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Iboga / Ibogaine Summary (For Dopamine Regeneration!!)
I recently discovered Ibogaine / Iboga in my general psychedelics interest. It is a shrub from the Congo basin of Africa that has been used for thousands of years in healing and ceremony, stemming from the Pygmy and Fang cultures, in traditional Bwiti practices. It is still used by those that practice
I recently discovered Ibogaine / Iboga in my general psychedelics interest. It is a shrub from the Congo basin of Africa that has been used for thousands of years in healing and ceremony, stemming from the Pygmy and Fang cultures, in traditional Bwiti practices. It is still used by those that practice
pdkid
in
Cure Parkinson's
3 years ago
Any advice? Good/bad experiences with the Neupro patch for PD?
I was diagnosed with PD in 2013. No meds till 2 months ago C/L ER 25-100 mg 3x a day. for a month and half. some improvement but not great. My new neurologist wants to take me off the Sinemet ER gradually and start me on Neupro patch to reach 8mg. I have no cognitive or balance issues, mainly tremors
I was diagnosed with PD in 2013. No meds till 2 months ago C/L ER 25-100 mg 3x a day. for a month and half. some improvement but not great. My new neurologist wants to take me off the Sinemet ER gradually and start me on Neupro patch to reach 8mg. I have no cognitive or balance issues, mainly tremors
Nikosmom
in
Cure Parkinson's
3 years ago
The Value Of Carbidopa Levodopa Demonstrated in Two Signatures
One of the first decisions a PwP must make is when (or whether) to begin taking medication. There is no correct answer and we all know how PD varies from person to person. I held off for 2 1/2 years after my diagnosis, but a relatively minor event today caused me to pause and think about how well sinemet
One of the first decisions a PwP must make is when (or whether) to begin taking medication. There is no correct answer and we all know how PD varies from person to person. I held off for 2 1/2 years after my diagnosis, but a relatively minor event today caused me to pause and think about how well sinemet
jimcaster
in
Cure Parkinson's
3 years ago
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Do I have RLS?
I have been suffering from Parkinson disease for about 5 years. No matter what medication I take my legs and feet are always doing jerky movements . My neurologist says this is a side effect of the Sinemet meds but I am not convinced My condition is worse in the evening and it can be very difficult to
I have been suffering from Parkinson disease for about 5 years. No matter what medication I take my legs and feet are always doing jerky movements . My neurologist says this is a side effect of the Sinemet meds but I am not convinced My condition is worse in the evening and it can be very difficult to
cullenbc49
in
Restless Legs Syndrome
3 years ago
Amantadine for tremor?
I've needed to write a long post (or a few separate posts) for weeks now, but I'm just too busy. I'm going to try to make time to do some thorough updates on my situation soon, but I have an immediate question: I can't tolerate Sinemet (tried it from Jan. 16-Mar. 10, 2021), so my neuro (MDS) wants me
I've needed to write a long post (or a few separate posts) for weeks now, but I'm just too busy. I'm going to try to make time to do some thorough updates on my situation soon, but I have an immediate question: I can't tolerate Sinemet (tried it from Jan. 16-Mar. 10, 2021), so my neuro (MDS) wants me
1LittleWillow
in
Cure Parkinson's
3 years ago
Sinemet v carbo levodopa g
Sinemet is the Origina make/brand for levodopa and I have always had this made by Merrick Sharp Dohme Recently in found to my cost that it longer under special licence and it can be made by anyone now, but I was unaware that they would have such a different effect on me. They don’t work well at
Sinemet is the Origina make/brand for levodopa and I have always had this made by Merrick Sharp Dohme Recently in found to my cost that it longer under special licence and it can be made by anyone now, but I was unaware that they would have such a different effect on me. They don’t work well at
Connie18
in
Cure Parkinson's
3 years ago
FUS PTT Surgery. 6 months update
After 6 months things look bit more stable. I still have some issues, and sometimes it is still hard to accept that i still have Parkinson’s. 6 months gone, and gone all my dyskinesia. Still have some tremor, 90% solved on my treated side, about 80% on my untreated side, slowness it is still one of the
After 6 months things look bit more stable. I still have some issues, and sometimes it is still hard to accept that i still have Parkinson’s. 6 months gone, and gone all my dyskinesia. Still have some tremor, 90% solved on my treated side, about 80% on my untreated side, slowness it is still one of the
Markbit
in
Cure Parkinson's
3 years ago
Dopamine agonists or levodopa?
