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What do I do now?
I got diagnosed at the end of October 2021. Once diagnosed I was offered a choice of sinemet or pramipexole. At the time I was stunned and confused at what to do. I hadn’t processed anything yet. I chose pramipexole cause I got the impression it was lesser of the two evils so to speak. Now that I have
I got diagnosed at the end of October 2021. Once diagnosed I was offered a choice of sinemet or pramipexole. At the time I was stunned and confused at what to do. I hadn’t processed anything yet. I chose pramipexole cause I got the impression it was lesser of the two evils so to speak. Now that I have
Highlander63
in
Cure Parkinson's
3 years ago
Low-Dose Niacin Supplementation Improves Motor Function in US Veterans with Parkinson’s Disease: A Single-Center, Randomized, Placebo-Contro
A single-center, randomized, placebo-controlled study finds that low-dose niacin supplementation improves motor function in US Veterans with #Parkinsons; N=47, 6 months double blind followed by 6 months open label; Treatment well tolerated. "Niacin is, therefore, a promising choice as an adjunct therapy
A single-center, randomized, placebo-controlled study finds that low-dose niacin supplementation improves motor function in US Veterans with #Parkinsons; N=47, 6 months double blind followed by 6 months open label; Treatment well tolerated. "Niacin is, therefore, a promising choice as an adjunct therapy
Hidden
in
Cure Parkinson's
3 years ago
Kineret anyone?
Anyone ever been on
Kineret
? If so can you tell me please how it worked for you. How long it took to tell a difference. Thanks so much Peggy
Anyone ever been on
Kineret
? If so can you tell me please how it worked for you. How long it took to tell a difference. Thanks so much Peggy
precious123
in
NRAS
3 years ago
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Dopamine agonist withdrawal syndrome
I recently changed antidepressant medications from cipralex to trintellix . during the process I have experienced nausea vomiting, fatigue, anxiety, increased tremors and generally feeling unwell. I take sinemet three times a day and after my noon dose I get relief from these symptoms for up to four
I recently changed antidepressant medications from cipralex to trintellix . during the process I have experienced nausea vomiting, fatigue, anxiety, increased tremors and generally feeling unwell. I take sinemet three times a day and after my noon dose I get relief from these symptoms for up to four
Hidden
in
Cure Parkinson's
3 years ago
What is going on ?
If I miss taking my sinemet it seems there is no noticeable difference in my physical or mental state. Yesterday I forgot to take two sememet and I seemed to perform better this morning. Can anyone suggest what is going on ? My normal medication is 4 x100+25 sinemet.3x ropinerole,1x azilect,3x pregablin
If I miss taking my sinemet it seems there is no noticeable difference in my physical or mental state. Yesterday I forgot to take two sememet and I seemed to perform better this morning. Can anyone suggest what is going on ? My normal medication is 4 x100+25 sinemet.3x ropinerole,1x azilect,3x pregablin
Gedge01
in
Cure Parkinson's
3 years ago
Trying to get off Sinemet
Still stuck on Sinemet (100mg levidopa/25mg carbidopa) which augmented causing severe muscle rigidity along with the worsening RLS convulsions. It was originally prescribed over 2 years ago to reduce potential damages to 4th spinal surgery. No one realized it would be so difficult to stop. I tapered
Still stuck on Sinemet (100mg levidopa/25mg carbidopa) which augmented causing severe muscle rigidity along with the worsening RLS convulsions. It was originally prescribed over 2 years ago to reduce potential damages to 4th spinal surgery. No one realized it would be so difficult to stop. I tapered
betternowman
in
Restless Legs Syndrome
3 years ago
Did the Georgetown University Plan Stand a Chance?
I started this response over three weeks ago. I had some intense dyskinesia that caused me to lose content so I had to start over several times. Thank you to all those people that offered advice. I know I'm not the brightest bulb on the tree and I cannot repeat sub 5 minute miles in a marathon. At the
I started this response over three weeks ago. I had some intense dyskinesia that caused me to lose content so I had to start over several times. Thank you to all those people that offered advice. I know I'm not the brightest bulb on the tree and I cannot repeat sub 5 minute miles in a marathon. At the
Isthistheone
in
Cure Parkinson's
3 years ago
Underprescribing Sinemet for PD?
