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looking for the best B-complex to take along with additional B1 Hcl
I have been struggling to find the “sweet spot” with high dose thiamine therapy for almost 2 yrs. Diagnosed with PD for 7 yrs. Main issue is increasing stiffness in both legs. I try to do fast walking every day but it is becoming harder and harder. I have been taking a B-complex from Bronson’s which
I have been struggling to find the “sweet spot” with high dose thiamine therapy for almost 2 yrs. Diagnosed with PD for 7 yrs. Main issue is increasing stiffness in both legs. I try to do fast walking every day but it is becoming harder and harder. I have been taking a B-complex from Bronson’s which
Meramt
in
Cure Parkinson's
2 days ago
Severe RLS Augmentation on Pramipexole
I just discovered this wonderful site. I am 69, female, and live in Quebec, Canada. I have had RLS since I my youth and can identify with so many of your struggles. When officially diagnosed in my 20’s, I was prescribed clonazepam which helped for a few years. I then was referred to a neurologist and
I just discovered this wonderful site. I am 69, female, and live in Quebec, Canada. I have had RLS since I my youth and can identify with so many of your struggles. When officially diagnosed in my 20’s, I was prescribed clonazepam which helped for a few years. I then was referred to a neurologist and
GoForward
in
Restless Legs Syndrome
2 days ago
Ferritin concern
My Ferritin level is 126. I thought this was triggering my severe RLS since I had a total knee replacement in November , 2023. My RLS is off the rail . I want an Iron infusion, but the health group I belong to, does not believe I need this? I am traveling the next 2 months, will take Sinemet to use on
My Ferritin level is 126. I thought this was triggering my severe RLS since I had a total knee replacement in November , 2023. My RLS is off the rail . I want an Iron infusion, but the health group I belong to, does not believe I need this? I am traveling the next 2 months, will take Sinemet to use on
Skihill
in
Restless Legs Syndrome
16 days ago
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DIY compounding?
I just changed drug regimen from just Sinemet to Sinemet plus Pramipexole. When I am out and about getting 2 pills out is a pain. I asked my Neuro if it was OK to stuff them in a gelcap. She said yes. Is anyone else doing this? Problems? Now to patent it and sell it for 1000 x the cost🤣😂
I just changed drug regimen from just Sinemet to Sinemet plus Pramipexole. When I am out and about getting 2 pills out is a pain. I asked my Neuro if it was OK to stuff them in a gelcap. She said yes. Is anyone else doing this? Problems? Now to patent it and sell it for 1000 x the cost🤣😂
Ctime
in
Cure Parkinson's
21 days ago
Marginal vs Significant Sinemet Benefit
Hello again. So after a ten-month hiatus after my initial consult, the NHS finally scheduled my LCT. There was only a marginal 'on' benefit. Do we have any idea what the percentage split is between the two outcomes? Thank you.
Hello again. So after a ten-month hiatus after my initial consult, the NHS finally scheduled my LCT. There was only a marginal 'on' benefit. Do we have any idea what the percentage split is between the two outcomes? Thank you.
Dabaa
in
Cure Parkinson's
22 days ago
What happens if a normal person take sinemet regularly for long time
I tried to search any study but could not find it.
I tried to search any study but could not find it.
Farooqji
in
Cure Parkinson's
1 month ago
Sinemet Dosage
Hi all, I’ve recently been experiencing wearing off symptoms only 2 / 3 hours after taking Sinemet meds. Limbs feel heavy, tremors worse, exhausted as my body is so tense all the time. Sometimes I just try to walk it off, not very successful! The neurologist has upped my dosage to 1x25mg plus 1x12.5mg
Hi all, I’ve recently been experiencing wearing off symptoms only 2 / 3 hours after taking Sinemet meds. Limbs feel heavy, tremors worse, exhausted as my body is so tense all the time. Sometimes I just try to walk it off, not very successful! The neurologist has upped my dosage to 1x25mg plus 1x12.5mg
Lamadre
in
Cure Parkinson's
1 month ago
Sinemet dosage
My neurologist felt that I was taking too much sinemet.125/100 and cut me back from 8 pills a day to 6 every 3 hours and none at night. I wind up freezing up and can’t move in bed. I live alone and this is impossible. My mornings go fairly well but afternoons I feel I’m almost getting too much.