I am 53 and was diagnosed PD 8 years . I am currently on 1/2 spoon of Zandopa and 1/4 Sinemet, 4 times a day. The medication only lasts for about 2 hours, so each day has been a hell for me. I am currently deciding on whether I should go with dopamine agonists first, or I should add more zandopa/ Macuna
I am 53 and was diagnosed PD 8 years . I am currently on 1/2 spoon of Zandopa and 1/4 Sinemet, 4 times a day. The medication only lasts for about 2 hours, so each day has been a hell for me. I am currently deciding on whether I should go with dopamine agonists first, or I should add more zandopa/ Macuna
LauraYu
in
Cure Parkinson's
3 years ago
ET VS PD
I found a few studies showing ET patients have a small degree of striatal dopaminergic degeneration. I've had dominant LEFT hand tremor for 4 years. Other than the tremor I have no PD signs. I was on Sinemet for two years and now I'm on Rytary. I had the DST scan 3 months ago. It shows
I found a few studies showing ET patients have a small degree of striatal dopaminergic degeneration. I've had dominant LEFT hand tremor for 4 years. Other than the tremor I have no PD signs. I was on Sinemet for two years and now I'm on Rytary. I had the DST scan 3 months ago. It shows
kaypeeoh
in
Cure Parkinson's
3 years ago
Sinemet dose intervals
Is anybody here taking their Sinemet less than four hours between doses? I’m finding that lately taking it every three and a half hours reduces my off time and was just wondering how other PWPs manage their doses and how it works for them. Thanks. Blessings to all.
Is anybody here taking their Sinemet less than four hours between doses? I’m finding that lately taking it every three and a half hours reduces my off time and was just wondering how other PWPs manage their doses and how it works for them. Thanks. Blessings to all.
Hidden
in
Cure Parkinson's
3 years ago
Sinemet augmenting my RLS - making it worse
withdrawing from 2 years on sinemet... trying mucuna...
withdrawing from 2 years on sinemet... trying mucuna...
betternowman
in
Restless Legs Syndrome
3 years ago
Sinemet / carbidopa levodopa
“In 1988, the U.S. Food and Drug Administration (FDA) is recommended that the daily dose of Sinemet should not exceed 800 mg per day, and as of 2013, this recommendation has not been revised. In 2018 the labeling of Sinemet recommends not exceeding a levodopa total daily dose of 2,000 mg per day. As
“In 1988, the U.S. Food and Drug Administration (FDA) is recommended that the daily dose of Sinemet should not exceed 800 mg per day, and as of 2013, this recommendation has not been revised. In 2018 the labeling of Sinemet recommends not exceeding a levodopa total daily dose of 2,000 mg per day. As
Hidden
in
Cure Parkinson's
3 years ago
Food and sinemet timings
Having read in the “Parkinsons book” recommended by Roy Prosner we have been avoiding food two hours before taking sinemet and then eating an hour after. It is getting g a little difficult to plan meals around this schedule. How important is it, or should we just avoid protein during these times please
Having read in the “Parkinsons book” recommended by Roy Prosner we have been avoiding food two hours before taking sinemet and then eating an hour after. It is getting g a little difficult to plan meals around this schedule. How important is it, or should we just avoid protein during these times please
Jo692
in
Cure Parkinson's
3 years ago
Unbalance when starting moving forward again after stopping : One more symptom of PSP?
