Experiences with

Kineret

Cutting a long story short, suffered with RLS for over 45 years and the only med that really worked for me was Ropinerole for 10 years and then Augmentation set in. Since then I have tried, Pregablin, Gabapentin, all DA's, Tramadol, Codeine and both oxys. Some of them worked somewhat but the side effects

everything i do reminds me of what i could do which adds to my anxiety, i worked as a cbt therapist so its difficult for me to accept i have this diagnosis of psp i am avoidant a hate each day, i go back to bed x my balance is terrible but i still walk x i crash into things i know they are there . I

You be careful out there. I fell in my kitchen just walking across the kitchen floor and broke my femur. This was before Christmas. And let me tell you something like that can really set you back. I was in the hospital twice. The second time due to high blood pressure. And rehab but boy when

Hi, I’m on Sinemet (25/100 + 12.5/100) every 3 hours following neuro’s advice May last year. Also a CR 50/200 at night. I now suffer what I can only describe as feeling like my head is being squeezed, a kind of head rush, also down into my neck and upper body. sometimes as early as the 3 hour mark

I am a 68 year old who has been treated for many years with Sinemet (carbidopa/levadopa) for my RLS, which of course has led to augmentation. I have found a new doctor (in Virginia, US), who is on the medical advisory board of the RLS Foundation. He began the switchover from Sinemet to methadone last

Driven by high doses of Levocarb, On a hunch, I went back to a genetic test (which dealt with Detoxification) result from 2009 that I received early in my diagnosis that was never clearly explained to me or properly documented as it turns out. It dealt with the COMT gene. What follows is the answer to

Can DAs like Sinemet cause restless arms when taken for restless legs and doesn't go away when the medication is stopped. Edit: Just want to say thanks for all the help and advice. Feeling a bit like a zombie at the moment as I'm just so tired. It's nice to know that people care. This is a very lonely

My restless legs began 5 years ago with other menopausal symptoms. After trying most front line medication therapy i tried a ferritin infusion a few years ago . My ferritin levels were normal however i read an article that said it was impossible to measure levels of ferritin in the brain . After the

was hoping someone could help my husband is very stiff is taking sinemet but didn’t seem to be helping the Parkinson’s nurse is trying him on madopar with sinemet as fast acting for moving him carers think has made him a bit less stiff but he is getting lots of facial movements and eyes are very sore

Hi Doc, I gave the Rytary idea a go. To refresh, take 45 rytary at bedtime to hopefully give me a base to then add sinemet ir thru the day. It didn't go well. In fact, the rytary just made me feel awful in my head and gut so I aborted. I resumed the sinemet regiment of basically 1/2 and 3/4 doses

Is this peripheral neuropathy? I'm mid 70s and lucky so far, in the 10 years I've been diagnosed it's the tremors that get me most, then stiffness, rigidity, and balance. I haven't needed to see a specialist because the Sinemet has helped, for the most part. Also I walk daily about 1.5 miles and that

Hi, does anyone have experience of giving Madopar via gastrostomy tube? I'm finding it doesn't dissolve very well and I nearly blocked my husband's tube this morning, any tips would be gratefully received. Has anyone tried crushing and giving Sinemet Plus via a feeding tube? I'm wondering if this

Mitte Dezember habe ich begonnen Levodopa/Carbidopa (L/C) mit Mucuna Kapseln (40 % mit 174 mg L-Dopa) auszutauschen. Ich habe bis dahin 3 x 100/25 mg L/C eingenommen, dazu Neupro Pflaster 4 mg und 3 x 50 mg Amandantin. Zusätzlich nehme ich 1600 mg B1. Seit Anfang Dezember trinke ich morgens den „bullet

Hello everyone, Last Sunday I joined the Zoom call and shared my experience using Mucuna, the issues I've had with the Barlowe's Mucuna, and my own Mucuna mix. I had been taking Barlowe's 40% brown mucuna since late 2020, I started with green tea extract ([i]EGCG from Life Extension x2 caps[/i])

Hello, My 87 year old Mother in law was dx 4 years ago with PD, She is now started experiencing severe shuffling symptoms in the afternoon when trying to walk. She takes Sinemet, but doc switched her to Ritari to see if it helped...it did not. shes back on sinemet ANy suggested other meds that may

Has anyone else had their PD rapidly deteriorate during or following a bout of flu?I'm diagnosed 9 years and just coming out of an horrendous 4week flu (with antibiotics) Until then I was fairly mobile and 2x Sinemet plus 100 25 was lasting 2-3 hours. Now I'm getting an hour, feel horrendous and contemplating

I started hi DHA Fish oil a week ago & have experienced PD symptom relief; resulting in a 50% reduction in my Sinemet. Anyone experience this? I hope the honeymoon lasts...

Hi all, I have just been offered the Neupro patch to try to lessen off times and allow a longer sleep, less disturbed. Having looked at previous discussions here I am quite nervous about starting this patch. Is anyone using it successfully without any of the serious side effects? I am only 3 years in

Greetings to all, I don't know if it happens in your area too but here in Italy the new productions of Sinemet 100/25 no longer has the incision that allowed the tablet to be correctly divided in half. I asked the pharmaceutical company for clarification and they replied that they do not recommend

I had PD for 12 years( I am 57 now ),and I was on Sinemet 100/25 mg 1.5 tabs for 3 times a day. Sinemet works really well for me, the morning dose kicks in within 10 minutes and lasts about 2.5 hrs. The next doses take longer to work, but still havre no problem to bring me to the “ON” time . I also had