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Kidney failure
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3 year old daughter with PKD
I know she may still have mild PKD, and it won't necessarily lead to
kidney
failure
, it's just a shock, I wasn't expecting to see cysts yet. My husband seems to be lucky, the rest of his family have been much worse than him and all had dialysis/transplants.
I know she may still have mild PKD, and it won't necessarily lead to
kidney
failure
, it's just a shock, I wasn't expecting to see cysts yet. My husband seems to be lucky, the rest of his family have been much worse than him and all had dialysis/transplants.
BP135
in
PKD Charity for Autosomal Dominant PKD
2 years ago
3 year old daughter has PKD
I know she may still have mild PKD, and it won't necessarily lead to
kidney
failure
, it's just a shock, I wasn't expecting to see cysts yet. My husband seems to be lucky, the rest of his family have been much worse than him and all had dialysis/transplants.
I know she may still have mild PKD, and it won't necessarily lead to
kidney
failure
, it's just a shock, I wasn't expecting to see cysts yet. My husband seems to be lucky, the rest of his family have been much worse than him and all had dialysis/transplants.
BP135
in
Kidney Disease
2 years ago
Queen of the Night
As a person with a spinal cord injury I have things that I deal with in addition to
kidney
failure
. Last week my wheelchair tire popped and I've been riding in my chair that doesn't have air in its tires and I also don't have the feet rests for it.
As a person with a spinal cord injury I have things that I deal with in addition to
kidney
failure
. Last week my wheelchair tire popped and I've been riding in my chair that doesn't have air in its tires and I also don't have the feet rests for it.
HipHopQueen
in
Kidney Dialysis
2 years ago
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Thinking of having a baby after 22 years with kidney can I get some advice plzzz
Hi everyone hope u guys are doing well , anywayz I have been with my kidney transplant for 22 years and I'm 34 years old and I'm finally ready to have a baby I know why now but I had been afraid even thought is something that I always wanted but when I was really young my brother told me that I would
Hi everyone hope u guys are doing well , anywayz I have been with my kidney transplant for 22 years and I'm 34 years old and I'm finally ready to have a baby I know why now but I had been afraid even thought is something that I always wanted but when I was really young my brother told me that I would
jennifer24
in
Kidney Transplant
2 years ago
Look after yourself!
Hi everyone, as you will know from previous posts, my hubby has decompensated liver and is still drinking, with an "If I die, I die" attitude. So today saw me at the GP for myself (felt a bit self indulgent tbh) and I've got low haemoglobin, low vitamin levels, possibly due to Covid a couple of months
Hi everyone, as you will know from previous posts, my hubby has decompensated liver and is still drinking, with an "If I die, I die" attitude. So today saw me at the GP for myself (felt a bit self indulgent tbh) and I've got low haemoglobin, low vitamin levels, possibly due to Covid a couple of months
MrsWorried
in
British Liver Trust
2 years ago
Severe gastric problems- MMF?
I had my kidney transplant in June of 2021 and am currently taking 500mg cell-cept bid. I started to have stomach issues around the 4 month mark, and they have progressed to the point where my daily activities, sleep, and quality of life is impacted. Up until this point, I have felt terrific! I
I had my kidney transplant in June of 2021 and am currently taking 500mg cell-cept bid. I started to have stomach issues around the 4 month mark, and they have progressed to the point where my daily activities, sleep, and quality of life is impacted. Up until this point, I have felt terrific! I
6821green
in
Kidney Transplant
2 years ago
Egfr, is it a 100 accurate
Hi, I had recent kidney function test after a high creatine reading, it was 123 umol but after only a week it dropped to 80 umol . I was diagnosed with dehydration as urea was over 7.5 then dropped to 2.4 in that week also after I increased my water intake. I was not drinking enough I have to admit.im
Hi, I had recent kidney function test after a high creatine reading, it was 123 umol but after only a week it dropped to 80 umol . I was diagnosed with dehydration as urea was over 7.5 then dropped to 2.4 in that week also after I increased my water intake. I was not drinking enough I have to admit.im
Tempest1
in
Kidney Disease
2 years ago
2nd biopsy, just started on prednisolone. Dietary help pls.
