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Post DBS Surgery
I am now nine weeks out from surgery. Last week I used my regulator to increase the voltage being sent to my brain. I was rewarded by feeling more energy and also being able to reduce my Sinemet 25/100 by one. Last week I walked to my mailbox and upon removing the mail, decided to walk a bit around
I am now nine weeks out from surgery. Last week I used my regulator to increase the voltage being sent to my brain. I was rewarded by feeling more energy and also being able to reduce my Sinemet 25/100 by one. Last week I walked to my mailbox and upon removing the mail, decided to walk a bit around
annmariebaird
in
Cure Parkinson's
7 years ago
Insomnia and Sinemet
I have posted before about night time meds. I have taken Sinemet plus and entecapone 4 times a day, rasagaline, 24mg ropinirole (split into three doses). Have been taking sinemet cr at 11pm for a while as I felt that I needed some PD meds during the night. However it never seems to do anything. I
I have posted before about night time meds. I have taken Sinemet plus and entecapone 4 times a day, rasagaline, 24mg ropinirole (split into three doses). Have been taking sinemet cr at 11pm for a while as I felt that I needed some PD meds during the night. However it never seems to do anything. I
Hidden
in
Cure Parkinson's
7 years ago
Sudden worsening of symptoms
Earlier this week, my husband was doing really well overall (he's on sinemet, Neupro and amantadine, btw). Then 3 days ago, his condition deteriorated terrifyingly quickly. He can no longer get in/out of bed or chairs, walk unassisted, or dress himself. Not interested in food. Some disorientation
Earlier this week, my husband was doing really well overall (he's on sinemet, Neupro and amantadine, btw). Then 3 days ago, his condition deteriorated terrifyingly quickly. He can no longer get in/out of bed or chairs, walk unassisted, or dress himself. Not interested in food. Some disorientation
Hidden
in
Cure Parkinson's
7 years ago
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Has anyone tried Nuplazid for Hallucination?
My husband, 81 yrs old has vivid and frightening hallucinations that seem to reduce/improve if he SKIPS a dose of Sinemet now & then. Does the drug contribute to this problem?
My husband, 81 yrs old has vivid and frightening hallucinations that seem to reduce/improve if he SKIPS a dose of Sinemet now & then. Does the drug contribute to this problem?
sonjadischer
in
Cure Parkinson's
7 years ago
Losing my mind!
I have rls in my feet, legs, hands and arms. It has gotten out of control. Requip was not working after about 6 years. Just started Sinemet 2 days ago and it is doing nothing. I twitch about 20 out of 24 hours. I have been getting , at most, 2 hours of sleep with occasional 5-10 minute dozes. I don't
I have rls in my feet, legs, hands and arms. It has gotten out of control. Requip was not working after about 6 years. Just started Sinemet 2 days ago and it is doing nothing. I twitch about 20 out of 24 hours. I have been getting , at most, 2 hours of sleep with occasional 5-10 minute dozes. I don't
siameezmom
in
Restless Legs Syndrome
7 years ago
Post DBS Surgery
Good morning all! I am now 7 weeks since my DBS surgery. Yes! That is the answer if anyone asks if I am happy with my decision to have the surgery. I am now walking briskly each day, active with my bookkeeping clients, and have rejoined society as an active participant. I am also "in training"
Good morning all! I am now 7 weeks since my DBS surgery. Yes! That is the answer if anyone asks if I am happy with my decision to have the surgery. I am now walking briskly each day, active with my bookkeeping clients, and have rejoined society as an active participant. I am also "in training"
annmariebaird
in
Cure Parkinson's
7 years ago
Morning dystonia
Does anyone have a solution for morning dystonia caused by levodopa. Someone suggested nepro patch can help. I have to wait to take Sinemet which although causes it also stops it. So I have to wait an,hour or two every morning with this awful till I can take first Sinemet. I was looking for non med solutions
Does anyone have a solution for morning dystonia caused by levodopa. Someone suggested nepro patch can help. I have to wait to take Sinemet which although causes it also stops it. So I have to wait an,hour or two every morning with this awful till I can take first Sinemet. I was looking for non med solutions
Connie18
in
Cure Parkinson's
7 years ago
CBD oils or ?
Anyone try CBD oils or other alternatives do to problems with Sinemet?