My neurologist felt that I was taking too much sinemet.125/100 and cut me back from 8 pills a day to 6 every 3 hours and none at night. I wind up freezing up and can’t move in bed. I live alone and this is impossible. My mornings go fairly well but afternoons I feel I’m almost getting too much.
tgargoyle
in
Cure Parkinson's
2 months ago
Adding Sinemet to Mucuna
We're trying to go in the opposite direction of many here by adding Sinemet to Mucuna and are having a heck of a time... it's been exhausting and a little scary. Hoping anyone here can help a bit. For about 6 years now, my partner Jay (diagnosed 2009) has been taking only Mucuna at rather high doses
We're trying to go in the opposite direction of many here by adding Sinemet to Mucuna and are having a heck of a time... it's been exhausting and a little scary. Hoping anyone here can help a bit. For about 6 years now, my partner Jay (diagnosed 2009) has been taking only Mucuna at rather high doses
KuriousKaty
in
Cure Parkinson's
2 months ago
Just for kicks, I asked Bing AI what bassofspades thinks about Parkinsons disease. Here’s what it came up with.
**Bassofspades** is an active member on HealthUnlocked, particularly in the Cure Parkinson's community. They have shared their personal experiences and thoughts on living with Parkinson's disease. Here are some key points from their posts: 1. **Living with Parkinson's**: Bassofspades emphasizes the
**Bassofspades** is an active member on HealthUnlocked, particularly in the Cure Parkinson's community. They have shared their personal experiences and thoughts on living with Parkinson's disease. Here are some key points from their posts: 1. **Living with Parkinson's**: Bassofspades emphasizes the
bassofspades
in
Cure Parkinson's
2 months ago
Can taking Sinemet when not needed cause PSP-like symptoms?
Hi everyone. We're in the UK. My mother in-law, at 81, was admitted to hospital in the summer of 2022 with a fall, as a result of extreme dehydration. She had been suffering many of the usual aging problems, CKD, obesity, hypertension etc and also a left hand tremor. During her stay she was treated
Hi everyone. We're in the UK. My mother in-law, at 81, was admitted to hospital in the summer of 2022 with a fall, as a result of extreme dehydration. She had been suffering many of the usual aging problems, CKD, obesity, hypertension etc and also a left hand tremor. During her stay she was treated
Lexilover24
in
PSP Association
2 months ago
Stalevo and incontinence.
OK no one likes talking about this stuff so I'm gonna be brief. I've been on Sinemet for 9 years. Entacapone introduced in February. Transferred to Stalevo over a period of four weeks, been on "all Stalevo" for about 5 days. Which, coincidentally (or perhaps not) is the same length of time I've been
OK no one likes talking about this stuff so I'm gonna be brief. I've been on Sinemet for 9 years. Entacapone introduced in February. Transferred to Stalevo over a period of four weeks, been on "all Stalevo" for about 5 days. Which, coincidentally (or perhaps not) is the same length of time I've been
Grey_Area
in
Cure Parkinson's
2 months ago
Help with Math
What is the conversion rate for 1/2 tab of generic Sinemet 25/100 and Mucuna Pruriens (Now brand containing 15% standardized L-Dopa? 2 capsules per dose=120 mg L-Dopa. Thanks Thanks
What is the conversion rate for 1/2 tab of generic Sinemet 25/100 and Mucuna Pruriens (Now brand containing 15% standardized L-Dopa? 2 capsules per dose=120 mg L-Dopa. Thanks Thanks
j4dx
in
Cure Parkinson's
3 months ago
sudden horrible off periods
after nearly 30 years dealing with this awful disease, I’m experiencing horrible wearing off symptoms. I take my sinemet every 3 hours but now if I’m just 5 to 10 late, I completely shut down, having this feeling that I’m just going to die, it’s become very scary and I’ll take my meds and just wait
after nearly 30 years dealing with this awful disease, I’m experiencing horrible wearing off symptoms. I take my sinemet every 3 hours but now if I’m just 5 to 10 late, I completely shut down, having this feeling that I’m just going to die, it’s become very scary and I’ll take my meds and just wait
Mimi828
in
Cure Parkinson's
3 months ago
Back after a long time
Hi everyone, I haven't posted in quite some time, but I'm back because I need input from all the wonderful people on this platform. More than five years ago, my mom had a fall and was put on hospice care. They gave up on us too quickly, and she ended up with an NG tube down her throat for months
Hi everyone, I haven't posted in quite some time, but I'm back because I need input from all the wonderful people on this platform. More than five years ago, my mom had a fall and was put on hospice care. They gave up on us too quickly, and she ended up with an NG tube down her throat for months
mymomhaspd
in
Cure Parkinson's
3 months ago
Has anyone ever take the med ENTACACPONE?