So my doctor had just started me on 25mg of prednisolone indefinitely due to the inflammation (in my kidneys?) as a result of my igA nephropathy acting more aggressively on my body. I am taking effort to abide by a low protein diet at 0.8g/protein/kg body weight per day. Aside from feeling very hungry
So my doctor had just started me on 25mg of prednisolone indefinitely due to the inflammation (in my kidneys?) as a result of my igA nephropathy acting more aggressively on my body. I am taking effort to abide by a low protein diet at 0.8g/protein/kg body weight per day. Aside from feeling very hungry
agirlwithhope95
in
Early CKD Support
2 years ago
Rosuvastatin Issue
Compared with atorvastatin, rosuvastatin was significantly associated with an 8% and 17% increased risk of hematuria and proteinuria, respectively, and a 15% increased risk of
kidney
failure
requiring replacement therapy, Dr Shin’s team reported. " https://www.renalandurologynews.com/home/news/nephrology
Compared with atorvastatin, rosuvastatin was significantly associated with an 8% and 17% increased risk of hematuria and proteinuria, respectively, and a 15% increased risk of
kidney
failure
requiring replacement therapy, Dr Shin’s team reported. " https://www.renalandurologynews.com/home/news/nephrology
Teufelshunde
in
Advanced Prostate Cancer
2 years ago
Antivirals o
Still not doing a lot , mainly outside as I have RA among other things on Methotrexate etc, but mainly because of husband is a Kidney transplant patient with Diabetes etc and his hospital checked the vaccines have not worked and still fighting for Evusheld ! Anyone with RA etc how did yiu go on with
Still not doing a lot , mainly outside as I have RA among other things on Methotrexate etc, but mainly because of husband is a Kidney transplant patient with Diabetes etc and his hospital checked the vaccines have not worked and still fighting for Evusheld ! Anyone with RA etc how did yiu go on with
trace58
in
NRAS
2 years ago
Check out the new After Transplant program on the Kidney Learning Center!
Want to know more about life after a kidney transplant? Check out NKF’s free online, self-paced After Transplant program on the Kidney Learning Center! Learn about what to expect after receiving a transplant, including medications, rejection, mental health, and practical considerations for recipients
Want to know more about life after a kidney transplant? Check out NKF’s free online, self-paced After Transplant program on the Kidney Learning Center! Learn about what to expect after receiving a transplant, including medications, rejection, mental health, and practical considerations for recipients
KateyC_NKF
Partner
in
Parents of Children with Kidney Disease
2 years ago
Being a supportive wife?
my husband has
kidney
failure
and is Waiting for a transplant. He’s currently on Dialysis 3 days a week. We did PD dialysis for about 4 months had some bumps on the road. But we back on Hemo. My husband has a fear of dying and sometimes he can’t shake it.
my husband has
kidney
failure
and is Waiting for a transplant. He’s currently on Dialysis 3 days a week. We did PD dialysis for about 4 months had some bumps on the road. But we back on Hemo. My husband has a fear of dying and sometimes he can’t shake it.
Wifey122
in
Kidney Disease
2 years ago
Another COVID Monoclonal to watch - especially in the UK and EU
https://www.prnewswire.co.uk/news-releases/exevir-bio-forges-ahead-with-unique-next-generation-covid-19-therapy-and-appoints-dr-jeanne-bolger-as-chair-of-the-board-of-directors-301654011.html [i]
ExeVir Bio Forges Ahead with Unique Next Generation COVID-19 Therapy and Appoints Dr. Jeanne Bolger as
https://www.prnewswire.co.uk/news-releases/exevir-bio-forges-ahead-with-unique-next-generation-covid-19-therapy-and-appoints-dr-jeanne-bolger-as-chair-of-the-board-of-directors-301654011.html [i]
ExeVir Bio Forges Ahead with Unique Next Generation COVID-19 Therapy and Appoints Dr. Jeanne Bolger as
SeymourB
in
CLL Support
2 years ago
Acute kidney failure
As if heart failure was not enough my non existent GP sent me a very brief letter informing me that I now have acute
kidney
failure
which may be “age related” ! Oh yea, nothing to do with the furosemide and Spirolactone I am on then.