by middle of November 2020 I was diagnosed with a Parkinsonism suggestive of PSP . My only claim was “freezing of gait” only when rotating (no problem when walking forward). Recently I noticed someting new: I feel myself unbalanced when restarting walking whenever after making a stop (no problem when
by middle of November 2020 I was diagnosed with a Parkinsonism suggestive of PSP . My only claim was “freezing of gait” only when rotating (no problem when walking forward). Recently I noticed someting new: I feel myself unbalanced when restarting walking whenever after making a stop (no problem when
BluesHealer
in
PSP Association
3 years ago
Parkinson self-help books
Book Four added to Required Reading List. Required Reading Book List for Advocates of their own health. Number One: “The New Parkinson’s Disease Treatment Book” Second Edition, 2015 Dr. Eric Ahlskog, thirty-years experience. Chair of Movement Disorders Mayo Clinic. Number Two: Title: What Your Doctor
Book Four added to Required Reading List. Required Reading Book List for Advocates of their own health. Number One: “The New Parkinson’s Disease Treatment Book” Second Edition, 2015 Dr. Eric Ahlskog, thirty-years experience. Chair of Movement Disorders Mayo Clinic. Number Two: Title: What Your Doctor
Hidden
in
Cure Parkinson's
3 years ago
I am not convinced that I have PD. Could anyone tell me if they have had any of these experiences?
has anyone on a regular basis gone to bed and taken Rytary and not have to take it again for 12 hrs later. This is even after you have been awake for 2 to 3 hours? with no tremors? Do you take Rytary or Sinemet for the symptoms of being stiff but your tremors re fine? Does anyone experience Dystonia
has anyone on a regular basis gone to bed and taken Rytary and not have to take it again for 12 hrs later. This is even after you have been awake for 2 to 3 hours? with no tremors? Do you take Rytary or Sinemet for the symptoms of being stiff but your tremors re fine? Does anyone experience Dystonia
Darkflower
in
Cure Parkinson's
3 years ago
Sinemet and shakiness
Hello all! Curious if anyone has ever experienced tremoring and more shakiness after you taken Sinemet? I take 25/100 and before it starts to work I’m shaking and tremoring quite a bit before it takes effect. Any feedback would be great! Thanks.
Hello all! Curious if anyone has ever experienced tremoring and more shakiness after you taken Sinemet? I take 25/100 and before it starts to work I’m shaking and tremoring quite a bit before it takes effect. Any feedback would be great! Thanks.
MissRita
in
Cure Parkinson's
3 years ago
Coronet Duo (Red Light) Success?
Approximately three months ago, I asked if Sinemet confers residual benefits. Some of you said yes and one of you provided a link to a study suggesting that there is a long term benefit. However, I posed the same question to my Parkinson’s nurse who basically said that approximately five hours after
Approximately three months ago, I asked if Sinemet confers residual benefits. Some of you said yes and one of you provided a link to a study suggesting that there is a long term benefit. However, I posed the same question to my Parkinson’s nurse who basically said that approximately five hours after
jimcaster
in
Cure Parkinson's
3 years ago
PTT FUS 4 months later
I had today my 3 months phone consultation with Prof. J. (one month later). He saw my videos, with and without levodopa e said that i was "very close to normal". Indeed, sometimes i feel close to normal, not everyday, not every hour, but especially in the morning i feel like that. I am able to run again
I had today my 3 months phone consultation with Prof. J. (one month later). He saw my videos, with and without levodopa e said that i was "very close to normal". Indeed, sometimes i feel close to normal, not everyday, not every hour, but especially in the morning i feel like that. I am able to run again
Markbit
in
Cure Parkinson's
3 years ago
Should You Get the COVID-19 Vaccine During a Disease Flare-Up?
ex: prednisone, daily dose < 20 mg) Sulfasalazine (Azulfidine) Leflunomide (Arava) Mycophenolate (CellCept) Azathioprine (Imuran) Cyclophosphamide (Cytoxan) (oral) TNF biologics (ex: Cimzia, Enbrel, Humira, Remicade, Simponi and Simponi Aria) IL-6 biologics (ex: Actemra, Kevzara) IL-1 biologics (ex:
Kineret
ex: prednisone, daily dose < 20 mg) Sulfasalazine (Azulfidine) Leflunomide (Arava) Mycophenolate (CellCept) Azathioprine (Imuran) Cyclophosphamide (Cytoxan) (oral) TNF biologics (ex: Cimzia, Enbrel, Humira, Remicade, Simponi and Simponi Aria) IL-6 biologics (ex: Actemra, Kevzara) IL-1 biologics (ex:
Kineret
lupus-support1
Administrator
in
LUpus Patients Understanding and Support
3 years ago
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