm’s macrophages will be mobilised to the threat, like pac
ShatteredofLee
in
Thyroid UK
3 years ago
Waiting in pain for the laparoscopy date
I was in emergency a few times due to fainting and very severe pain. I heard from them that I should not come any more to hospital, but wait at home for the letter, and in case of pains I should take painkillers because they would not help me. This is a drama. My fiance works in the afternoon and not
I was in emergency a few times due to fainting and very severe pain. I heard from them that I should not come any more to hospital, but wait at home for the letter, and in case of pains I should take painkillers because they would not help me. This is a drama. My fiance works in the afternoon and not
Nancin
in
Endometriosis UK
3 years ago
Laparoscopic surgery - disappointed
I had my 3rd laparoscopy on Thursday and I'm really angry and disappointed with it all! I had my last laparoscopy in 2013 and had mild Endo and ablitation of Endo in the pouch of Douglas. This year my period pain has been worse than ever so I decided to seek help. I had an MRI and was told that I had
I had my 3rd laparoscopy on Thursday and I'm really angry and disappointed with it all! I had my last laparoscopy in 2013 and had mild Endo and ablitation of Endo in the pouch of Douglas. This year my period pain has been worse than ever so I decided to seek help. I had an MRI and was told that I had
Trezz5
in
Endometriosis UK
3 years ago
Bleeding after endometrial biopsy
Looking for some reassurance… I had a very painful endometrial biopsy 5 days ago. The next two days I had barely any spotting but immense pain requiring opioid pain killers. The pain continued the next day with no spotting at all. Now, with pain continuing, I’m experiencing period-like bleeding 5 days
Looking for some reassurance… I had a very painful endometrial biopsy 5 days ago. The next two days I had barely any spotting but immense pain requiring opioid pain killers. The pain continued the next day with no spotting at all. Now, with pain continuing, I’m experiencing period-like bleeding 5 days
lolatx
in
Pelvic Pain Support Network
3 years ago
Terrible knee pain
Hi everyone, I’ve completed week two, run two, which is a miracle for me as I’ve never ever been a runner. I’m very proud of myself 😊 However, I started getting knee pain after my second run and its gradually got worse. I’ve increased my rest days and I stretch after my runs but the pain has been so
Hi everyone, I’ve completed week two, run two, which is a miracle for me as I’ve never ever been a runner. I’m very proud of myself 😊 However, I started getting knee pain after my second run and its gradually got worse. I’ve increased my rest days and I stretch after my runs but the pain has been so
Dancing4
in
Couch to 5K
3 years ago
How do you know if Xtandi has stopped working?
My dad is on Xtandi for the last 8 months. Last 2 months haven’t been great - increase in pains / urinary retention etc Now blood reports show his PSA increased from 0.03 to 0.04 and ALP from 173 to 281 The doc says the reports are normal and to switch from Zometa to Xgeva. (To help escape the painful
My dad is on Xtandi for the last 8 months. Last 2 months haven’t been great - increase in pains / urinary retention etc Now blood reports show his PSA increased from 0.03 to 0.04 and ALP from 173 to 281 The doc says the reports are normal and to switch from Zometa to Xgeva. (To help escape the painful
Cheerr
in
Advanced Prostate Cancer
3 years ago
Day 11 collection possible sensitive information
Today was collection day. It was all quite straight forward to honest the nurses were brilliant with me. I had a voltarol suppository before getting there, paracetamol through the drip. Then given diazepan just before. During the procedure was mild dis comfort but I had gas and air which helped felt
Today was collection day. It was all quite straight forward to honest the nurses were brilliant with me. I had a voltarol suppository before getting there, paracetamol through the drip. Then given diazepan just before. During the procedure was mild dis comfort but I had gas and air which helped felt
Emmanev1
in
Fertility Network UK
3 years ago
Waiting for a decision on Teriparatide (Part 2)
Dear friends, This is Steve again on behalf of Margaret my dear wife. Just as you dare to think matters are slowly improving, this has happened! Margaret got out of bed on Sunday morning and went to the bathroom. As she stood up she felt a vice like grip from her spine, around her ribs and crushing
Dear friends, This is Steve again on behalf of Margaret my dear wife. Just as you dare to think matters are slowly improving, this has happened! Margaret got out of bed on Sunday morning and went to the bathroom. As she stood up she felt a vice like grip from her spine, around her ribs and crushing
Angelicspirit
in
Bone Health and Osteoporosis UK
3 years ago
Pleurisy
Hi all,was diagnosed with pleurisy this morning.I've had it once before. Different side. Dr prescribed antibiotics, taking painkillers x3 a day. Hoping this will go away quickly! Can't even laugh coz that hurts,and I love laughing 😆