As if heart failure was not enough my non existent GP sent me a very brief letter informing me that I now have acute
kidney
failure
which may be “age related” ! Oh yea, nothing to do with the furosemide and Spirolactone I am on then.
Callista
in
British Heart Foundation
2 years ago
Update – PV, lung carcinoid tumor and bone marrow abnormalities
Hello everyone, here’s an update on my post earlier this year asking about the likelihood of a link between the onset of PV and a lung carcinoid (tumor) obstructing the airway. The answer from different sources (including MPN team) seemed to be there was no link. However, post-surgery (tumor out and
Hello everyone, here’s an update on my post earlier this year asking about the likelihood of a link between the onset of PV and a lung carcinoid (tumor) obstructing the airway. The answer from different sources (including MPN team) seemed to be there was no link. However, post-surgery (tumor out and
Imkerin
in
MPN Voice
2 years ago
No get out of jail free card!
My neurologist, told me during one visit early on to " remember that just because a person has a chronic disease, does not give them a get out of jail free card for other illness". That quote has come back to haunt me several times since,the heart attack, kidney stones, and most recently bad news
My neurologist, told me during one visit early on to " remember that just because a person has a chronic disease, does not give them a get out of jail free card for other illness". That quote has come back to haunt me several times since,the heart attack, kidney stones, and most recently bad news
Hidden
in
My MSAA Community
2 years ago
CONGRATULATIONS!
It took me 17 years and near death experience to get a diagnosis, I carry the physical damage due to the diagnosis being missed ,
kidney
failure
, double popliteal artery occlusion, a resected bowel and more.
It took me 17 years and near death experience to get a diagnosis, I carry the physical damage due to the diagnosis being missed ,
kidney
failure
, double popliteal artery occlusion, a resected bowel and more.
lupus-support1
Administrator
in
LUpus Patients Understanding and Support
2 years ago
CONGRATULATIONS
It took me 17 years and near death experience to get a diagnosis, I carry the physical damage due to the diagnosis being missed ,
kidney
failure
, double popliteal artery occlusion, a resected bowel and more.
It took me 17 years and near death experience to get a diagnosis, I carry the physical damage due to the diagnosis being missed ,
kidney
failure
, double popliteal artery occlusion, a resected bowel and more.
MaryF
Administrator
in
Hughes Syndrome APS Forum
2 years ago
guidance please
I have had this condition I think for many years .I remember being unwell and had to go to hospital I collapsed many years ago.My husband was very ill at the time
kidney
failure
.The consultant asked me three times had I been involved in a car crash as my ESR levels were so high , hope I have spelt that
I have had this condition I think for many years .I remember being unwell and had to go to hospital I collapsed many years ago.My husband was very ill at the time
kidney
failure
.The consultant asked me three times had I been involved in a car crash as my ESR levels were so high , hope I have spelt that
Staffieblue
in
PMRGCAuk
2 years ago
Stage 2 likely?
hi, I’ve been undergoing blood test for 6 months. my creatinine levels have been high and the GP said my kidneys weren’t function as they should be for my age. I’m 42 male. Had ultra sound of kidneys and no issues found. my GFR is 61. From what I can see online it should be in 99’s on average
hi, I’ve been undergoing blood test for 6 months. my creatinine levels have been high and the GP said my kidneys weren’t function as they should be for my age. I’m 42 male. Had ultra sound of kidneys and no issues found. my GFR is 61. From what I can see online it should be in 99’s on average
J-147
in
Early CKD Support
2 years ago
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