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Sensitivity to Levadopa
Has anyone experienced severe dyskenesia and over sensitivity to sinemet? I was taking half a25/100 x 3 a day. Just on sinemet two and half months. After flu severe reaction and dyskenesia clammy hardly able to walk. Now on quarter and 500 mgs B1 with Dr C but neurologist wants me to start Pramipexole
Has anyone experienced severe dyskenesia and over sensitivity to sinemet? I was taking half a25/100 x 3 a day. Just on sinemet two and half months. After flu severe reaction and dyskenesia clammy hardly able to walk. Now on quarter and 500 mgs B1 with Dr C but neurologist wants me to start Pramipexole
SFLR
in
Cure Parkinson's
6 years ago
Parkinsons medication interaction
Hello! I am very curious if others have had reactions to Sinemet. My husband has been on Sinemet for 3 years... the minimum dose. For the last year his quality of life has gone downhill. He was sleeping 10-12 hours a night and then falling asleep during the day. The daytime sleeping was very light as
Hello! I am very curious if others have had reactions to Sinemet. My husband has been on Sinemet for 3 years... the minimum dose. For the last year his quality of life has gone downhill. He was sleeping 10-12 hours a night and then falling asleep during the day. The daytime sleeping was very light as
BlueCrabLVR
in
Cure Parkinson's
6 years ago
Dyskinesia from coffee?
I would like to know if anybody got dyskinesia from coffee. Lately a few days ago I started to drink a cup of coffee in the morning. (I feel much better, better mood, more energy). I take every 2.75 hours 1.5 sinemet 25/100 and 3 times a day Comtan, during the night take 1 Sinemet 25/100 and 1 sinemet
I would like to know if anybody got dyskinesia from coffee. Lately a few days ago I started to drink a cup of coffee in the morning. (I feel much better, better mood, more energy). I take every 2.75 hours 1.5 sinemet 25/100 and 3 times a day Comtan, during the night take 1 Sinemet 25/100 and 1 sinemet
luba1
in
Cure Parkinson's
6 years ago
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Lyrica
I have read some of your posts about Lyrica and am not feeling very positive about trying it. My neurologist suggested it since I’m to not able to tolerate pramipexole and sinemet. I need some feedback. One of the side effects I’ve had from DAs is extreme depression/anxiety. I am at the end of my
I have read some of your posts about Lyrica and am not feeling very positive about trying it. My neurologist suggested it since I’m to not able to tolerate pramipexole and sinemet. I need some feedback. One of the side effects I’ve had from DAs is extreme depression/anxiety. I am at the end of my
Yakester
in
Restless Legs Syndrome
6 years ago
PD and Fibromyalgia linked?
My wife was diagnosed with PD back in February [2018] and takes Sinemet 25-100, 4-5 times daily. I am her caregiver. Her entire body has been racked with Fibromyalgia pain for the last 10 to 15 years. I had to be very careful to not ever apply any pressure [squeeze] an arm or leg or she would wince or
My wife was diagnosed with PD back in February [2018] and takes Sinemet 25-100, 4-5 times daily. I am her caregiver. Her entire body has been racked with Fibromyalgia pain for the last 10 to 15 years. I had to be very careful to not ever apply any pressure [squeeze] an arm or leg or she would wince or
389poncho
in
Cure Parkinson's
6 years ago
Casey a.
Had RLS from 10yrs to 20yrs subsided till I was 70yrs. Terrible, doc put me on sinemet fine for 12mths then augmentation, changed to pramipexol 18 yrs ago started @ 1x 125/day been on 3xday for 4 years now. Works well I am an old pharmacist, no side affects apart from helping sleep at night. No
Had RLS from 10yrs to 20yrs subsided till I was 70yrs. Terrible, doc put me on sinemet fine for 12mths then augmentation, changed to pramipexol 18 yrs ago started @ 1x 125/day been on 3xday for 4 years now. Works well I am an old pharmacist, no side affects apart from helping sleep at night. No
Kcay
in
Restless Legs Syndrome
6 years ago
My mum recently diagnosed with cbd/cbs after being misdiagnosed with parkinsons 2 years ago.
