feeling fatuged : does anyone have off days... - Cure Parkinson's

Cure Parkinson's

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feeling fatuged

sjmorris31 profile image
6 Replies

does anyone have off days with parkinsons? in the mornings my uncle before his tablets manages to have a shower get dressed by himself walk unaided and feels strong. then he feels washed out and rough afterwards until he's able to regain his strength again once his sinemet has kicked in.

does anyone else experience this?

he also has a condition called myasthenia gravis which is very well controlled.

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sjmorris31
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6 Replies
park_bear profile image
park_bear

My best time of day is immediately after awakening. Others have reported the same. It has been suggested that the brain accumulates dopamine during sleep and everything is great until this dopamine is used up.

ParlePark profile image
ParlePark in reply to park_bear

Mine to.

Painty23Painty profile image
Painty23Painty in reply to ParlePark

Likewise I’m great between 5 and 7 in the morning then I need Sinemet

PNIAuthor60 profile image
PNIAuthor60

Fatigue does seem to be a component of PD. My son struggles with it when his meds wear off. and speaking of meds, they don't seem to last as long anymore. I am learning a lot from the book Ending Parkinson's Disease by Ray Dorsey, Todd Sherer, PhD, Michael S. Okun, MD and Bastiaan Bloem, MD, PHD =

JustJeff profile image
JustJeff

Mines the reverse i feel dreadful first thing in the morning until madopar kicks in

Davor1 profile image
Davor1

Hi! I‘m feeling great in the morning, even after 12 hours without any meds, but if I don’t take my Madopar right after awakening I get curled toes very often.... and then it lasts about one hour until I‘m relaxed...

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