In 'The New PD Treatment Book' (2015) by Eric Ahlskog he says on page 164, start with one carbidopa/levodopa 25/100 3x daily, week 2 up the dose to 1.5 tablets 3x daily, week 3 increase to 2 tablets 3x daily, week 4 increase to 2.5; week 5 try 3 tablets 3x daily. His aim is to find by trial and error
In 'The New PD Treatment Book' (2015) by Eric Ahlskog he says on page 164, start with one carbidopa/levodopa 25/100 3x daily, week 2 up the dose to 1.5 tablets 3x daily, week 3 increase to 2 tablets 3x daily, week 4 increase to 2.5; week 5 try 3 tablets 3x daily. His aim is to find by trial and error
ramotswe
in
Cure Parkinson's
3 years ago
MSA medication
My husband was diagnosed with MSA in July and was started on Sinemet straight away. In all this time we have noticed no improvement at all. The Parkinson’s nurse discussed it with the consultant and he wanted to stop the medication altogether but she persuaded him to keep him on it a while longer. Are
My husband was diagnosed with MSA in July and was started on Sinemet straight away. In all this time we have noticed no improvement at all. The Parkinson’s nurse discussed it with the consultant and he wanted to stop the medication altogether but she persuaded him to keep him on it a while longer. Are
Redjune1
in
Multiple System Atrophy Trust
3 years ago
Back Pain at Night
After sleeping for 4 hours, I wake up with backache (muscle, I guess). The pain is not always in one spot. The location of the pain shifts in the back. It is not directly on the spine. The pain location changes while rubbing anywhere from the back of the neck to lower back. Rubbing/massage helps to
After sleeping for 4 hours, I wake up with backache (muscle, I guess). The pain is not always in one spot. The location of the pain shifts in the back. It is not directly on the spine. The pain location changes while rubbing anywhere from the back of the neck to lower back. Rubbing/massage helps to
surdug1
in
Cure Parkinson's
3 years ago
I leave here a translation from my last facebook post. Consider it as my 11 months FUS Surgery update.
Sorry for some bat translations, i'm not an english native speaker. Évora 21-27 Évora Half Marathon – 10 Km race The day started not too early, 7:45, I tried to sleep until I could, not out of laziness, but to try to have as much rest as possible and also to be able to delay taking the medication
Sorry for some bat translations, i'm not an english native speaker. Évora 21-27 Évora Half Marathon – 10 Km race The day started not too early, 7:45, I tried to sleep until I could, not out of laziness, but to try to have as much rest as possible and also to be able to delay taking the medication
Markbit
in
Cure Parkinson's
3 years ago
Numb Feet
Well I have succeeded in stopping both the Ropinerole slow release and the Sinemet Plus ! I am now on 600mg of Pregabalin and I don’t think it’s helping much at all and just a quick note thanks to reading some of the posts here I also stopped the Fluoxetine and it had a dramatic impact. My RLS improved
Well I have succeeded in stopping both the Ropinerole slow release and the Sinemet Plus ! I am now on 600mg of Pregabalin and I don’t think it’s helping much at all and just a quick note thanks to reading some of the posts here I also stopped the Fluoxetine and it had a dramatic impact. My RLS improved
Catlady4921
in
Restless Legs Syndrome
3 years ago
Can anyone tell me why sometimes 100mg/10 mg levodopa/carbidopa is used instead of standard 100/25 version
Sinemet 100/10
Sinemet 100/10
Connie18
in
Cure Parkinson's
3 years ago
The Looong Road
I am completely off Ropinerole and have also weaned myself off Fluoxetine but am struggling with Sinemet. When I finally stopped the antidepressant the RLS through the day reduced quite dramatically which really surprised and delighted me , it hasn’t stopped or reduced the evening and night sadly. Although
I am completely off Ropinerole and have also weaned myself off Fluoxetine but am struggling with Sinemet. When I finally stopped the antidepressant the RLS through the day reduced quite dramatically which really surprised and delighted me , it hasn’t stopped or reduced the evening and night sadly. Although
Catlady4921
in
Restless Legs Syndrome
3 years ago
Spanning an octave - Sinemet does it again
This is bound to be premature. I can feel the regret coming on. Just a bit of patience Winnie. Guess who's on Sinemet? Not as I wanted - but maybe my neuro knows more than I gave him credit for. I have switched back to the guy who diagnosed me, and is (relatively) just up the road. I explained that
This is bound to be premature. I can feel the regret coming on. Just a bit of patience Winnie. Guess who's on Sinemet? Not as I wanted - but maybe my neuro knows more than I gave him credit for. I have switched back to the guy who diagnosed me, and is (relatively) just up the road. I explained that
WinnieThePoo
in
Cure Parkinson's
3 years ago
Does acupuncture help tremor?