Hi my name is amanda my mum was misdiagnosed and treated for parkinsons 2 years ago..initially they said she had a mini stroke and vertigo after her sister died and treated this..last october 2 yeaes later she saw a neuro specialist in dublin and was diagnosed with cbd/cbs...her speech since october
Hi my name is amanda my mum was misdiagnosed and treated for parkinsons 2 years ago..initially they said she had a mini stroke and vertigo after her sister died and treated this..last october 2 yeaes later she saw a neuro specialist in dublin and was diagnosed with cbd/cbs...her speech since october
Cianodude
in
PSP Association
6 years ago
Artane and Parsitan for tremors
PHas anyone taken the drugs Artane or Parsitan for tremors and stiffness. I have not been successful with Artane and waiting on getting Paristan from Canada. I live in US and have found no relief and can't take Sinemet. It's been 3 years and now I can barely walk. I'm 66. Life is miserable. I tremor
PHas anyone taken the drugs Artane or Parsitan for tremors and stiffness. I have not been successful with Artane and waiting on getting Paristan from Canada. I live in US and have found no relief and can't take Sinemet. It's been 3 years and now I can barely walk. I'm 66. Life is miserable. I tremor
Dede65
in
Cure Parkinson's
6 years ago
Mucana question
For those who take mucana pruriens can you eat with it or take on empty stomach? I’m Getting ready to try an experiment with mixing it and my sinemet
For those who take mucana pruriens can you eat with it or take on empty stomach? I’m Getting ready to try an experiment with mixing it and my sinemet
1953bullard
in
Cure Parkinson's
6 years ago
Sinemet and anxiety
I finally saw a new neurologist last Monday. I have been off pramipexole for a couple weeks. Monday I was prescribed sinemet. In the last few nights I’ve had a good night, two bad nights and then this morning woke up after some fairly good sleep but my arms were moving and i feel anxious and depressed
I finally saw a new neurologist last Monday. I have been off pramipexole for a couple weeks. Monday I was prescribed sinemet. In the last few nights I’ve had a good night, two bad nights and then this morning woke up after some fairly good sleep but my arms were moving and i feel anxious and depressed
Yakester
in
Restless Legs Syndrome
6 years ago
URGENT REQUEST FOR HELP - BLETHERO SPASM
Hi, I have had PD for 7 years. This request is however not for me but for a close friend who has had PD for about 10 years. She is finding that when she takes Sinemet for Parkinson's relief from symptoms within minutes she gets Blethero spasm and her eyes glue shut. She is only able to see when meds
Hi, I have had PD for 7 years. This request is however not for me but for a close friend who has had PD for about 10 years. She is finding that when she takes Sinemet for Parkinson's relief from symptoms within minutes she gets Blethero spasm and her eyes glue shut. She is only able to see when meds
lauralizzie
in
Cure Parkinson's
6 years ago
Xadago
Hi everybody ! Someone experience with Xadago ?? My neurologist wants to start with it, to "prolounge" a bit the effect of my 3 times daily Sinemet. Rather than increase the effektive dosis of Sinemet......... I'm hesitating, but I have a lot of pressure to continue with my work and certainly the
Hi everybody ! Someone experience with Xadago ?? My neurologist wants to start with it, to "prolounge" a bit the effect of my 3 times daily Sinemet. Rather than increase the effektive dosis of Sinemet......... I'm hesitating, but I have a lot of pressure to continue with my work and certainly the
JANVAN
in
Cure Parkinson's
6 years ago
Feeling worried
Hey lovely team I had bad flu recently and went down hill pretty badly Parkinson's wise. Developed dyskenesia and mobility reduced. Sinemet not as effective. DX12/17 started meds 04/18 25/100 x3 a day. Was on B1 protocol taking a break. V worried now because of rapid set back that I have Parkinson's
Hey lovely team I had bad flu recently and went down hill pretty badly Parkinson's wise. Developed dyskenesia and mobility reduced. Sinemet not as effective. DX12/17 started meds 04/18 25/100 x3 a day. Was on B1 protocol taking a break. V worried now because of rapid set back that I have Parkinson's
SFLR
in
Cure Parkinson's
6 years ago
Balance issues
I have only ever taken Sinemet plus (25x100) four times daily for my PD, it is not helping my worsening balance problem, has any pwp found a medication that can help me, I am 79 and fed up withfalling over. just got through 100 tablets of thiamine in desperation, unfortunately it did not help in any
I have only ever taken Sinemet plus (25x100) four times daily for my PD, it is not helping my worsening balance problem, has any pwp found a medication that can help me, I am 79 and fed up withfalling over. just got through 100 tablets of thiamine in desperation, unfortunately it did not help in any
Ramondo
in
Cure Parkinson's
6 years ago
Taking Madopar (2)
I'm not surprised you thought my post of a couple of days ago weird, Motherfather, I left out any mention of the medicine I've been on for some time now. So here's what I intended to write (I blame the PD!). I live in the UK and so am blessed to be under the care of a Parkinson's Disease Nurse.