Hi all,was diagnosed with pleurisy this morning.I've had it once before. Different side. Dr prescribed antibiotics, taking painkillers x3 a day. Hoping this will go away quickly! Can't even laugh coz that hurts,and I love laughing 😆
Piio63
in
Lung Conditions Community Forum
3 years ago
Adult circumcision - 28 days later…
Well I’m 28 days on now from having a circumcision, following diagnosis of severe phimosis which worsened over past year or two, and led to balantis. Operation was fine & pain was & has been mild since. Not needed any painkillers at all. Recovery has been tough though and is still ongoing. I’d say the
Well I’m 28 days on now from having a circumcision, following diagnosis of severe phimosis which worsened over past year or two, and led to balantis. Operation was fine & pain was & has been mild since. Not needed any painkillers at all. Recovery has been tough though and is still ongoing. I’d say the
DRWhit
in
Men's Health Forum (Penis Health)
3 years ago
Fractured vertebrae
Hi all having a bit of a tough time! I fractured my vertebrae no really sure how! But that was 2 months ago. The pain has got worse all around lung area. Iv had X-rays to confirm. I not sure if pmr pain or vertebrae. Painkillers not touching it. Oxycodone and paracetamol. Anyone got any advice please
Hi all having a bit of a tough time! I fractured my vertebrae no really sure how! But that was 2 months ago. The pain has got worse all around lung area. Iv had X-rays to confirm. I not sure if pmr pain or vertebrae. Painkillers not touching it. Oxycodone and paracetamol. Anyone got any advice please
Uglow
in
PMRGCAuk
3 years ago
How to get partner to understand?
My current pain issues have been increasing for the last 3 years or so. My partner has been accusing me of abusing prescription painkillers (I don't) and also that I was wasting my time going to remedial massage when what I needed was a steroid injection. I finally got this last week. I think it has
My current pain issues have been increasing for the last 3 years or so. My partner has been accusing me of abusing prescription painkillers (I don't) and also that I was wasting my time going to remedial massage when what I needed was a steroid injection. I finally got this last week. I think it has
Hidden
in
Pain Concern
3 years ago
Fear of death and massive anxiety
I'm new here and hopefully can find some helpful tips to pass on to my wife . She has a complicated health history and has been to the best the USA has to offer !! She has 2 genetic disorders that are rare and the combination is only a handful in the world ( so far ) . Ehlers Danlos type 1,2,4
I'm new here and hopefully can find some helpful tips to pass on to my wife . She has a complicated health history and has been to the best the USA has to offer !! She has 2 genetic disorders that are rare and the combination is only a handful in the world ( so far ) . Ehlers Danlos type 1,2,4
1bdhaek
in
Anxiety Support
3 years ago
Nefopam for pred replacement ?
Hello all, After being on pred (7mg) for the past four years, my rhumi insists it can't be pmr as I'd have been cured by now :-( I realise from here that this is not always the case. He has prescribed nefopam to take whilst reducing preds. However, nefo is not agreeing with me at all, I struggle with
Hello all, After being on pred (7mg) for the past four years, my rhumi insists it can't be pmr as I'd have been cured by now :-( I realise from here that this is not always the case. He has prescribed nefopam to take whilst reducing preds. However, nefo is not agreeing with me at all, I struggle with
RevSmallwood
in
PMRGCAuk
3 years ago
Spinal compression
I have recently sadly sustained another spinal compression which is really painful this time. Not helped by the fact it has taken my doctors so long to sort out medication for me. I had my first in August last year and I’ve still not started on any programme after failing to get along with alendronic
I have recently sadly sustained another spinal compression which is really painful this time. Not helped by the fact it has taken my doctors so long to sort out medication for me. I had my first in August last year and I’ve still not started on any programme after failing to get along with alendronic
philippa1412
in
Bone Health and Osteoporosis UK
3 years ago
Jut got a diagnosis of fibromyalgia
hi everyone, I'm 28 and i have just been diagnosed with fibromyalgia and my GP wasn't very helpful, she's basically told me to manage my pain with pain killers and to self refer to talking changes.... has anyone used talking changes before? did it help? my main concern at the moment is that for the
hi everyone, I'm 28 and i have just been diagnosed with fibromyalgia and my GP wasn't very helpful, she's basically told me to manage my pain with pain killers and to self refer to talking changes.... has anyone used talking changes before? did it help? my main concern at the moment is that for the
Swift123
in
Fibromyalgia Action UK
3 years ago
Pain killers and a f
I have developed terrible sciatica does anyone know a safe alternative to ibuprofen?
I have developed terrible sciatica does anyone know a safe alternative to ibuprofen?
trixie100
in
AF Association
3 years ago
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