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7 Questions to Ask Your Rheumatologist If You’re Nervous About Getting the COVID-19 Vaccine
ex: prednisone, daily dose < 20 mg) Sulfasalazine (Azulfidine) Leflunomide (Arava) Mycophenolate (CellCept) Azathioprine (Imuran) Cyclophosphamide (Cytoxan) (oral) TNF biologics (ex: Cimzia, Enbrel, Humira, Remicade, Simponi and Simponi Aria) IL-6 biologics (ex: Actemra, Kevzara) IL-1 biologics (ex:
Kineret
ex: prednisone, daily dose < 20 mg) Sulfasalazine (Azulfidine) Leflunomide (Arava) Mycophenolate (CellCept) Azathioprine (Imuran) Cyclophosphamide (Cytoxan) (oral) TNF biologics (ex: Cimzia, Enbrel, Humira, Remicade, Simponi and Simponi Aria) IL-6 biologics (ex: Actemra, Kevzara) IL-1 biologics (ex:
Kineret
lupus-support1
Administrator
in
LUpus Patients Understanding and Support
3 years ago
Much of What We Have to Fear Is Fear Itself?
During his first inaugural address in 1933, American president Franklin D. Roosevelt famously said, "All we have to fear is fear itself." I wish it were that simple when it comes to Parkinson's Disease, but as I approach the three year anniversary of my diagnosis, I have come to believe, at least at
During his first inaugural address in 1933, American president Franklin D. Roosevelt famously said, "All we have to fear is fear itself." I wish it were that simple when it comes to Parkinson's Disease, but as I approach the three year anniversary of my diagnosis, I have come to believe, at least at
jimcaster
in
Cure Parkinson's
3 years ago
Exercising and walking when your muscles are stiff
Is high intensity exercises or long walks advisable if you have sore stiff muscles? I always thought being active as much as possible was suppose to be helpful for people with Parkinson's, but in my case it seems to make the stiffness worse the following day. Maybe it's because I'm doing some of the
Is high intensity exercises or long walks advisable if you have sore stiff muscles? I always thought being active as much as possible was suppose to be helpful for people with Parkinson's, but in my case it seems to make the stiffness worse the following day. Maybe it's because I'm doing some of the
Doohat
in
Cure Parkinson's
3 years ago
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Is this progression normal
My husband, diagnosed 2015, is really struggling. He feels rough all the time. Main symptoms are shuffling, stoop (causing back ache), balance, slowness and lack of energy so exercise is very limited. On Sinemet 3 hourly, Rasagiline 1mg and Madopar 62.5 daily + Neupro patch 4mg. Nothing new seems to
My husband, diagnosed 2015, is really struggling. He feels rough all the time. Main symptoms are shuffling, stoop (causing back ache), balance, slowness and lack of energy so exercise is very limited. On Sinemet 3 hourly, Rasagiline 1mg and Madopar 62.5 daily + Neupro patch 4mg. Nothing new seems to
Abinat58
in
Cure Parkinson's
3 years ago
Ongentys this medication WORKS!
I've been using this med for 6 months, with very positive results. I posted on this before and was surprised on the apparent low interest. Back in October 2020 I complained to my Neuro, my Sinemet was wearing off suddenly. I went from being totally functional to frozen in seconds. Also my dosage regimen
I've been using this med for 6 months, with very positive results. I posted on this before and was surprised on the apparent low interest. Back in October 2020 I complained to my Neuro, my Sinemet was wearing off suddenly. I went from being totally functional to frozen in seconds. Also my dosage regimen
Isthistheone
in
Cure Parkinson's
3 years ago
Wearing Off or Dyskinesia
Wearing Off or Dyskinesia Author: Jill Marjama-Lyons, MD and Mary J. Shoman ….possible changes to your medicines…discuss with your doctor. •Use Sinemet CR (controlled release) or Sinemet ER (extended release). •Add a dopamine agonist. •Add a COMT inhibitor to Sinemet (immediate release, CR form
