Xadago: Hi everybody ! Someone experience... - Cure Parkinson's

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Xadago

JANVAN profile image
10 Replies

Hi everybody !

Someone experience with Xadago ?? My neurologist wants to start with it, to "prolounge"

a bit the effect of my 3 times daily Sinemet. Rather than increase the effektive dosis of Sinemet......... I'm hesitating, but I have a lot of pressure to continue with my work and certainly the stiffness is getting more and more the last weeks (only right side)

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JANVAN
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10 Replies
parkie13 profile image
parkie13

If you decide to go ahead with it, please let us know how you are doing on it. I have diabetes so it's pretty important to me to find out. Thanks Mary

ruff1 profile image
ruff1

My husband is just about to start it, he takes Stelevo 125 6 x a day plus 1mg Asilect and madapor dispersal when he needs it also 20mg Ropinerole. Tomorrow he starts to withdraw from Asilect for a week then two weeks with out a MAO-B then he starts on the Safinamide . Fingers crossed that the withdrawal process is ok - he’s been on Asilect years so probably not having much affect. Been told his symptoms may deteriorate in the two weeks off the MAO-B but should feel the benefit quite quickly once he starts Safinamide 😀

pomo profile image
pomo in reply to ruff1

I've been on Xadago for 2+ years. The only problem has been getting it covered, as it's not on anyone's formulary.

jeffmayer profile image
jeffmayer

I started on it 4months ago to replace azilect can't really it's had a great deal of an effect or not as I have noticed certainly hardly anything life changing

just quite hArd to tell I couldn't say anything negative parky is a complicated condition as I am sure you are well aware

ruff1 profile image
ruff1 in reply to jeffmayer

Hi dud you have any issues coming off Asilect before you started Xadago ?

jeffmayer profile image
jeffmayer

Not personally but I am aware of people that have though to what extent I'm not sure I had been on azilect5 years and didn't really miss it

ruff1 profile image
ruff1 in reply to jeffmayer

Thankyou my husband has been on it over 5 years so hoping he won’t have any side affects. 😀

pomo profile image
pomo

I've been on Xadago for 2+ years. The only problem I've had is that it's not on anyone's fomulary.

pomo profile image
pomo

I've been on Xadago for 2+ years. The only problem has been getting it covered, as it's not on anyone's formulary.

ruff1 profile image
ruff1 in reply to pomo

We are in uk so national health covers the cost 😀

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