Anyone try CBD oils or other alternatives do to problems with Sinemet?
timetoVEGE
in
Cure Parkinson's
7 years ago
Breakfast
I keep reading that Sinemet is only for movement. Then hoe come I can no longer eat or drink before taking it in morning anymore. I feel like it has affected my digestion taking it for over 4 years. Last yearago I could eat or drink a cup of tea before taken it as long as I left enough time between to
I keep reading that Sinemet is only for movement. Then hoe come I can no longer eat or drink before taking it in morning anymore. I feel like it has affected my digestion taking it for over 4 years. Last yearago I could eat or drink a cup of tea before taken it as long as I left enough time between to
Connie18
in
Cure Parkinson's
7 years ago
Alternative treatment other than sinemet
Hi, my PD issue is mostly stiffness on my right side and shifted jaw (hard to eat) only tremor when facing some nerveousness. Thingking if there is a better alternative than taking sinemet that less side effect.Any advices? Marty hintz amino acid protocol, mucuna + tyrosine + 5htp or mucuna+ green tea
Hi, my PD issue is mostly stiffness on my right side and shifted jaw (hard to eat) only tremor when facing some nerveousness. Thingking if there is a better alternative than taking sinemet that less side effect.Any advices? Marty hintz amino acid protocol, mucuna + tyrosine + 5htp or mucuna+ green tea
Mosieta
in
Cure Parkinson's
7 years ago
How much is "high" dose?
My doctor elevate my sinemet from 2 to 3 , 10-100 mg every 3 hours and pharmacy said that was high. What say ye?
My doctor elevate my sinemet from 2 to 3 , 10-100 mg every 3 hours and pharmacy said that was high. What say ye?
moonsake10
in
Cure Parkinson's
7 years ago
Work and PD
I'm wondering how many years someone with PD can still have a job after the day he/she was diagnosed? Can someone still have a job after starting medication like Sinemet or something else?
I'm wondering how many years someone with PD can still have a job after the day he/she was diagnosed? Can someone still have a job after starting medication like Sinemet or something else?
ion_ion
in
Cure Parkinson's
7 years ago
Sinemet
Thanks everyone for the great advice ! I will consider it all.I wish each and everyone of you better health and peace of mind 🤗
Thanks everyone for the great advice ! I will consider it all.I wish each and everyone of you better health and peace of mind 🤗
Shakinginnc
in
Cure Parkinson's
7 years ago
Dystonia
Does anyone get dystonia rather than dyskinesia with too much Sinemet
Does anyone get dystonia rather than dyskinesia with too much Sinemet
Connie18
in
Cure Parkinson's
7 years ago
Sinemet
Astra 7 your reply didn’t go through with the format that you used. You can reply on this format.
Astra 7 your reply didn’t go through with the format that you used. You can reply on this format.
Shakinginnc
in
Cure Parkinson's
7 years ago
Sinemet
Hey guys, I hope you are all well🤗 My Dr. is going to start me on Sinemet next month and I have read mixed reviews on it. What are your opinions on this medication?
Hey guys, I hope you are all well🤗 My Dr. is going to start me on Sinemet next month and I have read mixed reviews on it. What are your opinions on this medication?
Shakinginnc
in
Cure Parkinson's
7 years ago
Wobbly22
My legs have been so awful this past week going to see if i can get hold of the pd nurse on friday really do need help i am taking sinemet 25/100 x2 4 times a day togetheerr with requip 8 mg one a day i must add that i also have periphial neoropath
My legs have been so awful this past week going to see if i can get hold of the pd nurse on friday really do need help i am taking sinemet 25/100 x2 4 times a day togetheerr with requip 8 mg one a day i must add that i also have periphial neoropath
Parky22
in
Cure Parkinson's
7 years ago
Sinemet after Stalevo side effects
when my husband was first diagnosed in 2012 he was started in Sinemet he did not have any side effects that I remember, about 3 years later he was changed to Stalevo as it acted longer. In the past 2 weeks or so he changed back to Sinemet because the Stalevo has gotten so expensive. Now he is having
when my husband was first diagnosed in 2012 he was started in Sinemet he did not have any side effects that I remember, about 3 years later he was changed to Stalevo as it acted longer. In the past 2 weeks or so he changed back to Sinemet because the Stalevo has gotten so expensive. Now he is having
arwenmark
in
Cure Parkinson's
7 years ago
Tremors-sinemet/ropinirole
Is anyone taking sinemet and ropinirole together? And is it alleviating tremors. I have tremors on my right arm and these meds are not doing anything to relieve it.
Is anyone taking sinemet and ropinirole together? And is it alleviating tremors. I have tremors on my right arm and these meds are not doing anything to relieve it.
Erniediaz1018
in
Cure Parkinson's
7 years ago
DBS Surgery
It has been one month since my DBS surgery - time for an update. I am now "in charge" of my regulator. This means that my neuro showed me how to change the amount of voltage is sent to each side of my brain. This allows me to increase or decrease depending on my symptoms. I was encouraged to substitute
It has been one month since my DBS surgery - time for an update. I am now "in charge" of my regulator. This means that my neuro showed me how to change the amount of voltage is sent to each side of my brain. This allows me to increase or decrease depending on my symptoms. I was encouraged to substitute
annmariebaird
in
Cure Parkinson's
7 years ago
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