Balance issues: I have only ever taken... - Cure Parkinson's

Cure Parkinson's

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Balance issues

Ramondo profile image

I have only ever taken Sinemet plus (25x100) four times daily for my PD, it is not helping my worsening balance problem, has any pwp found a medication that can help me, I am 79 and fed up withfalling over. just got through 100 tablets of thiamine in desperation, unfortunately it did not help in any way. but I am very pleased for those it did. kind regards to you all

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15 Replies

Higher doses C/L and thiamine hcl

highdosethiamine.org/therap...

Thiamine takes 3-4 months to have effect.

I think you could discuss with your neurologist an increase of dose. You may not be seeing an effect now because your present dose is insufficient to cross the "on"/"off" threshold. Do you take your pills at a different time from eating?

John

Ramondo profile image
Ramondo in reply to johntPM

I always take my Sinemet an hour before food, I have tried doubling my tablets but then I am sick instantly. thanks for your advice.

grower profile image
grower in reply to Ramondo

If you live somewhere other than the States you can usually get a prescription for domperidone, I take it with my c/l for the morning dose and it deals with the nausea completely. Also, if you ramped up straight from 1 to two pills that would be hard, I took several weeks to gradually increase my dose.

I take Sinemet-similar dosage, and it has never helped me with my balance issues. It helps with tremor and muscle stiffness, and I can walk better, but I have not found anything that has helped me much with balance. I've tried exercises, that help a bit. Of course, not only have I been diagnosed with PD, but also Ataxia.

Ramondo profile image
Ramondo in reply to ddmagee1

Thank you, I also have Periphial neuropathy which gives me weak legs,

Life can be a bitch sometimes.

ddmagee1 profile image
ddmagee1 in reply to Ramondo

Ramondo, I also have peripheral neuropathy in all 4 limbs, that just slowly gets worse, year by year. That certainly does not help with balance issues.

I take Sinemet but think it is exercise with a PT that is helping with my balance. I still wobble but like a Weeble rarely fall over.

Thanks Jean.

Unfortunately, research indicates that balance problems aren't helped by Sinemet. I agree with Jeansm that this is an issue for PT. Work on exercise that strengthens your core muscles to improve balance.

Ramondo profile image
Ramondo in reply to Raphaekg

I think my age may be against me building any muscle. Lol

Raphaekg profile image
Raphaekg in reply to Ramondo

Ramondo, you can ALWAYS build muscle compared to the amount of muscle you have without exercise. Sure, you might not get a 'six pack' but strengthening your abdominal muscles and other core muscles compared to where you are without exercise will definitely help balance.

Vit D made a huge difference to my balance

What dosage of vit D do you take M-o-ggy ,will try that one.

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