I am 70 years old, had PD over 5 years. Recently, the Sinemet 25/100 only can last 3 hours. My Neuro Doctor prescribed ENTACAPONE 200mg for me. But, other doctor said that will causes my Dyskinesia worse. Besides, I don’t want to take too many med every day. Has anyone ever taken this med? How does it
I am 70 years old, had PD over 5 years. Recently, the Sinemet 25/100 only can last 3 hours. My Neuro Doctor prescribed ENTACAPONE 200mg for me. But, other doctor said that will causes my Dyskinesia worse. Besides, I don’t want to take too many med every day. Has anyone ever taken this med? How does it
Grandsonlover
in
Cure Parkinson's
3 months ago
How do you grow mucuna pruriens?
I wanted to share a try I'm undertaking as an alternative to buying a jar of mucuna pruriens through Amazon, which by the way I never considered as a former Sinemet user. Instead, I've decided to grow the beans myself and witness their growth firsthand. It has no medical purpose for me since I no longer
I wanted to share a try I'm undertaking as an alternative to buying a jar of mucuna pruriens through Amazon, which by the way I never considered as a former Sinemet user. Instead, I've decided to grow the beans myself and witness their growth firsthand. It has no medical purpose for me since I no longer
Esperanto
in
Cure Parkinson's
3 months ago
Rethinking Parkinson’s Disease: could dopamine reduction therapy have clinical utility. (The article)
The replies in Michel0220's contribution regarding Jonathan Sackner Bernstein's theory on dopamine restriction naturally pertain to the video. However, I am missing the scientific basis for this. It can be found in JSB’s recent article in the Journal of Neurology. While it is somewhat understandable,
The replies in Michel0220's contribution regarding Jonathan Sackner Bernstein's theory on dopamine restriction naturally pertain to the video. However, I am missing the scientific basis for this. It can be found in JSB’s recent article in the Journal of Neurology. While it is somewhat understandable,
Esperanto
in
Cure Parkinson's
3 months ago
Rasagiline and Mucuna together?
My MDS is a huge fan of rasagiline and I’ve taken it for almost 3 years, and want to continue to take Mucuna and carbidopa as needed along with it. I've read that Mucuna should not be taken with rasagiline. Is there any truth to this? I’m not going to stop taking rasagiline, and I’d rather not start
My MDS is a huge fan of rasagiline and I’ve taken it for almost 3 years, and want to continue to take Mucuna and carbidopa as needed along with it. I've read that Mucuna should not be taken with rasagiline. Is there any truth to this? I’m not going to stop taking rasagiline, and I’d rather not start
Ob6842
in
Cure Parkinson's
3 months ago
Morning Sinemet tablet
Dear Colleagues, I was diagnosed 2 years back and have been 0n Sifrol 2/2/2 daily. in the past 120 days, I experienced lack o balance, shuffling of feet and some freezing. My neuro asked me to keep sifrol as is and start taking Sinemet 100 / 25: 3 tablets per day. I have been on Sinemet for 2 months
Dear Colleagues, I was diagnosed 2 years back and have been 0n Sifrol 2/2/2 daily. in the past 120 days, I experienced lack o balance, shuffling of feet and some freezing. My neuro asked me to keep sifrol as is and start taking Sinemet 100 / 25: 3 tablets per day. I have been on Sinemet for 2 months
michelbekhazi
in
Cure Parkinson's
3 months ago
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