Does acupuncture help tremor? My partner has tremor which is distressing. He was diagnosed 2 years ago and given sinemet but this does not help with the tremor. I’ve read that acupuncture helps and wonder if anyone here has experience?
Does acupuncture help tremor? My partner has tremor which is distressing. He was diagnosed 2 years ago and given sinemet but this does not help with the tremor. I’ve read that acupuncture helps and wonder if anyone here has experience?
SylvesterB
in
Cure Parkinson's
3 years ago
Gastroparesis treatment?
Gastroparesis seems to be common to PD. Yesterday I realized I hadn't eaten for 15 hours but still had food in my stomach. Rytary or Sinemet are amino acids. Stomach acids must break proteins into amino acids before they can exit the stomach and be absorbed into the blood stream. The same
Gastroparesis seems to be common to PD. Yesterday I realized I hadn't eaten for 15 hours but still had food in my stomach. Rytary or Sinemet are amino acids. Stomach acids must break proteins into amino acids before they can exit the stomach and be absorbed into the blood stream. The same
kaypeeoh
in
Cure Parkinson's
3 years ago
Mucuna dosage question
I am into my sixth year of PD. Up until now, I have avoided taking any PD drugs, relying entirely on supplements, in particular high dose B1. About 10 days ago, I started taking mucuna. I have been taking capsules from piping rock, one in the morning and one in the evening. Not feeling any particular
I am into my sixth year of PD. Up until now, I have avoided taking any PD drugs, relying entirely on supplements, in particular high dose B1. About 10 days ago, I started taking mucuna. I have been taking capsules from piping rock, one in the morning and one in the evening. Not feeling any particular
Vt11
in
Cure Parkinson's
3 years ago
elevated TSH since PD diagnoses
Since being diagnosed 2 years ago, my thyroid meds have been decreased 3 times. My most recent blood test had a jump in TSH from 2 to 14 which states I am once again under-medicated, but clinically I feel fine. Has anyone else had these fluctuations in blood results from an underactive thyroid? If
Since being diagnosed 2 years ago, my thyroid meds have been decreased 3 times. My most recent blood test had a jump in TSH from 2 to 14 which states I am once again under-medicated, but clinically I feel fine. Has anyone else had these fluctuations in blood results from an underactive thyroid? If
Missy0202
in
Cure Parkinson's
3 years ago
Increasing Sinemet and Nourianz
Basically my mom has been on the same sinemet dose since diagnosed with Parkinson’s in 2016 (1 sinemet every four hours and 1 azilect). So my moms doctor has prescribed nourianz and increased her sinemet from 1 tablet (25-100) every four hours to 1 1/2 tablet every four hours. Has anyone had success
Basically my mom has been on the same sinemet dose since diagnosed with Parkinson’s in 2016 (1 sinemet every four hours and 1 azilect). So my moms doctor has prescribed nourianz and increased her sinemet from 1 tablet (25-100) every four hours to 1 1/2 tablet every four hours. Has anyone had success
jcavana
in
Cure Parkinson's
3 years ago
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