Wearing Off or Dyskinesia Author: Jill Marjama-Lyons, MD and Mary J. Shoman ….possible changes to your medicines…discuss with your doctor. •Use Sinemet CR (controlled release) or Sinemet ER (extended release). •Add a dopamine agonist. •Add a COMT inhibitor to Sinemet (immediate release, CR form
Hidden
in
Cure Parkinson's
3 years ago
Sinemet intake blocked by Proteins
I was diagnosed in 1992 and have had DBS surgery. At 73, I am actually quite healthy. My question deals with protein intake due to Sinemet being blocked by animal and even quite a few plant proteins, namely amino acid foods. Are the other Parkinson drugs also sensitive to proteins? Has anyone else
I was diagnosed in 1992 and have had DBS surgery. At 73, I am actually quite healthy. My question deals with protein intake due to Sinemet being blocked by animal and even quite a few plant proteins, namely amino acid foods. Are the other Parkinson drugs also sensitive to proteins? Has anyone else
annmariebaird
in
Cure Parkinson's
3 years ago
Relief Factor
Howdy y'all,,, Has anyone or is anyone taking Relief Factor for pain / aches associated with PD? I've contacted Relief Factor. Their response is below. I left a voice mail message, earlier.. My fundamental questions surround Parkinson's Disease.... 1. Any history with customers with PD? 2. Any history
Howdy y'all,,, Has anyone or is anyone taking Relief Factor for pain / aches associated with PD? I've contacted Relief Factor. Their response is below. I left a voice mail message, earlier.. My fundamental questions surround Parkinson's Disease.... 1. Any history with customers with PD? 2. Any history
TR8Man
in
Cure Parkinson's
3 years ago
Swollowing
I'm 60 yo diagnosed with PD 10 years ago I can honestly say my symptoms have not changed much recently diagnosed with generalized anxiety disorder and have infrequent moments where I forget how to swollow is it PD GAD or just age related usually only last a few seconds and if I think about it it
I'm 60 yo diagnosed with PD 10 years ago I can honestly say my symptoms have not changed much recently diagnosed with generalized anxiety disorder and have infrequent moments where I forget how to swollow is it PD GAD or just age related usually only last a few seconds and if I think about it it
Boomercd
in
Cure Parkinson's
3 years ago
feeling fatuged
does anyone have off days with parkinsons? in the mornings my uncle before his tablets manages to have a shower get dressed by himself walk unaided and feels strong. then he feels washed out and rough afterwards until he's able to regain his strength again once his sinemet has kicked in. does anyone
does anyone have off days with parkinsons? in the mornings my uncle before his tablets manages to have a shower get dressed by himself walk unaided and feels strong. then he feels washed out and rough afterwards until he's able to regain his strength again once his sinemet has kicked in. does anyone
sjmorris31
in
Cure Parkinson's
3 years ago
Hallucinations
Can anyone give me advice on hallucinations. My partner just started on 100/25 c/l 3 times a day and has been hallucinating intermittently ever since... moreso at night. They aren’t troubling hallucinations so he’s coping fine but I worry that they’ll become more difficult to distinguish from reality
Can anyone give me advice on hallucinations. My partner just started on 100/25 c/l 3 times a day and has been hallucinating intermittently ever since... moreso at night. They aren’t troubling hallucinations so he’s coping fine but I worry that they’ll become more difficult to distinguish from reality
Scrudgie
in
Cure Parkinson's
3 years ago
Sinemet Slow-release Hard Candy
Has anyone tried making a home-made slow-release levodopa lozenge or hard candy that you can suck on and have constant levels of dopamine in your system?
Has anyone tried making a home-made slow-release levodopa lozenge or hard candy that you can suck on and have constant levels of dopamine in your system?
DeanGreen
in
Cure Parkinson's
3 years ago
How does PD lead to leg edema?
