Fear of death and massive anxiety

[1bdhaek]

I'm new here and hopefully can find some helpful tips to pass on to my wife . She has a complicated health history and has been to the best the USA has to offer !! She has 2 genetic disorders that are rare and the combination is only a handful in the world ( so far ) . Ehlers Danlos type 1,2,4 & very rare (2 classes ) cross over variations & Loes Deetz . They are connective tissue disorders that deal with all tissues in the body . She dissected both corridor arteries , her aorta from top to bottom to the illeac arteries and the mesintaric to the left kidney . She was life flighted to a university hospital and underwent 10 hrs. Of open heart surgery . They replaced her aortic valve and grafted a small part of her arch . Just enough to keep her alive

The Doctors said that's all they could fix because of her disorders . They couldn't fix the rest until she was in a death situation again . ( tissues to fragile to sew ) like sewing Jello or wet tissue paper . She should be happy to be alive they say . this happened in September during covid and she is still bed ridden to this day . she is 54 years old and dealing with the fear of death at any time ( considering she is still directed 95 % of her body ) and having massive panic attacks that don't allow her to sleep anymore . Only time she gets sleep is when she goes to the ER and they give her pain killers and adavan by IV therapy . She has been on ads an since dissecting and now its backfiring . They won't put her in a syc unit to get help dealing with her situation because of her massive health conditions . She is lost and I'm looking for any insight on how to help her cope with her situation . Any help would be a blessing . I don't even know if anyone on this forum has had or know anyone in a similar situation . Thanks to anyone who reads this story till the end . sorry so long but I thought I should cut it there because this story has a 30 year length if it was complete .

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Hello

What a dreadful situation to be in there is no wonder your wife is feeling like she does

I am not sure but could you get some kind of therapy for her ?

The nature of what is causing her understandable state of mind and anxiety I wonder if you will get more helpful feedback on the BHF Community here on Health Unlocked

I will put you the link that will take you straight to the Community and you can put your post on there to x

healthunlocked.com/bhf

[b1b1b1]

Can you get a therapist to come to the house to see her? If not, I believe many (at least in the US) will offer telephonic sessions. She should also explain both the physical and mental situation to her doctors. To me, her doctors allowing her to remain in this situation, especially the mental part, is cruel. Is she unable to get out of bed, or does fear stop her? If she can get up that may also help a bit.