I'm not surprised you thought my post of a couple of days ago weird, Motherfather, I left out any mention of the medicine I've been on for some time now. So here's what I intended to write (I blame the PD!). I live in the UK and so am blessed to be under the care of a Parkinson's Disease Nurse.
plainbob
in
Cure Parkinson's
6 years ago
Holiday relief
First post on here but have been enjoying the discussions for a while. Based in the UK but had a holiday in Spain recently. Normally take 6 half-Sinemet CR a day and generally pretty well controlled. On holiday I was walking an average of 15000 steps every day including doing 1/2hr of running every
First post on here but have been enjoying the discussions for a while. Based in the UK but had a holiday in Spain recently. Normally take 6 half-Sinemet CR a day and generally pretty well controlled. On holiday I was walking an average of 15000 steps every day including doing 1/2hr of running every
buzbyc
in
Cure Parkinson's
6 years ago
How to control tremors
I have Parkinsons Disease and my main symptom is tremors. I am taking Sinemet. I do Tai Chi and yoga. What medicines or exercises do you recommend?
I have Parkinsons Disease and my main symptom is tremors. I am taking Sinemet. I do Tai Chi and yoga. What medicines or exercises do you recommend?
HarveyVChua2018
in
National Tremor Foundation
6 years ago
Ubiquino--L--
Hi ! Here an interesting study, that motivates me to buy still uibiquinol, since I begin to have "wearing off"....... :-( https://www.naturalmedicinejournal.com/journal/2016-02/reconsidering-coenzyme-q10-parkinsons-disease Tuesday appointment with my neurologist, after some months finally,..
Hi ! Here an interesting study, that motivates me to buy still uibiquinol, since I begin to have "wearing off"....... :-( https://www.naturalmedicinejournal.com/journal/2016-02/reconsidering-coenzyme-q10-parkinsons-disease Tuesday appointment with my neurologist, after some months finally,..
JANVAN
in
Cure Parkinson's
6 years ago
Entacapon(comtan)
My neurologist prescribed Entacapon for me in order to prolong my sinemet effectiveness. Unfortunately it causes sleeplessness for me and that was at a very low dose just starting to take it. I have mixed feelings about this because I really do not like starting any new meds. I want to keep them to a
My neurologist prescribed Entacapon for me in order to prolong my sinemet effectiveness. Unfortunately it causes sleeplessness for me and that was at a very low dose just starting to take it. I have mixed feelings about this because I really do not like starting any new meds. I want to keep them to a
Enidah
in
Cure Parkinson's
6 years ago
Side effects
I have had Parkinsons since December 2010 and started taking Pramipexole with no problems. It definitely helps keep my symptoms under control. About 4 years ago my symptoms started getting worse and my doctor started me on Carbodopa/Levadopa generic for Sinemet. I stared on a low dose for 3years with
I have had Parkinsons since December 2010 and started taking Pramipexole with no problems. It definitely helps keep my symptoms under control. About 4 years ago my symptoms started getting worse and my doctor started me on Carbodopa/Levadopa generic for Sinemet. I stared on a low dose for 3years with
Annie81963
in
Cure Parkinson's
6 years ago
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