I posted a few days ago but no answers. Both legs are swollen due to pitting edema. I have slowness/weakness in my left leg. A few days ago I noticed swelling and assumed it was just in my left leg. But this photo shows swelling in both legs. [i] I started Sinemet last year. Since then
I posted a few days ago but no answers. Both legs are swollen due to pitting edema. I have slowness/weakness in my left leg. A few days ago I noticed swelling and assumed it was just in my left leg. But this photo shows swelling in both legs. [i] I started Sinemet last year. Since then
kaypeeoh
in
Cure Parkinson's
3 years ago
changing medication
hello. my uncle is 73 he has had parkinsons for nearly 10 years. he started antacapone 3 weeks ago with sinemet. this threw him and made dyskinisia worse. now he's stopped the antacapone and just takes the sinemet. however when it wear off he shakes terribly. is this normal? he doesn't seem to cope very
hello. my uncle is 73 he has had parkinsons for nearly 10 years. he started antacapone 3 weeks ago with sinemet. this threw him and made dyskinisia worse. now he's stopped the antacapone and just takes the sinemet. however when it wear off he shakes terribly. is this normal? he doesn't seem to cope very
sjmorris31
in
Cure Parkinson's
3 years ago
Getting a COVID-19 Vaccine with Autoimmune or Inflammatory Rheumatic Disease: New Guidance from the American College of Rheumatology
ex: prednisone, daily dose < 20 mg) Sulfasalazine (Azulfidine) Leflunomide (Arava) Mycophenolate (CellCept) Azathioprine (Imuran) Cyclophosphamide (Cytoxan) (oral) TNF biologics (ex: Cimzia, Enbrel, Humira, Remicade, Simponi and Simponi Aria) IL-6 biologics (ex: Actemra, Kevzara) IL-1 biologics (ex:
Kineret
ex: prednisone, daily dose < 20 mg) Sulfasalazine (Azulfidine) Leflunomide (Arava) Mycophenolate (CellCept) Azathioprine (Imuran) Cyclophosphamide (Cytoxan) (oral) TNF biologics (ex: Cimzia, Enbrel, Humira, Remicade, Simponi and Simponi Aria) IL-6 biologics (ex: Actemra, Kevzara) IL-1 biologics (ex:
Kineret
lupus-support1
Administrator
in
LUpus Patients Understanding and Support
3 years ago
Parkinson's tremor both sides now
Hello, I've only ever had left side tremor mostly my hand and lower arm. My tremor is now right side too eminating from my core down both arms into my hands. Most uncomfortable feeling ever. My core shakes. Pandemic lockdown has lessened my movement and eliminated my ability to have physical therapy
Hello, I've only ever had left side tremor mostly my hand and lower arm. My tremor is now right side too eminating from my core down both arms into my hands. Most uncomfortable feeling ever. My core shakes. Pandemic lockdown has lessened my movement and eliminated my ability to have physical therapy
Jenzo
in
Cure Parkinson's
3 years ago
Why did adding carbidopa to mucuna make me sick?
I've been using mucuna (Barlowe's Brown 40%) since March 11. It's been working pretty well, but I wanted to see if adding carbidopa would make it more effective. I had some that my neurologist prescribed when I was trying to take Sinemet, so I took half of a tablet (12.5 mg) with my 1/8 teaspoon of mucuna
I've been using mucuna (Barlowe's Brown 40%) since March 11. It's been working pretty well, but I wanted to see if adding carbidopa would make it more effective. I had some that my neurologist prescribed when I was trying to take Sinemet, so I took half of a tablet (12.5 mg) with my 1/8 teaspoon of mucuna
1LittleWillow
in
Cure Parkinson's
3 years ago
Is edema a side effect of RYTARY?
[i]I noticed some edema in my foot and ankles when first trying medications for PD. I tried Sinemet but also tried amantadine and ropinerole. I never knew which medication caused the edema. Now I'm on Rytary alone and edema is back. I wore shorts today and both the neuro and my wife noticed
[i]I noticed some edema in my foot and ankles when first trying medications for PD. I tried Sinemet but also tried amantadine and ropinerole. I never knew which medication caused the edema. Now I'm on Rytary alone and edema is back. I wore shorts today and both the neuro and my wife noticed
kaypeeoh
in
Cure Parkinson's
3 years ago
Ho bisogno di aiuto per effetti collaterali del sinemet
Salve a tutti, ho un problema e ho bisogno di un vostro consiglio, prendo 1 pasticca di sinemet a rilascio modificato 100/25 due volte al giorno. Da qualche tempo la mattina, ho la saliva scura, con delle tracce di sangue. Mi potete dire se c'è un farmaco che corrisponde al sinemet, per avere levodopa
Salve a tutti, ho un problema e ho bisogno di un vostro consiglio, prendo 1 pasticca di sinemet a rilascio modificato 100/25 due volte al giorno. Da qualche tempo la mattina, ho la saliva scura, con delle tracce di sangue. Mi potete dire se c'è un farmaco che corrisponde al sinemet, per avere levodopa
Delfino
in
Cure Parkinson's
3 years ago
Does anyone have experience taking a "drug holiday" from sinemet or any other levodopa drug? For how long? Was it successful? Did it reset?
Levodopa drug holiday?
Levodopa drug holiday?
macandcheese
in
Cure Parkinson's
3 years ago
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